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4644349065
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Preface
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San Francisco: Public Media Center
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J. Mann, "Preface," The Impact of Homophobia and Other Social Biases on AIDS (San Francisco: Public Media Center, 1996): at 3, available at 〈http://www.publicmediacenter.org/pdfs/stigma.html〉.
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(1996)
The Impact of Homophobia and Other Social Biases on AIDS
, pp. 3
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Mann, J.1
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2
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4644357785
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note
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The category of "people with HIV" includes people diagnosed with AIDS as well as those who are asymptomatic. In the present article, I generally frame the discussion in terms of people with HIV. The exception is in my discussion of some public opinion data and some specific incidents that refer specifically to people with AIDS.
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3
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0002672738
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Illness, Stigma, and AIDS
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P.T. Costa, Jr., and G.R. VandenBos, eds., Washington, D.C.: American Psychological Association
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G.M. Herek, "Illness, Stigma, and AIDS," in P.T. Costa, Jr., and G.R. VandenBos, eds., Psychological Aspects of Serious Illness: Chronic Conditions, Fatal Diseases, and Clinical Care (Washington, D.C.: American Psychological Association, 1990): 107-50; G.M. Herek and E.K. Glunt, "An Epidemic of Stigma: Public Reactions to AIDS," American Psychologist, 43 (1988): 886-91; M.A. Chesney and A.W. Smith, "Critical Delays in HIV Testing and Care: The Potential Role of Stigma," American Behavioral Scientist, 42 (1999): 1162-74.
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(1990)
Psychological Aspects of Serious Illness: Chronic Conditions, Fatal Diseases, and Clinical Care
, pp. 107-150
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Herek, G.M.1
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4
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0024114899
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An Epidemic of Stigma: Public Reactions to AIDS
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G.M. Herek, "Illness, Stigma, and AIDS," in P.T. Costa, Jr., and G.R. VandenBos, eds., Psychological Aspects of Serious Illness: Chronic Conditions, Fatal Diseases, and Clinical Care (Washington, D.C.: American Psychological Association, 1990): 107-50; G.M. Herek and E.K. Glunt, "An Epidemic of Stigma: Public Reactions to AIDS," American Psychologist, 43 (1988): 886-91; M.A. Chesney and A.W. Smith, "Critical Delays in HIV Testing and Care: The Potential Role of Stigma," American Behavioral Scientist, 42 (1999): 1162-74.
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(1988)
American Psychologist
, vol.43
, pp. 886-891
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Herek, G.M.1
Glunt, E.K.2
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5
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0033247016
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Critical Delays in HIV Testing and Care: The Potential Role of Stigma
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G.M. Herek, "Illness, Stigma, and AIDS," in P.T. Costa, Jr., and G.R. VandenBos, eds., Psychological Aspects of Serious Illness: Chronic Conditions, Fatal Diseases, and Clinical Care (Washington, D.C.: American Psychological Association, 1990): 107-50; G.M. Herek and E.K. Glunt, "An Epidemic of Stigma: Public Reactions to AIDS," American Psychologist, 43 (1988): 886-91; M.A. Chesney and A.W. Smith, "Critical Delays in HIV Testing and Care: The Potential Role of Stigma," American Behavioral Scientist, 42 (1999): 1162-74.
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(1999)
American Behavioral Scientist
, vol.42
, pp. 1162-1174
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Chesney, M.A.1
Smith, A.W.2
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6
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0003802843
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Englewood Cliffs, New Jersey: Prentice-Hall
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My discussion provides only a brief and somewhat idiosyncratic introduction to social psychological thinking about stigma and HIV. Readers who desire additional information about stigma in general will find the following sources helpful: E. Goffman, Stigma: Notes on the Management of Spoiled Identity (Englewood Cliffs, New Jersey: Prentice-Hall, 1963); J. Crocker, B. Major, and C. Steele, "Social Stigma," in D.T. Gilbert, S.T. Fiske, and G. Lindzey, eds., The Handbook of Social Psychology, vol. 2, 4th ed. (Boston: McGraw-Hill, 1998): 504-53; E.E. Jones et al., Social Stigma: The Psychology of Marked Relationships (New York: W.H. Freeman, 1984); B.C. Link and J.C. Phelan, "Conceptualizing Stigma," Annual Review of Sociology, 27 (2001): 363-85. For more detailed discussions of HIV-related stigma, see the papers in G.M. Herek, ed., "AIDS and Stigma," a thematic issue of American Behavioral Scientist, 42, no. 7 (1999).
