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Perspectives on legislation relating to the rights and protection of people with dementia in Europe
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Gove D, Georges J. Perspectives on legislation relating to the rights and protection of people with dementia in Europe. Aging Ment Health 2001; 5:316-321. This study reviews all the relevant legislation in the European Union countries relating to hospitalization and guardianship.
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Aging Ment Health
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Gove, D.1
Georges, J.2
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The challenge to psychiatry as society's agent for mental illness treatment and research
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Carpenter WT Jr. The challenge to psychiatry as society's agent for mental illness treatment and research. Am J Psychiatry 1999; 156:1307-1310.
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Am J Psychiatry
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Carpenter W.T., Jr.1
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Missing the boat: Competence and consent in psychiatric research
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Appelbaum PS. Missing the boat: Competence and consent in psychiatric research. Am J Psychiatry 1998; 155:1486-1488.
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Am J Psychiatry
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Appelbaum, P.S.1
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American Geriatrics Society: Informed consent for research on human subjects with dementia
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AGS Ethics Committee. American Geriatrics Society: Informed consent for research on human subjects with dementia. J Am Geriatr Soc 1998; 46:1308-1310.
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J Am Geriatr Soc
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6
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Competence to give informed consent to clinical studies. Statement by the taskforce on 'ethical and legal questions' of the Association for Neuropsychopharmacology and Pharmacopsychiatry (Arbeitsgemeinschaft fur Neuropsychopharmakologie und Pharmakopsychiatrie; AGNP)
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Nedopil N, Aldenhoff J, Amelung K, et al. Competence to give informed consent to clinical studies. Statement by the taskforce on 'ethical and legal questions' of the Association for Neuropsychopharmacology and Pharmacopsychiatry (Arbeitsgemeinschaft fur Neuropsychopharmakologie und Pharmakopsychiatrie; AGNP). Pharmacopsychiatry 1999; 32:165-168.
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Pharmacopsychiatry
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Nedopil, N.1
Aldenhoff, J.2
Amelung, K.3
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Research involving persons with cognitive impairments: Results of a survey of Alzheimer disease research centers in the United States
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Cahill M, Wichman A. Research involving persons with cognitive impairments: Results of a survey of Alzheimer disease research centers in the United States. Alzheimer Dis Assoc Disord 2000; 14:20-27.
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Alzheimer Dis Assoc Disord
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Cahill, M.1
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8
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Informed consent, exploitation and whether it is possible to conduct human subjects research without either one
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Wendler D. Informed consent, exploitation and whether it is possible to conduct human subjects research without either one. Bioethics 2000; 14:310-339.
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Bioethics
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Wendler, D.1
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9
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Information and competency for consent to pharmacologic clinical trials in Alzheimer disease: An empirical analysis in patients and family caregivers
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Pucci E, Belardinelli N, Borsetti G, et al. Information and competency for consent to pharmacologic clinical trials in Alzheimer disease: An empirical analysis in patients and family caregivers. Alzheimer Dis Assoc Disord 2001; 15:146-154. An interesting study in which the personal judgement of competence is correlated with neuropsychological data.
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Alzheimer Dis Assoc Disord
, vol.15
, pp. 146-154
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Pucci, E.1
Belardinelli, N.2
Borsetti, G.3
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10
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0035003003
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Assessing the competence of persons with Alzheimer's disease in providing informed consent for participation in research
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Kim SY, Caine ED, Currier GW, et al. Assessing the competence of persons with Alzheimer's disease in providing informed consent for participation in research. Am J Psychiatry 2001; 158:712-717. The authors have demonstrated that the more cognitively deteriorated the patient is, more reluctant he or she is when proposals to enrol in research are made.
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(2001)
Am J Psychiatry
, vol.158
, pp. 712-717
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Kim, S.Y.1
Caine, E.D.2
Currier, G.W.3
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11
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Impaired decision-making ability in subjects with Alzheimer's disease and willingness to participate in research
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Kim SY, Cox C, Caine ED. Impaired decision-making ability in subjects with Alzheimer's disease and willingness to participate in research. Am J Psychiatry 2002; 159:797-802. The researchers try to find better cut-off points for the competence assessment tool they use. They use as a criterion standard the personal judgement of three experts.
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(2002)
Am J Psychiatry
, vol.159
, pp. 797-802
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Kim, S.Y.1
Cox, C.2
Caine, E.D.3
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Current state of research on decision-making competence of cognitively impaired elderly persons
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Kim SY, Karlawish JH, Caine ED. Current state of research on decision-making competence of cognitively impaired elderly persons. Am J Geriatr Psychiatry 2002; 10:151-165. An excellent review of all the relevant research relating to competence to consent.
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Am J Geriatr Psychiatry
, vol.10
, pp. 151-165
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Kim, S.Y.1
Karlawish, J.H.2
Caine, E.D.3
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13
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0034071890
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Demented patients' participation in a clinical trial: Factors affecting the caregivers' decision
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Elad P, Treves TA, Drory M, et al. Demented patients' participation in a clinical trial: Factors affecting the caregivers' decision. Int J Geriatr Psychiatry 2000; 15:325-330.
