메뉴 건너뛰기




Volumn 6, Issue 4, 2002, Pages 291-302

Comprehensive genetic counseling for families at risk for HNPCC: Impact on distress and perceptions

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; ATTITUDE; COLORECTAL CANCER; COPING BEHAVIOR; DISTRESS SYNDROME; EARLY DIAGNOSIS; FAMILY; FEAR; FEMALE; GENETIC COUNSELING; HEALTH STATUS; HIGH RISK POPULATION; HUMAN; INTERPERSONAL COMMUNICATION; MAJOR CLINICAL STUDY; MALE; QUESTIONNAIRE; RISK BENEFIT ANALYSIS; SELF CONTROL; SYMPTOMATOLOGY;

EID: 12244250746     PISSN: 10906576     EISSN: None     Source Type: Journal    
DOI: 10.1089/10906570260471822     Document Type: Article
Times cited : (39)

References (54)
  • 1
    • 0034688210 scopus 로고    scopus 로고
    • Predictive genetic testing for hereditary non-polyposis colorectal cancer: Uptake and long-term satisfaction
    • Aktan-Collan, K., Mecklin, J.-P., Jarvinen, H., Nystrom-Lahti, M., Peltomaki, P., and Soderling, I. (2000). Predictive genetic testing for hereditary non-polyposis colorectal cancer: Uptake and long-term satisfaction. Int. J. Cancer, 89, 44-50.
    • (2000) Int. J. Cancer , vol.89 , pp. 44-50
    • Aktan-Collan, K.1    Mecklin, J.-P.2    Jarvinen, H.3    Nystrom-Lahti, M.4    Peltomaki, P.5    Soderling, I.6
  • 2
    • 0030638686 scopus 로고    scopus 로고
    • Stress and genetic testing for disease risk
    • Baum, A., Friedman, A.L., and Zakowski, S.G. (1997). Stress and genetic testing for disease risk. Health Psychol. 16, 8-19.
    • (1997) Health Psychol. , vol.16 , pp. 8-19
    • Baum, A.1    Friedman, A.L.2    Zakowski, S.G.3
  • 7
    • 0028022711 scopus 로고
    • Self-selection in predictive testing for Huntington's disease
    • Codori, A.M., Hansen, R., and Brandt, J. (1994). Self-selection in predictive testing for Huntington's disease, Am. J. Med. Genet, 54, 167-173.
    • (1994) Am. J. Med. Genet. , vol.54 , pp. 167-173
    • Codori, A.M.1    Hansen, R.2    Brandt, J.3
  • 10
    • 0032950723 scopus 로고    scopus 로고
    • The impact of genetic counseling about breast cancer risk on women's risk perception and levels of distress
    • Cull, A., Anderson, E., Campbell, S., Mackay, J., Smyth, E., and Steel, M. (1999). The impact of genetic counseling about breast cancer risk on women's risk perception and levels of distress. Br. J. Cancer 79, 501-508.
    • (1999) Br. J. Cancer , vol.79 , pp. 501-508
    • Cull, A.1    Anderson, E.2    Campbell, S.3    Mackay, J.4    Smyth, E.5    Steel, M.6
  • 11
    • 0032756928 scopus 로고    scopus 로고
    • Genetic counseling and testing for hereditary breast and ovarian cancer: The Gent(le) approach
    • De Vos, M., Poppe, B., Delvaux, I., Mortier, G., Claes, K., Messiaen, L., et al. (1999). Genetic counseling and testing for hereditary breast and ovarian cancer: The Gent(le) approach. Dis. Markers 15, 191-195.