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(1963)
Stigma: Notes on the Management of Spoiled Identity
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Goffman, E.1
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7
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0000786162
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Social Stigma
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D.T. Gilbert, S.T. Fiske, and G. Lindzey, eds., Boston: McGraw-Hill
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My discussion provides only a brief and somewhat idiosyncratic introduction to social psychological thinking about stigma and HIV. Readers who desire additional information about stigma in general will find the following sources helpful: E. Goffman, Stigma: Notes on the Management of Spoiled Identity (Englewood Cliffs, New Jersey: Prentice-Hall, 1963); J. Crocker, B. Major, and C. Steele, "Social Stigma," in D.T. Gilbert, S.T. Fiske, and G. Lindzey, eds., The Handbook of Social Psychology, vol. 2, 4th ed. (Boston: McGraw-Hill, 1998): 504-53; E.E. Jones et al., Social Stigma: The Psychology of Marked Relationships (New York: W.H. Freeman, 1984); B.C. Link and J.C. Phelan, "Conceptualizing Stigma," Annual Review of Sociology, 27 (2001): 363-85. For more detailed discussions of HIV-related stigma, see the papers in G.M. Herek, ed., "AIDS and Stigma," a thematic issue of American Behavioral Scientist, 42, no. 7 (1999).
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(1998)
The Handbook of Social Psychology, Vol. 2, 4th Ed.
, vol.2
, pp. 504-553
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Crocker, J.1
Major, B.2
Steele, C.3
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8
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77949309377
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New York: W.H. Freeman
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My discussion provides only a brief and somewhat idiosyncratic introduction to social psychological thinking about stigma and HIV. Readers who desire additional information about stigma in general will find the following sources helpful: E. Goffman, Stigma: Notes on the Management of Spoiled Identity (Englewood Cliffs, New Jersey: Prentice-Hall, 1963); J. Crocker, B. Major, and C. Steele, "Social Stigma," in D.T. Gilbert, S.T. Fiske, and G. Lindzey, eds., The Handbook of Social Psychology, vol. 2, 4th ed. (Boston: McGraw-Hill, 1998): 504-53; E.E. Jones et al., Social Stigma: The Psychology of Marked Relationships (New York: W.H. Freeman, 1984); B.C. Link and J.C. Phelan, "Conceptualizing Stigma," Annual Review of Sociology, 27 (2001): 363-85. For more detailed discussions of HIV-related stigma, see the papers in G.M. Herek, ed., "AIDS and Stigma," a thematic issue of American Behavioral Scientist, 42, no. 7 (1999).
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(1984)
Social Stigma: The Psychology of Marked Relationships
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Jones, E.E.1
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9
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0035629556
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Conceptualizing Stigma
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My discussion provides only a brief and somewhat idiosyncratic introduction to social psychological thinking about stigma and HIV. Readers who desire additional information about stigma in general will find the following sources helpful: E. Goffman, Stigma: Notes on the Management of Spoiled Identity (Englewood Cliffs, New Jersey: Prentice-Hall, 1963); J. Crocker, B. Major, and C. Steele, "Social Stigma," in D.T. Gilbert, S.T. Fiske, and G. Lindzey, eds., The Handbook of Social Psychology, vol. 2, 4th ed. (Boston: McGraw-Hill, 1998): 504-53; E.E. Jones et al., Social Stigma: The Psychology of Marked Relationships (New York: W.H. Freeman, 1984); B.C. Link and J.C. Phelan, "Conceptualizing Stigma," Annual Review of Sociology, 27 (2001): 363-85. For more detailed discussions of HIV-related stigma, see the papers in G.M. Herek, ed., "AIDS and Stigma," a thematic issue of American Behavioral Scientist, 42, no. 7 (1999).
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(2001)
Annual Review of Sociology
, vol.27
, pp. 363-385
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Link, B.C.1
Phelan, J.C.2
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10
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84990345013
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AIDS and Stigma
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thematic issue
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My discussion provides only a brief and somewhat idiosyncratic introduction to social psychological thinking about stigma and HIV. Readers who desire additional information about stigma in general will find the following sources helpful: E. Goffman, Stigma: Notes on the Management of Spoiled Identity (Englewood Cliffs, New Jersey: Prentice-Hall, 1963); J. Crocker, B. Major, and C. Steele, "Social Stigma," in D.T. Gilbert, S.T. Fiske, and G. Lindzey, eds., The Handbook of Social Psychology, vol. 2, 4th ed. (Boston: McGraw-Hill, 1998): 504-53; E.E. Jones et al., Social Stigma: The Psychology of Marked Relationships (New York: W.H. Freeman, 1984); B.C. Link and J.C. Phelan, "Conceptualizing Stigma," Annual Review of Sociology, 27 (2001): 363-85. For more detailed discussions of HIV-related stigma, see the papers in G.M. Herek, ed., "AIDS and Stigma," a thematic issue of American Behavioral Scientist, 42, no. 7 (1999).
