Policies designed to enhance the quality of life of children with cancer at the end-of-life

Pediatric Hematology and Oncology

Volumn 20, Issue 1, 2003, Pages 43-54

  Tadmor, C S ^a   Postovsky, S ^a,b   Elhasid, R ^a,b   Ben Barak, A ^a   Weyl Ben Arush, M ^a,b  

^a RAMBAM MEDICAL CENTER   (Israel)

^b TECHNION ISRAEL INSTITUTE OF TECHNOLOGY   (Israel)

Author keywords

Cancer; Children; End of life policies; Quality of life

Indexed keywords

MIDAZOLAM; MORPHINE;

ARTICLE; CANCER CONTROL; CANCER PAIN; CANCER PALLIATIVE THERAPY; CANCER PATIENT; CHILDHOOD CANCER; CRITICAL ILLNESS; FAMILY COUNSELING; HEALTH CARE POLICY; HUMAN; MEDICAL DECISION MAKING; MENTAL HEALTH SERVICE; PATIENT INFORMATION; PHYSICIAN; POSTHUMOUS CARE; PRIMARY MEDICAL CARE; PSYCHOLOGIC ASSESSMENT; QUALITY OF LIFE; SEDATION; TERMINALLY ILL PATIENT;

EID: 0037217066     PISSN: 08880018     EISSN: None     Source Type: Journal    
DOI: 10.1080/08880010390158531     Document Type: Article

References (34)

1. Sirkia K, Saarinen UM, Ahlgren B, Hovi L. Terminal care of the child with cancer at home. Acta Paediatr. 1997;86:1125-1130.
2. Morgan ER, Murphy SB. Care of children who are dying of cancer. N Engl J Med. 2000;342:347-348.
3. Wolfe J, Grier HE, Klar N, et al. Symptoms and suffering at the end-of-life in children with cancer. N Engl J Med. 2000;342:326-333.
4. American Academy of Pediatrics: Committee on Bioethics and Committee on Hospital Care. Palliative care for children. Pediatrics. 2000;106:351-357.
5. American Society of Clinical Oncology. Cancer care during the last phase of life. J Clin Oncol. 1998;16:1986-1996.
6. World Health Organization. Cancer Pain, Relief and Palliative Care in Children. Geneva, Switzerland: World Health Organization; 1998.
7. Sirkia K, Hovi L, Pouttu J, Saarinen-Pihkala UM. Pain medication during terminal care of children with cancer. J Pain Symptom Manage. 1998;15:220-226.
8. Frager G. Pediatric palliative care: Building the model, bridging the gaps. J Palliat Care. 1996;12:9-12.
9. Murphy MS. Sedation for invasive procedures in paediatrics. Arch Dis Child. 1997;77:281-286.
10. Billings JA, Block SD. Slow euthanasia. J Palliat Care. 1996;12:21-30.
11. Tadmor CS. The Perceived Personal Control Crisis Intervention Model: Training of and Application by Physicians and Nurses to a High Risk Population of Caesarean Birth in a Hospital Setting. Doctoral dissertation, Hebrew University Jerusalem; 1983.
12. Tadmor CS. The perceived personal control preventive intervention for a caesarean birth population. In: Price RH, Cowen EL, Lorion RP, Ramos-McKay J, eds. 14 Ounces of Prevention: A Casebook for Practitioners. Washington DC: American Psychological Association; 1988:141-152.
13. Tadmor CS. The perceived personal control preventive intervention model: Reviewing past research exploring future possibilities. In: Martin B, Gullota T, eds. The First Encyclopedia of Primary Prevention. New York: Kluwer/Plenum Academic Press; in press.
14. Caplan G. Support Systems and Community Mental Health: Lectures on Concept Development. New York: Behavioral Publications; 1974.
15. Tadmor CS. Preventive intervention for children with cancer at the end-of-life. Journal of Primary Prevention, in press.
16. Shields EC. Giving patients bad news. Prim Care. 1998;25:381-391.
17. Wolfe J, Klar N, Grier HE, et al. Understanding of prognosis among parents of children who died of cancer. J Am Med Assoc. 2000;284:2469-2475.
18. Eden OB, Black I, MacKinlay GA, Emery AEH. Communication with parents of children with cancer. Palliat Med. 1994;8:105-114.
19. Hansell N. The Person-in-Distress: On the Biological Dynamics of Adaptation. New York: Behavioral Publications; 1976.
20. Glick IO, Weiss RS, Parkes CM. The First Year of Bereavement. New York: Wiley Interscience; 1974.
21. Faulkner KW. Talking about death with a dying child. Am J Nurs. 1997;97:64-69.
22. Nitschke R, Meyer WH, Sexauer CL, Parkhurst JB, Foster P, Hutszti H. Care of terminally ill children with cancer. Med Pediatr Oncol. 2000;34:268-270.
23. Masera G, Spinetta JJ, Jankovic M, et al. Guidelines for assistance to terminally ill children with cancer: A report of the SIOP working committee on psychological issues in pediatric oncology. Med Pediatr Oncol. 1999;32:44-48.
24. Hilden JM, Watterson J, Chrastek J. The art of oncology: When the tumor is not the target. Tell the children. J Clin Oncol. 2000;18:3193-3195.
25. Lauer ME, Mulhern RK, Wallskog JM, Camitta BN. A comparison study of parental adaptation following child's death at home or in the hospital. Pediatrics. 1983;71:107-112.
26. Tadmor CS. Preventive intervention for medical staff dealing with terminally ill patients. J Prevent Psychiatry. 1987;3:393-409.
27. Loprinzi CL, Johnson ME, Steer G. The art of oncology: when the tumor is not the target. Doc, how much time do I have. J Clin Oncol. 2000;18:699-700.
28. Quill TE, Byock IR. Responding to intractable terminal suffering: The role of terminal sedation and voluntary refusal of food and fluids. ACP-ASIM End-of-Life Care Consensus Panel. Ann Intern Med. 2000;132:408-414.
29. Yanow M. Responding to intractable terminal suffering. Ann Intern Med. 2000;133:560.
30. Ljungman G, Gordh T, Sorensen S, Kreuger A. Pain variations during cancer treatment in children: A descriptive survey. Pediatr Hematol Oncol. 2000;17:211-221.
31. Stevens MM, Dalla Pozza L, Cavalletto B, Cooper MG, Kilham HA. Pain and symptom control in paediatric palliative care. Cancer Surv. 1994;21:211-231.
32. Collins JJ, Grier HE, Hannah CK, Berde CB. Control of severe pain in children with terminal malignancy. J Pediatr. 1995;126:653-657.
33. Kenny NP, Frager G. Refractory symptoms and terminal sedation of children: Ethical issues and practical management. J Palliat Care. 1996;12:40-45.
34. Quill TE, Dresser R, Brock DW. The rule of double effect - a critique of its role in end-of-life decision making. N Engl J Med. 1997;337:1768-1771.