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Int J Geriatr Psychiatry
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Elad, P.1
Treves, T.A.2
Drory, M.3
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14
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How proxies make decisions about research for patients with Alzheimer's disease
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Sugarman J, Cain C, Wallace R, Welsh-Bohmer KA. How proxies make decisions about research for patients with Alzheimer's disease. J Am Geriatr Soc 2001; 49:1110-1119. A detailed analysis of the motivation of caregivers using qualitative methodology.
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J Am Geriatr Soc
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, pp. 1110-1119
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Sugarman, J.1
Cain, C.2
Wallace, R.3
Welsh-Bohmer, K.A.4
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15
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0036217855
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Views of potential subjects toward proposed regulations for clinical research with adults unable to consent
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Wendler D, Martinez RA, Fairclough D, et al. Views of potential subjects toward proposed regulations for clinical research with adults unable to consent. Am J Psychiatry 2002; 159:585-591. Relatives of patients with AD are more cooperative with research, and say that they would not mind if when incompetent their relatives consent to their participation in research, even if in an advance directive they would have declared the contrary.
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(2002)
Am J Psychiatry
, vol.159
, pp. 585-591
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Wendler, D.1
Martinez, R.A.2
Fairclough, D.3
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How to determine competency
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Howe EG. How to determine competency. J Clin Ethics 2001; 12:3-16.
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J Clin Ethics
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Howe, E.G.1
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Consistency of physicians' legal standard and personal judgments of competency in patients with Alzheimer's disease
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Marson DC, Earnst KS, Jamil F, et al. Consistency of physicians' legal standard and personal judgments of competency in patients with Alzheimer's disease. J Am Geriatr Soc 2000; 48:911-918.
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J Am Geriatr Soc
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Marson, D.C.1
Earnst, K.S.2
Jamil, F.3
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Cognitive models of physicians' legal standard and personal judgments of competency in patients with Alzheimer's disease
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Earnst KS, Marson DC, Harrell LE. Cognitive models of physicians' legal standard and personal judgments of competency in patients with Alzheimer's disease. J Am Geriatr Soc 2000; 48:919-927.
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J Am Geriatr Soc
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Earnst, K.S.1
Marson, D.C.2
Harrell, L.E.3
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19
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0034958991
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Loss of competency in Alzheimer's disease: Conceptual and psychometric approaches
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Marson DC. Loss of competency in Alzheimer's disease: Conceptual and psychometric approaches. Int J Law Psychiatry 2001; 24:267-283. This study proposes a dual methodology for operationalizing competence assessment based on the stage of the disease and neuropsychological data.
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Int J Law Psychiatry
, vol.24
, pp. 267-283
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Marson, D.C.1
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20
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85023919890
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Forensic issues (section of Geriatric Psychiatry)
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Sadock BJ, Sadock VA, editors. Philadelphia: Lippincott Williams and Wilkins
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Blum B, Eth S. Forensic issues (section of Geriatric Psychiatry). In: Sadock BJ, Sadock VA, editors. Comprensive Textbook of Psychiatry, 7th Ed. Philadelphia: Lippincott Williams and Wilkins; 2000. pp. 3150-3158.
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Comprensive Textbook of Psychiatry, 7th Ed.
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Blum, B.1
Eth, S.2
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0034014378
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The capacity of people with a 'mental disability' to make a health care decision
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Wong JG, Clare CH, Holland AJ, et al. The capacity of people with a 'mental disability' to make a health care decision. Psychol Med 2000; 30:295-306.
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Psychol Med
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Wong, J.G.1
Clare, C.H.2
Holland, A.J.3
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25
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0028848520
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Fairhill guidelines on ethics of the care of people with Alzheimer's disease: A clinical summary
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Center for Biomedical Ethics, Case Western Reserve University and the Alzheimer's Association [see comments]
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Post SG, Whitehouse PJ. Fairhill guidelines on ethics of the care of people with Alzheimer's disease: A clinical summary. Center for Biomedical Ethics, Case Western Reserve University and the Alzheimer's Association [see comments]. J Am Geriatr Soc 1995; 43:12-19.
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Post, S.G.1
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0035424229
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Preventing schizophrenia and Alzheimer disease: Comparative ethics
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Post SG. Preventing schizophrenia and Alzheimer disease: Comparative ethics. Schizophren Res 2001; 51:103-108. The author discusses the lack of utility of genetic testing in AD in the vast majority of cases. Particular attention is paid to MCI.
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Schizophren Res
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, pp. 103-108
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Post, S.G.1
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Kapp MB. Physicians' legal duties regarding the use of genetic tests to predict and diagnose Alzheimer disease. J Legal Med 2000; 21:445-475.
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J Legal Med
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Kapp, M.B.1
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