-
1
-
-
0024080226
-
Home care for ventilator-assisted children: Implications for the children, and their families and health policy
-
Aday, L. A., & Wegener, D. H. (1988). Home care for ventilator-assisted children: Implications for the children, and their families and health policy. Children's Health Care, 17, 112-120.
-
(1988)
Children's Health Care
, vol.17
, pp. 112-120
-
-
Aday, L.A.1
Wegener, D.H.2
-
2
-
-
0030843737
-
Analysis of consumer satisfaction in cerebral palsy care
-
Bamford, D., Griffiths, H., Long, S., & Kernohan, G. (1997). Analysis of consumer satisfaction in cerebral palsy care. Journal of Interprofessional Care, 11(2), 187-193.
-
(1997)
Journal of Interprofessional Care
, vol.11
, Issue.2
, pp. 187-193
-
-
Bamford, D.1
Griffiths, H.2
Long, S.3
Kernohan, G.4
-
3
-
-
0033074130
-
Support for families and children with special needs
-
Breckbill, J., & Carmen, S. (1999). Support for families and children with special needs. Caring, 18(2), 6-8, 10.
-
(1999)
Caring
, vol.18
, Issue.2
, pp. 6-8
-
-
Breckbill, J.1
Carmen, S.2
-
4
-
-
0027570939
-
Informal carers: A Marxist analysis of social, political and economic forces underpinning the role
-
Bridges, J. M., & Lynam, M. J. (1993). Informal carers: A Marxist analysis of social, political and economic forces underpinning the role. Advances in Nursing Science, 15, 33-48.
-
(1993)
Advances in Nursing Science
, vol.15
, pp. 33-48
-
-
Bridges, J.M.1
Lynam, M.J.2
-
7
-
-
0032087324
-
Discharging ventilator-dependent children: A continuing challenge
-
Capen, C. L., & Dedlow, E. R. (1998). Discharging ventilator-dependent children: A continuing challenge. Journal of Pediatric Nursing, 13, 175-184.
-
(1998)
Journal of Pediatric Nursing
, vol.13
, pp. 175-184
-
-
Capen, C.L.1
Dedlow, E.R.2
-
8
-
-
0041032009
-
Respite care: Support for families in the community
-
H. M. Wallace, R. F. Biehl, J. C. MacQueen, & J. A. Blackman (Eds.). St. Louis: Mosby
-
Cernoch, J. M., & Newhouse, E. E. (1997). Respite care: Support for families in the community. In H. M. Wallace, R. F. Biehl, J. C. MacQueen, & J. A. Blackman (Eds.), Mosby's resource guide to children with disabilities and chronic illness (pp. 402-410). St. Louis: Mosby.
-
(1997)
Mosby's Resource Guide to Children with Disabilities and Chronic Illness
, pp. 402-410
-
-
Cernoch, J.M.1
Newhouse, E.E.2
-
9
-
-
84970150283
-
The triggers of heightened parental uncertainty in chronic, life-threatening childhood illness
-
Cohen, M. H. (1995). The triggers of heightened parental uncertainty in chronic, life-threatening childhood illness. Qualitative Health Research, 5, 63-77.
-
(1995)
Qualitative Health Research
, vol.5
, pp. 63-77
-
-
Cohen, M.H.1
-
10
-
-
0026178155
-
Focus group interview with parents of children with medically complex needs: An intimate look at their perceptions and feelings
-
Diehl, S. F., Moffitt, K. A., & Wade, S. M. (1991). Focus group interview with parents of children with medically complex needs: An intimate look at their perceptions and feelings. Children's Health Care, 20, 170-178.
-
(1991)
Children's Health Care
, vol.20
, pp. 170-178
-
-
Diehl, S.F.1
Moffitt, K.A.2
Wade, S.M.3
-
11
-
-
0004092340
-
-
Cambridge, MA: Brookline
-
Dunst, C. J., Trivette, C. M., & Deal, A. G. (1988). Enabling and empowering families: Principles and guidelines for practice. Cambridge, MA: Brookline.