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(1999)
American Behavioral Scientist
, vol.42
, Issue.7
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Herek, G.M.1
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11
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note
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The source for my comments about the etymology of stigma is the Oxford English Dictionary (1971 edition).
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14
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4644361206
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Goffman, supra note 4
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Goffman, supra note 4.
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I. Ajzen and M. Fishbein, Understanding Attitudes and Predicting Social Behavior (Englewood Cliffs, New Jersey: Prentice-Hall, 1980); A.H. Eagly and S. Chaiken, eds., The Psychology of Attitudes (Fort Worth, Texas: Harcourt Brace Jovanovich, 1993); I. Ajzen, "Nature and Operation of Attitudes," Annual Review of Psychology, 52 (2001): 27-58; M. Fishbein and I. Ajzen, Belief, Attitude, Intention, and Behavior (Reading, Massachusetts: Addison-Wesley, 1975).
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Understanding Attitudes and Predicting Social Behavior
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Fishbein, M.2
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Fort Worth, Texas: Harcourt Brace Jovanovich
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I. Ajzen and M. Fishbein, Understanding Attitudes and Predicting Social Behavior (Englewood Cliffs, New Jersey: Prentice-Hall, 1980); A.H. Eagly and S. Chaiken, eds., The Psychology of Attitudes (Fort Worth, Texas: Harcourt Brace Jovanovich, 1993); I. Ajzen, "Nature and Operation of Attitudes," Annual Review of Psychology, 52 (2001): 27-58; M. Fishbein and I. Ajzen, Belief, Attitude, Intention, and Behavior (Reading, Massachusetts: Addison-Wesley, 1975).
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The Psychology of Attitudes
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19
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Nature and Operation of Attitudes
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I. Ajzen and M. Fishbein, Understanding Attitudes and Predicting Social Behavior (Englewood Cliffs, New Jersey: Prentice-Hall, 1980); A.H. Eagly and S. Chaiken, eds., The Psychology of Attitudes (Fort Worth, Texas: Harcourt Brace Jovanovich, 1993); I. Ajzen, "Nature and Operation of Attitudes," Annual Review of Psychology, 52 (2001): 27-58; M. Fishbein and I. Ajzen, Belief, Attitude, Intention, and Behavior (Reading, Massachusetts: Addison-Wesley, 1975).
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Reading, Massachusetts: Addison-Wesley
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I. Ajzen and M. Fishbein, Understanding Attitudes and Predicting Social Behavior (Englewood Cliffs, New Jersey: Prentice-Hall, 1980); A.H. Eagly and S. Chaiken, eds., The Psychology of Attitudes (Fort Worth, Texas: Harcourt Brace Jovanovich, 1993); I. Ajzen, "Nature and Operation of Attitudes," Annual Review of Psychology, 52 (2001): 27-58; M. Fishbein and I. Ajzen, Belief, Attitude, Intention, and Behavior (Reading, Massachusetts: Addison-Wesley, 1975).
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Belief, Attitude, Intention, and Behavior
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Eagly and Chaiken, supra note 11; Ajzen and Fishbein, supra note 11
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Eagly and Chaiken, supra note 11; Ajzen and Fishbein, supra note 11.
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London: Routledge
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G. Scambler, Epilepsy (London: Routledge, 1989): at 56-57. I am grateful to Scott Burris for making me aware of Scambler's work.
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(1989)
Epilepsy
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Scambler, G.1
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24
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AIDS and Stigma: A Conceptual Framework and Research Agenda
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G.M. Herek et al., "AIDS and Stigma: A Conceptual Framework and Research Agenda," AIDS and Public Policy Journal, 13, no. 1 (1998): 36-47.
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AIDS and Public Policy Journal
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Cambridge: Harvard University Press
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J.M. Mann, D.J.M. Tarantula, and T.W. Netter, eds., AIDS in the World (Cambridge: Harvard University Press, 1992); Panos Institute, The 3rd Epidemic: Repercussions of the Fear of AIDS (Budapest: Panos Institute, 1990); P. Aggleton, HIV and AIDS-Related Stigmatization, Discrimination and Denial: Research Studies From Uganda and India (Geneva: UNAIDS, 2000); C.S. Goldin, "Stigmatization and AIDS: Critical Issues in Public Health," Social Science and Medicine, 39 (1994): 1359-66; A. Malcolm et al., "HIV-Related Stigmatization and Discrimination: Its Forms and Contexts," Critical Public Health, 8 (1998): 347-70.
