Familial hypercholesterolaemia and quality of life in family members

Preventive Medicine

Volumn 36, Issue 5, 2003, Pages 569-574

  Hollman, G ^a   Olsson, A G ^a   Ek, A C ^a  

^a LINKÖPING UNIVERSITY   (Sweden)

Author keywords

Anxiety; Coping skill; Familial hypercholesterolaemia; Family health; Quality of life

Indexed keywords

ADULT; AGED; ANXIETY; ARTICLE; CONTROLLED STUDY; COPING BEHAVIOR; DEPRESSION; DISEASE COURSE; FAMILIAL HYPERCHOLESTEROLEMIA; FAMILY; FEMALE; HUMAN; ISCHEMIC HEART DISEASE; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; QUESTIONNAIRE; RATING SCALE; RELIGION; SATISFACTION; SOCIAL SUPPORT;

EID: 0037403140     PISSN: 00917435     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0091-7435(02)00065-8     Document Type: Article

References (29)

1. Hendriks K., van Tintelen J., van Langen I., Grosfeld F., Wilde A., ten Kroode H. Psychological distress in persons undergoing DNA-diagnostics for inherited autosomal dominant cardiac arrhythmia syndromes. Eur Heart J. 21:2000;554.
2. Higgins M. Epidemiology and prevention of coronary heart disease in families. Am J Med. 108:2000;387-395.
3. Ose L. An update on familial hypercholesterolaemia. Ann Med. 31:1999;13-18.
4. Taupitz J. The conflict of understanding the genetic make-up of man and his knowledge of it. Forensic Sci Int. 113:2000;477-482.
5. Randomised trial of cholesterol lowering in 4444 patients with coronary heart disease the Scandinavian simvastatin survival study (4S) . Lancet. 344:1994;1383-1389.
6. Smilde T., van Wissen S., Wollersheim H., Trip M., Kastelein J., Stalenhoef A. Effect of aggressive versus conventional lipid lowering on atherosclerosis progression in familial hypercholesterolaemia (ASAP) a prospective, randomised, double-blind trial . Lancet. 357:2001;577-581.
7. Shepherd J., Cobbe S., Ford I., Isles C., Lorimer A., Macfarlane P., et al. Prevention of coronary heart disease with pravastatin in men with hypercholesterolaemia. N Engl J Med. 333:1995;1301-1307.
8. Durrington P. Rigorous detection and vigorous treatment of familial hypercholesterolaemia. Lancet. 357:2001;574.
9. Neil H., Hammond T., Huxley R., Matthews D., Huphries S. Extent of underdiagnosis of familial hypercholesterolaemia in routine practice prospective registry study . BMJ. 321:2000;148.
10. Umans-Eckenhausen M., Defesche J., Sijbrands J., Scheerder R., Kastelein J. Review of first 5 years of screening for familial hypercholesterolaemia in Netherlands. Lancet. 357:2001;165-168.
11. Hollman G., Gullberg M., Ek A.-C., Eriksson M., Olsson A.G. Quality of life in patients with familial hypercholesterolemia. J Intern Med. 251:2002;331-337.
12. Retterstøl K., Stugaard M., Gørbitz C., Ose L. Results of intensive long-term treatment of familial hypercholestolaemia. Am J Cardiol. 78:1996;1369-1374.
13. Nordenfelt L. Livskvalitet och hälsa. Teori och kritik. 1991;Almqvist och Wiksell Förlag AB, Falköping.
14. Tatarkiewicz W. Analysis of happiness. 1976;PWN, Polish Scientific Publishers, Warsawa.
15. Naess S. Hva er livskvalitetsforskning? Scand J Behav Ther. 17:1988;5-27.
16. Ferrans C. Quality of life conceptual issues . Semin Onkol Nurs. 6:1990;248-254.
17. Ferrans E., Powers M. Psychometric assessment of the quality of life index. Res Nurs Health. 15:1992;29-38.
18. Goldstein J.L., Hobbs H.H., Brown S.M. Familial hypercholesterolaemia. Scriver C.R., Beaudet A.L., Sly S.W., Valle D. The metabolic and molecular bases of inherited disease. 7th ed. 1995;1981-2030 McGraw-Hill, New York.
19. Zigmond A., Snaith R. The hospital anxiety and depression scale. Acta Psychiatr Scand. 67:1983;361-370.
20. Pearlin L., Schooler C. The structure of coping. J Health Soc Behav. 19:1978;2-21.
21. Ferrans C., Powers M. Quality of life index development and psychometric properties . Adv Nurs Sci. 8:1985;15-24.
22. Gustafsson G. Quality of life and functional capacity among elderly with locomotor disability. 1996;Linköping University, Linköping.
23. Spinhoven P., Ormel J., Sloekers P., Kempen G., Speckens A., van Hemert A. A validation study of the hospital anxiety and depression scale (HADS) in different groups of Dutch subjects. Psychol Med. 27:1997;363-370.
24. Streiner D., Norman G. Health measurement scales. A practical guide to their development and use. 1995;Oxford University Press, New York.
25. Senior V., Marteau T., Peters T. Will genetic testing for predisposition for disease result in fatalism? A qualitative study of parents responses to neonatal screening for familial hypercholesterolaemia. Soc Sci Med. 48:1999;1857-1860.
26. Tonstad S. Familial hypercholesterolaemia a pilot study of parents' and children's concerns . Acta Pediatr. 85:1996;1307-1313.
27. Hunt K., Emslie C., Watt G. Lay constructions of a family history of heart disease potential for misunderstandings in the clinical encounter? Lancet. 357:2001;1168-1171.
28. Tonstad S., Növik T., Vandvik I. Psychosocial function during treatment for familial hypercholesterolaemia. Pediatrics. 98:1996;249-255.
29. Kash K., Holland J., Osborne M., Miller D. Psychological counseling strategies for women at risk of breast canser. J Natl Canser Inst Monogr. 17:1995;73-79.