Increased mortality in children and adolescents with developmental disabilities

Paediatric and Perinatal Epidemiology

Volumn 16, Issue 4, 2002, Pages 375-382

  Decouflé, Pierre ^a   Autry, Andrew ^a  

^a CENTERS FOR DISEASE CONTROL AND PREVENTION   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ACCIDENT; ADOLESCENT; ARTICLE; ASTHMA; CAUSE OF DEATH; CEREBRAL PALSY; CHILD; COHORT ANALYSIS; CONTROLLED STUDY; DEVELOPMENTAL DISORDER; DISEASE SEVERITY; EPILEPSY; FEMALE; FOLLOW UP; GENETIC DISORDER; HEARING IMPAIRMENT; HUMAN; INJURY; INTOXICATION; MALE; MENTAL DETERIORATION; MORTALITY; SEIZURE; STATISTICAL SIGNIFICANCE; VISUAL IMPAIRMENT;

ADOLESCENT; CAUSE OF DEATH; CEREBRAL PALSY; CHILD; COHORT STUDIES; COMORBIDITY; DEVELOPMENTAL DISABILITIES; EPILEPSY; FEMALE; FOLLOW-UP STUDIES; GEORGIA; HUMANS; MALE; MENTAL RETARDATION; SURVIVAL RATE;

EID: 0036815485     PISSN: 02695022     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1365-3016.2002.00430.x     Document Type: Article

References (41)

