Health maintenance and management in childhood disability

Physical Medicine and Rehabilitation Clinics of North America

Volumn 13, Issue 4, 2002, Pages 793-821

  Ayyangar, Rita ^a  

^a UNIVERSITY OF MICHIGAN   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

CHILD CARE; CHILDHOOD DISEASE; DISABILITY; HEALTH MAINTENANCE ORGANIZATION; HEALTH PROMOTION; HUMAN; LIFE EXPECTANCY; PRACTICE GUIDELINE; PREVALENCE; PRIORITY JOURNAL; REVIEW;

CEREBRAL PALSY; CHILD; COMORBIDITY; DISABLED CHILDREN; FECAL INCONTINENCE; HEALTH STATUS; HUMANS; IMMUNIZATION; NUTRITIONAL STATUS; OBESITY; PHYSICAL FITNESS; PRESSURE ULCER; SLEEP DISORDERS; SOCIAL ADJUSTMENT; SPINAL DYSRAPHISM; URINARY INCONTINENCE;

EID: 0036857989     PISSN: 10479651     EISSN: None     Source Type: Journal    
DOI: 10.1016/S1047-9651(02)00046-3     Document Type: Review

References (103)

1. Newacheck PW, Halfon N. Prevalence, impact, and trends in childhood disability due to asthma. Arch Pediatr Adolesc Med 2000;154(3):287-92.
2. Newacheck PW, Budetti PP, MacManus P. Trends in childhood disability. Am J Public Health 1984;74(3):232-6.
3. Kaplan LC. Community-based disability services in the USA - A paediatric perspective. Lancet 1999;354(9180):761-2.
4. Albright AL. Baclofen in the treatment of cerebral palsy. J Child Neurol 1996;11(2):77-83.
5. Ni Bhrolchain C. The family doctor and children with special educational needs. J R Coll Gen Pract 1989;39:56-8.
6. Thomas P. Special adults: New challenge to primary care MDs. Med World News 1986;27(4):68-81.
7. Crowley M. Living longer and better than expected. A wellness-based model keeps CCRC residents active, healthy, and out of nursing homes. Health Prog 1992;73(10):38-41.
8. Riley BB, Perna R, Tate DG, et al. Types of spiritual well-being among persons with chronic illness: Their relation to various forms of quality of life. Arch Phys Med Rehabil 1998;79(3):258-64.
9. Seidl LG. The value of spiritual health. Health Prog 1993;74(7):48-50.
10. Liptak GS, O'Donnell M, Conaway M, et al. Health status of children with moderate to severe cerebral palsy. Dev Med Child Neurol 2001;43(6):364-70.
11. Breslau N, Mortimer EAJ. Seeing the same doctor: Determinants of satisfaction with specialty care for disabled children. Med Care 1981;19(7):741-58.
12. Molnar GE, Sobus KM, editors. Growth and development. 3rd ed. Pediatric rehabilitation. Philadelphia: Hanley and Belfus; 1999. p. 13-29.
13. Cooley WC, Graham JM. Down Syndrome - An update and review for the primary pediatrician. Clin Pediatr (Phila) 1991;30(4):233-53.
14. Cronk C, Crocker AC, Pueschel SM, et al. Growth charts for children with Down syndrome: 1 Month to 18 years of age. Pediatrics 1988;81:102-10.
15. Belt-Niedbala BJ, Ekvall S, Cook CM, et al. Linear growth measurement: A comparison of single arm-lengths and arm-span. Dev Med Child Neurol 1986;28(3):319-24.
16. Miller F, Koreska J. Height measurement of patients with neuromuscular disease and contractures. Dev Med Child Neurol 1992;34(1):55-60.
17. Chumlea WC, Guo SS, Steinbaugh ML. Prediction of stature from knee height for black and white adults and children with application to mobility-impaired or handicapped persons. J Am Diet Assoc 1994;94:1385-8, 1391; quiz 1389-90.
18. Bandini LG, Schoeller DA, Fukagawa NK, et al. Body composition and energy expenditure in adolescents with cerebral palsy or myelodysplasia. Pediatr Res 1991;29(1):70-7.
19. Stallings VA, Zemel BS, Davies JC, et al. Energy expenditure of children and adolescents with severe disabilities: A cerebral palsy model. Am J Clin Nutr 1996;64(4):627-34.
20. Bandini LG, Puelzl-Quinn H, Morelli JA, et al. Estimation of energy requirements in persons with severe central nervous system impairment. J Pediatr 1995;126(5 Pt 1):828-32.
21. Fried MD, Pencharz PB. Energy and nutrient intakes of children with spastic quadriplegia. J Pediatr 1991;119(6):947-9.
22. Anson CA, Shepherd C. Incidence of secondary complications in spinal cord injury. Int J Rehabil Res 1996;19:55-66.
