Improving End-of-Life Care Education in Home Care

Journal of Palliative Medicine

Volumn 1, Issue 1, 1998, Pages 11-19

  Ferrell, Betty R ^a   Virani, Rose ^a   Grant, Marcia ^a  

^a CITY OF HOPE NATIONAL MEDICAL CENTER   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 0040512867     PISSN: 10966218     EISSN: 15577740     Source Type: Journal    
DOI: 10.1089/jpm.1998.1.11     Document Type: Article

References (53)

1. National Association for Home Care (NAHC): National Association for Home Care Report. Washington, DC: NAHC, 1996.
2. Arno P. S., Bonuck K. A., Padgug R.: The economic impact of high technology home care. Hastings Center Report 1994; 24(suppl):S15-S19.
3. Baird S.: The impact of changing health care delivery on oncology practice. Oncol Nurs Patient Treatment Support 1995; 2: 1–13.
4. Cassel C., Vladeck B: ICD-9 code for palliative or terminal care. N Engl J Med 1996; 335: 1232–1234.
5. Salvaggio R. J.: Meeting the challenge of home therapy for the patient with cancer. Clin Perspect Oncol Nurs 1995; 1: 1–11.
6. Malloy C.: Health care reform and implications for nursing. J Home Health Care Practice 1995; 7: 76–85.
7. McEnroe L.: Role of the oncology nurse in home care: Family-centered practice. Semin Oncol Nurs 1996; 12: 188–192.
8. Seeber S., Baird S: The impact of health care changes on home health. Semin Oncol Nurs 1996; 12: 179–187.
9. AMA Council on Scientific Affairs: Good care of the dying patient. JAMA 1996; 275: 474–478.
10. Lo B.: Improving care near the end of life: Why is it so hard? JAMA 1995; 274: 1634–1636.
11. Lynn J.: Caring at the end of our lives. N Engl J Med 1996; 335: 201–202.
12. The SUPPORT Principal Investigators: A controlled trial to improve care for seriously ill hospitalized patients: The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). JAMA 1995; 274: 1591–1598.
13. Ferrell B. A., Ferrell B. R.: Pain management at home. Clin Geriatr Med 1991; 7: 765–776.
14. Ferrell B. R., Rhiner M., Cohen M., Grant M.: Pain as a metaphor for illness. Part I: Impact of cancer pain on family caregivers. Oncol Nurs Forum 1991; 18: 1303–1309.
15. Ferrell B. R., Johnston-Taylor E., Grant M., Fowler M., Corbisiero R. M.: Pain management at home: Struggle, comfort and mission. Cancer Nurs 1993; 16: 169–178.
16. Ferrell B. R., Grant M., Chang J., Ahn C., Ferrell B. A.: The impact of cancer pain education on family caregivers of elderly patients. Oncol Nurs Forum 1995; 22: 1211–1218.
17. Ferrell B. R., Dean G. E.: Ethical issues in pain management at home. J Palliat Care 1994; 10: 67–72.
18. Institute of Medicine (IOM): Approaching Death: Improving Care at the End of Life. Washington, DC: National Academy of Sciences, 1997.
19. Doyle D., Hanks G. W. C., MacDonald N.: Oxford Textbook of Palliative Medicine, 2nd ed. Oxford, England: Oxford University Press, 1998.
20. Ferrell B. R., Dean G. E.: The meaning of cancer pain. Semin Oncol Nurs 1995; 11: 17–22.
21. Borneman T., Ferrell B. R.: Ethical issues in pain management. Clin Geriatr Med 1996; 12: 615–628.
22. Juarez G., Ferrell B. R.: Family and caregiver involvement in pain management. Clin Geriatr Med 1996; 12: 531–547.
23. Ferrell B. R., Cohen M. Z., Rhiner M., Rozek A.: Pain as a metaphor for illness. Part II: Impact of cancer pain on family caregivers. Oncol Nurs Forum 1991; 18: 1315–1321.
24. Johnston-Taylor E., Ferrell B. R., Grant M., Cheyney L: Managing cancer pain at home: The decisions and ethical conflicts of patients, family caregivers, and home-care nurses. Oncol Nurs Forum 1993; 20: 919–927.
25. Ferrell B. R.: The impact of pain on quality of life: A decade of research. Nurs Clin North Am 1995; 30: 609–624.
