Good care of the dying patient

JAMA

Volumn 275, Issue 6, 1996, Pages 474-478

  Davis, Ronald M ^a   Lansing, Mich ^a   Genel, Mayron ^a   Howe III, John P ^a   Karlan, Mitchel S ^a   Kennedy, William R ^a   Numann, Patricia A ^a   Riggs, Joseph A ^a   Skelton, W Douglas ^a   Slanetz, Priscilla J ^a   Spillman, Monique A ^a   Williams, Michael A ^a   Young, Donald C ^a   Allen, James R ^a,b   Rinaldi, Robert C ^a   Schwartzberg, Joanne G ^a  

^a American Medical Association ^*

^b AMERICAN MEDICAL ASSOCIATION   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; COGNITIVE DEFECT; DEPRESSION; DYING; EUTHANASIA; FATIGUE; HEALTH CARE POLICY; HEALTH EDUCATION; HEALTH SERVICE; HUMAN; MEDICAL DECISION MAKING; PAIN; PALLIATIVE THERAPY; PRIORITY JOURNAL; RESPIRATORY DISTRESS; SUICIDE; SYMPTOMATOLOGY; TERMINAL CARE;

EID: 13344277355     PISSN: 00987484     EISSN: None     Source Type: Journal    
DOI: 10.1001/jama.275.6.474     Document Type: Article

References (96)

