HIV-related stigma in a sample of HIV-affected older female African American caregivers

Social Work

Volumn 44, Issue 1, 1999, Pages 46-61

  Poindexter, Cynthia Cannon ^a   Linsk, Nathan L ^b  

^a BOSTON UNIVERSITY   (United States)

^b UNIVERSITY OF ILLINOIS AT CHICAGO   (United States)

Author keywords

African Americans; Caregivers; Elderly women; HIV AIDS; Stigma

Indexed keywords

EID: 0002520891     PISSN: 00378046     EISSN: None     Source Type: Journal    
DOI: 10.1093/sw/44.1.46     Document Type: Article

References (129)

1. Alex, A. Y. (1995). Myths about race and the underclass: Concentrated poverty and "underclass" behaviors. Urban Affairs Review, 31, 3-19.
2. Allers, C. T. (1990). AIDS and the older adult. Gerontologist, 30, 405-407.
3. Anderson, G. R. (Ed.). (1990). Courage to care: Responding to the crisis of children with AIDS. Washington, DC: Child Welfare League of America.
4. Angrosino, M. V. (1992). Metaphors of stigma: How deinstitutionalized mentally retarded adults see themselves. Journal of Contemporary Ethnography, 21, 171-199.
5. Baker, L. S. (1992). The perspective of families. In M. L. Stuber (Ed.), Children with AIDS (pp. 147-161). Washington, DC: American Psychiatric Press.
6. Beder, H. (1991). The stigma of illiteracy. Adult Basic Education, 1(2), 67-78.
7. Birenbaum, A. (1992). Courtesy stigma revisited. Mental Retardation, 30, 265-268.
8. Blum, N. S. (1991). The management of stigma by Alzheimer family caregivers. Journal of Contemporary Ethnography, 20, 263-284.
9. Borcher, J., & Rickabaugh, C. A. (1995). When illness is perceived as controllable: The effects of gender and mode of transmission on AIDS-related stigma. Sex Roles, 33, 657-668.
10. Boyd-Franklin, N., Aleman, J., Jean-Gilles, M. M., & Lewis, S. Y. (1995). Cultural sensitivity and competence. In N. Boyd-Franklin, G. L. Steiner, & M. G. Boland (Eds.), Children, families, and HIV/ AIDS: Psychosocial and therapeutic issues (pp. 53-59). New York: Guilford Press.
11. Brabant, S. (1994). An overlooked AIDS affected population: The elderly parent as caregiver. Journal of Gerontological Social Work 22(1/2), 131-145.
12. Brown, G., Mitchell, J., & Williams, S. B. (1992). The African American community. In M. L. Stuber (Ed.), Children with AIDS (pp. 21-32). Washington, DC: American Psychiatric Press.
13. Brown, M. A., & Powell-Cope, G. M. (1991). AIDS family caregiving: Transitions through uncertainty. Nursing Residency, 40, 338-345.
14. Brown, M. A., & Powell-Cope, G. M. (1993). Themes of loss and dying in caring for a family member with AIDS. Residential Nursing Health, 16, 179-191.
15. Cadwell, S. (1994). Twice removed: The stigma suffered by gay men with AIDS. In S. A. Cadwell, R. Burnham, & M. Forstein (Eds.), Therapists on the front line: Psychotherapy with gay men in the age of AIDS (pp. 3-24). Washington, DC: American Psychiatric Press.
16. Cahill, S. E., & Eggleston, R. (1995). Reconsidering the stigma of physical disability: Wheelchair use and public kindness. Sociological Quarterly, 36, 681-698.
17. Cameron, T. (1994). Children orphaned by AIDS: Providing homes for a most vulnerable population. AIDS and Public Policy Journal, 9, 29-35.
18. Cates, J. A., Graham, L. L., Boeglin, D., & Tielker, S. (1990, April). The effect of AIDS on the family system. Families in Society, pp. 195-201.
19. Chaplin, J. E., Floyd, M., & Lasso, R. Y. (1993). Early psychosocial adjustment and the experience of epilepsy: Findings from a general practice survey. International Journal of Rehabilitation Research, 16, 316-318.
