Quality of life in osteogenesis imperfecta

International Orthopaedics

Volumn 26, Issue 1, 2002, Pages 3-6

  Widmann, Roger F ^a   Laplaza, F Javier ^a   Bitan, Fabien D ^b   Brooks, Catherine E ^a   Root, Leon ^a  

^a HOSPITAL FOR SPECIAL SURGERY   (United States)

^b Spine Institute   (United States)

Author keywords

Osteogenesis Imperfecta; Quality of Life; SF 36

Indexed keywords

ACADEMIC ACHIEVEMENT; ADULT; ARTICLE; CLINICAL ARTICLE; COHORT ANALYSIS; DEMOGRAPHY; FEMALE; FUNCTIONAL ASSESSMENT; HUMAN; MALE; MENTAL HEALTH; MOBILIZATION; OSTEOGENESIS IMPERFECTA; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; SCORING SYSTEM; SELF EVALUATION; SF 36 QUESTIONNAIRE;

ADULT; CROSS-SECTIONAL STUDIES; FEMALE; HUMANS; MALE; MIDDLE AGED; OSTEOGENESIS IMPERFECTA; QUALITY OF LIFE; QUESTIONNAIRES; SELF ASSESSMENT (PSYCHOLOGY);

EID: 0036940688     PISSN: 03412695     EISSN: None     Source Type: Journal    
DOI: 10.1007/s002640100292     Document Type: Article

References (18)

1. Ault J, Sillence D (1996) A 20-year follow-up of osteogenesis imperfecta in Victoria, Australia. 6th International Conference on Osteogenesis Imperfecta. Zeist, The Netherlands
2. Bauze RJ, Smith R, Francis MJ (1975) A new look at osteogenesis imperfecta. A clinical, radiological and biochemical study of forty-two patients. J Bone Joint Surg [Br] 57:2-12
3. Binder H, Conway A, Gerber LH (1993) Rehabilitation approaches to children with osteogenesis imperfecta: a ten-year experience. Arch Phys Med Rehabil 74:386-390
4. Cole DEC (1993) Psychosocial aspects of osteogenesis imperfecta: An update. Am J Med Genet 45:207-211
5. Gertner JM, Root L (1990) Osteogenesis imperfecta. Orthop Clin North Am 21:151-162
6. Jenkinson C, Wright L, Coulter A (1994) Criterion validity and reliability of the SF-36 in a population sample. Qual Life Res 3:7-12
7. McHorney CA, Ware JE, Jr. Lu JF, Sherbourne CD (1994) The MOS 36-item Short-Form Health Survey (SF-36): III. Tests of data quality, scaling assumptions, and reliability across diverse patient groups. Med Care 32:40-66
8. Moorefield J, W.G. Miller GR (1980) Aftermath of osteogenesis imperfecta: The disease in adulthood. J Bone Joint Surg [Am] 62:113-119
9. Ravaud JF, Delcey M, Yelnik A (1999) Construct validity of the functional independence measure (FIM): questioning the unidimensionality of the scale and the "value" of FIM scores. Scandinavian Journal of Rehabilitation Medicine 31:31-41
10. Reite M, Davis K, Solomons C, Ott J (1972) Osteogenesis imperfecta: psychological function. American Journal of Psychiatry 128:1540-1546
11. Shapiro F (1985) Consequences of an osteogenesis imperfecta diagnosis for survival and ambulation. J Pediatr Orthop 5:456-462
12. Shea-Landry GL, Cole DEC (1986) Psychosocial aspects of osteogenesis imperfecta. Can Med Assoc J 135:977-981
13. Sillence D (1981) Osteogenesis imperfecta: an expanding panorama of variants. Clin Orthop 159:11-25
14. Tarlov AR, Ware JE, Jr. Greenfield S, Nelson EC, Perrin E, Zubkoff M (1989) The Medical Outcomes Study. An application of methods for monitoring the results of medical care. Jama 262:925-930
15. Ware Jr. JE, Kosinski M, Bayliss MS, McHorney CA, Rogers WH, Raczek A (1995) Comparison of methods for the scoring and statistical analysis of SF-36 health profile and summary measures: summary of results from the Medical Outcomes Study. Med Care 33:AS264-279
16. th ed Boston: The Health Institute, New England Medical Center
17. Widmann RF, Bitan FD, Laplaza FJ, Burke SW, DiMaio MF, Schneider R (1999) Spinal deformity, pulmonary compromise, and quality of life in osteogenesis imperfecta. Spine 24:1673-1678
18. Williams BC, Li Y, Fries BE, Warren RL (1997) Predicting patient scores between the functional independence measure and the minimum data set: development and performance of a FIM-MDS "crosswalk" [published erratum appears in Arch Phys Med Rehabil 1998 Feb; 79 (2):231]. Arch Phys Med Rehabil 78:48-54