Where am i to go? Use of the internet for consumer health information by two vulnerable communities

Library Trends

Volumn 53, Issue 2, 2004, Pages 283-300

  Detlefsen, Ellen Gay ^a  

^a UNIVERSITY OF PITTSBURGH   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 13844272273     PISSN: 00242594     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Review

References (74)

1. American Association of Retired Persons (AARP). (2004). A close-up look at 50+ America. AARP Bulletin, March issue, p. 34.
2. American Association of Retired Persons (AARP). (n.d.). Finding good health information online. Health & Wellness. Retrieved July 9, 2004, from http://www.aarp.org/Articles/a2003-03-17-wwwhealth.html.
3. American Diabetes Association (ADA). (n.d.). African Americans and diabetes. Retrieved July 9, 2004, from http://www.diabetes.org/communityprograms-and-localevents/africanamericans.jsp.
4. American Federation for Aging Research & Merck Institute of Aging and Health. (n.d.). Health compass: Navigating research information on health and aging. Retrieved July 9, 2004, from http://www.healthcompass.org/.
5. Baker, L., Wagner, T. H., Singer, S., & Bundorf, M. K. (2003). Use of the Internet and e-mail for health care information: Results from a national survey. Journal of the American Medical Association, 289(18), 2400-2406.
6. Baran, H. (2004). Internet resources: Cardiothoracic surgery. Medical Library Association News, February issue.
7. Bill & Melinda Gates Foundation. (2004). Toward equality of access: The role of public libraries in addressing the digital divide. Retrieved July 9, 2004, from http://www.gatesfoundation.org/nr/Downloads/libraries/uslibraries/reports/ TowardEqualityofAccess.pdf.
8. Birru, M. S., Monaco, V. M., Charles, L., Drew, H., Njie, V., Bierria, T., Detlefsen, E., & Steinman, R. A. (2004). Internet usage by low-literacy adults seeking health information: An observational analysis. Journal of Medical Internet Research, 6(3), e25.
9. Black Women's Health Imperative. (2004). Home page. Retrieved July 9, 2004, from http://www.blackwomenshealth.org/site/PageServer.
10. Brodie, M., Flournoy, R. E., Altman, D. E., Blendon, R. J., Benson, J. M., & Rosenbaum, M. D. (2000). Health information, the Internet, and the digital divide. Health Affairs (Millwod), 19(6), 255-265.
11. Centers for Disease Control and Prevention. (2004). Black or African American populations. Retrieved July 9, 2004, from http://www.cdc.gov/omh/Populations/BAA/BAA.htm.
12. Cubbins, E. M. (2000). Techniques for evaluating American Indian web sites. Retrieved July 9, 2004, from http://www.u.arizona.edu/~ecubbins/webcrit.html.
13. Cunningham, W. E., Davidson, P. L., Nakazono, T. T., & Andersen, R. M. (1999). Do black and white adults use the same sources of information about AIDS prevention? Health Education and Behavior, 26(5), 703-713.
14. Davis, L. M., & Lafrado, L. J. (2003). Addressing senior needs in the accessibility of Internet health-related information. Journal of Hospital Librarianship, 3(1),7-14
15. Detlefsen, E. G. (2003). Internet resources: Late-life depression resources for patients and their caregivers. Medical Library Association News, 360, 10.
16. Devlin, M. (2003). Network librarians conclude outreach projects. Part III: Health information for elders [Electronic version]. Dragonfly 34(4). Retrieved July 9, 2004, from http://nnlm.gov/pnr/news/200310/devlin.html.
17. Fogel, J. (2003). Internet use for cancer information among racial/ ethnic populations and low literacy groups. Cancer Control, 10(Suppl. 5), 45-51.
18. Food & Drug Administration. (n.d.). Easy-to-read publications. Retrieved July 9, 2004, from http://www.fda.gov/opacom/lowlit/7lowlit.html.
19. Fox, S., & Fallows, D. (2003). Internet health resources: Health searches and email have become more commonplace, but there is room for improvement in searches and overall Internet access. Retrieved July 9, 2004, from http://www.pewinternet.org/pdfs/PIP_Health_Report_July_2003.pdf.
