Role of spirituality and religion in family quality of life for families of children with disabilities

Education and Training in Developmental Disabilities

Volumn 39, Issue 2, 2004, Pages 95-108

  Poston, Denise J ^a,b   Turnbull, Ann P ^a  

^a UNIVERSITY OF KANSAS   (United States)

^b UNIVERSITY OF KANSAS   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 16244366461     PISSN: 15470350     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (45)

1. The Accreditation Council on Services for People with Disabilities. (1995). Outcome measures far early childhood intervention services. Towson, MD: Author.
2. Allen, R. I., & Petr, C. G. (1996). Toward developing standards and measurements for family-centered practice in family support programs. In G. H. S. Singer, L. E. Powers, & A. L. Olson (Eds.), Redefining family support: Innovations in public-private partnerships (pp. 57-86). Baltimore: Brookes.
3. Bailey, D. B., & McWilliam, P.J. (1993). The search for quality indicators. In P. J. McWilliam & D. B. Bailey (Eds.), Working together with children and families (pp. 3-20). Baltimore: Brookes.
4. Bailey, D. B., McWilliam, R. A., Darkes, L. A., Hebbeler, K., Simeonsson, R. J., Spiker, D., et al. (1998). Family outcomes in early intervention: A framework for program evaluation and efficacy research. Exceptional Children, 64, 313-328.
5. Brotherson, M. J., & Goldstein, B. L. (1992). Quality design of focus groups in early childhood special education research. Journal of Early Intervention, 16, 334-342.
6. nd ed.). Cheltenham, UK: Stanley Thornes, Ltd.
7. Byrd, E. K. (1997). Concepts related to inclusion of the spiritual component in services to persons with disability and chronic illness. Journal of Applied Rehabilitation Counseling, 25(4), 26-29.
8. Canda, E. R. (1999). Spiritually sensitive social work: Key concepts and ideals. Journal of Social Work Theory and Practice, 1(1), 1-15. Retrieved November 19, 2002, from http://www.bemidjistate.edu/sw_journal/issue1/contents. html
9. Canda, E. R. (2001). Transcending through disability and death: Transpersonal themes in living with cystic fibrosis. In E. R. Canda & E. D. Smith (Eds.), Transpersonal perspectives on spirituality in social work (pp. 109-134). New York: The Haworth Press.
10. Cummins, R. A. (1997). Assessing quality of life. In R. I. Brown (Ed.), Quality of life for people with disabilities: Model, research and practice (pp. 116-150). Cheltenham, UK: Stanley Thornes, Ltd.
11. Cummins, R. A., & Baxter, C. (1997). The influence of disability and service delivery on quality of life within families. International Journal of Practical Approaches to Disability, 27(3), 2-8.
12. do Rozario, L. (1997). Spirituality in the lives of people with disability and chronic illness: A creative paradigm of wholeness and reconstitution. Disability and Rehabilitation, 19, 427-434.
13. Dunst, C. J., Johnson, D., Trivette, C. M., & Hamby, D. (1991). Family-oriented early intervention policies and practices: Family-centered or not? Exceptional Children, 58, 115-126.
14. Erlandson, D. A., Harris, E. L., Skipper, B. L., & Allen, S. D. (1993). Doing naturalistic inquiry: A guide to methods. Newbury Park, CA: Sage.
15. Felce, D. (1997). Defining and applying the concept of quality of life. Journal of Intellectual Disability Research, 41, 126-135.
16. nd ed., pp. 56-71). Cheltenham, UK: Stanley Thornes, Ltd.
17. Fitchette, G. (1993). Assessing spiritual needs: A guide for caregivers. Minneapolis: Augsburg/Fortress Press.
18. Fitzgerald, J. (1997). Reclaiming the whole: Self, spirit, and society. Disability and Rehabilitation, 19, 407-413.
19. Frank, J. D. (1975). The faith that heals. The Johns Hopkins Medical Journal, 137(30), 127-131.
20. Gardner, J. F., Nudler, S., & Chapman, M. S. (1997). Personal outcomes as measures of quality of life. Mental Retardation, 35, 295-305.
21. Gaventa, W. C. (2001). Defining and assessing spirituality and spiritual supports: A rationale for inclusion in theory and practice. Journal of Religion, Disability, and Health, 5, 29-48.
22. Glaser, B., & Strauss, A. L. (1967). The discovery of grounded theory: Strategies for qualitative research. Chicago: Aldine.
