Social research on the under-16s: A consideration of the issues from a UK perspective

Journal of Child Health Care

Volumn 8, Issue 4, 2004, Pages 253-263

  Piercy, Hilary ^a   Hargate, Maria ^a  

^a UNIVERSITY OF SHEFFIELD   (United Kingdom)

Author keywords

Consent; Research; Young people

Indexed keywords

AGE; BIOMEDICAL AND BEHAVIORAL RESEARCH; CHILD; CHILD ADVOCACY; CONFLICT; ETHICS; HUMAN; HUMAN EXPERIMENT; INFORMED CONSENT; LEGAL APPROACH; LEGAL ASPECT; MENTAL CAPACITY; ORGANIZATION; ORGANIZATION AND MANAGEMENT; PARENTAL CONSENT; PATIENT EDUCATION; PROFESSIONAL STANDARD; RESEARCH; REVIEW; UNITED KINGDOM;

BIOMEDICAL AND BEHAVIORAL RESEARCH; LEGAL APPROACH;

AGE FACTORS; CHILD; CHILD ADVOCACY; DECISION MAKING, ORGANIZATIONAL; DISSENT AND DISPUTES; ETHICS COMMITTEES, RESEARCH; GREAT BRITAIN; HUMAN EXPERIMENTATION; HUMANS; INFORMED CONSENT; MENTAL COMPETENCY; PARENTAL CONSENT; PATIENT EDUCATION; RESEARCH;

EID: 16644393028     PISSN: 13674935     EISSN: 17412889     Source Type: Journal    
DOI: 10.1177/1367493504045824     Document Type: Article

References (32)

1. Alderson, P. (1995) Listening to Children: Children, Ethics and Social Research. Ilford: Barnado's.
2. Alderson, P. and Montgomery, J. (1996) Health Care Choices. Making Decisions with Children. London: Institute for Public Policy Research.
3. Balen, R., Holroyd, C., Mountain, G. and Wood, B. (2000) 'Giving Children a Voice: Methodological and Practical Implications of Research Involving Children', Paediatric Nursing 12(10): 24-9.
4. Beresford, B. (1997) Personal Accounts. Involving Disabled Children in Research. University of York: Social Policy Research Unit.
5. British Medical Association (BMA) (2001) Consent, Rights and Choices in Health Care for Children and Young People. London: BMJ Books.
6. British Paediatric Association (BPA) Ethics Advisory Committee (1992) Guidelines for the Ethical Conduct of Work Involving Children. London: British Paediatric Association.
7. Broome, M. and Stieglitz, K. (1992) 'The Consent Process and Children', Research in Nursing 15(2): 147-52.
8. Broome, M. and Richards, D. (1998) 'Involving Children in Research', Journal of Child and Family Nursing 1(1): 3-7.
9. Carter, B. (1998) 'Children-Silent Consumers of Health Care', Journal of Child Health Care 2(2): 57.
10. Carter, B. (2002) 'Children's Participation in Health Care in the UK-Gesture, Rhetoric or Real Involvement?', Bioethics Forum 18(3-4): 29-35.
11. COREC (2000) Multi-centre Research Ethics Committee (MREC) 'Guidance Notes', URL (consulted 3 December 2003): http://www.corec.org.uk.
12. COREC (2003) 'Ethical Issues in Researching with Children', information sheets for children and young people. Central Office for Research Ethics Committees Working Party.
13. Department of Health (1996) The Patient's Charter Services for Children and Young People. London: HMSO.
14. Department of Health (2001a) Seeking Consent: Working with Children. London: Department of Health.
15. Department of Health (2001b) Consent: What You Have a Right to Expect. A Guide for Parents. London: Department of Health.
16. Department of Health (2001c) 'Guidance for Field Social Workers, Residential Social Workers and Foster Carers on Providing Information and Referring Young People to Contraceptive and Sexual Health Services', URL (consulted 19 November 2003): http://www.doh.gov.uk/qualityprotects/work_pro/socialguide.pdf.
17. Department of Health (2001d) 'The Royal Liverpool Children's Inquiry Report', URL (consulted 11 December 2003): http://www.rlcinquiry.org.uk.
18. Department of Health (2003a) Getting the Right Start: National Service Framework for Children. Standard for Hospital Services. London: Department of Health.
19. Department of Health (2003b) Draft Research Governance Framework for Health and Social Care (2nd edn), URL (consulted 11 December 2003): http://www.doh.gov.uk/research/documents/rd3/rgf2ndeditionvv22300403.doc.
20. House of Commons Health Committee (1997) The Specific Health Needs of Children and Young People (vol. 1). London: The Stationery Office.
21. Kent, G. (1997) 'The Views of Members of Local Research Ethics Committees, Researchers and Members of the Public Towards the Roles and Functions of LRECs', Journal of Medical Ethics 23(3): 186-90.
22. Lindeke, L., Hauck, M. and Tanner, M. (2000) 'Practical Issues in Obtaining Child Assent for Research', Journal of Pediatric Nursing 15(2): 99-104.
23. Mason, J. and McCall Smith, R. (1999) Law and Medical Ethics (5th edn). London: Butterworth.
24. Mitchell, K. (1984) 'Protecting Children's Rights During Research', Pediatric Nursing 10(1): 9-10.
25. Neuman, L. (2000) Social Research Methods: Qualitative and Quantitative Approaches (4th edn). Boston, MA: Allyn and Bacon.
26. Royal College of Physicians (1986) Research on Healthy Volunteers. London: Royal College of Physicians.
27. Santelli, J., Rosenfeld, W., DuRant, R., Dubler, N., Morreale, M., English, A. and Rogers, A. (1995) 'Guidelines for Adolescent Health Research: A Position Paper of the Society for Adolescent Medicine', Journal of Adolescent Health 17: 270-6.
28. Sapsford, R. and Jupp, V. (1996) Data Collection and Analysis. London: Sage.
29. Social Exclusion Unit (SEU) (1999) Teenage Pregnancy. London: HMSO. Southern Derbyshire Local Research Ethics Committee Guidelines (July 2003).
30. Sudbery, J. and Noyes, J. (1999) Voices and Choices of Children and Young People Who Use Assisted Ventilation. Bibliography and Analysis of Literature. Salford: University of Salford/Joseph Rowntree Foundation.
31. Valentine, G. (1999) 'Being Seen and Heard? The Ethical Complexities of Working with Children and Young People at Home and at School', Ethics, Place and Environment 2(2): 141-55.
32. Weithorn, L. and Sherer, D. (1994) 'Children's Involvement in Research Participation Decisions: Psychological Considerations', in M. Grodin and L. Glanz (eds) Children as Research Subjects: Science, Ethics and Law, pp. 133-79. New York: Oxford University Press.