23. Chumlea WC, Cronk CE. Overweight among children with trisomy. J Ment Defic Res 1981;25(Pt 4):275-80.
24. Luke A, Roizen NJ, Sutton M, et al. Energy expenditure in children with Down syndrome: Correcting metabolic rate for movement. J Pediatr 1994;125:829-38.
25. Mita K, Akatak K, et al. Assessment of obesity of children with spina bifida. Dev Med Child Neurol 1993;35:305-11.
26. Roberts D, Sheperd RW, et al. Anthropometry and obesity in myelomeningocele. J Pediatr Child Health 1991;27:83-90.
27. Scherzer A, Tscharnuter I, editors. Early Diagnosis and Therapy in Cerebral Palsy: A Primer on Infant Developmenal Problem. New York: Marcel Dekker; 1990.
28. Turnbull JD. Early intervention for children with or at risk for cerebral palsy. Am J Dis Child 1993;147(1):54-9.
29. Miller LC, Hendrie NW. Health of children adopted from China. Pediatrics 2000;105(6):E76.
30. Ornoy A, Michailevskaya V, Lukashov I, et al. The developmental outcome of children born to heroin-dependent mothers, raised at home or adopted. Child Abuse Negl 1996;20(5):385-96.
31. American Academy of Pediatrics ColD. Recommended childhood immunization schedule United States, January-December 2001. Pediatrics 2001;107:202-4.
32. Raddish M, Goldmann DA, Kaplan LC, et al. The immunization status of children with spina bifida. Am J Dis Child 1993;147:849-53.
33. Born J, Lange T, Hansen K, et al. Effects of sleep and circadian rhythm on human circulating immune cells. J Immunol 1997;158(9):4454-64.
34. Kotagal S, Gibbons VP, Stith JA. Sleep abnormalities in patients with severe cerebral palsy. Dev Med Child Neurol 1994;36(4):304-11.
35. Leger D, Prevot E, Philip P, et al. Sleep disorders in children with blindness. Ann Neurol 1999;46(4):648-51.
36. Levanon A, Tarasiuk A, Tal A. Sleep characteristics in children with Down syndrome. J Pediatr 1999;134(6):755-60.
37. Jackson PL, Vessey JA, editors. Primary Care of the Child with a Chronic Condition. 2nd Ed. St. Louis, MO: Mosby; 1992.
38. Lapides J, Diokno AC, Silber SJ, et al. Clean, intermittent self-catheterization in the treatment of urinary tract disease. J Urol 1972;107:458-61.
39. McGuire EJ, Woodside JR, Borden TA, et al. Prognostic value of urodynamic testing in myelodysplastic patients. J Urol 1981;126:205-9.
40. Kass EJ, Koff SA, Diokno AC, et al. The significance of bacilluria in children on longterm intermittent catheterization. J Urol 1981;126:223-5.
41. Mohler JL, Flanigan RC. Suppression and treatment of urinary tract infection in patients with an intermittently catheterized neurogenic bladder. J Urol 1987;138:336-40.
42. Pontari MA, Bauer SB. Urologic issues in spinal cord injury: Assessment, management, outcome and research needs. In: Betz RR, Mulcahey MJ, editors. The Child with Spinal Cord Injury. 1st Ed. Rosemont, IL: American Academy of Orthopedic Surgeons; 1996. p. 213-31.
43. American Academy of Pediatrics. Committee on Sports Medicine and Fitness: Fitness, activity, and sports participation in the preschool child. Pediatrics 1992;90:1002-4.
44. Francis KT. Status of the year 2000 health goals for physical activity and fitness. Phys Ther 1999;79(4):405-14.
45. Kuntzleman CT. Childhood fitness: What is happening? What needs to be done? Prev Med 1993;22(4):520-32.
46. Dennison BA, Straus JH, Mellits ED, et al. Childhood physical fitness tests: Predictor of adult physical activity levels? Pediatrics 1988;82(3):324-30.
47. Rowland TW, Freedson PS. Physical activity, fitness, and health in children: a close look. Pediatrics 1994;93(4):669-72.
48. Van den Berg-Emons RJ, Saris WH, de Barbanson DC, et al. Daily physical activity of schoolchildren with spastic diplegia and of healthy control subjects. J Pediatr 1995;127(4):578-84.
49. Sharav T, Bowman T. Dietary practices, physical activity, and body-mass index in a selected population of Down syndrome children and their siblings. Clin Pediatr (Phila) 1992;31(6):341-4.
50. Fink G, Kaye C, Blau H, et al. Assessment of exercise capacity in asthmatic children with various degrees of activity. Pediatr Pulmonol 1993;15(1):41-3.