-
(1988)
Enabling and Empowering Families: Principles and Guidelines for Practice
-
-
Dunst, C.J.1
Trivette, C.M.2
Deal, A.G.3
-
13
-
-
0025891304
-
Loneliness and social support of mothers of chronically ill children
-
Florian, V., & Krulik, T. (1991). Loneliness and social support of mothers of chronically ill children. Social Science and Medicine, 32, 1291-1296.
-
(1991)
Social Science and Medicine
, vol.32
, pp. 1291-1296
-
-
Florian, V.1
Krulik, T.2
-
14
-
-
0024727597
-
Stress and social support in the experience of monitoring apneic babies
-
Geary, P. A. (1990). Stress and social support in the experience of monitoring apneic babies. Clinical Nurse Specialist, 3, 119-125.
-
(1990)
Clinical Nurse Specialist
, vol.3
, pp. 119-125
-
-
Geary, P.A.1
-
15
-
-
0031116745
-
Caring for a child with a progressive illness during the complex chronic phase: Parents' experience of facing adversity
-
Gravelle, A. M. (1997). Caring for a child with a progressive illness during the complex chronic phase: Parents' experience of facing adversity. Journal of Advanced Nursing, 25, 738-745.
-
(1997)
Journal of Advanced Nursing
, vol.25
, pp. 738-745
-
-
Gravelle, A.M.1
-
16
-
-
0030229293
-
An exploration of parental perception of the nature and level of support needed to care for their child with special needs
-
Hall, S. (1996). An exploration of parental perception of the nature and level of support needed to care for their child with special needs. Journal of Advanced Nursing, 24, 512-521.
-
(1996)
Journal of Advanced Nursing
, vol.24
, pp. 512-521
-
-
Hall, S.1
-
18
-
-
0347092165
-
Family health promotion within the demands of pediatric home care and nursing respite
-
L. E. Young & V. E. Hayes (Eds.). Philadelphia: Davis
-
Hayes, V. E., & McElheran, P. (2002). Family health promotion within the demands of pediatric home care and nursing respite. In L. E. Young & V. E. Hayes (Eds.), Transforming health promotion practice: Concepts, issues, and applications. Philadelphia: Davis.
-
(2002)
Transforming Health Promotion Practice: Concepts, Issues, and Applications
-
-
Hayes, V.E.1
McElheran, P.2
-
19
-
-
0024709661
-
A study of pediatric home ventilator management: Medical, psychosocial and financial aspects
-
Hazlett, D. E. (1989). A study of pediatric home ventilator management: Medical, psychosocial and financial aspects. Journal of Pediatric Nursing, 4, 284-293.
-
(1989)
Journal of Pediatric Nursing
, vol.4
, pp. 284-293
-
-
Hazlett, D.E.1
-
20
-
-
0031601433
-
Health promotion during childhood chronic illness: A paradox facing society
-
Heinzer, M. M. (1998). Health promotion during childhood chronic illness: A paradox facing society. Holistic Nursing Practice, 12(2), 8-16.
-
(1998)
Holistic Nursing Practice
, vol.12
, Issue.2
, pp. 8-16
-
-
Heinzer, M.M.1
-
21
-
-
0033780302
-
Service needs of parents with motor or multiply disabled children in Dutch therapeutic toddler classes
-
Hendriks, A. H. C., De Moor, J. M. H., Oud, J. H. L., & Franken, W. M. (2000). Service needs of parents with motor or multiply disabled children in Dutch therapeutic toddler classes. Clinical Rehabilitation, 14, 506-517.
