Gender differences in psychosocial reactions to cystic fibrosis carrier testing

American Journal of Medical Genetics

Volumn 113, Issue 2, 2002, Pages 151-157

  Newman, Jamie E ^a   Sorenson, James R ^a   DeVellis, Brenda M ^a   Cheuvront, Brian ^b  

^a IL   (United States)

^b Boston University Metropolitan College   (United States)

Author keywords

Carrier testing; Cystic fibrosis; Gender differences; Psychosocial outcomes

Indexed keywords

ADULT; ARTICLE; CYSTIC FIBROSIS; FEMALE; GENETIC SCREENING; HETEROZYGOTE DETECTION; HOME; HUMAN; MAJOR CLINICAL STUDY; MALE; OUTPATIENT DEPARTMENT; PATIENT ATTITUDE; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; PSYCHOSOCIAL ENVIRONMENT; SEX DIFFERENCE;

ADOLESCENT; ADULT; ANXIETY; ATTITUDE TO HEALTH; CYSTIC FIBROSIS; FEMALE; GENETIC SCREENING; HETEROZYGOTE; HUMANS; MALE; MIDDLE AGED; PATIENT EDUCATION; PSYCHOLOGICAL TESTS; RISK FACTORS; SEX FACTORS; SOCIAL CLASS;

EID: 0037159462     PISSN: 01487299     EISSN: None     Source Type: Journal    
DOI: 10.1002/ajmg.10736     Document Type: Article

References (30)

1. Axworthy D, Brock DJ, Bobrow M, Marteau TM. 1996. Psychological impact of population-based carrier testing for cystic fibrosis: 3-Year Follow-up. Lancet 347:1443-1446.
2. Bekker H, Modell M, Denniss G, Silver A, Mathew C, Bobrow M, Marteau T. 1993. Uptake of cystic fibrosis testing in primary care: supply push or demand pull? BMJ 306:1584-1586.
3. Bekker H, Denniss G, Modell M, Bobrow M, Marteau TM. 1994. The impact of population based screening for carriers of cystic fibrosis. J Med Genet 31:364-368.
4. Bem SL. 1974. The measurement of psychological androgyny. J Consult Clin Psychol 42:155-162.
5. Bem SL. 1977. On the utility of alternative procedures for assessing psychological androgyny. J Consult Clin Psychol 45:196-205.
6. Cheuvront B, Sorenson JR, Callanan NP, Stearns SC, DeVellis BM. 1998. Psychosocial and educational outcomes associated with homeand clinic-based pretest education and cystic fibrosis carrier testing among a population of at-risk relatives. Am J Med Genet 75:461-468.
7. Cystic Fibrosis Foundation [online]. Retrieved February 4, 2001. from World Wide Web: http://www.cff.org/facts.htm
8. Evers-Kiebooms G, Denayer L, Welkenhuyzen M, Cassiman JJ, Van den Berghe H. 1994. A stigmatizing effect of the carrier status for cystic fibrosis? Clin Genet 46:336-343.
9. Gabbard-Alley AS. 1995. Health communication and gender: A review and critique. Health Commun 7:35-54.
10. Mahowald MB. 1997. An overview of the human genome project and its implications for women. Womens Health Issues 7:206-208.
11. Mahowald MB, Levinson D, Cassel C, Lemke A, Ober C, Bowman J, Le Beau M, Ravin A, Times M. 1996. The new genetics and women. Milbank Q 74:239-283.
12. Marteau TM, Dundas R, Axworthy D. 1997. Long-term cognitive and emotional impact of genetic testing for carriers of cystic fibrosis: The effects of test result and gender. Health Psychol 16:51-62.
13. Osgood CE, Suci G, Tannenbaum P. 1957. The Measurement of Meaning. Urbana, Illinois: University of Illinois.
14. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. 1983. Screening and Counseling for Genetic Conditions: The Ethical, Social, and Legal Implications of Genetic Screening, Counseling, and Education Programs. Washington, D.C.
15. Research Triangle Institute. 1998. SUDAAN Software for the Statistical Analysis of Correlated Data (Version 7.5.2). Research Triangle Park, NC.
16. Rowley PT, Lipkin M, Fisher L. 1984. Screening and genetic counseling for βthalassemia trait in a population unselected for interest: Comparison of three counseling methods. Am J Hum Genet 36:677-689.
17. Sorenson JR. 1991. An Evaluation of Screening and Counseling for CF Carriers. NCHGR, September 1991 August 1996.
18. Sorenson JR, Cheuvront B, DeVellis B, Callanan N, Silverman L, Koch G, Sharp T, Fernald G. 1997. Acceptance of home and clinic-based cystic fibrosis carrier education and testing by first, second, and third degree relatives of cystic fibrosis patients. Am J Med Genet 70:121-129.
19. Spielberger CD. 1985. Assessment of state and trait anxiety: Conceptual and methodological issues. South Psychologist 2:6-16.
20. Stacey M. 1996. The new genetics: A feminist view. In: Marteau TM, Richards MP, editors. The Troubled Helix: Social and Psychological Implications of the New Human Genetics. Cambridge, England: Cambridge University Press. p 331-349.
21. Street RL, Wiemann JM. 1987. Patient satisfaction with physicians' interpersonal involvement, expressiveness, and dominance. Commun Yearbook 10:591-612.
22. Waitzkin H. 1984. Doctor-patient communication: Clinical implications of social scientific research. JAMA 252:2441-2446
23. Waitzkin H. 1985. Information giving in medical care. J Health Soc Behav 26:81-101.
24. Wallen J, Waitzkin JH, Stoeckle J. 1979. Physician stereotypes about female health and illness. Women Health 4:1135-1145.
25. Watson D, Clark LA, Tellegen A. 1988. Development and validation of brief measures of positive and negative affect: The PANAS scales. J Pers Soc Psychol 54:1063-1070.
26. Watson EK, Mayall ES, Lamb J, Chapple J, Williamson R. 1992. Psychological and social consequences of community carrier screening for cystic fibrosis. Lancet 340:217-220.
27. Welsh MJ, Tsui LC, Boat TF, Beaudet AL. 1995. Cystic fibrosis. In: Shriver CR, Beaudet AL, Sly WS, Valle D, editors. The Metabolic and Molecular Basis of Inherited Disease. New York: McGraw Hill. p 3799-3878.
28. Wilfond BS, Fost N. 1990. The cystic fibrosis gene: Medical and social implications for heterozygote detection. JAMA 263:2777-2783.
29. Wood JT. 1997. Gendered Lives: Communication, Gender, and Culture. 2nd Ed. Belmont, California: Wadsworth Publishing Company.
30. Zare N, Sorenson JR, Heeren T. 1984. Sex of provider as a variable in effective genetic counseling. Soc Sci Med 19:671-675.