1. Horacek HJ, Ramey CT, Campbell FA, Hoffmann KP, Fletcher RH. Predicting school failure and assessing early intervention with high-risk children. Journal of the American Academy of Child and Adolescent Psychiatry 1987; 26:758-763.
2. Ramey CT. High-risk children and IQ. Altering intergenerational patterns. Intelligence 1992; 16:239-256.
3. Yoshinaga-Itano C, Sedey AL, Coulter DK, Mehl AL. Language of early- and later-identified children with hearing loss. Pediatrics 1998; 102:1161-1171.
4. Taft LT, Matthews WS. Cerebral palsy. In: Developmental-Behavioral Pediatrics, 2nd Edn. Editors: Levine MD, Carey WB, Crocker AC. Philadelphia, PA: W.B. Saunders, 1992; p. 529.
5. Boyle CA, Decouflé P, Yeargin-Allsopp M. Prevalence and health impact of developmental disabilities in US children. Pediatrics 1994; 93:399-403.
6. Boyle CA, Yeargin-Allsopp M, Doernberg NS, Holmgreen P, Murphy CC, Schendel DE. Prevalence of selected developmental disabilities in children 3-10 years of age: The Metropolitan Atlanta Developmental Disabilities Surveillance Program, 1991. In: CDC Surveillance Summaries. MMWR - Morbidity, Mortality Weekly Report 1996; 45 (no. SS-2):1-14.
7. Murphy CC, Trevathan E, Yeargin-Allsopp M. Prevalence of epilepsy and epileptic seizures in 10-year-old children: Results from the Metropolitan Atlanta Developmental Disability Study. Epilepsia 1995; 36:866-872.
8. Yeargin-Allsopp M, Murphy CC, Oakley GP, Sikes RK. A multiple-source method for studying the prevalence of developmental disabilities in children: The Metropolitan Atlanta Developmental Disabilities Study. Pediatrics 1992; 89:624-630 [published erratum appears in Pediatrics 1992; 90:1001].
9. Birenbaum A, Guyot D, Cohen HJ. Health Care Financing for Severe Developmental Disabilities. Washington, DC: American Association on Mental Retardation, 1990.
10. Braddock D, Hemp R, Parish S, Westrich J. The State of the States in Developmental Disabilities, 5th Edn. Washington, DC: American Association on Mental Retardation, 1998.
11. National Foundation for Brain Research. The Cost of Disorders of the Brain. Washington, DC: Lewin-ICF, 1992.
12. Waitzman NJ, Scheffler RM, Romano PS. The Costs of Birth Defects: Estimates of the Value of Prevention. Lanham, MD: University Press of America, 1996.
13. US Department of Education. Twentieth Annual Report to Congress on the Implementation of the Individuals with Disabilities Education Act. Washington, DC: US Department of Education, 1998.
14. Evans PM, Evans SJW, Alberman E. Cerebral palsy: Why we must plan for survival. Archives of Disease in Childhood 1990; 65:1329-1333.
15. Schlesinger ER, Allaway NC, Peltin S. Survivorship in cerebral palsy. American Journal of Public Health 1959; 49:343-349.
16. McGuigan SM, Hollins S, Attard M. Age-specific standardized mortality rates in people with learning disability. Journal of Intellectual Disability Research 1995; 39:527-531.
17. Forssman H, Åkesson HO. Mortality of the mentally deficient, a study of 12,903 institutionalised subjects. Journal of Mental Deficiency Research 1970; 14:276-294.
18. Dupont A, Mortensen PB. Avoidable death in a cohort of severely mentally retarded. In: Key Issues in Mental Retardation Research. Editor: Fraser WI. London: Routledge, 1990; pp. 28-34.
19. Nilsson L, Tomson T, Farahmand BY, Diwan V, Persson PG. Cause-specific mortality in epilepsy: A cohort study of more than 9,000 patients once hospitalized for epilepsy. Epilepsia 1997; 38:1062-1068.
20. Hauser WA, Annegers JF, Elveback LR. Mortality in patients with epilepsy. Epilepsia 1980; 21:399-412.
21. Hollins S, Attard MT, von Fraunhofer N, McGuigan S, Sedgwick P. Mortality in people with learning disability: Risks, causes, and death certification findings in London. Developmental Medicine and Child Neurology 1998; 40:50-56.
22. Forsgren L, Edvinsson S-O, Nyström L, Blomquist HK. Influence of epilepsy on mortality in mental retardation: An epidemiologic study. Epilepsia 1996; 37:956-963.
23. Harvey AS, Nolan T, Carlin JB. Community-based study of mortality in children with epilepsy. Epilepsia 1993; 34:597-603.
24. Cockerell OC, Johnson AL, Sander JWAS, Hart YM, Goodridge DMG, Shorvon SD. Mortality from epilepsy: Results from a prospective population-based study. Lancet 1994; 344:918-921.
25. Eyman RK, Borthwick-Duffy SA, Call TL, White JF. Prediction of mortality in community and institutional settings. Journal of Mental Deficiency Research 1988; 32:203-213.
26. Strauss D, Eyman RK, Grossman HJ. Predictors of mortality in children with severe mental retardation: The effect of placement. American Journal of Public Health 1996; 86:1422-1429.
27. Decouflé P, Hollowell J, Flanders WD. Is community placement an independent risk factor for increased mortality? Comments on two recent reports. Mental Retardation 1998; 36:403-405.
28. Bilgrad R. National Death Index User's Manual. DHHS Publication Number PHS 90-1148. Hyattsville, MD: DHHS, 1990.
29. Cutler SJ, Ederer F. Maximum utilization of the life table method in analyzing survival. Journal of Chronic Diseases 1958; 8:699-712.
30. Oleinick A, Mantel N. Family studies in systemic lupus erythematosis. II. Mortality among siblings and offspring of index cases with a statistical appendix concerning life table analysis. Journal of Chronic Diseases 1970; 22: 617-625.
31. Kahn HA. The Dorn study of smoking and mortality among US veterans, report on eight and one-half years of observation. In: Epidemiological Study of Cancer and Other Chronic Diseases. Editor: Haenszel W. NCI Monograph 19. Bethesda, MD: National Cancer Institute, 1966; pp. 3-5.
32. Strauss D, Ashwal S, Shavelle R, Eyman RK. Prognosis for survival and improvement in function in children with severe developmental disabilities. Journal of Pediatrics 1997; 131:712-717.
33. Strauss DJ, Shavelle RM, Anderson TW. Life expectancy of children with cerebral palsy. Pediatric Neurology 1998; 18:143-149.
34. Hutton JL, Cooke T, Pharoah POD. Life expectancy in children with cerebral palsy. British Medical Journal 1994; 309:431-435.
35. Cohen P, Mustacchi P. Survival in cerebral palsy. JAMA 1966; 195:130-132.
36. Williams K, Alberman E. Survival in cerebral palsy: the role of severity and diagnostic labels. Developmental Medicine and Child Neurology 1998; 40:376-379.
37. Dupont A, Væth M, Videbech P. Mortality, life expectancy and causes of death of mildly mentally retarded in Denmark. Uppsala Journal of Medical Science 1987; 44 (Suppl.):76-82.
38. Balakrishnan TR, Wolf LC. Life expectancy of mentally etarded persons in Canadian institutions. American Journal of Mental Deficiency 1976; 80:650-662.
39. Similä S, von Wendt L, Rantakallio P. Mortality of mentally retarded children to 17 years of age assessed in a prospective one-year birth cohort. Journal of Mental Deficiency Research 1986; 30:401-405.
40. Murphy CC, Yeargin-Allsopp M, Decouflé P, Drews CD. Prevalence of cerebral palsy among ten-year-old children in metropolitan Atlanta, 1985 through 1987. Journal of Pediatrics 1993; 123:S13-S20.
41. Herbst DS, Baird PA. Survival rates and causes of death among persons with nonspecific mental retardation. In: Perspectives and Progress in Mental Retardation, Vol. II. -Biomedical Aspects. Editor: Berg JM. Baltimore: University Park Press, IASSMD, 1984; pp. 3-15.