    • (1999) Dis. Markers , vol.15 , pp. 191-195
    • De Vos, M.1    Poppe, B.2    Delvaux, I.3    Mortier, G.4    Claes, K.5    Messiaen, L.6
  • 12
    • 17044460752 scopus 로고    scopus 로고
    • Anticipated versus actual emotional reactions to disclosure of results of genetic tests for cancer susceptibility: Findings from p53 and BRCA1 testing programs
    • Dorval, M., Farkas, P., Schneider, K., et al. (2000). Anticipated versus actual emotional reactions to disclosure of results of genetic tests for cancer susceptibility: Findings from p53 and BRCA1 testing programs. J. Clin. Oncol. 18, 2135-2142.
    • (2000) J. Clin. Oncol. , vol.18 , pp. 2135-2142
    • Dorval, M.1    Farkas, P.2    Schneider, K.3
  • 14
    • 0006309338 scopus 로고    scopus 로고
    • Predicting adaptation to presymptomatic DNA testing for late onset disorders: Who will experience distress?
    • Dudokdewit, A.C., Tibben, A., Duivenvoorden, H.J., Niermeijer, M.F., and Passchier, J. (1998a). Predicting adaptation to presymptomatic DNA testing for late onset disorders: Who will experience distress? J. Med. Genet. 35, 745-754.
    • (1998) J. Med. Genet. , vol.35 , pp. 745-754
    • Dudokdewit, A.C.1    Tibben, A.2    Duivenvoorden, H.J.3    Niermeijer, M.F.4    Passchier, J.5
  • 15
    • 0031974321 scopus 로고    scopus 로고
    • Distress in individuals facing predictive DNA testing for autosomal dominant inheritable late onset disorders; comparing questionnaire results with in-depth interviews
    • Dudokdewit, A.C., Tibben, A., Duivenvoorden, H.J., Niermeijer, M.F., Passchier, J., and Trijsburg, R.W. (1998b). Distress in individuals facing predictive DNA testing for autosomal dominant inheritable late onset disorders; comparing questionnaire results with in-depth interviews. Am. J. Med. Genet. 75, 62-74.
    • (1998) Am. J. Med. Genet. , vol.75 , pp. 62-74
    • Dudokdewit, A.C.1    Tibben, A.2    Duivenvoorden, H.J.3    Niermeijer, M.F.4    Passchier, J.5    Trijsburg, R.W.6
  • 16
    • 0028039185 scopus 로고
    • The impact of genetic counseling on risk perception in women with a family history of breast cancer
    • Evans, D., Blair, V., Greenhalgh, R., Hopwood, P., and Howell, A. (1994). The impact of genetic counseling on risk perception in women with a family history of breast cancer. Br. J. Cancer 70, 934-938.
    • (1994) Br. J. Cancer , vol.70 , pp. 934-938
    • Evans, D.1    Blair, V.2    Greenhalgh, R.3    Hopwood, P.4    Howell, A.5
  • 17
    • 0035885299 scopus 로고    scopus 로고
    • Education about genetic testing for breast cancer susceptibility: Patient preferences for a computer program or genetic counselor
    • Green, M., McInerney, A., Biesecker, B., and Fost, N. (2001). Education about genetic testing for breast cancer susceptibility: Patient preferences for a computer program or genetic counselor. Am. J. Med. Genet. 103, 24-31.
    • (2001) Am. J. Med. Genet. , vol.103 , pp. 24-31
    • Green, M.1    McInerney, A.2    Biesecker, B.3    Fost, N.4
  • 18
    • 0031051247 scopus 로고    scopus 로고
    • International experiences with the hospital anxiety and depression scale - A review of validation data and clinical results
    • Herrmann, C. (1997). International experiences with the hospital anxiety and depression scale - A review of validation data and clinical results. J. Psychosom. Res. 42, 17-41.
    • (1997) J. Psychosom. Res. , vol.42 , pp. 17-41
    • Herrmann, C.1
  • 19
    • 0035000830 scopus 로고    scopus 로고
    • Angst und depression in der allgemeinbevölkerung
    • Hinz, A., and Schwarz, R. (2001). Angst und depression in der allgemeinbevölkerung. Psychother. Psychosom. Med. Psychol. 51, 193-200.