20. Coffey, P., Leitenberg, H., & Henning, K. (1996). Mediators of the long-term impact of child sexual abuse: Perceived stigma, betrayal, powerlessness, and self-blame. Child Abuse & Neglect, 20, 447-455.
21. Coleman, L. M. (1986). Stigma: An enigma demystified. In S. C. Ainlay, G. Becker, & L. M. Coleman (Eds.), The dilemma of difference: A multidisciplinary view of stigma (pp. 211-232). New York: Plenum Press.
22. Coleman, E., & Remafedi, G. (1989). Gay, lesbian, and bisexual adolescents: A critical challenge to counselors. Journal of Counseling and Development, 68(1), 36-40.
23. Crandall, C. S. (1991). AIDS-related stigma and the lay sense of justice. Contemporary Social Psychology, 15(2), 66-67.
24. Crandall, C. S., & Coleman, R. (1992). AIDS-related stigmatization and the disruption of social relationships. Journal of Social and Personal Relationships, 9, 163-177.
25. Crawford, A. M. (1996). Stigma associated with AIDS: A meta-analysis. Journal of Applied Social Psychology, 26, 398-416.
26. Dane, B. O. (1991, February). Anticipatory mourning of middle-aged parents of adult children with AIDS. Families in Society, pp. 108-115.
27. Denker, A. L. (1990). Stigma and the nursing care of children with AIDS (Abstract no. S.D.877). International Conference on AIDS, 6, 309.
28. DeVinney, D. J., & Thomas, K. B. (1980). The stigma associated with various criminal offenses in hiring decisions. Journal of Employment Counseling, 17, 301-305.
29. Duh, S. V. (1991). Blacks and AIDS: Causes and origins. Newbury Park, CA: Sage Publications.
30. Eliason, M. J. (1993). AIDS-related stigma and homophobia: Implications for nursing education. Nurse Educator, 18(6), 27-30.
31. Epley, R. J., & McCaghy, C. H. (1978). The stigma of dying: Attitudes toward the terminally ill. Omega, 8, 379-392.
32. Fair, C. D., Spencer, E. D., & Wiener, L. (1995). Healthy children in families affected by AIDS: Epidemiological and psychosocial considerations. Child and Adolescent Social Work Journal, 12, 165-181.
33. Faugier, J., & Wright, S. (1990). Homophobia, stigma and AIDS-An issue for all health care workers. Nurse Practitioner, 3(2), 27-28.
34. Feiring, C., Taska, L. S., & Lewis, M. (1996). A process model for understanding adaptation to sexual abuse: The role of shame in defining stigmatization. Child Abuse & Neglect, 20, 767-782.
35. Fine, M., & Asch, A. (1988). Disability beyond stigma: Social interaction, discrimination, and activism. Journal of Social Issues, 44(1), 3-21.
36. Flexer, C., & Wood, L. A. (1984). The hearing aid: Facilitator or inhibitor of auditory interaction. Volta Review, 86, 354-361.
37. Frank, G. (1988). Beyond stigma: Visibility and self-empowerment of persons with congenital limb deficiencies. Journal of Social Issues, 44, 95-115.
38. Fullilove, M. T., Lown, E. A., & Fullilove, R. E. (1992). Crack 'hos and skeezers: Traumatic experiences of women crack users. Journal of Sex Research, 29, 275-287.
39. Gant, L. M., & Ostrow, D. G. (1995). Perceptions of social support and psychological adaptation to sexually acquired HIV among white and African American men. Social Work, 40, 215-224.
40. Gilmore, N., & Somerville, M. A. (1994). Stigmatization, scapegoating, and discrimination in sexually transmitted disease: Overcoming "them" and "us." Social Science and Medicine, 39, 1339-1358.