-
(2000)
Clinical Rehabilitation
, vol.14
, pp. 506-517
-
-
Hendriks, A.H.C.1
De Moor, J.M.H.2
Oud, J.H.L.3
Franken, W.M.4
-
22
-
-
0000652384
-
The possibilities and pitfalls of doing a secondary analysis of a qualitative data set
-
Hinds, P. S., & Vogel, R. J. (1997). The possibilities and pitfalls of doing a secondary analysis of a qualitative data set. Qualitative Health Research, 7, 408-424.
-
(1997)
Qualitative Health Research
, vol.7
, pp. 408-424
-
-
Hinds, P.S.1
Vogel, R.J.2
-
23
-
-
0023389917
-
Home care: A model of a comprehensive approach for technology-assisted chronically ill children
-
Kaufman, J., & Hardy-Ribakow, D. (1987). Home care: A model of a comprehensive approach for technology-assisted chronically ill children. Journal of Pediatric Nursing, 2, 244-249.
-
(1987)
Journal of Pediatric Nursing
, vol.2
, pp. 244-249
-
-
Kaufman, J.1
Hardy-Ribakow, D.2
-
24
-
-
0032012571
-
Families' experiences of caring at home for a technology-dependent child: A review of the literature
-
Kirk, S. (1998). Families' experiences of caring at home for a technology-dependent child: A review of the literature. Child: Care, Health and Development, 24, 101-114.
-
(1998)
Child: Care, Health and Development
, vol.24
, pp. 101-114
-
-
Kirk, S.1
-
25
-
-
0035378479
-
Negotiating lay and professional roles in the care of children with complex health care needs
-
Kirk, S. (2001). Negotiating lay and professional roles in the care of children with complex health care needs. Journal of Advanced Nursing, 34, 593-602.
-
(2001)
Journal of Advanced Nursing
, vol.34
, pp. 593-602
-
-
Kirk, S.1
-
26
-
-
0030267677
-
Family response to childhood chronic illness: Description of management styles
-
Knafl, K., Breitmayer, B., Gallo, A., & Zoeller, L. (1996). Family response to childhood chronic illness: Description of management styles. Journal of Pediatric Nursing, 11, 315-326.
-
(1996)
Journal of Pediatric Nursing
, vol.11
, pp. 315-326
-
-
Knafl, K.1
Breitmayer, B.2
Gallo, A.3
Zoeller, L.4
-
27
-
-
0347092161
-
Home care for children with technologic needs
-
H. M. Wallace, R. F. Biehl, J. C. MacQueen, & J. A. Blackman (Eds.). St. Louis: Mosby
-
Kohrman, A. F., & Kaufman, J. (1997). Home care for children with technologic needs. In H. M. Wallace, R. F. Biehl, J. C. MacQueen, & J. A. Blackman (Eds.), Mosby's resource guide to children with disabilities and chronic illness (pp. 411-420). St. Louis: Mosby.
-
(1997)
Mosby's Resource Guide to Children with Disabilities and Chronic Illness
, pp. 411-420
-
-
Kohrman, A.F.1
Kaufman, J.2
-
29
-
-
0030334819
-
The family: Long-term care research and policy formulation
-
McKeever, P. (1996). The family: Long-term care research and policy formulation. Nursing Inquiry, 3, 200-206.
-
(1996)
Nursing Inquiry
, vol.3
, pp. 200-206
-
-
McKeever, P.1
-
30
-
-
0040736176
-
Distress and growth outcomes in mothers of medically fragile infants
-
Miles, M. S., Holditch-Davis, D., Burchinal, P., & Nelson, D. (1999). Distress and growth outcomes in mothers of medically fragile infants. Nursing Research, 48, 129-140.
-
(1999)
Nursing Research
, vol.48
, pp. 129-140
-
-
Miles, M.S.1
Holditch-Davis, D.2
Burchinal, P.3
Nelson, D.4
-
31
-
-
0033143473
-
Mothers' experiences of living worried when parenting children with spina bifida
-
Monsen, R. B. (1999). Mothers' experiences of living worried when parenting children with spina bifida. Journal of Pediatric Nursing, 14, 157-163.
