Participatory action research: Reflections on critical incidents in a PAR project

Journal of the Association for Persons with Severe Handicaps

Volumn 23, Issue 3, 1998, Pages 211-222

  Santelli, Betsy ^a   Singer, George H S ^b   DiVenere, Nancy ^c   Ginsberg, Connie ^c   Powers, Laurie E ^d  

^a UNIVERSITY OF KANSAS   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

^c Parent to Parent of Vermont ^*  (United States)

^d OREGON HEALTH AND SCIENCE UNIVERSITY   (United States)

Author keywords

Children with disabilities; Evaluation; Parents; Participatory action research; Self help

Indexed keywords

EID: 33749592773     PISSN: 07491425     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (20)

1. Ainbinder, J., Blanchard, L., Singer, G. H. S., Sullivan, M., Powers, L. K. Marquis, J. & Santelli, B. (1998). How parents help one another: A qualitative study of Parent to Parent self-help. Journal of Pediatric Psychology 23, 99-109.
2. Bailey, D. (1997). A panel discussion of participatory action research. Conference presentation. Division for Early Childhood. New Orleans, LA.
3. Behr, S. K., Murphy, D. L. (1993). Research progress and promise: The role of perceptions in cognitive adaptation to disability. In Turnbull, A. P., Patterson, J. M., Behr, S. K., Murphy, D. L., Marquis, J. G., Bluebanning, M. J. (Eds.) Positive adaptation to disability (pp. 151-164). Baltimore: Paul H. Brookes.
4. Blanchard, L., Powers, L., Marquis, J., Singer, G. H. S., Santelli, B., & Ginsberg, C. (1998). The Coping Efficacy Inventory: Measuring parents perceptions of coping with a child with a disability and family problems. Unpublished manuscript. University of North Carolina Medical School, Chapel Hill, NC.
5. Bruyere, S. (1993). PAR: Overview and implications for family members of persons with disabilities. Journal of Vocational Rehabilitation, 3(2), 62-68.
6. Chesler, M. A. (1991). Participatory action research with self-help groups: An alternative paradigm for inquiry and action. American Journal of Community Psychology, 19(5), 757-768.
7. Cutrona, C. E. & Russell, D. W. (1990). Type of social support and specific stress: Toward a theory of optimal matching. In Sarason, B. R., Sarason, I. G., & Pierce, G. R. (Eds.) Social support: An interactional view (pp. 319-366). New York: John Wiley & Sons.
8. Fenton, J., Batavia, A., & Roody, D. (1993). Proposed policy statement for NIDRR on constituency-oriented research and dissemination (CORD). Washington, DC: National Institute on Disability and Rehabilitation Research.
9. Hall, B. (1984). Research commitment and action: The role of participatory research. International Review of Education, 30, 289-299.
10. Koren, P. E., DeChillo, N., Friesen, B. (1992). Measuring empowerment in families whose children have emotional disabilities: A brief questionnaire. Rehabilitation Psychology 37, 305-321.
11. Menz, F. E. (1995). Constituents make the difference: Improving the value of rehabilitation research. Menomonie, University of Wisconsin-Stout; Research, Rehabilitation and Training Center on Improving Community-based Rehabilitation Programs.
12. Morningstar, M. E. (1994). PAR: Whose research is it anyway? Paper presented at the Syracuse University Consortium for Collaborative Research on Social Relations, Syracuse, NY.
13. Orsosz, C. (1997). Modeling positive parental adaptation to a child's disability. Doctoral dissertation, University of South Carolina. Dissertation Abstracts International, 5711 B.
14. Reason, P. (1994). Participation in human inquiry. Thousand Oaks, CA: Sage.
15. Santelli, B., Turnbull, A. P., Marquis, J. G., & Lerner, E. P. (1995). Parent to Parent programs: A unique form of mutual support. Infants and Young Children, 8(2), 48-57.
16. Singer, G. H. S., Powers, L. K., Marquis, J., Blanchard, L., DiVinere, N., Santelli, B., Sharp, M. & the Consortium to Evaluate Parent to Parent (in press). A multi-site evaluation of Parent to Parent self-help programs: quantitative and qualitative findings. Journal of Early Intermediation.
17. Turnbull, A. P., Friesen, B. J., & Ramirez, C. (1995). Participatory action research: Forging collaborative partnerships with families in the study of disability. Paper presented at National Institute on Disability and Rehabilitation Research conference on participatory action research. Washington, DC.
18. Turnbull, A. P., & Turnbull, H. R. (1996). Participatory action research. In National Council on Disability (Ed.) Improving the implementation of the Individuals with Disabilities Act: Making schools work for all of American children (pp. 685-710). Washington, DC: National Council on Disability.
19. Whitney-Thomas, J. (1997). Participatory action research as an approach to enhancing quality of life for individuals with disabilities. In Schalock R. (Ed.) Quality of Life: Applications to persons with disabilities (Vol. II, pp. 181-198). Washington, DC: American Association on Mental Retardation.
20. Whyte, J., & Doe, T. (1995). Participatory action research: Forging collaborative partnerships. Paper presented at National Institute on Disability and Rehabilitation Research conference on participatory action research. Washington, DC.