51. Tan R, Spector SL. Exercise-induced asthma. Sports Med 1998;25(1):1-6.
52. Stenius-Aarniala B, Poussa T, Kvarnstrom J, et al. Immediate and long term effects of weight reduction in obese people with asthma: Randomised controlled study. BMJ 2000;320(7238):827-32.
53. Alway SE, MacDougall JD, Sale DG. Functional and structural adaptations in skeletal muscles of trained athletes. J Appl Physiol 1988;64:1114-20.
54. Balnave CD, Thompson MW. Effect of training on eccentric exercise-induced muscle damage. J Appl Physiol 1993;75:1545-51.
55. Booth F. Physiologic and biochemical effects of immobilization on muscle. Clin Orthop 1987;219:15-9.
56. Calabrese LH, Kleiner SM, Barna BP, et al. The effects of anabolic steroids and strength training on the human immune response. Med Sci Sports Exerc 1989;21:386-92.
57. Clarkson PM, Nosaka K, Braun B. Muscle function after exercise induced muscle damage and rapid adaptation. Med Sci Sports Exerc 1992;24:512-20.
58. DeBusk RF, Stenestrand U, Sheehan M, et al. Training effects of long versus short bouts of exercise in healthy subjects. Am J Cardiol 1990;65:1010-3.
59. DiLorenzo T, Bargman EP, Stucky-Ropp R. Long-term effects of aerobic exercise on psychological outcomes. Prev Med 1999;28:75-85.
60. Edstrom L, Grimby L. Effect of exercise on the motor unit. Muscle Nerve 1986;9:104-26.
61. Faigenbaum AD. Strength training for children and adolescents. Clin Sports Med 2000;19:593-619.
62. Hainaut K, Duchateau J. Muscle fatigue, effects of training and disuse. Muscle Nerve 1989;12:660-9.
63. Herbison GJ, Gordon EE. Exercise of normal muscle: Biochemical effects. Arch Phys Med Rehabil 1982;54:409-15.
64. Jones DA, Rutherford OM. Human muscle strength training: The effects of three different regimes and the nature of the resultant changes. J Physiol 1987;391:1-11.
65. Luthi JM, Howald H, Claassen H, et al. Structural changes in skeletal muscle tissue with heavy resistance exercise. Int J Sports Med 1986;7:123-7.
66. Nelson V, Hornyak JE IV, Wallbom AS. Role of rehabilitation in neuromuscular diseases. In: Pourmand R, editor. Neuromuscular Diseases-Expert Clinicians' Views. Boston, MA: Butterworth-Heinemann; 2001. p. 593-615.
67. Paluska S, Schwenk TL. Physical activity and mental health: Current concepts. Sports Med 2000;29:167-80.
68. Perna F, Schneiderman N, LaPerriere A. Psychological stress, exercise and immunity. Int J Sports Med 1997;18:S78-83.
69. Rall L, Roubenoff R, Cannon JG, et al. Effects of progressive resistance training on immune response in aging and chronic inflammation. Med Sci Sports Exerc 1996;28:1356-65.
70. Tsutsumi T, Don BM, Zaichkowsky LD, et al. Physical fitness and psychological benefits of strength training in community dwelling older adults. Appl Hum Sci 1997;16:257-66.
71. Akeson WH, Amiel D, Ing D, et al. Effects of immobilization on joints. Clin Orthop 1987;219:28-37.
72. Kottke FJ. The effects of limitation of activity upon the human body. JAMA 1966;196:117-22.
73. Williams PE, Goldspink G. Connective tissue changes in immobilized muscle. J Anat 1984;138:343-50.
74. Young A, Stokes M, Iles JF. Effects of joint pathology on muscle. Clin Orthop 1987;219:21-7.
75. Tardieu C, Lespargot A, Tabary C, et al. For how long must the soleus muscle be stretched each day to prevent contracture? Dev Med Child Neurol 1988;30:3-10.
76. Vignos PJ. Physical models of rehabilitation in neuromuscular disease. Muscle Nerve 1983;6:323-38.
77. Kottke FJ, Pauley DL, Ptak R. The rationale for prolonged stretching for correction of shortening of connective tissue. Arch Phys Med Rehabil 1966;57:345-52.
78. Tardieu G, Tardieu C. Cerebral palsy: Mechanical evaluation and conservative correction of limb joint contractures. Clin Orthop 1987;219:63-9.
79. Cusick BD. Splints and casts: Managing foot deformity in children with neuromotor disorders. Phys Ther 1988;68:1903-12.
80. Crenna P. Spasticity and "spastic" gait in children with cerebral palsy. Neurosci Biobehav Rev 1998;22(4):571-8.
