Instruments', 'employees', 'companions', 'social assets': Understanding relationships between persons with disabilities and their assistants in Japan

Disability and Society

Volumn 19, Issue 1, 2004, Pages 31-46

  Yamaki, Chikako Kimura ^a,b   Yamazaki, Yoshihiko ^a  

^a UNIVERSITY OF TOKYO   (Japan)

^b NATIONAL REHABILITATION CENTER FOR PERSONS WITH DISABILITIES   (Japan)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 1642477913     PISSN: 09687599     EISSN: None     Source Type: Journal    
DOI: 10.1080/0968759032000155613     Document Type: Review

References (37)

1. Askheimj O. P. (1999) Personal assistance for disabled people - the Norwegian experience, International Journal of Social Welfare, 8, 111-119.
2. Bach, J. R. & Barnett, V. (1995) Ethical considerations in the management of individuals with severe neuromuscular disorderss American Journal of Physical Medicine and Rehabilitation, 74(1), 34-40.
3. Beatty, P. W., Gordon, W., Richmond, G. W., Tepper, S. & Dejong, G. (1998) Personal assistance for people with physical disabilities: consumer-direction and satisfaction with services, Archives of Physical Medicine and Rehabilitation, 79(6), 674-677.
4. Bowers, B. J., Fibich, B. & Jacobson, N. (2001) Care-as-service, care-as-relating, care-as-comfort: understanding nursing home residents' definitions of quality, Gerontologist, 41(4), 539-545.
5. Cnaan, R. A. & Cascio, T. A. (1999) Performance and commitment: issues in management of volunteers in human service organizations, Journal of Social Service Research, 24(3/4), 1-37.
6. Coyle, J. (1999) Exploring the meaning of 'dissatisfaction' with health care: the importance of 'personal identity threat' care work, Sociology of Health and Illness, 21(1), 95-123.
7. DeJong, G. (1979) Independent living: from social movement to analytic paradigm, Archives of Physical Medicine and Rehabilitation, 60(10), 435-446.
8. DeJong, G. & Wenker, T. (1979) Attendant care as a prototype Independent Living service, Archives of Physical Medicine and Rehabilitation, 60(10), 447-482.
9. Doyle, Y. (1995) Disability: use of an independent living fund in south east London and users' views about the system of cash versus care provision, Journal of Epidemiology and Community Health, 49(1), 43-47.
10. Egan, M. & Kadushin, G. (1998) The social worker in the emerging field of home care: professional activities and ethical concerns, Health and Social Work, 24(1), 43-55.
11. Eustis, N. N. & Fischer, L. R. (1991) Relationships between home care clients and their workers: implications for quality of care, Gerontologist, 31(4), 447-456.
12. Eustis, N. N., Kane, R. A. & Fischer, L. R. (1993) Home care quality and the home care worker: beyond quality assurance as usual, Gerontologist, 33(1), 64-73.
13. Gillick, M., Berkman, S. & Cullen, L. (1999) A patient-centred approach to advance medical planning in the nursing home, Journal of the American Geriatrics Society, 47(2), 227-230.
14. Gilson, S. F. & Casebolt, G. J. (1997) Personal assistance services and case management, Journal of Case Management, 6(1), 13-17.
15. Goffman, E. (1961) Asylums: essays on the social situations of mental patients and other inmates (Garden City, NY, Anchor Books).
16. Haug, M. & Levin, B. (1981) Practitioner or patient - who's in charge? Journal of Health and Social Behavior, 22(3), 212-229.
17. Health and Welfare Statistics Association (1997) Shogai-sha no fukushi, Journal of Health and Welfare Statistics, 44(12) [In Japanese].
18. Kane, R. A., Kane, R. L., Illston, L. H. & Eustis, N. N. (1994) Perspectives on home care quality, Health Care Financial Review, 16(1), 69-89.
19. Laamanen, R., Broms, U., Häppölä, A. & Brommel, M. (1999) Changes in the work and motivation of staff delivering home care services in Finland, Public Health Nursing, 16(1), 60-71.
20. Lofland, J. & Lofland, L. (1995) Analyzing social settings: a guide to qualitative observation and analysis (3rd edn) (Belmont, CA, Wadsworth Publishing Company).
21. Marquis, R. & Jackson, R. (2000) Quality of life and quality of service relationships: experiences of people with disabilities, Disability & Society, 15(3), 411-425.
22. Marx, J. D. (1999) Motivational characteristics associated with health and human service volunteers, Administration in Social Work, 23(1), 51-66.
23. Miller, K., Birkholt, M., Scott, C. & Stage, C. (1995) Empathy and burnout in human service work: an extension of a communication model, Communication Research, 22(2), 123-147.
24. Morris, J. (1997) Care or empowerment? A disability rights perspective, Social Policy & Administration, 31(1), 54-60.
25. Okaharaj M. (1995) Konfulikuto he no jiyu - kaijo kankei no mosaku, in: J. Asaka, F. Okahara, S. Onaka & S. Tateiwa (Eds) Sei-no Giho (2nd edn) (Tokyo, Fujiwara Shoten), 165-225 [In Japanese].
26. Patterson, J. B. & Marks, C. (1992) The client as customer: achieving service quality and customer satisfaction. Journal of Rehabilitation, 58(4), 16-21.
27. Piercy, K. W. (2000) When it is more than a job: close relationships between home health aides and older clients, Journal of Aging and Health, 12(3), 362-387.
28. Ratzkaj A. D. (1991) Independent living and attendant care in Sweden: a consumer perspective (H. Katoda & D. M. Koseki, Trans., original work published in 1986 (Berkeley, CA, World Institute on Disability) and revised in 1991, unpublished).
29. Riley, P. A., Fortinsky, R H. & Coburn, A. F. (1992) Developing consumer-centred quality assurance strategies for home care: case management model, Journal of Case Management, 1(2), 39-48.
30. Spradley, J. P. (1979) The ethnographic interview (New York, Harcourt Brace).
31. Stewart, M., Brown, J. B., Weston, W. W., McWhineey, I. R., McWlliam, C. L. & Freeman, T. R. (1995) Patient-centred medicine: transforming the clinical method (Thousand Oaks, CA, Sage).
32. Tateiwa, S. (1995) Hayaku Yukkuri-jiritsu seikatsu undou no seisei to tenkai, in: J. Asaka, F. Okahara, S. Onaka & S. Tateiwa (Eds) Sei-no Giho (2nd edn) (Tokyo, Fujiwara Shoten), 165-225 [In Japanese].
33. Townsend, E. & Ryan, B. (1991) Assessing independence in community living, Canadian Journal of Public Health, 82, 52-57.
34. Ungerson, C. (1999) Personal assistants and disabled people: an examination of a hybrid form of work and care, Work, Employment & Society, 13(4), 583-600.
35. Vivian, B. G. & Wilcox, J. R. (2000) Compliance communication in home health care: a mutually reciprocal process, Qualitative Health Research, 10(1), 103-116.
36. Woodruff, L. & Applebaum, R. (1996) Assuring the quality of in-home supportive services: a consumer perspective, Journal of Aging Studies, 10(2), 157-169.
37. Wong, H. D. & Millard, R. P. (1992) Ethical dilemmas encountered by Independent Living service providers, Journal of Rehabilitation, 58(4), 10-15.