1. Osier W. Science and Immortality. New York, NY: Riverside Press; 1908:18.
2. Institute of Medicine; Field MJ, ed. Summary of Committee Views and Workshop Examining the Feasibility of an Institute of Medicine Study of Dying, Decision-making and Appropriate Care. Washington, DC: National Academy of Sciences; 1994.
3. Cartwright A, Hockey L, Anderson JL. Life Before Death. London, England: Routledge & Kegan Paul; 1973.
4. Exton-Smith AN. Terminal illness in the aged. Lancet. 1961;2:305-308.
5. Brock DB, Foley DJ, Losonccy KG. A survey of the last days of life: overview and initial results. Proc Am Stat Assoc. 1987:306-311.
6. Wilkes E. Dying now. Lancet. 1984;1:950-952.
7. Seeman I. National Mortality Followback Survey: 1986 summary, United States. Vital Health Stat 19. 1992;20.
8. Merrill D, Mor V. Pathways to hospital death among the oldest old. Aging Health. 1993;5:516-535.
9. Mor V, Hiris J. Determinants of site of death among hospice cancer patients. Health Soc Behav. 1983;24:375-383.
10. McCusker J. Where cancer patients die: an epidemiologic study. Public Health Rep. 1983;98:170-176.
11. Townsend J, Frank AO, Ferment D, et al. Terminal cancer care and patients' preference for place of deatk a prospective study. BMJ. 1990;301:415-417.
12. Sager M. Easterling D, Kindig D, Anderson O. Changes in the location of death after passage of Medicare's prospective payment system. N Engl J Med. 1989;320:433-439.
13. Pritchard R, Teno J, Fisher E. et al, for the SUPPORT Investigators. Regional variation in the place of death. J Gen Intern Med. 1994;9:146A. Abstract.
14. Wachter RM, Luce JM, Hearst N, Lo B. Decisions about resuscitation: inequities among patients with different diseases bat similar prognoses. Ann Intern Med. 1989;111:525-532.
15. Lynn J, Knaus WA. Background for SUPPORT. J Clin Epidemiol. 1990;43(suppl):1S-4S.
16. Knaus WA, Harrell FE, Lynn J, et al. The SUPPORT prognostic model: objective estimates of survival for seriously ill hospitalized adults. Ann Intern Med. 1995;122:191-203.
17. Saunders CM. The philosophy of terminal care. In: Saunders CM, ed. The Management of Terminal Disease. London, England: Edward Arnold Ltd; 1978:194.
18. Saunders CM. Current views of pain relief and terminal care. In: Swerdlow M, ed. The Therapy of Pain. Lancaster, England: MTP Press: 1981:215-241.
19. Ventafridda V, Ripamonti C, De Conno F, Tamburini M. Symptom prevalence and control during cancer patients' last days of life. J Palliat Care. 1990;6:7-11.
20. Desbiens NA, Wu AW, Broste S, et al. Findings from the SUPPORT Investigators: pain and satisfaction on with pain control in seriously-ill hospitalized patients. Crit Care Med. In press.
21. Parkes CM. Terminal care: home, hospital, or hospice? Lancet 1985;1:155-157.
22. Coyle N, Adelhardt J, Foley KM, Portenoy RK. Character of terminal illness in the advanced cancer patient: pain and other symptoms during the last four weeks of life. J Pain Symptom Manage. 1990;5:83-93.
23. Bonica JJ. Cancer pain. In: Bonica JJ, ed. The Management of Pain. 2nd ed. Philadelphia, Pa: Lea & Febiger; 1990;1:400-460.
24. Saunders C. Current views of pain relief and terminal care. In: Swerdlow M, ed. The Therapy of Pain. Lancaster, England: MTP Press Ltd; 1981: 215-241.
25. Takeda P. Results of field testing in Japan of the WHO draft interim guideline on relief of cancer pain. Pain Clin. 1986;1:83.
26. Melzack R, Ofiesh JG, Mount BM. The Brompton mixture: effects on pain in cancer patients. Can Med Assoc J. 1976;115:125-129.
27. Morris JN, Suissa S, Sherwood S, Wright SM, Greer D. Last days: a study of the quality of life of terminally ill cancer patients. J Chronic Dis. 1986;39:47-62.
28. Quill TE, Cassel CK, Meier DE. Assisted death and physician-assisted suicide. N Engl J Med. 1993;328:965-966.
29. Bruera E. Research in symptoms other than pain. In: Doyle D, Hanks GW, MacDonald N, eds. Oxford Textbook of Palliative Medicine. Oxford, England: Oxford Medical Publications; 1993:87-102.
30. Cancer Pain Relief and Palliative Care: Report of a WHO Expert Committee. Geneva, Switzerland: World Health Organization; 1990. WHO Technical Report Series, No. 809.
31. Principles of Analgesic Use in the Treatment of Acute Pain and Chronic Cancer Pain. Skokie, III: American Pain Society; 1989.
32. McGivney WT, Crooks GM. The care of patients with severe chronic pain in terminal ulness. JAMA. 1984;251:1182-1188.
