Methodological issues affecting the value of patient-reported outcomes data

Expert Review of Pharmacoeconomics and Outcomes Research

Volumn 2, Issue 2, 2002, Pages 119-128

  Hufford, Michael R ^a   Shiffman, Saul ^a  

^a Invivodata Inc   (United States)

Author keywords

Ecological momentary assessment; Methodology; Recall; Self report

Indexed keywords

DISEASE COURSE; EXPERIENCE; HEALTH CARE UTILIZATION; HUMAN; INFORMATION PROCESSING; MEDICAL ASSESSMENT; METHODOLOGY; OUTCOMES RESEARCH; PATIENT CARE; RELIABILITY; REVIEW; SELF MONITORING; SELF REPORT; TIME;

EID: 0036073713     PISSN: 14737167     EISSN: None     Source Type: Journal    
DOI: 10.1586/14737167.2.2.119     Document Type: Review

References (69)

1. The Problem of Quality of Life in Medicine
2. Measuring up to the task
3. Ecological Momentary Assessment: Measuring real world processes in behavioral medicine
4. Ethical issues in the collection of self-report data
5. Informed consent procedures in telephone interviews
6. Effects of researcher follow-up on distressed subjects; Tradeoff between validity and ethical responsibility?
7. Adolescent sexual behavior, drug use and violence: Increased reporting with computer survey technology
8. Effects of operationalized computer diagnosis on the therapeutic results of sumatriptan in general practice
9. First lapses to smoking: Within-subjects analysis of real-time reports
10. Electronic quality of life questionnaires: A comparison of pen-based electronic questionnaires with convention paper in a gastrointestinal study
11. 'Compu-voiding II': The computerized voiding diary
12. The use of electronic diaries in respiratory studies
13. Blood pressure monitoring. Task force V: White-coat hypertension
14. Information no one else knows: The value of self-report
15. Answering Autobiographical Questions: The Impact of Memory and Inference on Surveys
16. Relations among measures of autobiographical memory
17. Memory for chronic pain intensity: Correlates of accuracy
18. Recall error: Sources and bias reduction techniques
19. Life events and mania: A case-controlled study
20. The Use of Memory and Contextual Cues in the Formation of Behavioral Frequency Judgments
21. Autobiographical memory and the validity of retrospective reports
22. Remember that? A comparison of real-time versus retrospective recall of smoking lapses
23. Diurnal variation in clinical depression and accessibility of memories of positive and negative experiences
24. Constraints on effects of mood on memory
25. Differential effects of induced mood on retrieval of pleasant and unpleasant events from episodic memory
26. Social Origins of Depression
27. Memory for Pain: Relation between Past and Present Pain Intensity
28. The Effects of Estimation Strategies on the Accuracy of Respondents' Reports of Cigarette Smoking
29. Malignant memories: Post-traumatic changes in memory in adults after a school shooting
30. Revealing response shift in longitudinal research on fatigue: The use of the thentest approach
31. In quality of life questionnaires, what do patients understand 'past month' to mean?
32. Temporal Representation and Event Dating
33. Patients' memories of painful medical treatments: Real-time and retrospective evaluations of two minimally invasive procedures
34. Does the peak-end phenomenon observed in laboratory pain studies apply to real-world pain in rheumatoid arthritics?
35. Assessment and therapeutic functions of self-monitoring
36. An inventory for measuring depression
37. Beck Depression Inventory-II
38. The effect of completing the Beck Depression Inventory on self-reported mood state: Contrast and assimilation
39. Objective Happiness
40. Quality of life in depression: Daily life determinants and variability
41. Health diaries
42. The Comparative Analgesic Efficacy of Transcutaneous Electrical Nerve Stimulation and a Non-steroidal Antiflammatory Drug for Painful Osteoarthritis
43. Reliability of seizure diaries in adult epileptic patients
44. A comparison of coping assessed by ecological momentary assessment and retrospective recall
45. Ecological momentary assessment (EMA) with treated alcoholics: Methodological problems and potential solutions
46. Ecological momentary assessment: Real world, real-time measurement of patient experience
47. Ecological Momentary Assessment
48. Strategies for analyzing ecological momentary assessment data
49. Self-recording of everyday life events: Origins, types and uses
50. Comparative efficacy of 24-hour and 16-hour transdermal nicotine patches for relief of morning craving
51. Real-time self-report of momentary states in the natural environment: Computerized ecological momentary assessment
52. Objective measurements of compliance in asthma treatment
53. Patient compliance in a clinical trial with inhaled budesonide in children with mild asthma
54. Reliability of blood glucose monitoring by patients with diabetes mellitus
55. Noncompliance and treatment failure in children with asthma
56. Unpredictability of deception in compliance with physician prescribed bronchodilator inhaler use in a clinical trial
57. Compliance of patients with asthma with an experimental aerosolized medication: Implications for controlled clinical trials
58. Patient self-reporting of compliance does not correspond with electronic monitoring: An evaluation using isosorbide dinitrate as a model drug
59. Compliance with and accuracy of daily assessment of peak expiratory flows (PEF) in asthmatic subjects over a three month period
60. Subject experience diaries in clinical research, Part 1: The patient experience movement
61. An electronic menstrual cycle calendar: Comparison of data quality with a paper version
62. Reactive effects of diary self-assessment in chronic pain patients
63. Reactivity to Ecological Momentary Assessment: An Example Using Undergraduate Problem Drinkers
64. Electronic diary assessment of pain, disability and psychological adaptation in patients differing in duration of pain
65. Effects of task strain, social conflict and emotional activation on ambulatory cardiovascular activity: Daily life consequences of recurring stress in a multiethnic adult sample
66. Daily Processes in coping with chronic pain: Methods and analytic strategies
67. Electronic subject diaries: An examination of applications and what works in the field
68. Introduction to the special section: Ecological momentary assessment in health psychology
69. Subject experience diaries in clinical research, Part 2: Ecological Momentary Assessment