    • (2001) Psychother. Psychosom. Med. Psychol. , vol.51 , pp. 193-200
    • Hinz, A.1    Schwarz, R.2
  • 20
    • 0030827010 scopus 로고    scopus 로고
    • Psychological issues in cancer genetics: Current research and future priorities
    • Hopwood, P. (1997). Psychological issues in cancer genetics: Current research and future priorities. Patient Educ. Counsel. 32, 19-31.
    • (1997) Patient Educ. Counsel. , vol.32 , pp. 19-31
    • Hopwood, P.1
  • 21
    • 0031687781 scopus 로고    scopus 로고
    • Genetic risk counseling for breast cancer families
    • Hopwood, P. (1998). Genetic risk counseling for breast cancer families. Eur. J. Cancer 34, 1477-1479.
    • (1998) Eur. J. Cancer , vol.34 , pp. 1477-1479
    • Hopwood, P.1
  • 22
    • 0031758843 scopus 로고    scopus 로고
    • Psychological support needs for women at high genetic risk of breast cancer: Some preliminary indicators
    • Hopwood, P., Keeling, F., Long, A., Pool, C., Evans, G., and Howell, A. (1998). Psychological support needs for women at high genetic risk of breast cancer: Some preliminary indicators. Psychooncology 7, 402-412.
    • (1998) Psychooncology , vol.7 , pp. 402-412
    • Hopwood, P.1    Keeling, F.2    Long, A.3    Pool, C.4    Evans, G.5    Howell, A.6
  • 23
    • 0018777479 scopus 로고
    • Impact of events scale: A measure of subjective stress
    • Horowitz, M., Wilner, N., and Alvarez, W. (1979). Impact of events scale: A measure of subjective stress. Psychosomat. Med. 41, 209-218.
    • (1979) Psychosomat. Med. , vol.41 , pp. 209-218
    • Horowitz, M.1    Wilner, N.2    Alvarez, W.3
  • 24
    • 0030863435 scopus 로고    scopus 로고
    • Decision-making about genetic testing among women at familial risk for breast cancer
    • Jacobsen, P.B., Valdimarsdottir, H.B., Brown, K.L., and Offit, K. (1997). Decision-making about genetic testing among women at familial risk for breast cancer. Psychosomat. Med. 59, 459-466.
    • (1997) Psychosomat. Med. , vol.59 , pp. 459-466
    • Jacobsen, P.B.1    Valdimarsdottir, H.B.2    Brown, K.L.3    Offit, K.4
  • 25
    • 19244362434 scopus 로고    scopus 로고
    • Attitudes towards cancer predictive testing and transmission of information to the family
    • Julian-Reynier, C., Eisinger, F., Vennin, P., Chabal, F., Aurran, Y., Nogues, C., et al. (1996). Attitudes towards cancer predictive testing and transmission of information to the family. J. Med. Genet. 33, 731-736.
    • (1996) J. Med. Genet. , vol.33 , pp. 731-736
    • Julian-Reynier, C.1    Eisinger, F.2    Vennin, P.3    Chabal, F.4    Aurran, Y.5    Nogues, C.6
  • 26
    • 0026573211 scopus 로고
    • Psychological distress and surveillance behaviors of women with a family history of breast cancer
    • Kash, K.M., Holland, J.C., Halper, M.S., and Miller, D.G. (1992). Psychological distress and surveillance behaviors of women with a family history of breast cancer. J. Natl. Cancer Inst. 84, 24-30.
    • (1992) J. Natl. Cancer Inst. , vol.84 , pp. 24-30
    • Kash, K.M.1    Holland, J.C.2    Halper, M.S.3    Miller, D.G.4
  • 27
    • 0030592517 scopus 로고    scopus 로고
    • Lessons from hereditary colorectal cancer
    • Kinzler, K.W., and Vogelstein, B. (1996). Lessons from hereditary colorectal cancer. Cell 87, 159-170.