-
(1999)
Journal of Pediatric Nursing
, vol.14
, pp. 157-163
-
-
Monsen, R.B.1
-
32
-
-
0346461884
-
Stress and coping in home care: A study of families
-
N. J. Hochstadt & D. M. Yost (Eds.). New York: Harwood Academic Publishers
-
Murphy, K. E. (1991). Stress and coping in home care: A study of families. In N. J. Hochstadt & D. M. Yost (Eds.), The medically complex child: The transition to home care (pp. 287-302). New York: Harwood Academic Publishers.
-
(1991)
The Medically Complex Child: The Transition to Home Care
, pp. 287-302
-
-
Murphy, K.E.1
-
33
-
-
0035260601
-
Living in a house of cards: Family experiences with long-term childhood technology dependence
-
O'Brien, M. E. (2001). Living in a house of cards: Family experiences with long-term childhood technology dependence. Journal of Pediatric Nursing, 16, 13-22.
-
(2001)
Journal of Pediatric Nursing
, vol.16
, pp. 13-22
-
-
O'Brien, M.E.1
-
34
-
-
0035379551
-
Dilemmas in the provision of own home respite support for parents of young children with complex health care needs: Evidence from an evaluation
-
Olsen, R., & Maslin-Prothero, P. (2001). Dilemmas in the provision of own home respite support for parents of young children with complex health care needs: Evidence from an evaluation. Journal of Advanced Nursing, 34, 603-610.
-
(2001)
Journal of Advanced Nursing
, vol.34
, pp. 603-610
-
-
Olsen, R.1
Maslin-Prothero, P.2
-
35
-
-
0021271370
-
The organization of services for chronically ill children and their families
-
Perrin, J. M., & Ireys, H. T. (1984). The organization of services for chronically ill children and their families. Pediatric Clinics of North America, 31, 235-256.
-
(1984)
Pediatric Clinics of North America
, vol.31
, pp. 235-256
-
-
Perrin, J.M.1
Ireys, H.T.2
-
37
-
-
0028822880
-
Home care for children dependent on medical technology: The family perspective
-
Petr, C. G., Murdock, B., & Chapin, R. (1995). Home care for children dependent on medical technology: The family perspective. Social Work in Pediatrics, 21, 5-22.
-
(1995)
Social Work in Pediatrics
, vol.21
, pp. 5-22
-
-
Petr, C.G.1
Murdock, B.2
Chapin, R.3
-
38
-
-
0026135636
-
Chronic sorrow in mothers of chronically ill and disabled children
-
Phillips, M. (1991). Chronic sorrow in mothers of chronically ill and disabled children. Issues in Comprehensive Pediatric Nursing, 14, 111-120.
-
(1991)
Issues in Comprehensive Pediatric Nursing
, vol.14
, pp. 111-120
-
-
Phillips, M.1
-
39
-
-
0027648330
-
Caring for chronically ill children at home: Factors that influence parents' coping
-
Ray, L. D., & Ritchie, J. A. (1993). Caring for chronically ill children at home: Factors that influence parents' coping. Journal of Pediatric Nursing, 8, 217-225.
-
(1993)
Journal of Pediatric Nursing
, vol.8
, pp. 217-225
-
-
Ray, L.D.1
Ritchie, J.A.2
-
40
-
-
84937334361
-
Short breaks for families caring for a disabled child with complex health needs
-
Robinson, C., Jackson, P., & Townsley, R. (2001). Short breaks for families caring for a disabled child with complex health needs. Child and Family Social Work, 6(1), 67-75.
-
(2001)
Child and Family Social Work
, vol.6
, Issue.1
, pp. 67-75
-
-
Robinson, C.1
Jackson, P.2
Townsley, R.3
-
41
-
-
0031229424
-
Family caregiving: Who provides the care, and at what cost?