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J.M. Mann, D.J.M. Tarantula, and T.W. Netter, eds., AIDS in the World (Cambridge: Harvard University Press, 1992); Panos Institute, The 3rd Epidemic: Repercussions of the Fear of AIDS (Budapest: Panos Institute, 1990); P. Aggleton, HIV and AIDS-Related Stigmatization, Discrimination and Denial: Research Studies From Uganda and India (Geneva: UNAIDS, 2000); C.S. Goldin, "Stigmatization and AIDS: Critical Issues in Public Health," Social Science and Medicine, 39 (1994): 1359-66; A. Malcolm et al., "HIV-Related Stigmatization and Discrimination: Its Forms and Contexts," Critical Public Health, 8 (1998): 347-70.
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J.M. Mann, D.J.M. Tarantula, and T.W. Netter, eds., AIDS in the World (Cambridge: Harvard University Press, 1992); Panos Institute, The 3rd Epidemic: Repercussions of the Fear of AIDS (Budapest: Panos Institute, 1990); P. Aggleton, HIV and AIDS-Related Stigmatization, Discrimination and Denial: Research Studies From Uganda and India (Geneva: UNAIDS, 2000); C.S. Goldin, "Stigmatization and AIDS: Critical Issues in Public Health," Social Science and Medicine, 39 (1994): 1359-66; A. Malcolm et al., "HIV-Related Stigmatization and Discrimination: Its Forms and Contexts," Critical Public Health, 8 (1998): 347-70.
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J.M. Mann, D.J.M. Tarantula, and T.W. Netter, eds., AIDS in the World (Cambridge: Harvard University Press, 1992); Panos Institute, The 3rd Epidemic: Repercussions of the Fear of AIDS (Budapest: Panos Institute, 1990); P. Aggleton, HIV and AIDS-Related Stigmatization, Discrimination and Denial: Research Studies From Uganda and India (Geneva: UNAIDS, 2000); C.S. Goldin, "Stigmatization and AIDS: Critical Issues in Public Health," Social Science and Medicine, 39 (1994): 1359-66; A. Malcolm et al., "HIV-Related Stigmatization and Discrimination: Its Forms and Contexts," Critical Public Health, 8 (1998): 347-70.
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J.M. Mann, D.J.M. Tarantula, and T.W. Netter, eds., AIDS in the World (Cambridge: Harvard University Press, 1992); Panos Institute, The 3rd Epidemic: Repercussions of the Fear of AIDS (Budapest: Panos Institute, 1990); P. Aggleton, HIV and AIDS-Related Stigmatization, Discrimination and Denial: Research Studies From Uganda and India (Geneva: UNAIDS, 2000); C.S. Goldin, "Stigmatization and AIDS: Critical Issues in Public Health," Social Science and Medicine, 39 (1994): 1359-66; A. Malcolm et al., "HIV-Related Stigmatization and Discrimination: Its Forms and Contexts," Critical Public Health, 8 (1998): 347-70.
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Herek, supra note 3; Herek and Glunt, supra note 3; National Association of People with AIDS [NAPWA], Washington, D.C.: NAPWA
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For more extensive discussion of how AIDS-related stigma has been enacted, see Herek, supra note 3; Herek and Glunt, supra note 3; National Association of People with AIDS [NAPWA], HIV in America: A Profile of the Challenges Facing Americans Living with HIV (Washington, D.C.: NAPWA, 1992).
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A.C. Gielen et al., "Women's Disclosure of HIV Status: Experiences of Mistreatment and Violence in an Urban Setting," Women and Health, 25, no. 3 (1997): 19-31; R. Klitzman, Being Positive: The Lives of Men and Women with HIV (Chicago: Ivan R. Dee, 1997); S. Zierler et al., "Violence Victimization After HIV Infection in a U.S. Probability Sample of Adult Patients in Primary Care," American Journal of Public Health, 90 (2000): 208-15; NAPWA, supra note 17; S. Page, "Accommodating Persons with AIDS: Acceptance and Rejection in Rental Situations," Journal of Applied Social Psychology, 29 (1999): 261-70; B.L. Fife and E.R. Wright, "The Dimensionality of Stigma: A Comparison of Its Impact on the Self of Persons with HIV/AIDS and Cancer," Journal of Health and Social Behavior, 41 (2000): 50-67.
