Carer satisfaction with end-of-life care in Powys, Wales: A cross-sectional survey

Health and Social Care in the Community

Volumn 12, Issue 1, 2004, Pages 43-52

  Ingleton, Christine ^a   Morgan, Jana ^a   Hughes, Philippe ^a   Noble, Bill ^a   Evans, Anne ^b   Clark, David ^c  

^a UNIVERSITY OF SHEFFIELD   (United Kingdom)

^b POWYS TEACHING HEALTH BOARD   (United Kingdom)

^c LANCASTER UNIVERSITY   (United Kingdom)

Author keywords

Bereaved carers; Carer satisfaction; End of life care; Rural palliative care; Service satisfaction; Wales

Indexed keywords

AGED; ARTICLE; CAREGIVER; CONSUMER; CROSS-SECTIONAL STUDY; FEMALE; HUMAN; MALE; MORTALITY; NEOPLASM; NURSING; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; RURAL HEALTH CARE; STATISTICS; TERMINAL CARE; UNITED KINGDOM;

AGED; CAREGIVERS; CONSUMER SATISFACTION; CROSS-SECTIONAL STUDIES; FEMALE; HUMANS; MALE; NEOPLASMS; QUESTIONNAIRES; RURAL HEALTH SERVICES; TERMINAL CARE; WALES;

EID: 1542602235     PISSN: 09660410     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1365-2524.2004.00467.x     Document Type: Review

References (27)

1. Addington-Hall J. (1998) VOICES (Views of Informal Carers -Evaluation of Services. King's College School of Medicine and Dentistry, London.
2. Addington-Hall J. & Karlsen S. (1999) Care for the Dying in Cornwall: A Survey of Bereaved Relatives. Final Report. Department of Palliative Care and Policy, London.
3. Addington-Hall J. & McCarthy M. (1995) Dying from cancer: results of a national population-based investigation. Palliative Medicine 9, 295-305.
4. Addington-Hall J. & McCarthy M. (2001) Survey research in palliative care using bereaved relatives. In: D. Field, D. Clark, J. Corner & C. Davis (Eds) Researching Palliative Care, pp. 27-37. Open University Press, Buckingham.
5. Clark D., Hughes P., Ingleton C. & Noble B. (2000) The Powys Macmillan GP Clinical Facilitator Project (Phase 1). University of Sheffield, Sheffield.
6. Clark D., Hughes P., Ingleton C. & Noble B. (2002) 'We Didn't Know What We Didn't Know': Evaluation of Powys Macmillan GP Clinical Facilitator Project. University of Sheffield, Sheffield.
7. Department of Public Health & Dyfed Powys Health Authority (1999) Powys Local Health Group: Health Social Factors 1999. Dyfed Powys Health Authority, Dyfed.
8. Doyle D. (1982) Domiciliary terminal care: demands on statutory services. Journal of Royal College of General Practitioners 32, 285-291.
9. Fakhoury W. (1998) Satisfaction with palliative care: What should we be aware of? International Journal of Nursing Studies 35, 171-176.
10. Hanratty B. (2000) Palliative care provided by GPs: the carer's viewpoint. British Journal of General Practice 50, 653-654.
11. Herd E.B. (1990) Terminal care in a semi-rural area. British Journal of General Practice 40, 248-225.
12. Higginson I., Astin P. & Dolan S. (1998) Where do cancer patients die? Ten year trends in the place of death of cancer patients in England. Palliative Medicine 12, 353-363.
13. Higginson I., Priest P. & McCarthy M. (1994) Are bereaved family members a valid proxy for a patient's assessment of dying? Society of Science Medicine 38, 553-557.
14. Hinton J. (1996) How reliable are relatives' reports of terminal illness? Patient and relatives' accounts compared. Social Science and Medicine 43, 1229-1236.
15. Ingleton C., Hughes P., Noble B., Gray H. & Clark D. (2003) An evaluation of a Macmillan GP clinical facilitator project: the post-holders' perspective. Primary Health Care Research and Development 4 (2), 177-186.
16. Jones R.V.H., Hensford J. & Fiske J. (1993) Death from cancer at home: the carers' perspective. British Medical Journal 306, 249-251.
17. Koffman J. & Higginson I. (2001) Palliative Medicine 15, 337-345.
18. Lecouturier J., Jacoby A., Bradshaw C., Lovel T. & Eccles M. (1999) Lay carers' satisfaction with community palliative care: results of a postal survey. Palliative Medicine 13, 275-283.
19. Noble B., Hughes P., Ingleton C. & Clarke D. (2001) Rural palliative care needs: a survey of primary care professionals in Powys, Wales. International Journal of Palliative Nursing 7, 610-615.
20. Parkes C.M. (1984) 'Hospice' versus 'hospital' care: re-evaluation after ten years as seen by surviving spouses. Postgraduate Medical Journal 50, 120-124.
21. Payne S. & Ellis-Hill C. (Eds) (2001) Chronic and Terminal Illness: New Perspective on Caring and Carers. Oxford University Press, Oxford.
22. Rogers A., Karlsen S. & Addington-Hall J. (2000) 'All the services were excellent. It is when the human element comes in that things go wrong': dissatisfaction with hospital care in the last year of life. Journal of Advances in Nursing 3 (4), 768-774.
23. Strauss A. (1987) Qualitative Analysis for Social Scientists. Cambridge University Press, Cambridge.
24. Sykes E. (1984) Dying Now. Lancet i, 950-952.
25. Sykes N., Pearson S. & Chell S. (1992) Quality of care of the terminally ill: the carer's perspective. Palliative Medicine 6, 227-236.
26. Ward A.W.M. (1976) Impact of a special unit for terminal care. Society of Science Medicine 10,373-376.
27. Ward A.W.M. (1984) Home care services - and alternative to hospices? Community Medicine 9, 47-54.