-
Robinson, K. M. (1997). Family caregiving: Who provides the care, and at what cost? Nursing Economics, 15, 243-247.
-
(1997)
Nursing Economics
, vol.15
, pp. 243-247
-
-
Robinson, K.M.1
-
42
-
-
0029631968
-
Impact of home-based respite care on families of children with chronic illnesses
-
Sherman, B. R. (1995). Impact of home-based respite care on families of children with chronic illnesses. Children's Health Care, 24, 33-45.
-
(1995)
Children's Health Care
, vol.24
, pp. 33-45
-
-
Sherman, B.R.1
-
43
-
-
0347722686
-
-
Report to Funder Technical Report 5. Victoria, BC: Hollander Analytical Services Ltd.
-
Spalding, K. L., Hayes, V. E., Williams, A. P., & McKeever, P. (2002). Services for children with special needs and their families: Analysis of interfaces along the continuum of care (Report to Funder Technical Report 5). Victoria, BC: Hollander Analytical Services Ltd.
-
(2002)
Services for Children with Special Needs and Their Families: Analysis of Interfaces Along the Continuum of Care
-
-
Spalding, K.L.1
Hayes, V.E.2
Williams, A.P.3
McKeever, P.4
-
44
-
-
0030996157
-
The dilemmas of parents of adolescents and young adults with congenital heart disease
-
Sparacino, P. S., Tong, E. M., Messias, D. K., Foote, D., Chesla, C. A., & Gilliss, C. L. (1997). The dilemmas of parents of adolescents and young adults with congenital heart disease. Heart and Lung, 26, 187-195.
-
(1997)
Heart and Lung
, vol.26
, pp. 187-195
-
-
Sparacino, P.S.1
Tong, E.M.2
Messias, D.K.3
Foote, D.4
Chesla, C.A.5
Gilliss, C.L.6
-
45
-
-
0030256081
-
Parents' resource and home management of the care of chronically ill infants
-
Sterling, Y. M., Jones, L. C., Johnson, D. H., & Bowen, M. R. (1996). Parents' resource and home management of the care of chronically ill infants. Journal of the Society of Pediatric Nurses, 1, 103-109.
-
(1996)
Journal of the Society of Pediatric Nurses
, vol.1
, pp. 103-109
-
-
Sterling, Y.M.1
Jones, L.C.2
Johnson, D.H.3
Bowen, M.R.4
-
46
-
-
0025417598
-
A comparison of mothers' and fathers' perceptions of caring for an infant requiring home cardio-respiratory monitoring
-
Stevens, M. S. (1990). A comparison of mothers' and fathers' perceptions of caring for an infant requiring home cardio-respiratory monitoring. Issues in Comprehensive Pediatric Nursing, 13, 81-95.
-
(1990)
Issues in Comprehensive Pediatric Nursing
, vol.13
, pp. 81-95
-
-
Stevens, M.S.1
-
47
-
-
0028376089
-
Parents coping with infants requiring home cardiorespiratory monitoring
-
Stevens, M. S. (1994). Parents coping with infants requiring home cardiorespiratory monitoring. Journal of Pediatric Nursing, 9, 2-11.
-
(1994)
Journal of Pediatric Nursing
, vol.9
, pp. 2-11
-
-
Stevens, M.S.1
-
48
-
-
0034577254
-
Uncertainty in childhood illness: A synthesis of the parent and child literature
-
Stewart, J. L., & Mishel, M. H. (2000). Uncertainty in childhood illness: A synthesis of the parent and child literature. Scholarly Inquiry for Nursing Practice, 14, 299-319.
-
(2000)
Scholarly Inquiry for Nursing Practice
, vol.14
, pp. 299-319
-
-
Stewart, J.L.1
Mishel, M.H.2
-
50
-
-
0033760583
-
Conducting policy research: Children with special needs
-
Tan, E. L. C., Hayes, V. E., & Hollander, M. J. (2000). Conducting policy research: Children with special needs. Canadian Nurse, 96(1), 27-30.