33. Ad Hoc Committee on Cancer Pain of the American Society of Clinical Oncology. Cancer pain assessment and treatment curriculum guidelines. J Clin Oncol. 1992;10:1976-1982.
34. Von Roenn JH, Cleeland CS, Gonin R, Hatfield AK, Pandya KJ. Physician attitudes and practice in cancer pain management - a survey from the Eastern Cooperative Oncology Group. Ann Intern Med. 1993;119:121-126.
35. Solomon MZ, O'Donnell L, Jennings B, et al. Decisions near the end of life: professional views on life-sustaining treatments. Am J Public Health. 1993;83:14-23.
36. Schmitz P, Lynn J, Cobbs E. The care of the dying patient. In: Hazzard WR, Bierman EL, Blass JP, Ettinger WH, Halter JB, Andres R, eds. Principles of Geriatric Medicine and Gerontology. New York, NY: McGraw-Hill International Book Co; 1994:383-390.
37. Truog RD, Berde CB, Mitchell C, Grier HE. Barbiturates in the care of the terminally ill. N Engl J Med. 1992;327:1678-1682.
38. Roy DJ. Need they sleep before they die? J Palliat Care. 1990;6:3-4.
39. Reuben DB, Mor V. Dyspnea in terminally ill cancer patients. Chest. 1986;89:234-236.
40. Massie MJ, Holland JC. Depression and the cancer patient. J Clin Psychiatry. 1990;51:12-17.
41. Bukberg J, Penman D, Holland J. Depression in hospitalized cancer patients. Psychosom Med. 1984;43:199-212.
42. Plumb MM, Holland JC. Comparative studies of psychological function in patients with advanced cancer. Psychosom Med, 1977;39:264-276.
43. Chiarillo RJ, Cole JO. The use of psychostimulants in general psychiatry: a reconsideration. Arch Gen Psychiatry. 1987;44:286-295.
44. Massie MJ, Holland JC, Glass E. Delirium in terminally ill cancer patients. Am J Psychiatry. 1983;140:1048-1050.
45. Evans DA, Funkenstein HH, Albert MS, et al. Prevalence of Alzheimer's disease in a community population of older persons: higher than previously reported. JAMA. 1989;262:2551-2556.
46. Van der Maas PJ, Van Delden JJM, Pijnenborg L, Looman CWN. Euthanasia and other medical decisions concerning the end of life. Lancet. 1991; 338:669-674.
47. Doyle D, Hanks C, Macdonald N, eds. Oxford Textbook of Palliative Medicine. Oxford, England: Oxford University Press; 1993.
48. Kane RL, Wales J, Bernstein L, Leibowitz A, Kaplan S. A randomized controlled trial of hospice care. Lancet. 1984;1:890-894.
49. Parkes CM. Terminal care: evaluation of an advisory domiciliary service at St Christopher's Hospice. Postgrad Med J. 1980;56:685-689.
50. Greer DS, Mor V, Morris JN, Sherwood S, Kidder D, Birnbaum H. An alternative in terminal care: results of the National Hospice Study. J Chronic Dis. 1986;39:9-26.
51. Glaser BG, Strauss AL. Awareness of Dying. Chicago, III: Aldine Publishing Co; 1965.
52. Sudnow D. Passing On: The Social Organization of Dying. Englewood Cliffs, NJ: Prentice-Hall International Inc; 1965.
53. Lynn J. Dax's case: management issues in medicine. In: Kliever LD, ed. Reviewing Dax's Case: Essays in Medical Ethics and Human Meaning. Dallas, Tex: Southern Methodist University Press; 1989:63-78.
54. Teno J, Lynn J. Voluntary active euthanasia: the individual case and public policy. J Am Geriatr Soc. 1991;39:827-830.
55. Brown JH, Henteleff P, Barakat S, Rowe CJ. Is it normal for terminally ill patients to desire death? Am J Psychiatry. 1986;143:208-211.
56. Breitbart W. Cancer pain and suicide. Adv Pain Res Ther. 1990;16:399-412.
57. Silverfarb PM, Maurer LH, Cronthamel CS. Psychosocial aspects of breast cancer patients during different treatment regimens. Am J Psychiatry. 1980;137:450-455.
58. Achte KA, Vanhkouen ML. Cancer and the psyche. Omega. 1971;2:46-56.
59. Luohivuori KA, Hakama M. Risk of suicide among cancer patients. Am J Epidemiol. 1979;109:59-65.
60. Robins E, Murphy G, Wilkinson R, et al. Some clinical considerations based on a study of 134 successful suicides. Am J Public Health. 1959;49:888-899.
61. Breitbart W. Suicide in cancer patients. Oncology. 1987;1:49-53.
62. Foley KM. The relationship of pain and symptom management to patient requests for physicianassisted suicide. J Pain Symptom Manage 1991;6:289-297.
63. Lynn J. Assisted death and physician-assisted suicide. N Engl J Med. 1993;328:964.
64. Berry ZS, Hirsch R, Lynn J. Terminal care needs of AIDS and cancer patients: a comparison study. Clin Res. 1992;40:552A. Abstract.
65. Knaus WA, Wagner DP, Draper EA, et al. The APACHE III prognostic risk system: risk prediction of hospital mortality for critically ill hospitalized adults. Chest. 1991;100:1619-1636.
