Parents' Wishes and Expectations for Children with Chronic Conditions

Journal of Developmental and Physical Disabilities

Volumn 13, Issue 3, 2001, Pages 261-277

  Wolman, Clara ^a,b   Garwick, Ann ^c   Kohrman, Claire ^d   Blum, Robert ^c  

^a BARRY UNIVERSITY   (United States)

^b Exceptional Student Education   (United States)

^c UNIVERSITY OF MINNESOTA   (United States)

^d UNIVERSITY OF CHICAGO   (United States)

Author keywords

Children; Chronic condition; Expectations; Parents

Indexed keywords

EID: 0042884313     PISSN: 1056263X     EISSN: None     Source Type: Journal    
DOI: 10.1023/A:1016658303695     Document Type: Article

References (21)

1. Beirne-Smith, M., Ittenbach, R. F., and Patton, J. R. (1998). Mental Retardation, Prentice-Hall, New Jersey.
2. Blum, R. W. (1993). The adolescent with spina bifida. Adolesc. Med. 22: 331-335.
3. Brown, J. D. (1993). Coping with stress: The beneficial role of positive illusions. In Turnbull, A. P., Patterson, J. M., Behr, S. K., Murphy, D. L., Marquis, J. G., and Blue-Banning M. (eds.). Cognitive Coping, Families, & Disability, Brooks, Baltimore, MA, pp.123-134.
4. U. S. Department of Commerce Economics and Statistics Administration. (1990). Census of Population and Housing, Bureau of the Census, Washington, DC.
5. Garwick, A., Kohrman, C., Titus, J., Wolman, C., 61nd Blum, R. (1999). Variations in families' explanations of childhood chronic conditions: A cross-cultural perspective. In McCubbin, H. I., Thompson, E. A., Thompson, A., and Futrell, J. A. (eds.), The Dynamics of Resilient Families, Sage, Thousand Oaks, CA, pp. 165-202.
6. Gibson, C. H. (1995). The process of empowerment in mothers of chronically ill children. J. Adv. Nurs. 21: 1201-1210.
7. Johnson, M. P., Lubker, B. B., and Fowler, M. G. (1988). Teacher needs assessment for the educational management of children with chronic illnesses. J. Sch. Health 58: 232-235.
8. Lehmann, J. P., and Baker, C. (1994). Mother's expectations for adolescent children: A comparison between families of adolescents with disabilities and those with non-labeled adolescents. Career Dev. Except. Indiv. 17(1): 41-51.
9. Lynch, E. W., Lewis, R. B., and Murphy, D. S. (1992). Educational services for children with chronic illnesses: Perspectives of educators and families. Except. Child. 59(3): 210-220.
10. Masino, L. L., and Hodapp, R. M. (1996). Parental educational expectations for adolescents with disabilities. Except. Child. 62(6): 515-523.
11. McNair, J., and Rusch, F. R. (1991). Parent involvement in transition programs. Ment. Retard. 29(2): 93-101.
12. Patterson, J. M. (1993). The role of family meanings in adaptation to chronic ilness and disability. In Turnbull, A. P., Patterson, J. M., Behr, S. K., Murphy, D. L., Marquis, J. G., and Blue-Banning, M. (eds.), Cognitive Coping, Families, & Disability, Brooks, Baltimore, MA, pp. 221-238.
13. Patton, M. Q. (1990). Qualitative Evaluation and Research Methods, Sage, Newbury Park, CA.
14. Pless, I. B., and Pinkerton, P. (1975). Chronic Childhood Disorder: Promoting Patterns of Adjustment, HO Kimpton, London.
15. Rolland, J. S. (1984). Toward a psychosocial typology of chronic and life-threatening illness. Fam. Syst. Med. 2(3): 245-262.
16. Schur, C. L., Bernstein, A. B., and Berk, M. L. (1987). The importance of distinguishing Hispanic subpopulations in the use of medical care. Med. Care 25(7): 627-641.
17. Solnit, A. J., and Stark, M. H. (1961). Mourning and the birth of a defective child. Psychoanal. Study Child 16: 523-537.
18. Stein, R. E., and Jessop, D. J. (1982). A noncategorical approach to chronic childhood illness. Public Health Rep. 97: 354-362.
19. Strauss, A. and Corbin, J. (1990). Basics of Qualitative Research: Grounded Theory Procedures and Techniques, Sage, Newsbury Park, CA.
20. Weber, R. P. (1985). Basic Content Analysis, Sage Beverly Hills, CA.
21. Wehman, P. (2001). Life Beyond the Classroom: Transition Strategies for Young People With Disabilities, Brookes, Baltimore, MA.