Consumer health information: The role of breast cancer associations

Breast Cancer Research and Treatment

Volumn 76, Issue 2, 2002, Pages 89-94

  Mosconi, Paola ^a  

^a Ist Ricerche Farmacol Mario Negri ^*  (Italy)

Author keywords

Breast cancer; Consumer's advocacy; EUROPA DONNA; Health education; Health information need and demand

Indexed keywords

ADULT; ARTICLE; BREAST CANCER; CONSUMER; DEMOGRAPHY; FEMALE; HEALTH EDUCATION; HUMAN; ITALY; MAJOR CLINICAL STUDY; MALE; PATIENT COUNSELING; PRIORITY JOURNAL; QUESTIONNAIRE; TELEPHONE;

BREAST NEOPLASMS; FEMALE; HEALTH CARE SURVEYS; HEALTH EDUCATION; HEALTH PROMOTION; HUMANS; INFORMATION SERVICES; ITALY; QUESTIONNAIRES;

EID: 0036828576     PISSN: 01676806     EISSN: None     Source Type: Journal    
DOI: 10.1023/A:1020583224716     Document Type: Article

References (21)

1. Meredith P, Emberton M, Wood C: New directions in information for patients. BMJ 311: 4-5, 1995
2. Herxheimer A, McPherson A, Miller R, Shepperd S, Yaphe J, Ziebland S: Database of patients' experiences (DIPEx): A multi-media approach to sharing experiences and information. Lancet 355: 1540-1543, 2000
3. Hanley B, Truesdale A, King A, Elbourne D, Chalmers I: Involving consumers in designing, conducting, and interpreting randomised controlled trials: Questionnaire survey. BMJ 322: 519-523, 2001
4. The Association of the British Pharmaceutical Industry: Putting Patients First. The Emerging Role of Patients in the Provision of Healthcare. Bill Kirkness: ABPI London, 1996
5. Shaywitz DA, Martin JB, Ausiello DA: Patient-oriented research: Principles and new approaches to training. Am J Med 109: 136-140, 2000
6. Wilkes MS, Bell RA, Kravitz RL: Direct-to-consumer prescription drug advertising: Trends, impact, and implications. Health Affairs 19: 110-128, 2000
7. Bastian H: The Power of Sharing Knowledge: Consumer Participation in the Cochrane Collaboration. www. cochraneconsumer.com/p_Involve.asp (access 26/04/2001)
8. Passalacqua R, Campione F, Caminiti C, Salvagli S, Barilli A, Bella M, Barni S, Barsanti G, Caffo O, Carlini P, Cinquemani G, Di Costanzo F, Giustini L, La Bianca R, Mazzei A, Olmeo N, Paccagnella A, Toscano L, Cocconi G: Patients' opinions, feelings, and attitudes after a campaign to promote the Di Bella therapy. Lancet 353: 1310-1314, 1999
9. Austoker J: Gaining informed consent for screening. BMJ 319: 722-723, 1999
10. Niström L: How effective is screening for breast cancer? BMJ 321: 647-648, 2000
11. Slaytor EK, Ward JE: How risks of breast cancer and benefits of screening are communicated to women: Analysis of 58 pamphlets. BMJ 317: 263-264, 1998
12. NBCC - National Breast Cancer Coalition: Position Statement on Mammography October 2001. www.natlbcc.org/bin/index.asp (access 23/10/2001)
13. Veronesi U, von Kleist S, Redmond K, Costa A, Delvaux N, Freilich G, Glaus A, Hudson T, McVie JC, Macnamara C, Meunier F, Pecorelli S, Serin D: Caring about women and cancer (CAWAC): A European survey of the perspectives and experiences of women with female cancers. Eur J Cancer 35: 1667-1675, 1999
14. www.cancereurope.org/europadonna (access 19/10/2001)
15. Mosconi P, Kodraliu G on behalf of the Italian Forum of EUROPA DONNA: Italian Forum of EUROPA DONNA: A survey of breast cancer associations. Health Expect 2: 44-50, 1999
16. Informing, communicating and sharing decisions with people who have cancer. Effective Health Care 6 (6), 2000
17. Ministero della Sanità: La Nostra Salute: Lo Stato Sanitario Del Paese 2001. Istituto Poligrafico e Zecca dello Stato, 2001
18. NBCC - National Breast Cancer Coalition: Guide to Quality Breast Cancer Care. NBCCF, Washington, 2001 (www.natlbcc.org)
19. Leydon G, Boulton M, Moynihan C, Jones A, Mossman J, Boudioni M, McPherson K: Cancer patient's information needs and information seeking behaviour: In-depth interview study. BMJ 320: 909-913, 2000
20. Domenighetti G, Luraschi P, Casabianca A, Gutzviller F, Spinelli A, Pedrinis E, Repetto F: Effect of information campaign by the mass media on hysterectomy rates. Lancet 2: 1470-1473, 1988
21. Domenighetti G, Grilli R, Maggi JR: Does provision of an evidence-based information change public willingness to accept screening tests? Health Expect 3: 145-150, 2000