20. Frey, A. L. (2003). Internet resources: Rehabilitation resources on the web. Medical Library Association News, March issue.
21. Gollop, C. J. (1997). Health information-seeking behavior and older African-American women. Bulletin of the Medical Library Association, 85(2), 141-146.
22. Grisso, J. A., Freeman, E. W., Maurin, E., Garcia-Espana, B., & Berlin, J. A. (1999). Racial differences in menopause information and the experience of hot flashes. Journal of General Internal Medicine, 14(2), 98-103.
23. Harwood, P., & Rainie, L. (2004). Use of the Internet in places other than home or work: A PIP data memo. Retrieved July 9, 2004, from http://www.pewinternet.org/reports/toc.asp?Report=115.
24. Karasz, A., Sacajiu, G., & Garcia, N. (2003). Conceptual models of psychological distress among low-income patients in an inner-city primary care clinic. Journal of General Internal Medicine, 18(6), 475-477.
25. Jones, D. (2003). Readability analysis of consumer health materials. Consumer health: An online manual. Houston TX: NN/LM South Central Region. Retrieved July 9, 2004, from http://nnlm.gov/scr/conhlth/read.htm.
26. Leaffer, T., & Gonda, B. (2000). The Internet: An underutilized tool in patient education. Computers in Nursing, 18(1), 47-52.
27. Lenhart, A. (2003). The ever-shifting Internet population: A new look at Internet access and the digital divide. Retrieved July 9, 2004, from http://www.pewinternet.org/pdfs/PIP_Shifting_Net_Pop_Report.pdf.
28. Malcolm, M., Mann, W. C., Tomita, M. R., Fraas, L. F., Stanton, K. M., & Gitlin, L. (2001). Computer and Internet use in physically frail elders. Physical & Occupational Therapy in Geriatrics, 19(3), 15-32.
29. McFedries, P., & Logophilia Limited. (n.d.). Subject index-sociology: Aging and death. The WordSpy. Retrieved July 9, 2004, from http://www.wordspy.com/index/Sociology-Agin-gandDeath.asp and http://www.wordspy.com/words/club-sandwichgeneration.asp.
30. Microsoft Corporation. (2004). Overview of aging and accessible technology. Retrieved July 9, 2004, from http://www.microsoft.com/enable/aging/default.aspx.
31. Millward, P. (2003). The "grey digital divide": Perception, exclusion and barrier of access to the Internet for older people. First Monday, 8(7). Retrieved July 9, 2004, from http://firstmonday.org/issues/issue8_7/millward/index.html.
32. Morrell, R. W., Mayhorn, C. B., & Bennett, J. (2000). A survey of World Wide Web use in middle-aged and older adults. Human Factors, 42(2), 175-182.
33. Nail-Chiwetalu B. (2002). Internet resources: Communication disorders. Medical Library Association News, October issue.
34. National Cancer Institute. (n.d.). For Drexler, a personal priority. Men shoot for 9. Retrieved July 9, 2004, from http://5aday.gov/9aday/drexler/index.html.
35. National Center for Farmworker Health, Inc. (n.d.). Patient education materials. Retrieved July 9, 2004, from http://www.ncfh.org/00_ns_rc_pateduc.php.
36. National Heart, Lung, and Blood Institute (NHLBI). (1997a). Heart-healthy home cooking: African American style (NIH Publication No. 97-3792). Retrieved July 9, 2004, from http://www.nhlbi.nih.gov/health/public/heart/other/chdblack/cooking.htm.
37. National Heart, Lung, and Blood Institute (NHBLI). (1997b). Improving cardiovascular health in African Americans (NIH Publication No. 55-832). Retrieved July 9, 2004, from http://www.nhlbi.nih.gov/health/public/heart/other/chdblack/index.htm.
38. National Heart, Lung, and Blood Institute (NHBLI). (n.d.). What is sickle cell anemia? Retrieved July 9, 2004, from http://www.nhlbi.nih.gov/health/dci/Diseases/Sca/SCA_WhatIs.html.
