Ethical issues in the long-term management of progressive degenerative neuromuscular diseases

Seminars in Respiratory and Critical Care Medicine

Volumn 23, Issue 3, 2002, Pages 307-314

  Vaszar, Laszlo T ^a   Weinacker, Ann B ^a   Henig, Noreen R ^a   Raffin, Thomas A ^a  

^a STANFORD UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

End of life care; Ethics; Neuromuscular diseases; Palliative care

Indexed keywords

ARTIFICIAL VENTILATION; DISEASE COURSE; ETHICS; INFORMED CONSENT; LONG TERM CARE; MEDICAL DECISION MAKING; MOTOR PERFORMANCE; NEUROMUSCULAR DISEASE; PALLIATIVE THERAPY; PRIORITY JOURNAL; RESPIRATORY FAILURE; REVIEW; TERMINAL CARE;

EID: 0036061921     PISSN: 10693424     EISSN: None     Source Type: Journal    
DOI: 10.1055/s-2002-33039     Document Type: Review

References (28)

1. Ethics and withdrawal of life support
2. Biomedical ethics and the withdrawal of advanced life support
3. Starting and stopping the ventilator for patients with amyotrophic lateral sclerosis
4. Ethical care at the end of life
5. Physician virtues and communicating with patients
6. Amyotrophic lateral sclerosis and life-sustaining therapy: Patients' desires for information, participation in decision making, and life-sustaining therapy
7. Respiratory system in amyotrophic lateral sclerosis
8. Home ventilation for amyotrophic lateral sclerosis patients: Outcomes, costs, and patient, family, and physician attitudes
9. Practice parameter: The care of the patient with amyotrophic lateral sclerosis (an evidence-based review): Report of the Quality Standards Subcommittee of the American Academy of Neurology: ALS Practice Parameters Task Force
10. A controlled trial to improve care for seriously ill hospitalized patients: The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT)
11. End-of-life decision-making in the hospital: Current practice and future prospects
12. Long-term management of respiratory failure in amyotrophic lateral sclerosis
13. Respiratory assistance with a noninvasive ventilator (BiPAP) in MND/ALS patients: Survival rates in a controlled trial
14. Effect of noninvasive positive-pressure ventilation on survival in amyotrophic lateral sclerosis
15. Amyotrophic lateral sclerosis: Predictors for prolongation of life by noninvasive respiratory aids
16. Position statement: Certain aspects of the care and management of profoundly and irreversibly paralyzed patients with retained consciousness and cognition
17. Competent patients with advanced states of permanent paralysis have the right to forgo life-sustaining therapy
18. Rapid withdrawal of support
19. Withdrawing life support: Extubation and prolonged terminal weans are inappropriate
20. Ethical dilemmas in hospice and palliative care
21. Patient choices in ALS: Life-sustaining treatment versus palliative care?
22. The rule of double effect: A critique of its role in end-of-life decision making
23. Ordering and administration of sedatives and analgesics during the withholding and withdrawal of life support from critically ill patients
24. Medical futility in end-of-life care: Report of the Council on Ethical and Judicial Affairs
25. The patient's response to medical futility
26. HealthCare Ethics Forum '94. Medical futility: A bedside perspective
27. Legal aspects of withholding and withdrawing life support from critically ill patients in the United States and providing palliative care to them
28. Seven legal barriers to end-of life care: Myths, realities, and grains of truth