41. Goffman, E. (1959). The presentation of self in everyday life. Englewood Cliffs, NJ: Prentice Hall.
42. Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. Englewood Cliffs, NJ: Prentice Hall.
43. Green, G. (1995). Attitudes towards people with HIV: Are they as stigmatizing as people with HIV perceive them to be? Social Science and Medicine, 41, 557-568.
44. Greenberg, J. S., Greenberg, J. R., McKee, D., Brown, R., & Griffin-Francell, C. (1993). Mothers caring for an adult child with schizophrenia: The effects of subjective burden on maternal health. Family Relations, 42, 205-211.
45. Gutheil, I. A., & Chichin, E. R. (1991). AIDS, older people, and social work. Social Work, 16, 237-244.
46. Hahn, H. (1988). The politics of physical differences: Disability and discrimination. Journal of Social Issues, 44(1), 39-47.
47. Hall, B. A. (1992). Overcoming stigmatization: Social and personal implications of the human immunodeficiency virus diagnosis. Archives of Psychiatric Nursing, 6, 189-194.
48. Herek, G. M., & Capitanio, J. P. (1992). AIDS-related stigma persists in the United States (Abstract no. PoD 5811). International Conference on AIDS, 8(2), D524.
49. Herek, G. M., & Capitanio, J. P. (1993). Public reactions to AIDS in the United States: A second decade of stigma. American Journal of Public Health, 83, 574-577.
50. Herek, G. M., & Capitanio, J. P. (1996). "Some of my best friends": Intergroup contact, concealable stigma, and heterosexuals' attitudes towards gay men and lesbians. Personality and Social Psychology Bulletin, 22, 412-424.
51. Herek, G. M., & Glunt, E. K. (1988). An epidemic of stigma: Public reactions to AIDS. American Psychologist, 43, 886-891.
52. Hoffman, M. A. (1996). Counseling clients with HIV disease. New York: Guilford Press.
53. Icard, L., Schilling, R. F., El-Bassel, M., & Young, D. (1992). Preventing AIDS among black gay men and black gay and heterosexual intravenous drug users. Social Work, 37, 440-445.
54. Iphofen, R. (1990). Coping with a "perforated life": A case study in managing the stigma of petit mal epilepsy. Sociology, 24, 447-463.
55. Jacoby, A. (1994). Felt versus enacted stigma: A concept revisited: Evidence from a study of people with epilepsy in remission. Social Science and Medicine, 38, 269-274.
56. Jankowski, S., Videka-Sherman, L., & Laquidara-Dickinson, K. (1996). Social support networks of confidants of people with AIDS. Social Work, 41, 206-312.
57. Jenkins, B. (1992). AIDS/HIV epidemics in the black community. In R. L. Braithwaite & S. E. Taylor (Eds.), Health issues in the black community (pp. 55-63). San Francisco: Jossey-Bass.
58. Jones, E. E., Farina, A., Hastarf, H. H., Markus, H., Miller, D. T., & Scott, R. A. (1984). Social stigma: The psychology of marked relationships. New York: W. H. Freeman.
59. Joslin, D. (1995, Winter). Older adults as caregivers in the HIV/AIDS epidemic. Coalition on AIDS in Passaic County Newsletter. (Available from Coalition on AIDS in Passaic County [CAPCO], CAPCO Resource Center, 100 Hamilton Place, Room 707, Paterson, NJ 07505).
60. Kadushin, G. (1996). Gay men with AIDS and their families of origin: An analysis of social support. Health & Social Work, 21, 141-149.
61. Kreibick, T. (1995). Caretakers' support group. In N. Boyd-Franklin, G. L. Steiner, & M. G. Boland (Eds.), Children, families, and HIV/AIDS: Psychosocial and therapeutic issues (pp. 167-178). New York: Guilford Press.
