Care of the terminally ill cachectic cancer patient: Interface between nursing and psychological anthropology

European Journal of Cancer Care

Volumn 6, Issue 4, 1997, Pages 295-303

  McClement, Susan E ^a,b   Woodgate, Roberta L ^a  

^a UNIVERSITY OF MANITOBA   (Canada)

^b ST BONIFACE GENERAL HOSPITAL   (Canada)

Author keywords

Cancer cachexia; Psychological anthropology; Terminal cancer care

Indexed keywords

CACHEXIA; CULTURAL ANTHROPOLOGY; HUMAN; NEOPLASM; NURSING; ONCOLOGY NURSING; PSYCHOLOGICAL ASPECT; REVIEW; TERMINAL CARE; TRANSCULTURAL CARE;

ANTHROPOLOGY, CULTURAL; CACHEXIA; HUMANS; NEOPLASMS; ONCOLOGIC NURSING; TERMINAL CARE; TRANSCULTURAL NURSING;

EID: 0031298351     PISSN: 09615423     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1365-2354.1997.00052.x     Document Type: Article

References (110)

1. Aamodt A.M. (1982) Examining ethnography for nurse researchers. Western Journal of Nursing Research 4(2), 209-221.
2. Alexander H.R. & Norton, J.A. (1995) Pathophysiology of cancer cachexia. In: Oxford Textbook Of Palliative Medicine (eds Doyle D., Hanks G.W.C. & MacDonald N.), pp. 316-329. Oxford University Press, Oxford.
3. Anderson J.M. (1990) Health care across cultures. Nursing Outlook 38(3), 136-139.
4. Anderson J. & Chung J. (1982) Culture and illness: parents' perceptions of their child's long-term illness. Nursing Papers 14, 40-52.
5. Appadurai, A. (1991) Global ethnoscapes: notes and queries for a transitional anthropology. In: Recapturing Anthropology: Working in the Present (ed. Fox R.G.), pp. 191-210. School of American Research Press, Santa Fe.
6. Atkins S. & Murphy K. (1993) Reflection: a review of the literature. Journal of Advanced Nursing 18, 1188-1192.
7. Beardslee C. & Sperhac A. (1978) Reaction-formation in a preadolescent girl. Maternal-Child Nursing Journal 7, 31-40.
8. Bendtzen K. (1988) Interleukin-1, interleukin-6 and tumor necrosis factor in infection, and immunity. Immunology Letter 19, 183-192.
9. Benner P. (1984) From Novice To Expert: Excellence and Power In Clinical Nursing Practice. Addison Wesley, Menlo Park.
10. Bock P.K. (1988) Rethinking Psychological Anthropology. W.H. Freeman and Company, New York.
11. Bohannon, P. (1963) Social Anthropology. Holt, Rinehart and Winston, New York.
12. Boyle J. & Andrews M. (1989) Transcultural Concepts In Nursing Care. Scott Forseman, Glenview, IL.
13. Bruera E. & Fainsinger R. (1995) Clinical management of cachexia and anorexia. In: Oxford Textbook Of Palliative Medicine (eds Doyle D., Hanks G.W.C. & MacDonald N.), pp. 330-337. Oxford University Press, Oxford.
14. Camphina-Bacote J. (1994) Cultural competence in psychiatric mental health nursing: a conceptual model. Nursing Clinics of North America 29(1), 1-8.
15. Chrisman N. (1991) Cultural Systems. In: Cancer Nursing: A Comprehensive Textbook (eds Baird S.B., McCorckle R. & Grant M.), pp. 45-54. W.B. Saunders, Philadelphia.
16. Christman L. (1983) The future of nursing is predicted by the state of science and technology. In: The Nursing Profession: A Time To Speak (ed. Chaska N.L.), pp. 802-806. McGraw-Hill, New York.
17. Damon W. & Hart D. (1982) The development of self-under-standing from infancy through adolescence. Child Development 53, 841-864.
18. Daugherty M.C. & Tripp-Reimer, T. (1985) The interface of nursing and anthropology. In: Annual Review of Anthropology (ed. Siegel B.J.), pp. 219-241. Annual Reviews, Palo Alto.
19. Davies B., Reimer J.C. & Martens N. (1994) Family functioning and its implications for palliative care. Journal of Palliative Care 10(1), 29-36.
20. de Haes J.C., van Oostrom M.A. & Welvaart K. (1986) The effect of radical and conserving surgery on quality of life of early breast cancer patients. European Journal of Surgical Oncology 12, 337-342.
21. De Santis L. (1994) Making anthropology clinically relevant to nursing care. Journal of Advanced Nursing 20, 707-715.
22. Disbrow M.A. (1983) Conducting interdisciplinary research: gratifications and frustrations. In: The Nursing Profession: A Time To Speak (ed. Chaska N.L.), pp. 225-236. McGraw-Hill, New York.