26. Ferrell B. R., Ferrell B. A., Ahn C., Tran K: Pain management for elderly patients with cancer at home. Cancer 1994; 74: 2139–2146.
27. Jett L. G.: Comfort at the end of life: Palliative care policy. J Nurs Admin 1995; 25: 55–60.
28. McCann R. M., Hall W. J., Groth-Juncker A: Comfort care for terminally ill patients: The appropriate use of nutrition and hydration. JAMA 1994; 272: 1263–1266.
29. Taylor M. A.: Benefits of dehydration in terminally ill patients. Geriatr Nurs 1995; 16: 271–272.
30. Musgrave C. F. Terminal dehydration: To give or not to give intravenous fluids? Cancer Nurs 1990; 13: 62–66.
31. Campbell M. L.: Managing terminal dyspnea: Caring for the patient who refuses intubation or ventilation. Dimens Crit Care Nurs 1996; 15: 4–12.
32. Roberts D. K., Thorne S. E., Pearson C: The experience of dyspnea in late-stage cancer: Patients' and nurses' perspectives. Cancer Nurs 1993; 16: 310–320.
33. Hughes A. C., Wilcock A., Corcoran R.: Management of “death rattle.” J Pain Symptom Mgmt 1996; 12: 271–272.
34. Ferrell B. R., Grant M., Dean G. E., Funk B., Ly J: “Bone tired”: The experience of fatigue and its impact on quality of life. Oncol Nurs Forum 1996; 23: 1539–1547.
35. Dean G. E.: Symptom management for the dying patient. Qual Life Nurs Challenge 1994; 3: 61–66.
36. Gattera J. A., Hons B., Charles B. G., Williams G. M., Cavernagh J. D., Smitherust B. A., Luchjenbroers J.: A retrospective study of risk factors of akathisia in terminally ill patients. J Pain Symptom Mgmt 1994; 9: 454–461.
37. Haisfield-Wolfe M.: End-of-life care: Evolution of the nurse's role. Oncol Nurs Forum 1996; 23: 931–935.
38. Hunt M., Meerabeau L.: Purging the emotions: The lack of emotional expression in subfertility and in care of the dying. Int J Nurs Studies 1993; 30: 115–123.
39. Booth K., Maguire P. M., Butterworth T., Hillier V. F.: Perceived professional support and the use of blocking behaviours by hospice nurses. J Adv Nurs 1996; 24: 522–527.
40. Callahan D.: Pursuing a peaceful death. Hastings Center Rep 1993; July/August: 33–38.
41. McCue J. D.: The naturalness of dying. JAMA 1995; 273: 1039–1043.
42. Brockopp D. Y., King D. B., Hamilton J. E.: The dying patient: A comparative study of nurse caregiver characteristics. Death Studies 1991; 15: 245–258.
43. Carr M., Merriman M. P.: Comparison of death attitudes among hospice workers and health care professionals in other settings. OMEGA 1995–1996; 32: 287–302.
44. Ferrell B. R., Virani R., Grant M.: HOPE: Home care Outreach for Palliative Education. Cancer Pract 1998; 6: 79–85.
45. Brown-Saltzman K. A.: Multicultural perspectives in palliative care. Qual Life Nurs Challenge 1994; 3: 41–47.
46. Byock I.: Dying Well: The Prospect for Growth at the End of Life. New York: Riverhead Books, 1997.
47. Grond S., Zech D., Schug S. A., Lynch J., Lehmann K. A.: Validation of World Health Organization guidelines for cancer pain relief during the last days and hours of life. J Pain Symptom Mgmt 1991; 6: 411–422.
48. Lichter I., Hunt E.: The last 48 hours of life. J Palliat Care 1990; 6: 7–15.
49. Power D., Kearney M.: Management of the final 24 hours. Ir Med J 1992; 85: 93–95.
50. Seravalli E.: The dying patient, the physician, and the fear of death. N Engl J Med 1988; 319: 1728–1730.
51. ANA Council of Community Health Nurses: A Statement on the Scope of Home Health Nursing Practice. Kansas City, MO: ANA, 1992.
52. Ferrell B. R., Dean G. E., Grant M., Coluzzi P.: An institutional commitment to pain management. J Clin Oncol 1995; 13: 2158–2165.
53. Ferrell B. R., Grant M., Ritchey K. J., Ropchan R., Rivera L. M.: The pain resource nurse training program: A unique approach to pain management. J Pain Symptom Mgmt 1993; 8: 549–556