Genetics decision-making: A template for problems with informed consent

Medicine and Law

Volumn 21, Issue 3, 2002, Pages 459-471

  Kegley, Jacquelyn Ann K ^a  

^a CALIFORNIA STATE UNIVERSITY   (United States)

Author keywords

Asymptomatic patient; Genetic uncertainty; Informed consent; Medical education; Professional custom (reasonable physician), prudent patient (reasonable patient); Subjective substantial disclosure

Indexed keywords

CHRONIC DISEASE; CULTURAL FACTOR; DOCTOR PATIENT RELATION; ETHNIC DIFFERENCE; GENDER; GENETIC ANALYSIS; GENETICS; HUMAN; INFORMATION PROCESSING; INFORMED CONSENT; MEDICAL DECISION MAKING; MEDICAL EDUCATION; PATIENT CARE; PHYSICIAN; PROFESSIONAL PRACTICE; RELIGION; REVIEW; SELF DISCLOSURE; SYMPTOM; TRAINING;

EID: 0036398979     PISSN: 07231393     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Review

References (31)

1. Judge Benjamin Cardozo, Schloendorff v Society of New York Hospital 211 NY 125; 105 NE 92,93 (1014) (NYCA). Thus if a patient because she has been inadequately informed agrees to a medical procedure which leads to damage can seek tort of battery. Judge Cardozo states: "and a surgeon who performs an operation without his patient's consent commits an assault, for which he is liable in damages."
2. Bolam v. Friern Hospital Management Committee [1957] 1 WLR 582 (QBD).
3. For criticisms of the Bolam Principle, see: M. Kirby. "Patients' Rights - Why the Australian Courts Have Rejected "Bolam,"" Journal of Medical Ethics 21: 5-8 [1995]
4. Peter Fenwick & Roy G. Beran. "Informed Consent - Should Bolam Be Rejected?" Medicine and Law 16:215-223. [1996].
5. Barbara Secker. "The Appearance of Kant's Deontology in Contemporary Kantianism: Concepts of Patient Autonomy in Bioethics." Journal of Medicine and Philosophy 24:1:43-66. [1999]
6. Richard C. Strohman. 1995. "Linear Genetics, non-linear epigenetics: complementary approaches to understanding complex diseases. Integrated Physiological and Behavior Science. 30 (4), 273-282;
7. R.C. Strohman. 1997. "The Coming Kuhnian Revolution in Biology." National Biotechnology. 15(3). 194-200.
8. A.G. Matulsky. "The Significance of Genetic Disease." 59, 61, in B. Hilton, D. Callahan, M. Harris, P. Condlifee, B. Berkley. Eds. Ethical Issues in Human Genetics: Genetic Counseling and the Use of Genetic Knowledge. (Fogarty International Proceedings No. 13, 1973).
9. Neil A. Holtzman. Proceed With Caution. (Baltimore, Md.: John Hopkins University Press, 1989).
10. James Watson, Co-Founder of the DNA double helix has proclaimed that DNA is what makes us human. He states: "Our fate is in our genes." Quoted in Leon Jaroff. 1989. "The Gene Hunt," Time. 20 March, 1989, 62-67.
11. Segan Gbadegesin. "Genetic Screening: Sickle Cell Anemia and African and African-American Perspectives: The Ethics of Screening and Counseling," in Genetic Information: Human Values and Responsibility edited by Jacquelyn Ann K. Kegley. Lexington, Kentucky: International Conference on the Unity of the Sciences. 1998. 183-195.
12. Gamal I. Serour, "Islamic Perspective on Genetic Technology and Information Use," in Genetic Information: Human Values and Responsibility edited by Jacquelyn Ann K. Kegley. Lexington, Kentucky: International Conference on the United of the Sciences. 1998. 197-211.
13. D.C. Wertz and J.C. Fletcher. "An International Survey of Attitudes of Medical Geneticists Toward Mass Screening and Access to Results." 104 Public Health Reports. 35-44 (1989)
14. Edmund L. Erde, (1999) "Informed Consent to Septoplasty: An Anecdote from the Field," The Journal of Medicine and Philosophy 24:no. 1 11-17.
15. M.L. Done, J.G. Ellingham and T.A. Faunce (1996) "Disclosure of Material Risks. The Practice of Australian Anaesthetists Subsequent to Rogers v Whitaker" Australian Anaesthesia 69.
16. Edmund L, Erde. 1999. "A Commentary on 'Informed Consent to Septoplasty: An Anecdote from the Field." The Journal of Medicine and Philosophy. 24:No. 1 18-27
17. Howard Brody. 1999. "Commentary: What We Have Here, Is a Failure to Communicate." 1999. The Journal of Medicine and Philosophy. 24: No. 1, 28-33.
18. C.W. Lidz, P.S. Appelbaum, and A. Meisel. 1988. "Two models of implementing informed consent." Archives of Internal Medicine 148, 1385-89.
19. I discuss this problem extensively in my book, Genuine Individuals and Genuine Communities. 1997. Nashville and London. Vanderbilt University Press.
20. Drew Leder. Editor. 1992. The Body in Medical Thought and Practice Boston: Kluwer Academic Publishers.
21. For an excellent discussion of how illness is such an existential condition see: Robert Silbermann. 1994. Crisis in American Medicine. New York: Panthion Books.
22. For an extended discussion of this view of illness, see: Jacquelyn Kegley. 1997. Genuine Individuals and Genuine Communities.
23. Mary G. Rawlinson. 1986. "The Sense of Suffering." The Journal of Medicine and Philosophy. 11: 39-62.
24. Stephen Wear. 1999. "Enhancing Clinician Provision of Informed Consent and Counseling.: Some Pedagogical Strategies." Journal of Medicine and Philosophy. Vol. 24:No.1. 34-42.
25. K.M. Ludmerer. 1999. Time to Heal: American Medical Education From the Turn of the Century to the Era of Managed Care. New York: Oxford Press.
26. Ibid. xiii.
27. C. Breedlove and H. Hendrick. "Reenvisioning Medical Education for the New Millennium," JAMA. December 9, 1999. Vol. 282, No. 22. 2171.
28. Edmund D. Pellegrino, 1970. "The Most Humane Science: Some Notes on Liberal Education in Medicine and the University." Bulletin of the Medical College of Virginia. 2, No. 4, 11-39.
29. Eric J. Cassell. 1990. "The Place of the Humanities in Medicine." In Applying the Humanities. Ed. Daniel Callahn, Arthur Caplan, and Bruce Jennings. New York: Plenum Press. 167-189.
30. Stephen Wear, "Enhancing Clinical Provision of Informed Consent and Counseling: Some Pedagogical Strategies." 1999. Journal of Medicine and Philosophy. 24:1. 34-42.
31. Arnold J. Rosoff. 1999. "Informed Consent in the Electronic Age." American Journal of Law and Medicine. 25: 367-86.