    • (1996) Cell , vol.87 , pp. 159-170
    • Kinzler, K.W.1    Vogelstein, B.2
  • 30
    • 0028208432 scopus 로고
    • Attitudes about genetic testing for breast-ovarian cancer susceptibility
    • Lerman, C., Daly, M., Masny, A., and Balshem, A. (1994). Attitudes about genetic testing for breast-ovarian cancer susceptibility. J. Clin. Oncol. 12, 843-850.
    • (1994) J. Clin. Oncol. , vol.12 , pp. 843-850
    • Lerman, C.1    Daly, M.2    Masny, A.3    Balshem, A.4
  • 31
    • 15844404355 scopus 로고    scopus 로고
    • BRCA1 testing in families with hereditary breast-ovarian cancer - A prospective study of patient decision making and outcomes
    • Lerman, C., Narod, S., Schulman, K., Hughes, C., Gomez-Caminero, A., Bonney, G., Gold, K., and Trock, B. (1996a). BRCA1 testing in families with hereditary breast-ovarian cancer - A prospective study of patient decision making and outcomes. J. Am. Med. Assn. 275, 1885-1892.
    • (1996) J. Am. Med. Assn. , vol.275 , pp. 1885-1892
    • Lerman, C.1    Narod, S.2    Schulman, K.3    Hughes, C.4    Gomez-Caminero, A.5    Bonney, G.6    Gold, K.7    Trock, B.8
  • 32
    • 0029883237 scopus 로고    scopus 로고
    • Genetic testing for colon cancer susceptibility: Anticipated reactions of patients and challenges to providers
    • Lerman, C., Marshall, J., Audrain, J., and Gomez-Caminero. (1996b). Genetic testing for colon cancer susceptibility: Anticipated reactions of patients and challenges to providers. Int. J. Cancer 69, 58-61.
    • (1996) Int. J. Cancer , vol.69 , pp. 58-61
    • Lerman, C.1    Marshall, J.2    Audrain, J.3    Gomez-Caminero4
  • 33
    • 0030101807 scopus 로고    scopus 로고
    • A randomized trial of breast cancer risk counseling: Interacting effects of counseling, educational level, and coping style
    • Lerman, C., Schwartz, M.D., Rimer, B.K., Miller, S.M., Daly, M., and Sands, C. (1996c). A randomized trial of breast cancer risk counseling: Interacting effects of counseling, educational level, and coping style. Health Psychol. 15, 75-83.
    • (1996) Health Psychol. , vol.15 , pp. 75-83
    • Lerman, C.1    Schwartz, M.D.2    Rimer, B.K.3    Miller, S.M.4    Daly, M.5    Sands, C.6
  • 35
    • 0031833970 scopus 로고    scopus 로고
    • What you don't know can hurt you: Adverse psychologic effects in members of BRCA2-linked families who decline genetic testing
    • Lerman, C., Highers, C., Lemon, S.J., Main, D., Snyder, C., Durham, C., Narod, S., and Lynch, H.T. (1998). What you don't know can hurt you: Adverse psychologic effects in members of BRCA2-linked families who decline genetic testing. J. Clin. Oncol. 16, 1650-1654.
    • (1998) J. Clin. Oncol. , vol.16 , pp. 1650-1654
    • Lerman, C.1    Highers, C.2    Lemon, S.J.3    Main, D.4    Snyder, C.5    Durham, C.6    Narod, S.7    Lynch, H.T.8
  • 36
    • 0030057370 scopus 로고    scopus 로고
    • Familial breast cancer: A controlled study of risk perception, psychological morbidity and health beliefs in women attending for genetic counseling
    • Lloyd, S., Watson, M., Waites, B., Meyer, L., Eeles, R., Ebbs, S., and Tylee, A. (1996). Familial breast cancer: A controlled study of risk perception, psychological morbidity and health beliefs in women attending for genetic counseling. Br. J. Cancer 74, 482-487.