39. National Institute of Child Health and Human Development & the National Black Child Development Institute. (n.d.). Activity book for African American families: Helping children cope with crisis. Retrieved July 9, 2004, from http://www.nichd.nih.gov/publications/pubs/hccc/activitybook.htm.
40. National Institute on Aging (NIA). (2003). Online health information: Can you trust it? Retrieved July 9, 2004, from http://www.niapublications.org/engagepages/healthinfo.asp.
41. National Institute on Aging (NIA). (n.d. a). Age pages and fact sheets. Retrieved July 9, 2004, from http://www.niapublications.org/shopdisplayproducts.asp?id=4&cat= Age+Pages+and+Fact+Sheets.
42. National Institute on Aging (NIA). (n.d. b). Working with your older patient: A clinician's handbook. Retrieved July 9, 2004, from http://www.niapublications.org/pubs/clinicians-handbook/index.asp.
43. National Institute on Aging (NIA). (n.d. c). Talking with your doctor. Retrieved October 4, 2004, from http://www.niapublications.org/pubs/talking/talkwithdoc.pdf.
44. National Institute on Diabetes and Digestive and Kidney Diseases (NIDDK). (2001a). Celebrate the beauty of youth (NIH Publication No. 01-4903). Retrieved July 9, 2004, from http://www.niddk.nih.gov/health/nutrit/celebrate_the_beauty_of_youth/ celbrateyth.html.
45. National Institute on Diabetes and Digestive and Kidney Diseases (NIDDK). (2001b). Energize yourself and your family (NIH Publication No01-4926). Retrieved July 9, 2004, from http://www.niddk.nih.gov/health/nutrit/walking/energizeself/energizeyrslf.html.
46. National Institute on Diabetes and Digestive and Kidney Diseases (NIDDK). (2001c). Fit and fabulous as you mature (NIH Publication No. 01-4927). Retrieved July 9, 2004, from http://www.niddk.nih.gov/health/nutrit/fitfabmature/fitandfab.html.
47. National Institute on Diabetes and Digestive and Kidney Diseases (NIDDK). (n.d.). Diabetes in African Americans. In National Diabetes Information Clearinghouse. Retrieved July 9, 2004, from http://diabetes.niddk.nih.gov/dm/pubs/africanamerican/index.htm.
48. National Institutes of Health on Aging & National Library of Medicine. (2003). About NIH SeniorHealth. In NIH SeniorHealth.gov: Featuring health information from the National Institutes of Health. Retrieved July 9, 2004, from http://nihseniorhealth.gov/.
49. National Library of Medicine (NLM). (1998). Seniors cruise the net for health information. Retrieved March 12, 2004, from http://www.nlm.nih.gov/news/press_releases/seniorpr.html.
50. National Library of Medicine (NLM). (2004a). MedlinePlus: African American health. Retrieved July 9, 2004, from http://www.nlm.nih.gov/medlineplus/africanamericanhealth.html.
51. National Library of Medicine (NLM). (2004b). MedlinePlus interactive health tutorials. Retrieved July 9, 2004, from http://www.nlm.nih.gov/medlineplus/tutorial.html.
52. National Library of Medicine (NLM). (n.d.). MeSH medical subject headings. Retrieved July 9, 2004, from http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db-mesh.
53. National Library of Medicine & National Institute on Aging. (2002). Making your Web site senior friendly. Retrieved July 9, 2004, from http://www.nlm.nih.gov/pubs/staffpubs/od/ocpl/agingchecklist.html.
54. National Women's Health Information Center. (n.d. a). What health problems affect a lot of African American women? Retrieved July 9, 2004, from http://www.4woman.gov/faq/african_american.htm#1.
55. National Women's Health Information Center. (n.d. b). Health problems in African American women. Retrieved July 9, 2004, from http://www.4woman.gov/minority/africanamercian.htm. [sic]
56. Nielsen/NetRatings. (2000). Less well to-do Web surfers spend more time online than more affluent people, according to Nielsen/NetRatings. Retrieved July 9, 2004, from http://www.nielsen-netratings.com/pr/pr_092100.htm.