23. Hughes, C., & Hwang, B. (1996). Attempts to conceptualize and measure quality of life. In R. L. Schalock (Ed.), Quality of life: Volume I: Conceptualization and measurement (pp. 51-61). Washington, DC: American Association on Mental Retardation.
24. nd ed.). Thousand Oaks, CA: Sage.
25. Lane, N. J. (1992). A spirituality of being: Women with disabilities. Journal of Applied Rehabilitation Counseling, 23(4), 53-58.
26. Lane, N. J. (1995). A theology of anger when living with disability. Rehabilitation Education, 9, 97-111.
27. Lincoln, Y. S. (1995). Emerging criteria for quality in qualitative and interpretive research. Qualitative Inquiry, 1, 275-289.
28. Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Newbury Park, CA: Sage.
29. Maxwell, J. A. (1996). Qualitative research design: An interactive approach (Vol. 41). Thousand Oaks, CA: Sage.
30. O'Boyle, C. A. (1997). Quality of life assessment: A paradigm shift in healthcare? The Irish Journal of Psychology, 18, 51-66.
31. nd ed.). Newbury Park, CA: Sage.
32. Poston, D. J., Turnbull, A. P., Park, J., Mannan, H., Marquis, J., & Wang, M. (2003). Family quality of life outcomes: A qualitative inquiry launching a long-term research program. Mental Retardation, 41, 313-328.
33. Raphael, D., Brown, I., Renwick, R., & Rootman, I. (1996). Assessing the quality of life of persons with developmental disabilities: Descriptions of a new model, measuring instruments, and initial findings. International Journal of Disability, Development and Education, 43, 25-42.
34. Rubin, H. J., & Rubin, I. S. (1995). Qualitative interviewing: The art of hearing data. Thousand Oaks, CA: Sage.
35. Santelli, B., Singer, G. H. S., DiVenere, N., Ginsberg, C., & Powers, L. E. (1998). Participatory action research: Reflections on critical incidents in a PAR project. Journal of the Association of Persons with Severe Handicaps, 23, 211-222.
36. Schalock, R. L. (1996). Preface. In R. L. Schalock (Ed.), Quality of life: Volume I: Conceptualization and measurement (pp. vii-x). Washington, DC: American Association on Mental Retardation.
37. Schalock, R. L. (1997). Can the concept of quality of life make a difference? In R. L. Schalock (Ed.), Quality of life: Volume II: Application to persons with disabilities (pp. 245-267). Washington, DC: American Association on Mental Retardation.
38. st century (pp. 335-356). Austin, TX: PRO-ED.
39. Schalock, R. L., Brown, I., Brown, R., Cummins, R. A., Felce, D., Matikka, L., et al. (2002). Conceptualization, measurement, and application of quality of life for persons with intellectual disabilities: Report of an international panel of experts. Mental Retardation, 40, 457-470.
40. Sevensky, R. L. (1981). Religion and illness: An outline of their effectiveness. Southern Medical Journal, 74, 745-750.
41. Turnbull, A. P., Turnbull, H. R., Poston, D., Beegle, G., Blue-Banning, M., Diehl, K., et al. (in press). Enhancing quality of life of families of children and youth with disabilities in the United States. In A. P. Turnbull, I. Brown, & H. R. Turnbull (Eds.), Family quality of life: An international perspective. Washington, DC: American Association on Mental Retardation.
42. Turnbull, A. P., Friesen, B. J., & Ramirez, C. (1998). Participatory action research as a model for conducting family research. Journal for the Association of Persons with Severe Handicaps, 23, 178-188.
43. Turnbull, A. P., Turbiville, V., & Turnbull, H. R. (2000). Evolution of family-professional partnership models: Collective empowerment as the model for the early 21st century. In J. P. Shonkoff & S. L. Meisels (Eds.), The handbook of early childhood intervention (2nd ed.). New York: Cambridge University Press.
44. Zea, M. C., Quezada, T., & Belgrave, F. Z. (1994). Latino cultural values: Their role in adjustment to disability. In D. S. Dunn (Ed.), Psychosocial perspectives on disability (Special Issue). Journal of Social Behavior and Personality, 9, 185-200.
45. Zhang, C., & Bennett, T. (2001). Multicultural views of disability: Implications for early intervention professionals. Infant-Toddler Intervention, 11, 143-154.