    • (1996) Br. J. Cancer , vol.74 , pp. 482-487
    • Lloyd, S.1    Watson, M.2    Waites, B.3    Meyer, L.4    Eeles, R.5    Ebbs, S.6    Tylee, A.7
  • 39
    • 0031427362 scopus 로고    scopus 로고
    • Basic population and cancer genetics and their use in the assessment of cancer risk
    • Lyman, G.H., and Kuderer, N.M. (1997). Basic population and cancer genetics and their use in the assessment of cancer risk. Eur. J. Cancer 33, 2160-2166.
    • (1997) Eur. J. Cancer , vol.33 , pp. 2160-2166
    • Lyman, G.H.1    Kuderer, N.M.2
  • 40
    • 0031972603 scopus 로고    scopus 로고
    • Molecular genetics and clinical-pathology features of hereditary nonpolyposis colorectal carcinoma (Lynch Syndrome)
    • Lynch, H.T., Smyrk, T., and Lynch, F.J. (1998). Molecular genetics and clinical-pathology features of hereditary nonpolyposis colorectal carcinoma (Lynch Syndrome). Oncology 55, 103-108.
    • (1998) Oncology , vol.55 , pp. 103-108
    • Lynch, H.T.1    Smyrk, T.2    Lynch, F.J.3
  • 41
    • 0034095802 scopus 로고    scopus 로고
    • Erbliches kolorektales karzinom - Was kann die molekulargenetische diagnostik leisten?
    • Mangold, E., Friedl, W., and Propping, P. (2000). Erbliches kolorektales karzinom - Was kann die molekulargenetische diagnostik leisten? Onkologe 6, 465-472.
    • (2000) Onkologe , vol.6 , pp. 465-472
    • Mangold, E.1    Friedl, W.2    Propping, P.3
  • 42
    • 0030641421 scopus 로고    scopus 로고
    • Long-term cognitive and emotional impact of genetic testing for cystic fibrosis: The effects of test result and gender
    • Marteau, T.M., Dundas, R., and Axworthy, D. (1997). Long-term cognitive and emotional impact of genetic testing for cystic fibrosis: The effects of test result and gender. Health Psychol. 16, 51-62.
    • (1997) Health Psychol. , vol.16 , pp. 51-62
    • Marteau, T.M.1    Dundas, R.2    Axworthy, D.3
  • 43
    • 0027569430 scopus 로고
    • The MOS 36-Item Short-Form Health Survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs
    • McHorney, C., Ware, J.J., and Raczek, A. (1993). The MOS 36-Item Short-Form Health Survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Med. Care 31, 247-263.
    • (1993) Med. Care , vol.31 , pp. 247-263
    • McHorney, C.1    Ware, J.J.2    Raczek, A.3
  • 44
    • 0032752989 scopus 로고    scopus 로고
    • Uptake of genetic testing and pre-test levels of mental distress in Norwegian families with known BRCA1 mutations
    • Reichelt, J.G., Dahl, A.A., Heimdal, K., and Moller, P. (1999). Uptake of genetic testing and pre-test levels of mental distress in Norwegian families with known BRCA1 mutations. Dis. Markers 15, 139-143.
    • (1999) Dis. Markers , vol.15 , pp. 139-143
    • Reichelt, J.G.1    Dahl, A.A.2    Heimdal, K.3    Moller, P.4
  • 45
    • 0032823838 scopus 로고    scopus 로고
    • A longitudinal study of psychological adjustment to familial genetic risk assessment for ovarian cancer
    • Ritvo, P., Robinson, G., Irvine, J., Brown, L., Murphy, J., Stewart, D., et al. (1999). A longitudinal study of psychological adjustment to familial genetic risk assessment for ovarian cancer. Gynecolog. Oncol. 74, 331-337.