66. Pollack MM, Ruttimann UE, Getson PR. Accurate prediction of the outcome of pediatric intensive care. N Engl J Med 1987;316:134-139.
67. Lemeshow S, Teres D, Avrunin SJ, Pastides H. Predicting the outcome of intensive care patients. J Am Stat Assoc. 1988;83:348-356.
68. Brody H, Lynn J. The physician's responsibility under the new Medicare reimbursement for hospice care. N Engl J Med. 1984;310:920-922.
69. Oken D. What to tell cancer patients - a study of medical attitudes. JAMA. 1961;175:1120-1128.
70. Novack DH, Plumer R, Smith RL, Ochitill H, Morrow GR, Bennett JM. Changes in physicians' attitudes toward telling the cancer patient. JAMA 1979;241:897-900.
71. Kouwenhoven WB, Jude JR, Knickerbocker GG. Closed-chest cardiac massage. JAMA 1960;173:1064-1067.
72. Lipton HL. Do-not-resuscitate decisions in a community hospital: incidence, implications, and outcomes. JAMA. 1986;256:1164-1169.
73. Bedell SE, Pelle D, Maher PL, Cleary PD. Donot-resuscitate orders for critically ill patients in the hospital: how are they used and what is their impact? JAMA 1986;256:233-237.
74. Smedira NG, Evans BH, Grais LS, et al. Withholding and withdrawal of life support from the critically ill. N Engl J Med. 1990;322:309-315.
75. Teno J, Lynn J, Phillips RS, et al, for the SUPPORT Investigators. Do formal advance directives affect resuscitation decisions and the use of resources for seriously ill patients? J Clin Ethics. 1994;5:23-30.
76. Teno J, Lynn J, Wenger N, et al. Management of seriously ill dying patients. Clin Res 1993;41:582A. Abstract.
77. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. Deciding to Forego Life-Sustaining Treatment. Washington, DC: US Government Printing Office; 1983.
78. The Hastings Center. Guidelines on the Termination of Life-Sustaining Treatment and the Care of the Dying. Bloomington: Indiana University Press; 1987.
79. The Coordinating Council on Life-Sustaining Medical Treatment Decisions by the Court. Guidelines for State Court Decision Making in Authorizing or Withholding Life Sustaining Medical Treatment. A Project of the National Center for State Courts. Williamsburg, Va: West Publishing Co: 1991.
80. Lynn J, DeGrazia D. An outcomes model of medical decision making. J Theor Med. 1991;12:325-343.
81. Uhlmann RF, Pearlman RA, Cain KC. Physicians' and spouses' predictions of elderly patients' resuscitation preferences. J Gerontol. 1988;43:M115-M121.
82. Seckler AB, Meier DE, Mulvihill M, Cammer Paris BE. Substituted judgment: how accurate are proxy predictions? Ann Intern Med. 1991;115:92-98.
83. Teno JM, Hakim RB, Knaus WA, et al. Preferences for CPR: physician-patient agreement and hospital resource use. J Gen Intern Med. 1995;10:179-186.
84. Lo B, McLeod GA, Saika G. Patient attitudes to discussing life-sustaining treatment. Arch Intent Med. 1986;146:1613-1615.
85. Haas JS, Weissman JS, Cleary PD, et al. Discussion of preferences for life-sustaining care by persons with AIDS: predictors of failure in patientphysician communication. Arch Intern Med. 1993;153:1241-1243.
86. Katz J. The Silent World of Doctor and Patient New York, NY: Free Press; 1984.
87. Sugarman J, Powe NR, Brillantes DA, Smith MK. The cost of ethics legislation: a look at the Patient Self-determination Act. Kennedy Inst Ethics J. 1993;3:387-399.
88. Emanuel EJ, Weinberg DS, Gonin R, Hummel LR. How well is the Patient Self-determination Act working? an early assessment. Am J Med. 1993;95:619-628.
89. Gomez CF. Regulatnig Death - Euthanasia and the Case of the Netherlands. New York, NY: Free Press; 1991.
90. Choosing Death: A Health Quarterly/Frontline Special [videotape]. Boston, Mass: WGBH Educational Foundation; 1993.
91. Actively ending the life of a severely handicapped newborn: a Dutch ethicist's perspective. Camb Q Healthc Ethics. 1993;2:275-280. Interview of Heleen M. Dupuis.
92. Tomlinson T. Misunderstanding death on a respirator. J Bioethicss. 1990;4:253-264.
93. Cruzan v Director, Missouri Department of Health. 110 SCt 2841 (1990).
94. Martini CJM, Grenholm G. Institutional responsibility in graduate medical education and highlights of historical data. JAMA. 1993;270:1053-1060.
95. Liaison Committee on Medical Education 1992-1993 Annual Medical School Questionnaire, Part II. For information about these survey results, contact the Division of Undergraduate Medical Education, American Medical Association, 515 N State St, Chicago, IL 60610.
96. Policy Compendium, Policy No. 295.932. Chicago, III: American Medical Association; 1995:292.