62. Land, H. (1996). The social and psychological contexts of HIV/AIDS caregiving. In V. J. Lynch & P. A. Wilson (Eds.), Caring for the HIV/AIDS caregiver (pp. 1-16). Westport, CT: Auburn House.
63. Lang, N. (1991). Stigma, self-esteem, and depression: Psychosocial responses to risk of AIDS. Human Organization, 50(1), 66-72.
64. Laryea, M., & Gien, L. (1993). The impact of HIV-positive diagnosis on the individual: Part 1. Stigma, rejection, and loneliness. Clinical Nursing Residency, 2, 245-266.
65. Lefley, H. P. (1989). Family burden and family stigma in major mental illness. American Psychologist, 44, 556-560.
66. Lego, S. (1994). AIDS-related anxiety and coping methods in a support group for caregivers. Archives of Psychiatric Nursing, 8, 200-207.
67. Lesar, S., Gerber, M. M., & Semmel, M. I. (1995). HIV infection in children: Family stress, social support, and adaptation. Exceptional Children, 62, 224-236.
68. Levine, C. (Ed.). (1993). Orphans of the HIV epidemic. New York: United Hospital Fund.
69. Levy, A. J. (1993). Stigma management: A new clinical service. Families in Society, 74, 226-231.
70. Linsk, N. L. (1994). HIV and the elderly. Families in Society, 75, 362-372.
71. Linsk, N., & Poindexter, C. (in press). Minority elders as caregivers for HIV-infected persons: Reasons for caring. Journal of Applied Gerontology.
72. Lippmann, S. B., James, W. A., & Frierson, R. L. (1993). AIDS and the family: Implications for counseling. AIDS Care, 5, 71-78.
73. Lloyd, G. A. (1989, Fall). AIDS and elders: Advocacy, activism, & coalitions. Generations, pp. 32-35.
74. Lofland, J., & Lofland, L. H. (1995). Analyzing social settings (3rd ed.). Belmont, CA: Wadsworth.
75. Longo, M. B., Sposs, J. A., & Locke, A. M. (1990). Identifying major concerns of persons with acquired immunodeficiency syndrome: A replication. Clinical Nurse Specialist, 4(1), 21-26.
76. Luken, P. C. (1987). Social identity in later life: A situational approach to understanding old age stigma. International Journal of Aging and Human Development, 25, 177-193.
77. Magana, J. R., & Magana, H. A. (1992). Mexican-Latino children. In M. L. Stuber (Ed.), Children with AIDS (pp. 33-43). Washington, DC: American Psychiatric Press.
78. Many found daunted by clients with HIV. (1995, September). NASW News, p. 15.
79. March, K. (1996). Perception of adoption as social stigma: Motivation for search and reunion. Journal of Marriage and the Family, 57, 653-660.
80. Marshall, P. A., & O'Keefe, J. P. (1995). Medical students' first-person narratives of a patient's story of AIDS. Social Science and Medicine, 40, 67-76.
81. McDonell, J. R., Abell, N., & Miller, J. (1991). Family members' willingness to care for people with AIDS: A psychosocial assessment model. Social Work, 36, 43-53.
82. McGinn, F. (1996). The plight of rural parents caring for adult children with HIV. Families in Society, 77, 269-278.
83. McKinlay, J. B., Skinner, K., Riley, J. W., & Zablotsky, D. (1993). On the relevance of social science concepts and perspectives. In M. W. Riley, M. G. Ory, & D. Zablotsky (Eds.), AIDS in an aging society (pp. 127-146). New York: Springer.
84. Mechanic, D., McAlpine, D., & Rosenfield, S. (1994). Effects of illness attribution and depression on the quality of life among persons with serious mental illness. Social Science and Medicine, 39, 155-164.
85. Mellins, C. A., & Ehrhardt, A. A. (1994). Families affected by pediatric acquired immunodeficiency syndrome: Sources of stress and coping. Journal of Developmental and Behavioral Pediatrics, 15(3), S54-S60.