57. O'Malley, A. S., Kerner, J. F., & Johnson, L. (1999). Are we getting the message out to all? Health information sources and ethnicity. American Journal of Preventive Medicine, 17(3), 198-202.
58. Oregon Health & Science University. (2003). The prepared caregiver: Caregiving support in Oregon. Retrieved July 9, 2004, from http://www.ohsu.edu/healthyaging/caregiving/.
59. Rainie, L., & Packel, D. (2001). More online, doing more: 16 million newcomers gain Internet access in the last half of 2000 as women, minorities, and families with modest incomes continue to surge online [Report]. Retrieved July 9, 2004, from http://www.pewinternet.org/reports/pdfs/PIP_Changing_Population.pdf.
60. Rhode Island Department of Health. (2003). African-American/Black culture & health. Retrieved July 9, 2004, from http://www.health.ri.gov/chic/minority/afr_cul.htm#heaB.
61. Robert Wood Johnson Foundation. (2002). Conferences presenting a ten-year forecast for health and health care. Retrieved July 9, 2004, from http://www.rwjf.org/reports/grr/035536.htm.
62. Robinson, C., Flowers, C. W., Alperson, B. L., & Norris, K. C. (1999). Internet access and use among disadvantaged inner-city patients. Journal of the American Medical Association, 281(11), 988-989.
63. Schwartz, D. G., Mosher, E., Wilson, S., Lipkus, C., & Collins, R. (2002). Seniors connect: A partnership for training between health care and public libraries. Medical Reference Services Quarterly, 21(3), 1-19.
64. Smith-Barbaro, P. A., Licciardone, J. C., Clarke, H. F., & Coleridge, S. T. (2001). Factors associated with intended use of a Web site among family practice patients [Electronic version]. Journal of Medical Internet Research, 3(2), e17. Retrieved July 9, 2004, from http://www.jmir.org/2001/2/e17/.
65. Spink, A., & Cole, C. (2001). Information and poverty: The information environment of low-income African American families. Library and Information Science Research, 23(1), 45-65.
66. Texas Medication Algorithm Project. (2003). Patient/family education materials. Retrieved July 9, 2004, from http://www.mhmr.state.tx.us/centraloffice/medicaldirector/PtEd.html.
67. Tucker, C. M., Herman, K. C., Pedersen, T. R., Higley, B., Montrichard, M., & Ivery, P. (2003). Cultural sensitivity in physician-patient relationships: Perspectives of an ethnically diverse sample of low-income primary care patients. Medical Care, 41(7), 859-870.
68. University of California-San Francisco, Student Homeless Clinic. (n.d.). Low-literacy patient education handouts. Retrieved July 9, 2004, from http://itsa.ucsf.edu/~hclinic/handouts.dir/lowlit.dir/lowlit.html.
69. University of Utah, Health Sciences Center. (n.d.). Patient education materials: An author's guide. Retrieved July 9, 2004, from http://www.med.utah.edu/pated/authors/.
70. University of Washington Medical Center. (n.d.). Culture clues: Communicating with your African American patient. Retrieved July 9, 2004, from http://depts.washington.edu/pfes/pdf/AfricanAmericanCultureClueOct01.pdf.
71. U. S. Department of Health and Human Services. (n.d.). Research-based Web design & usability guidelines. Retrieved July 9, 2004, from http://usability.gov/pdfs/guidelines.html.
72. Wagner, L. S., & Wagner, T. H. (2003). The effect of age on the use of health and self-care information: Confronting the stereotype. Gerontologist, 43(3), 318-324.
73. Watchfire™. (n.d.). Welcome to BOBBY™. Retrieved July 9, 2004, from http://bobby.watchfire.com/bobby/html/en/index.jsp.
74. Williams, M. V., Davis, T., Parker, R. M., & Weiss, B. D. (2002). The role of health literacy in patient-physician communication. Family Medicine, 34(5), 383-389.