Beginning treatment for paediatric acute myeloid leukaemia: Diagnosis and the early hospital experience

Scandinavian Journal of Caring Sciences

Volumn 18, Issue 4, 2004, Pages 358-367

  McGrath, Pam ^a   Paton, Mary Anne ^b   Huff, Nicole ^b  

^a CENTRAL QUEENSLAND UNIVERSITY   (Australia)

^b Children's Leukaemia Study   (Australia)

Author keywords

Acute myeloid leukaemia; Haematology; Paediatrics; Psycho social; Qualitative research

Indexed keywords

ACUTE GRANULOCYTIC LEUKEMIA; ART THERAPY; ARTICLE; DIAGNOSTIC PROCEDURE; EMOTIONALITY; FAMILY HEALTH; GRIEF; HUMAN; INTERVIEW; MUSIC THERAPY; QUALITATIVE RESEARCH; SOCIAL PSYCHOLOGY; ACUTE DISEASE; ADOLESCENT; ADULT; AUSTRALIA; CHILD; CHILD HOSPITALIZATION; FEMALE; LONGITUDINAL STUDY; MALE; MENTAL STRESS; MYELOID LEUKEMIA; NUCLEAR FAMILY; PSYCHOLOGICAL ASPECT;

ACUTE DISEASE; ADOLESCENT; ADULT; CHILD; CHILD, HOSPITALIZED; FEMALE; HUMANS; LEUKEMIA, MYELOID; LONGITUDINAL STUDIES; MALE; NUCLEAR FAMILY; QUEENSLAND; STRESS, PSYCHOLOGICAL;

EID: 16644383276     PISSN: 02839318     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1471-6712.2004.00293.x     Document Type: Article

References (47)