86. Melvin, D., & Sherr, L. (1993). The child in the family: Responding to AIDS and HIV. AIDS Care, 5, 35-42.
87. Miall, C. E. (1989). Reproductive technology versus the stigma of involuntary childlessness. Social Casework, 70, 43-50.
88. Miall, C. E. (1994). Community constructs of involuntary childlessness: Sympathy, stigma, and social support. Canadian Review of Sociology and Anthropology, 31, 392-421.
89. Michaels, D., & Levine, C. (1992). Estimates of the number of motherless youth orphaned by AIDS in the United States. JAMA, 268, 3456-3461.
90. Michaels, D., & Levine, C. (1993). The youngest survivors: Estimates of the number of motherless youth orphaned by AIDS in New York City. In C. Levine (Ed.), Orphans of the HIV epidemic (pp. 3-12). New York: United Hospital Fund.
91. Mills, F. B. (1996). The ideology of welfare reform: Deconstructing stigma. Social Work, 41, 391-395.
92. Minkler, M., & Stone, R. (1985). The feminization of poverty and older women. Gerontologist, 25, 351-357.
93. Moffitt, R. (1983). An economic model of welfare stigma. American Economic Review, 73, 1023-1035.
94. Muschkin, C. G., & Ellis, M. (1993). Migration in search of family support: Elderly parents as caregivers for persons with AIDS. Program abstracts. New Orleans: Gerontological Society of America.
95. Neuberg, S. L., Smith, D. M., & Hoffman, J. C. (1994). When we observe stigmatized and "normal" individuals interacting: Stigma by association. Personality and Social Psychology Bulletin, 20, 96-109.
96. Novick, A. (1997). Stigma and AIDS: Three layers of damage. Journal of the Gay and Lesbian Medical Association, 1(1), 53-60.
97. Ogu, C., & Wolfe, L. R. (1994). Midlife and older women and HIV/AIDS. Washington, DC: American Association of Retired Persons.
98. O'Hare, T., Williams, C. L., & Ezoviski, A. (1996). Fear of AIDS and homophobia: Implications for direct practice and advocacy. Social Work, 41, 51-58.
99. Okazawa-Rey, M. (1994). Grandparents who care: An empowerment model of health care. In A. Dula & S. Goering (Eds.), "It just ain't fair": The ethics of health care for African Americans" (pp. 221-233). New York: Praeger.
100. Ory, M. G., & Zablotsky, D. (1993). Notes for the future: Research, prevention, care, public policy. In M. W. Riley, M. G. Ory, & D. Zablotsky (Eds.), AIDS in an aging society (202-216). New York: Springer.
101. Page, R. (1984). Stigma. London: Routledge & Kegan Paul.
102. Peate, I. (1995). A question of prejudice: Stigma, homosexuality and HIV/AIDS. Professional Nursing, 10, 380-383.
103. Perreault, M., Reidy, M., Taggart, M. E., Richard, L., & Savard, N. (1992, July). Needs assessment of natural caregivers of people with HIV or AIDS (Abstract no. PoB 3436). International Conference on AIDS, 8(2), B159.
104. Poindexter, C. C. (1997a). In the aftermath: Serial crisis intervention with persons with HIV. Health & Social Work, 22, 125-132.
105. Poindexter, C. (1997b). Stigma and support as experienced by HIV-affected older minority caregivers. Unpublished doctoral dissertation, University of Illinois at Chicago.
106. Poindexter, C., Linsk, N., & Warner, S. (in press). "He listens . . . and never gossips": Spiritual coping without church support among older, predominately African American caregivers of persons with HIV. Review of Religious Research.
107. Posner, J. (1976). Death as a courtesy stigma. Essence, 1(1), 39-48.