23. Donahue V. & Knapp R. (1977) Sexual rehabilitation of gynaecologic cancer patients. Obstetrics and Gynaecology 49, 118-121.
24. Dudgeon D. (1992) 'Quality of life': a bridge between the biomedical and illness models of medicine and nursing? Journal of Palliative Care 8(3), 14-17.
25. Frank-Stromberg M. & Wright. P. (1984) Ambulatory cancer patients' perceptions of the physical and psychosocial changes in their lives since the diagnosis of cancer. Cancer Nursing 7, 117-129.
26. Gallagher A. (1972) Body image changes in the patient with a colostomy. Nursing Clinics of North America 7, 669.
27. Garro L.C. (1988) Explaining high blood pressure: variation in knowledge about illness. American Ethnologist 15(1), 98-119.
28. Garro L.C. (1994) Narrative representations of chronic illness experience: cultural models of illness, mind, and body in stories concerning the temporomandibular joint (TMJ). Social Science and Medicine 38(6), 775-788.
29. Gecas V. (1982) The self-concept. In: Annual Review of Sociology, Vol. 8, (eds Turner R. & Short J.), pp. 1-33. Annual Reviews, Palo Alto.
30. Goffman E. (1959) The Presentation of Self In Everyday Life. Anchor, Garden City, NJ.
31. Goffmann E. (1963) Stigma. Prentice-Hall, Englewood Cliffs, NJ.
32. Good B.J. & Delvecchio-Good M.J. (1981) The meaning of symptoms: a cultural hermeneutic model for clinical practice. In: The Relevance Of Social Science For Medicine. (eds Eisenberg L. & Kleinman A.), pp. 165-196. D. Reidel, Boston.
33. Guarnaccia P., Rubio-Stipec M. & Canino G. (1989) Ataques de nervios in the Puerto Rican diagnostic interview schedule: the impact of cultural categories on psychiatric epidemiology. Culture, Medicine and Psychiatry 13, 275-295.
34. Hall J.M., Stevens P.E. & Meleis A.I. (1994) Marginalization: a guiding concept for valuing diversity in nursing knowledge development. Advances in Nursing Science 16(4), 23-41.
35. Ham-Ying S. (1993) Analysis of the concept of holism within the context of nursing. British Journal of Nursing 2(15), 771-775.
36. Harris G.G. (1989) Concepts of individual, self, and person in description and analysis. American Anthropologist 91(3), 599-612.
37. Harter S. (1988) The construction and conservation of the self: James and Cooley revisited. In: Self, Ego and Identity: Integrative Approaches (eds Lapsley D. & Power Clark F.), pp. 43-70. Springer-Verlag, New York.
38. Hay T. (1977) The development of some aspects of the Ojibwa self and its behavioral environment. Ethos 5(1), 71-89.
39. Holden P. & Littlewood J., eds (1991) Anthropology and Nursing. Routledge, London.
40. James C.R. & Clarke B.A. (1994) Reflective practice in nursing: issues and implications for nurse education. Nurse Education Today 14(2), 89-90.
41. Jenkins J.H. (1988) Ethnopsychiatric interpretations of schizophrenic illness: the problem of nervios within Mexican-American families. Culture, Medicine and Psychiatry 12, 301-329.
42. Jenkins J.H. (1991) Anthropology, expressed emotion, and schizophrenia. Ethos 19(4), 387-431.
43. Kagitçibasi, C. (1986) Family and Human Development Across Cultures: A View from the Other Side. Lawrence Erlbaum Associates, Mahwah, NJ.
44. Kagitçibasi C. (1996) Family and Human Development Across Cultures: a View From The Other Side. Lawrence Erlbaum Associates, Publishers, New Jersey.
45. Kaufert J.M. & O'Neil J.D. (1995) Cultural mediation of dying and grieving among native Canadian patients in urban hospitals. In: The Path Ahead: Readings in Death and Dying (eds DeSpelder L.A. & Strickland A.L.) pp. 59-75. Mayfield Publishing Co., Mountain View, CA.
46. Kaufert J.M., Koolage W.W. Kaufert P.L. & O'Neil J.D. (1984) The use of 'trouble case' examples in teaching the impact of sociocultural and political factors in clinical communication. Medical Anthropology (winter), 36-45.
47. Keesing R.M. (1981) Cultural Anthropology: A Contemporary Perspective. Rinehart & Winston, New York.
48. Kleinman A. (1988) The Illness Narratives: Suffering, Healing, and the Human Condition. Basic Books, New York.
