Maternal-fetal surgery for treatment of myelomeningocele

Clinics in Perinatology

Volumn 30, Issue 1, 2003, Pages 155-165

  Lyerly, Anne Drapkin ^a   Mahowald, Mary B ^b  

^a DUKE UNIVERSITY MEDICAL CENTER   (United States)

^b UNIVERSITY OF CHICAGO   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ABORTION; BENEFICENCE; BRAIN HERNIA; CLINICAL PRACTICE; CLINICAL RESEARCH; DECISION MAKING; DISEASE ASSOCIATION; FEMALE; FETUS; FETUS DEVELOPMENT; FETUS MORTALITY; FETUS RISK; HEALTH CARE ACCESS; HEALTH CARE POLICY; HUMAN; INCONTINENCE; LAW; MATERNAL FETAL SURGERY; MEDICAL ETHICS; MEDICAL LITERATURE; MENINGOMYELOCELE; MORALITY; PATIENT MOBILITY; PRACTICE GUIDELINE; PREGNANCY; PRIORITY JOURNAL; REVIEW; RISK FACTOR; SHUNTING; SURGICAL TECHNIQUE; TREATMENT INDICATION; TREATMENT OUTCOME;

EID: 0037347919     PISSN: 00955108     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0095-5108(02)00080-5     Document Type: Review

References (36)

1. Bruner JP, Tulipan N, Paschall RL, et al. Fetal surgery for myelomeningocele and the incidence of shunt-dependent hydrocephalus. JAMA 1999;282:1819-25.
2. Sutton LN, Adzick NS, Bilaniuk LT, et al. Improvement in hindbrain herniation demonstrated by serial fetal magnetic resonance imaging following fetal surgery for myelomeningocele. JAMA 1999;282:1826-31.
3. Holmes NM, Nguyen HT, Harrison MR, et al. Fetal intervention for myelomeningocele: effect on postnatal bladder function. J Urol 2001;166:2383-6.
4. Simpson JL. Fetal surgery for myelomeningocele: promise, progress, and problems. JAMA 1999;282:1873-4.
5. Okie S. Over the tiniest patients, big ethical questions. Washington Post April 2000;12:A01.
6. Lyerly AD, Gates EA, Cefalo RC, et al. Toward the ethical evaluation and use of maternal-fetal surgery. Obstet Gynecol 2001;98:689-97.
7. Mahowald M. As if there were fetuses without women: a remedial essay. In: Callahan J, editor. Reproduction ethics and the law. Bloomington (IN): Indiana University; 1995. p. 199-218.
8. Current Statistics page. Fetal diagnosis and therapy at Vanderbilt University Medical Center web site. Available at: http://www.fetalsurgeons.com/03curStat.htm. Accessed June 27, 2002.
9. Harrison MR. Fetal surgery. Am J Obstet Gynecol 1996;174:1255-64.
10. Farrell JA, Albanese CT, Jennings RW, et al. Maternal fertility is not affected by fetal surgery. Fetal Diagn Ther 1999;14:190-2.
11. Longaker MT, Golbus MS, Filly RA, et al. Maternal outcome after open fetal surgery: a review of the first 17 human cases. JAMA 1991;265:737-41.
12. Kitano Y, Flake AW, Crombleholme TM, et al. Open fetal surgery for life-threatening fetal malformations. Semin Perinatol 1999;23:448-61.
13. Bianchi DW, Crombleholme TM, D'Alton ME. Fetology: diagnosis and management of the fetal patient. New York: McGraw-Hill; 2000.
14. Harrison M, Golbus M, Filly R, editors. The unborn patient. Philadelphia: W.B. Saunders; 1991.
15. Evans M. Coercion for fetal therapy? In: Beller FK, Weir RF, editors. The beginning of human life. The Netherlands: Kluwer Academic; 1994. p. 319.
16. Federal Register 9936 (codified at 45 CFR §457), 2002.
17. Ferguson v. City of Charleston, 99-936, 4th Cir. 2001.
18. Daniels C. At women's expense: state power and the politics of fetal rights. Cambridge (MA): Harvard University; 1993.
19. In re AC. 573 A.2d 1235 (D.C. App. 1990).
20. Poland M, Dombrowski MP, Ager JW, et al. Punishing pregnant drug users: enhancing the flight from care. Drug Alcohol Depend 1993;31:199-203.
21. United States General Accounting Office Report to the Chairman. Committee on Finance, US Senate. Drug-exposed infants: a generation at risk. Washington, DC: US General Accounting Office; 1990. Publication HRD-90-138.
22. Associated Press. Infant mortality on rise in '97. Post and Courier April 1999;19:B1.
23. The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. Report on research on the fetus to the Secretary. Washington DC: US Government Printing Office; Department of Health, Education and Welfare; May 21, 1975. Publication (OS) 76-127.
24. Dwyer S. Understanding the problem of abortion. In: Dwyer S, Feinburg J, editors. The problem of abortion. 3rd edition. Belmont (CA): Wadsworth Publishing Company; 1997. p. 1-20.
25. Strong C. Ethics in reproductive and perinatal medicine. New Haven: Yale; 1997.
26. Chervenak F, McCullough LB. Ethics in obstetrics and gynecology. New York: Oxford University; 1994.
27. Lyerly AD, Mahowald MB. Maternal-fetal surgery: the fallacy of abstraction and the problem of equipoise. Health Care Anal 2001;9:151-65.
28. Jennings RW, Adzick NS, Harrison MR. Fetal surgery. In: Evans M, editor. Reproductive risks and prenatal diagnosis. Norwalk (CT): Appleton and Lange; 1992. p. 311-20.
29. Bliton MJ, Zaner R. Over the cutting edge: how ethics consultation illuminates the moral complexity of open-uterine fetal repair of spina bifida and patient's decision making. J Clin Ethics 2001;12:357.
30. Bruner J, Tulipan N, Reed G, et al. Maternal risks of open fetal surgery for nonlethal malformations. Am J Obstet Gynecol 2001;182:S176.
31. American College of Obstetricians and Gynecologists Committee on Ethics. Fetal surgery for open neural tube defects. ACOG Committee Opinion 252. Washington, DC: American College of Obstetricians and Gynecologists; 2001.
32. Annas G. Standard of care: the law of American bioethics. New York: Oxford University; 1993.
33. Lyerly AD, Cefalo RC, Socol M, et al. Attitudes of maternal-fetal specialists concerning maternal-fetal surgery. Am J Obstet Gynecol 2001;185:1052-8.
34. Johnson N, Lilford RJ, Brazier W. At what level of collective equipoise does a clinical trial become ethical? J Med Ethics 1991;17:30-4.
35. Freedman B. Equipoise and the ethics of clinical research. N Engl J Med 1987;317:141-5.
36. Singer PA, Lantos JD, Whitington PF, et al. Equipoise and the ethics of segmental liver transplantation. Clin Res 1988;36:539-45.