1. Arced R. Progress and controversies in the treatment of pediatric acute myelogenous leukemia. Curr Opin Hematol 2002; 9: 353-60.
2. Colby G, Chordas C. The childhood leukaemias. J Pediatr Nurs 2003; 18: 87-95.
3. Onel K, Steinherz P. Pediatric AML: past, present, and future. Can Invest 2002; 20: 1117.
4. Allan D, Buckstein R, Imrie K. Outpatient supportive care following chemotherapy for acute myeloblastic leukaemia. Leuk Lymphoma 2001; 42: 339-46.
5. Streubert J, Carpenter D. Qualitative Research in Nursing: Advancing the Humanistic Imperative. 1995, Lippincott, Philadelphia, PA.
6. Spiegelberg H. Doing Phenomenology. 1975, Nijhoff, The Hague.
7. Krathwohl D. Methods of Educational and Social Science Research: An Integrated Approach. 1993, Longman, New York, NY.
8. Polit D, Hungler B. Nursing Research: Principles and Methods, 5th edn. 1995, Lippincott, Philadelphia, PA.
9. Maxwell J. Understanding and validity in qualitative research. Harv Educ Rev 1992; 62: 279-300.
10. Hollovvay I. Basic Concepts for Qualitative Research. 1997, Blackwell Science, Oxford, UK.
11. McGrath P. Ethical reflections on the benefits of participation in a longitudinal qualitative research study. Mon Bioeth Rev 2003; 22: 63-78.
12. Mays N, Pope C. Qualitative research: rigour and qualitative research. BMJ 1995; 311: 109-112.
13. Colaizzi P. Psychological research as the phenomologist views it. In Existential-Phenomenological Alternantives in Psychology (Valle R, King M eds), 1978, Oxford University Press, New York, NY, 48-71.
14. Grbich C. Qualitative Research in Health. 1999, Allen and Unwin, St Leonards, NSW, Australia.
15. Loeb D, Arceci R. What is the optimal therapy for childhood AML? Oncology 2002; 16: 1057-66.
16. Kazak A, Barakat I. Brief report: parenting stress and quality of life during treatment for childhood leukaemia predicts child and parent adjustment after treatment ends. J Pediatr Psychol 1997; 22: 749-58.
17. Kazak A, Barakat L, Meeske K, Christakis D, Meadows A, Casey R, Penati B, Stuber M. Posttraumatic stress, family functioning, and social support in survivors of childhood leukemia and their mothers and fathers. J Consult Clin Psychol 1997; 65: 120-9.
18. Stuber M, Christakis D, Houskamp B, Kazak A. Posttrauma symptoms in childhood leukemia survivors and their parents. Psychosomatics 1996; 37: 254-1.
19. Iqbal A, Siddiqui K. Depression among parents of children with acute lymphoblastic leukaemia. J Ayub Med Coll Abbottabad 2002; 14: 6-9.
20. Koocher G, O'Malley J. The Damocles Syndrome: Psychosocial Consequences of Surviving Childhood Cancer. 1981, McGraw Hill, New York, NY.
21. Magni G, Silvestro A, Carli M, De Leo D. Social support and psychological distress of parents of children with acute lymphocytic leukaemia. Br J Med Psychol 1986; 59: 383-5.
22. Patistea E, Makrodimitri P, Panteli V. Greek parents' reactions, difficulties and resources in childhood leukaemia at the time of diagnosis. Eur J Cancer Care 2000; 9: 86-96.
23. Levi R, Marsick R, Drotar D, Kodish E. Diagnosis, disclosure, and informed consent: learning from parents of children with cancer. J Pediatr Hematol Oncol 22; 1: 3-12.
24. Sawyer M, Antoniou G, Toogood I, Rice M. Childhood cancer: a two-year prospective study of the psychological adjustment of children and parents. J Am Acad Child Adolesc Psychiatry 1997; 36: 1736-43.
25. McGrath P, Rogers T. Relocation for specialist treatment for pediatric acute lymphoblastic leukaemia. Aust As J Can 2003; 2: 107-15.
26. McGrath P. Findings on the impact of treatment for childhood acute lymphoblastic leukaemia on family relationships. Child Fam Soc Work 2001; 6: 229-38.
27. McGrath P. Beginning treatment for childhood acute lymphoblastic leukaemia: insights from the parents' perspective. Oncol Nutrs Forum 2002; 29: 988-96.
28. McGrath P. Identifying support issues of parents of children with leukaemia. Cancer Pract 2001; 9: 198-205.
29. McGrath P, Huff N. Including the fathers' perspective in holistic care. Part 1: findings on the fathers' experience with childhood acute lymphoblastic leukaemia. Aust J Hol Nurs 2003; 10: 4-12.
30. McGrath P, Huff N. Including the fathers' perspective in holistic care. Part 2: findings on the fathers' experience including restraining the child for treatment. Aust J Hol Nurs 2003; 10: 5-10.
31. McGrath P. 'Three dollars for medicine, but eight dollars to park and get it': the cost of parking in a public hospital system. Just Policy 2002; 28: 59-61.
32. McGrath P, Pitcher L. 'Enough is enough': qualitative findings on the impact of dexamethasone during reinduction/ consolidation for paediatric acute lymphoblastic leukaemia. Support Care Caner 2002; 10: 146-55.
33. McGrath P, Forrester K, Fox-Young S, Huff N. Holding the child down for treatment for paediatric haematology: the ethical, legal and practice implications. J Law Med 2002; 10: 84-96.
34. McGrath P, Irving H, Rawson-Huff N. The preferred option: general anaesthetic for paediatric lumbar puncture. Cancer Strat 2000; 2: 69-75.
35. McGrath P. Treatment for childhood acute lymphoblastic leukaemia: the fathers' perspective. Amt Health Rev 2001; 24: 135-42.
36. Michalowski M, Ketze C, Daudt L, Rohde L. Emotional and behavioural symptoms in children with acute leukemia. Haematologica 2001; 86: 821-6.
37. Noll R, MacLean W, Whitt J, Kaleita T, Stehbens J, Waskerwitz M, Ruymann F, Hammond G. Behavioral adjustment and social functioning of long-term survivors of childhood leukaemia: parent and teacher reports. J Pediatr Psychol 1997; 22: 827-41.
38. Shara P, Mehta M, Chaudhry V. Psychiatric disorders among parents of children suffering from acute lymphoblastic leukemia. Pediatr Hematol Oncol 1999; 16: 43-47.
39. Shara P, Mehta M, Chaudhry V. Psychiatric morbidity in children suffering rom acute lymphoblastic leukemia. Pediatr Hematol Oncol 1999; 16: 49-54.
40. Best M, Streisand R, Cataia L, Kazak A. Parental distress during pediatric leukemia and posttraumatic stress symptoms after treatment ends. J Pediatr Psychol 2001; 26: 299-307.
41. Barrera M, Rykov M, Doyle S. The effects of interactive music therapy on hospitalized children with cancer: a pilot study. Psychooncology 2002; 11: 379-88.
42. Favara-Scacco C, Smirne G, Schiliro G, Di-Cataldo A. Art therapy as support for children with leukaemia during painful procedures. Med Pediatr Oncol 2001; 36: 474-80.
43. Dowling J, Hockenberry M, Gregory R. Sense of humor, childhood cancer Stressors, and outcomes of psychosocial adjustment, immune function and infection. J Pediatr Oncol Nurs 2003; 20: 271-92.
44. Wills B. The experience of Hong Kong Chinese parents of children with acute lymphocytic leukaemia. J Pediatr Nurs 1999; 14: 231-8.
45. Macner-Licht B, Rajalingam V, Bernard-Opitz V. Childhood leukaemia: towards an integrated psychosocial intervention programme in Singapore. Ann Acad Med Singapore 1998; 27: 485-90.
46. Patistea E, Babatsikou F. Parents' perceptions of the information provided to them about their child's leukaemia. Eur J Oncol Nurs 2003; 7: 172-81.
47. Van-Dongen-Melman J. Information booklet for parents of children surviving cancer. Leukamia 1997; 11: 1799-806.