81. Brockmeyer D. Down syndrome and craniovertebral instability. Topic review and treatment recommendations. Pediatr Neurosurg 1999;31:71-7.
82. Pueschel SM, Scola FH. Atlantoaxial instability in individuals with Down syndrome: Epidemiologic, radiographic, and clinical studies. Pediatrics 1987;80:555-60.
83. Pehrsson K, Danielsson A, Nachmeson A. Pulmonary function in adolescent idiopathic scoliosis: A 25 year follow up after surgery or start of brace treatment. Thorax 2001;56:388-93.
84. Yamashita T, Kanaya K, Yokogushi K. Correlation between progression of spinal deformity and pulmonary function in Duchenne muscular dystrophy. J Pediatr Orthop 2001;21(1):113-6.
85. Yarkony GM. Pressure ulcers: Classification and overview. In: Betz RR, Mulcahey MJ, editors. Child with a Spinal Cord Injury. 1st Ed. Rosemont, IL: American Academy of Orthopedic Surgeons; 1996. p. 277-83.
86. Yarkony GM, Kirk PM, Carlson C, et al. Classification of pressure ulcers. Arch Dermatol 1990;126:1218-9.
87. Apple DF, Murray HH. Surgical management of pressure ulcers. In: Betz RR, Mulcahey MJ, editors. The Child with Spinal Cord Injury. 1st Ed. Rosemont, IL: American Academy of Orthopedic Surgeons (AAOS); 1996. p. 305-12.
88. Butler C, Okamoto GA, McKay TM. Powered mobility for very young disabled children. Dev Med Child Neurol 1983;25(4):472-4.
89. Alexander M. Robotics and other high-technology options. In: Betz RR, Mulcahey MJ, editors. The Child with Spinal Cord Injury. 1st Ed. Rosemont, IL: American Academy of Orthopedic Surgeons (AAOS); 1996. p. 751-7.
90. Shramoviat M, Bach JR, Bocobo C. Functional enhancement of patients with Duchenne Muscular Dystrophy with the use of robot-manipulator trainer arms. J Neurol Rehabil 1989;3:129-32.
91. Anderson L. Small robot arm in the workplace to aid in the employment of severely disabled persons. In: Foulds R, editor. Interactive Robotic Aids: One Option for Independent Living. An International Perspective. New York: World Rehabilitation Fund; 1986. p. 45-7.
92. Harwin WS, Ginige A, Jackson RD. A potential application in early education and a possible role for a vision system in a workstation based robotic aid for physically disabled persons. In: Foulds R, editor. Interactive Robotic Aids: One Option for Independent Living. An International Perspective. New York: World Rehabilitation Fund; 1986. p. 18-23.
93. Anderson E. The psychological and social adjustment of adolescents with cerebral palsy or spina bifida and hydrocephalus. Int J Rehabil Res 1979;2(2):245-7.
94. Pearson A, Carr J, Halliwell M. The self concept of adolescents with spina bifida. Z. Kinderchirurg 1985;40(suppl 1):27.
95. Anderson E, Clark L. Disability in Adolescence. New York: Methuen Press; 1982.
96. Dallyn L, Garrison-Jones C. Reaching adulthood - The long-term psychosocial adjustment of children with spina bifida. In: Rekate H, editor. Comprehensive Management of Spina Bifida. Boca Raton, FL: CRC Press, Inc.; 1991. p. 215-37.
97. Strax T. Psychological issues faced by adolescents and young adults with disabilities. Pediatr Ann 1991;20(9):507-11.
98. Meltzer JR. Psychological adjustment in juvenile rheumatoid arthritis. Dissert Abstr Int 1988;49:547B.
99. Holahan CJ, Moos RH. Risk, resistance, and psychological distress: A longitudinal analysis with adults and children. J Abnorm Psychol 1987;96(1):3-13.
100. Varni JW, Wilcox KT, Hanson V. Mediating effects of family social support on child psychological adjustment in juvenile rheumatoid arthritis. Health Psychol 1988;7(5):421-31.
101. Easton JKM, Rens B, Alexander MA. Psychosocial aspects of childhood disabilities. In: Molnar GE, Alexander MA, editors. Pediatric rehabilitation. 3rd ed. Philadelphia, PA: Hanley and Belfus; 1999. p. 111-23.
102. Dorner S. Adolescents with spina bifida. How they see their situation. Arch Dis Child 1976;51(6):439-44.
103. Dorner S. The relationship of physical handicap to stress in families with an adolescent with spina bifida. Dev Med Child Neurol 1975;17(6):765-76.