-
(2000)
Canadian Nurse
, vol.96
, Issue.1
, pp. 27-30
-
-
Tan, E.L.C.1
Hayes, V.E.2
Hollander, M.J.3
-
52
-
-
0002930633
-
Secondary analysis in qualitative research: Issues and implications
-
J. M. Morse (Ed.). Thousand Oaks, CA: Sage
-
Thorne, S. E. (1994). Secondary analysis in qualitative research: Issues and implications. In J. M. Morse (Ed.), Critical issues in qualitative research methods (pp. 263-279). Thousand Oaks, CA: Sage.
-
(1994)
Critical Issues in Qualitative Research Methods
, pp. 263-279
-
-
Thorne, S.E.1
-
53
-
-
0024730082
-
Guarded alliance: Health care relationships in chronic illness
-
Thorne, S. E., & Robinson, C. A. (1989). Guarded alliance: Health care relationships in chronic illness. Image: Journal of Nursing Scholarship, 21, 153-157.
-
(1989)
Image: Journal of Nursing Scholarship
, vol.21
, pp. 153-157
-
-
Thorne, S.E.1
Robinson, C.A.2
-
54
-
-
0031804533
-
Family burden and adaptation during the initial year after traumatic brain injury in children
-
Wade, S. L., Taylor, H. G., Drotar, D., Stancin, T., & Yeates, K. O. (1998). Family burden and adaptation during the initial year after traumatic brain injury in children. Pediatrics, 102, 110-116.
-
(1998)
Pediatrics
, vol.102
, pp. 110-116
-
-
Wade, S.L.1
Taylor, H.G.2
Drotar, D.3
Stancin, T.4
Yeates, K.O.5
-
55
-
-
0024691757
-
Home care for ventilator-assisted children: Predicting family stress
-
Wegener, D. H., & Aday, L. A. (1989). Home care for ventilator-assisted children: Predicting family stress. Pediatric Nursing, 15, 371-376.
-
(1989)
Pediatric Nursing
, vol.15
, pp. 371-376
-
-
Wegener, D.H.1
Aday, L.A.2
-
56
-
-
0346461885
-
Study of care management arrangements for dying children
-
While, A., Cornish, J., & Citrone, C. (1996). Study of care management arrangements for dying children. British Journal of Community Health Nursing, 1, 290-294.
-
(1996)
British Journal of Community Health Nursing
, vol.1
, pp. 290-294
-
-
While, A.1
Cornish, J.2
Citrone, C.3
-
57
-
-
0033632036
-
Negotiating with helping systems: An example of grounded theory evolving through emergent fit
-
Wuest, J. (2000). Negotiating with helping systems: An example of grounded theory evolving through emergent fit. Qualitative Health Research, 10, 51-71.
-
(2000)
Qualitative Health Research
, vol.10
, pp. 51-71
-
-
Wuest, J.1
-
58
-
-
0025423809
-
The impact of fluctuating relationships with the Canadian health care system on family management of otitis media with effusion
-
Wuest, J., & Stern, P. N. (1990). The impact of fluctuating relationships with the Canadian health care system on family management of otitis media with effusion. Journal of Advanced Nursing, 15, 556-563.
-
(1990)
Journal of Advanced Nursing
, vol.15
, pp. 556-563
-
-
Wuest, J.1
Stern, P.N.2
-
59
-
-
0028507691
-
Families with medically fragile children: An exploratory study
-
Youngblut, J. M., Brennan, P. F., & Swegart, L. A. (1994). Families with medically fragile children: An exploratory study. Pediatric Nursing, 20, 463-468.
-
(1994)
Pediatric Nursing
, vol.20
, pp. 463-468
-
-
Youngblut, J.M.1
Brennan, P.F.2
Swegart, L.A.3
|