108. Powell-Cope, G. M., & Brown, M. A. (1992). Going public as an AIDS family caregiver. Social Science and Medicine, 34, 571-580.
109. Ranney, C. K., & Kushman, J. F. (1987). Cash equivalence, welfare stigma, and food stamps. Southern Economic Journal, 53, 1011-1027.
110. Rather, B. C. (1991). Disease versus social-learning models of alcoholism in the prediction of alcohol problem recognition, help seeking, and stigma. Journal of Drug Education, 21, 119-132.
111. Robinson, B. E., & Bacon, J. G. (1996). The "if only I were thin" treatment program: Decreasing the stigmatizing effects of fatness. Professional Psychology, Research and Practice, 27, 175-183.
112. Royse, D., & Edwards, T. (1989). Communicating about disability: Attitudes and preferences of persons with physical handicaps. Rehabilitation Counseling Bulletin, 32, 203-209.
113. Schneider, J. W. (1988). Disability as moral experience: Epilepsy and self in routine relationships. Journal of Social Issues, 44(1), 63-78.
114. Semple, S. J., Patterson, T. L., Temoshok, L. R., McCutchan, J. A., Straits-Troster, K. A., Chandler, J. L., & Grant, I. (1993). Identification of psychobiological stressors among HIV-positive women. Women and Health, 20, 15-36.
115. Sherer, R., & Goldberg, D. (1994). HIV disease and access to care: A crisis within a crisis. In A. Dula & S. Goering (Eds.), "It just ain't fair": The ethics of health care for African Americans (pp. 149-164). New York: Praeger.
116. Sigelman, C. K., Howell, J. L., Cornell, D. P., Cutright, J. D., & Dewey, J. C. (1991). Courtesy stigma: The social implications of associating with a gay person. Journal of Social Psychology, 131, 45-56.
117. Siminoff, L. A., Erlen, J. A., & Lidz, C. W. (1991). Stigma, AIDS and quality of nursing care: State of the science. Journal of Advanced Nursing, 16, 262-269.
118. Solomon, K. (1996). Psychosocial issues. In K. M. Nokes (Ed.), HIV/AIDS and the older adult (pp. 33-46). Washington, DC: Taylor & Francis.
119. Solomon, M. (1982). The bereaved and the stigma of suicide. Omega, 13, 377-387.
120. St. Lawrence, J. S., Husfeldt, B. A., Kelly, J. A., Hood, H. V., & Smith, S. (1990). The stigma of AIDS: Fear of disease and prejudice toward gay men. Journal of Homosexuality, 19(3), 85-101.
121. Stuntzner-Gibson, D. (1991). Women and HIV disease: An emerging social crisis. Social Work, 36, 22-28.
122. Susman, J. (1994). Disability, stigma, and deviance. Social Science and Medicine, 38, 15-22.
123. Szivos, S. E., & Griffiths, E. (1990). Group processes involved in coming to terms with a mentally retarded identity. Mental Retardation, 28, 333-341.
124. Thomas, S. B., & Quinn, S. C. (1994). The AIDS epidemic and the African-American community: Toward an ethical framework for service delivery. In A. Dula & S. Goering (Eds.), "It just ain't fair": The ethics of health care for African Americans (pp. 75-89). New York: Praeger.
125. Tomlin, S. S. (1992). Stigma and incest survivors. Child Abuse & Neglect, 15, 557-566.
126. Walker, R. J., Pomeroy, E. C., McNeil, J. S., & Franklin, C. (1996). Anticipatory grief and AIDS: Strategies for intervening with caregivers. Health & Social Work, 21, 49-57.
127. Weidner, G., & Griffitt, W. (1983). Rape: A sexual stigma? Journal of Personality, 51, 152-166.
128. Whiteford, L. M., & Gonzalez, L. (1995). Stigma: The hidden burden of infertility. Social Science and Medicine, 40, 27-36.
129. Wiener, L. S., & Siegel, K. (1990). Social workers' comfort in providing services to AIDS patients. Social Work, 35, 18-25.