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A.C. Gielen et al., "Women's Disclosure of HIV Status: Experiences of Mistreatment and Violence in an Urban Setting," Women and Health, 25, no. 3 (1997): 19-31; R. Klitzman, Being Positive: The Lives of Men and Women with HIV (Chicago: Ivan R. Dee, 1997); S. Zierler et al., "Violence Victimization After HIV Infection in a U.S. Probability Sample of Adult Patients in Primary Care," American Journal of Public Health, 90 (2000): 208-15; NAPWA, supra note 17; S. Page, "Accommodating Persons with AIDS: Acceptance and Rejection in Rental Situations," Journal of Applied Social Psychology, 29 (1999): 261-70; B.L. Fife and E.R. Wright, "The Dimensionality of Stigma: A Comparison of Its Impact on the Self of Persons with HIV/AIDS and Cancer," Journal of Health and Social Behavior, 41 (2000): 50-67.
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In his classic analysis of stigma, for example, Goffman paid relatively little notice to how a particular characteristic or condition comes to be stigmatized in the first place, taking this to be largely a given, a part of the social structure. Instead, he focused mainly on how stigma affects face-to-face encounters.
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The total 1999 sample included 666 respondents who were recontacted after participating in a similar 1997 survey as well as 669 new respondents. Some data from the 1999 interviews with the recontacted participants have been reported elsewhere (Herek, Capitanio, and Widaman, supra note 21). Respondents were included in the present analyses only if they identified themselves as heterosexual in a screening question. Because of missing data for some variables, the sample size for the correlation coefficients shown in Table 1 ranged from 1,197 to 1,258. For the regression analysis, the sample size was 1,185. Details about the sampling methods, response rates, interview procedures, and other aspects of the methodology, including the wording of individual items, are reported in Herek, Capitanio, and Widaman, supra note 21; G.M. Herek, "Gender Gaps in Public Opinion About Lesbians and Gay Men." Public Opinion Quarterly, 66 (2002): 40-66; G.M. Herek, "Heterosexuals' Attitudes Toward Bisexual Men and Women in the United States," Journal of Sex Research, 39 (2002): in press.
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The total 1999 sample included 666 respondents who were recontacted after participating in a similar 1997 survey as well as 669 new respondents. Some data from the 1999 interviews with the recontacted participants have been reported elsewhere (Herek, Capitanio, and Widaman, supra note 21). Respondents were included in the present analyses only if they identified themselves as heterosexual in a screening question. Because of missing data for some variables, the sample size for the correlation coefficients shown in Table 1 ranged from 1,197 to 1,258. For the regression analysis, the sample size was 1,185. Details about the sampling methods, response rates, interview procedures, and other aspects of the methodology, including the wording of individual items, are reported in Herek, Capitanio, and Widaman, supra note 21; G.M. Herek, "Gender Gaps in Public Opinion About Lesbians and Gay Men." Public Opinion Quarterly, 66 (2002): 40-66; G.M. Herek, "Heterosexuals' Attitudes Toward Bisexual Men and Women in the United States," Journal of Sex Research, 39 (2002): in press.
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This index was computed by counting the number of stigmatizing responses each person gave to nine different items designed to measure various aspects of AIDS-related stigma. The items assessed the extent to which respondents felt angry, disgusted, and afraid of people with AIDS; would avoid interacting with a person with AIDS in an office; would have their child avoid an HIV-infected schoolmate; would refrain from shopping at a neighborhood grocery store whose owner had AIDS; supported quarantining people with AIDS; believed that the names of those with AIDS should be made public; and believed that those who were infected through sex or drug use got what they deserved. More information about this measure is reported in Herek, Capitanio, and Widaman, supra note 21.
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The variables listed in Table 1 were derived from a series of exploratory analyses with a larger number of variables. The variables of marital status, number of children, race, and political party affiliation displayed negligible correlations with AIDS stigma and were dropped from the analysis. A "negligible" correlation was operationally defined as r < 0.10 (i.e.. the variable shared less than 1 percent of variance with the AIDS stigma index).
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The coefficients can potentially range from -1.00 to +1.00, with values near zero indicating little or no association between the two variables and values near -1.00 or + 1.00 indicating a strong association. The sign of the coefficient indicates the direction of the relationship. A positive coefficient means that as values of one variable increased, values of the other also increased; a negative coefficient means that as values of one variable increased, values of the other decreased.
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A correlation coefficient less than r = 0.14 means that the variable shares only about 1 percent of its variance with AIDS stigma scores. These associations are statistically significant mainly because the sample for the survey was relatively large, but they have little substantive importance in the present analysis
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Like correlation coefficients, values for β can potentially range from -1.00 to +1.00, with values near zero indicating that the variable has little or no predictive power and values near -1.00 or +1.00 indicating that the variable helps to explain a substantial amount of variation in AIDS stigma scores. As with correlation coefficients, the sign of β (positive or negative) indicates the direction of the relationship (see note 54, supra).
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