49. Kleinman A., Eisenberg L. & Good B. (1978) Culture, illness, and care: clinical lessons from anthropologic and cross-cultural research. Annals of Internal Medicine 88, 251-258.
50. Kluckhohn C. & Mowrer O.H. (1944) 'Culture and personality': a conceptual scheme. The American Anthropologist 46, 1-29.
51. Krouse H.J. (1985) A psychological model of adjustment in gynaecologic cancer patients. Oncology Nursing Forum 12(6), 45-49.
52. Krouse H.J. & Krouse J.H. (1981) Psychological factors in post-mastectomy adjustment. Psychological Reports 48, 275-278.
53. Krouse H.J. & Krouse J.H. (1982) Cancer as a crisis: the critical elements of adjustment. Nursing Research 14, 218-223.
54. Lazarus R.S. & Folkman S. (1984) Stress, Appraisal and Coping. Springer Publishing, New York.
55. Leahy R. & Shirk S. (1985) Social cognition and the development of the self. In: The Development Of the Self (ed. Leahy R.), pp. 123-150. Academic Press, Orlando.
56. Leininger M.M. (1970) Nursing and Anthropology: Two Worlds To Blend. John Wiley & Sons, New York.
57. Leininger M.M. (1978) Transcultural Nursing: Concepts, Theories and Practices. John Wiley, New York.
58. Leininger M.M. (1985) Transcultural care diversity and universality: a theory of nursing. Nursing and Health Care 6, 209-212.
59. Leininger M.M., ed. (1991) Culture Care Diversity and Universality: A Theory Of Nursing. National League for Nursing Press, New York.
60. Lessa W.A. & Vogt E.Z. (1979) Reading In Comparative Religion: An Anthropological Approach. Harper & Row, San Francisco.
61. Lewis F.M. (1983) Family level services for the cancer patient: critical distinctions, fallacies, and assessment. Cancer Nursing 6, 193-200.
62. Lincoln Y.S. & Guba E.G. (1985) Naturalistic Inquiry. Sage, New Bury Park.
63. Lipson J.G. (1989) The use of self in ethnographic research. In: Qualitative Research: A Contemporary Dialogue (ed. Morse J.M.), pp. 61-75. Apsen Publishers, Rockville, MD.
64. Lough M.E., Lindsey A.M., Shinn J.A. et al. (1987) Impact of symptom frequency and symptom distress on self-reported quality of life in heart transplant recipients. Heart & Lung 16, 193-200.
65. MacDonald N., Alexander R. & Bruera E. (1995) Cachexia-anorexia-asthenia. Journal of Pain and Symptom Management 10(2), 151-155.
66. Marsella A., DeVos G. & Hsu F.L.K. (1985) Culture and Self. Tavistock, New York.
67. Mathieson C.M., & Stam H.J. (1995) Renegotiating identity: cancer narratives. Sociology of Health & Illness 17(3), 283-306.
68. Matthiason J.S. (1992) Lived experience and the present: new directions in anthropological writing. Reviews in Anthropology 23, 269-280.
69. Mattingly C. & Garro L.C. (1994) Introduction. Social Science and Medicine 38(6), 771-774.
70. McCaugherty D. (1991) The use of a teaching model to promote reflection and the experiential integration of theory and practice in first-year student nurses: an action research study. Journal of Advanced Nursing 16, 534-543.
71. McClement S.E., Woodgate R.L. & Degner L.F. (1997) Symptom distress and the adult cancer patient. Cancer Nursing 20, 236-243.
72. Meleis, A. (1985) Theoretical Nursing: Development and Progress. J.B. Lippincott, Philadelphia.
73. Meyers F.S. (1979) Emotions and the self: a theory of personhood and political order among Pintupi Aborigines. Ethos 7(4), 343-369.
74. Mitchell P.H., Gallucci B. & Fought S.G. (1991) Perspectives on human response to health and illness. Nursing Outlook 39(4), 154-157.
75. Nelson K.A., Walsh D., & Sheehan F. (1994) The cancer-anorexia-cachexia syndrome. Journal of Clinical Oncology 12(1), 213-225.
76. Newman K.S. (1986) Symbolic dialects and generations of women. American Ethnologist 13, 230-252.
77. Nichter M. (1981) Idioms of distress: alternatives in the expression of psychosocial distress: a case study from south India. Culture, Medicine, and Psychiatry 5, 379-408.
78. Osborne O.H. (1969) Anthropology and nursing: some common traditions and interests. Nursing Research 18(3), 251-255.
79. Passant H. (1990) A holistic approach in the ward. Nursing Times 86(4), 26-28.