    • (1999) Gynecolog. Oncol. , vol.74 , pp. 331-337
    • Ritvo, P.1    Robinson, G.2    Irvine, J.3    Brown, L.4    Murphy, J.5    Stewart, D.6
  • 47
    • 0034038956 scopus 로고    scopus 로고
    • Hereditary nonpolyposis colorectal cancer: A call for attention
    • Syngal, S. (2000). Hereditary nonpolyposis colorectal cancer: A call for attention. J. Clin. Oncol. 18, 2189-2190.
    • (2000) J. Clin. Oncol. , vol.18 , pp. 2189-2190
    • Syngal, S.1
  • 48
    • 0035188006 scopus 로고    scopus 로고
    • Psychometric properties of the Impact of Event Scale amongst women at increased risk for hereditary breast cancer
    • Thewes, B., Meiser, B., and Hickie, J. (2001). Psychometric properties of the Impact of Event Scale amongst women at increased risk for hereditary breast cancer. Psycho-Oncology 10, 459-468.
    • (2001) Psycho-Oncology , vol.10 , pp. 459-468
    • Thewes, B.1    Meiser, B.2    Hickie, J.3
  • 49
    • 0032854409 scopus 로고    scopus 로고
    • Clinical implications of genetic testing of hereditary nonpolyposis colorectal cancer
    • Vasen, H.F.A., and Wijnen, J. (1999). Clinical implications of genetic testing of hereditary nonpolyposis colorectal cancer. Cytogenet. Cell Genet. 86, 136-139.
    • (1999) Cytogenet. Cell Genet. , vol.86 , pp. 136-139
    • Vasen, H.F.A.1    Wijnen, J.2
  • 51
    • 0033067731 scopus 로고    scopus 로고
    • The impact of genetic counseling on risk perception and mental health in women with a family history of breast cancer
    • Watson, M., Lloyd, S., Meyer, L., Eeles, R., Ebbs, S., and Murday, V. (1999). The impact of genetic counseling on risk perception and mental health in women with a family history of breast cancer. Br. J. Cancer 79, 868-874.
    • (1999) Br. J. Cancer , vol.79 , pp. 868-874
    • Watson, M.1    Lloyd, S.2    Meyer, L.3    Eeles, R.4    Ebbs, S.5    Murday, V.6
  • 52
    • 0034881043 scopus 로고    scopus 로고
    • A community based study on intentions regarding predictive testing for hereditary breast cancer
    • Welkenhuysen, M., Evers-Kieboom, G., Decruyenaere, M., Claes, E., and Denayer, L. (2001). A community based study on intentions regarding predictive testing for hereditary breast cancer. J. Med. Genet. 38, 540-547.
    • (2001) J. Med. Genet. , vol.38 , pp. 540-547
    • Welkenhuysen, M.1    Evers-Kieboom, G.2    Decruyenaere, M.3    Claes, E.4    Denayer, L.5
  • 53
    • 0032552239 scopus 로고    scopus 로고
    • Clinical findings with implications for genetic testing in families with clustering of colorectal cancer
    • Wijnen, J., Vasen, H.F.A., Khan, P.M., Zwinderman, A.H., Van Der Klift, H., Mulder, A., et al. (1998). Clinical findings with implications for genetic testing in families with clustering of colorectal cancer. N. Engl. J. Med. 339, 511-518.
    • (1998) N. Engl. J. Med. , vol.339 , pp. 511-518
    • Wijnen, J.1    Vasen, H.F.A.2    Khan, P.M.3    Zwinderman, A.H.4    Van Der Klift, H.5    Mulder, A.6
  • 54
    • 0020527558 scopus 로고
    • The hospital anxiety and depression scale
    • Zigmond, A., and Snaith, R. (1983). The hospital anxiety and depression scale. Acta Psychiatr. Scand. 67, 361-370.
    • (1983) Acta Psychiatr. Scand. , vol.67 , pp. 361-370
    • Zigmond, A.1    Snaith, R.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.