80. Powell J.H. (1989) The reflective practitioner in nursing. Journal of Advanced Nursing 14, 824-832.
81. Ragucci A.T. (1972) The ethnographic approach and nursing research. Nursing Research 21(6), 485-490.
82. Rhodes V.A. & Watson P.M. (1987) Symptom distress-the concept: past and present. Seminars in Oncology Nursing 3, 242-247.
83. Rhodes V.A., Watson P.M. & Johnson M.H. (1984) Development of reliable and valid measures of nausea and vomiting. Cancer Nursing 7, 33-41.
84. Riehl J.P. & Roy C. (1980) Conceptual Models For Nursing Practice. Appleton-Century-Crofts, New York.
85. Roy C. (1980) The Roy adaptation model. In: Conceptual Models Of Nursing Practice, 2nd ed. (eds Riehl J.P. & Roy C.), pp. 179-188. Appleton-Century-Crofts, New York.
86. Robertson M.H.B. & Boyle J.S. (1984) Ethnography: contributions to nursing research. Journal of Advanced Nursing 9, 43-49.
87. Sandelowski M. (1986) The problem of rigor in qualitative research. Advances in Nursing Science 8(3), 27-37.
88. Shewder R.A. (1979) Rethinking culture and personality theory: a critical examination of two postulates. Ethos 7(3), 255-275.
89. Sluzki C. (1974) On training to think interactionally. Social Science and Medicine 8, 483-485.
90. Spindler G.D., ed. (1978) The Making of Psychological Anthropology. Berkeley: University of California Press.
91. Stairs A. (1992) Self-image, world image: speculations on identity from experiences with Inuit. Ethos 20(1), 142-160.
92. Stanford E.D. (1980) Direction for research in nursing. Nursing Research 29, 203.
93. Taussig M.T. (1980) Reification and the consciousness of the patient. Social Science and Medicine 14(B), 3-13.
94. Tchekmedyian S., Tait N., Moody N., et al. (1986) Appetite stimulation with megestrol acetate in cachectic cancer patients. Seminars in Oncology 13, 37-43.
95. Theologides A. (1972) Pathogenesis of cachexia in cancer. Cancer 29, 484.
96. Tishelman C. (1993) Making Sense of Sickness Experience: Cancer Patients' Perspectives On Their Sickness and Care In Urban Sweden department of International Health Care Research, Stockholm.
97. Tishelman C., Taube A. & Sachs L. (1991) Self-reported symptom distress in cancer patients: reflections of disease, illness or sickness? Social Science and Medicine 33(11), 1229-1240.
98. Toomey D., Redmond P. & Bouchier-Hayes D. (1995) Mechanisms mediating cancer cachexia. Cancer 76(12), 2418-2426.
99. Travelbee J. (1966) Interpersonal Aspects Of Nursing. Davis Company, Philadelphia.
100. Tripp-Reimer T. & Daugherty M.C. (1985) Cross-cultural nursing research. In: Annual Review of Nursing Research (eds Werley H.H. & Fitzpatrick J.J.), pp. 77-104. Springer, New York.
101. Turner V. (1979) Betwixt and between: the liminal period in rites de passage. In: Reader in Comparative Religion: An Anthropological Approach (eds Lessa W.A. & Vogt E.Z.), pp. 234-243. Harper & Row, San Francisco.
102. Urdang L., ed. (1983) Mosby's Medical and Nursing Dictionary C.V. Mosby, St Louis.
103. van Gennep A.L. (1960) The Rites of Passage. Routledge and Kegan Paul Ltd, London.
104. Von Roenn J., Murphy R. & Wegner N. (1990) Megestrol acetate for treatment of anorexia and cachexia associated with human immunodeficiency virus infection. Seminars in Oncology 17(Suppl. 9), 13-16.
105. Waxler N.B. (1979) Is outcome for schizophrenia better in nonindustrial societies?: the case of Sri Lanka. The Journal of Nervous and Mental Disease 167(3), 144-158.
106. Whiting J.W.M. (1953) Child Training and Personality: A Cross-Cultural Study. Yale University Press, New Haven.
107. Wiedenbach E. (1970) Nurses' wisdom in nursing theory. American Journal of Nursing 70(5), 1057-1062.
108. Whittaker E. (1992) The birth of the anthropological self. Ethos 20(2), 191-219.
109. Woodgate R.L. & McClement S.E. (1997) Understanding of self in children with cancer and childhood cancer survivors: a critical review. Journal of Pediatric Oncology Nursing 14, 137-155.
110. Wright L.M. & Leahey M., eds. (1984) Nurses and Families: A Guide To Family Assessment and Intervention, pp. 1-9. F.A. Davis, Philadelphia.