Ethical issues in the documentary data analysis of internet posts and archives

Qualitative Health Research

Volumn 11, Issue 3, 2001, Pages 423-432

  Sixsmith, Judith ^a   Murray, Craig D ^b  

^a MANCHESTER METROPOLITAN UNIVERSITY   (United Kingdom)

^b LIVERPOOL HOPE UNIVERSITY   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; BIOMEDICAL AND BEHAVIORAL RESEARCH; COMPUTER NETWORK; CONFIDENTIALITY; ETHICS; HEALTH SERVICES RESEARCH; INTERNET; INTERPERSONAL COMMUNICATION; ORGANIZATION AND MANAGEMENT; STANDARD; UNITED STATES;

BIOMEDICAL AND BEHAVIORAL RESEARCH;

COMMUNICATION; COMPUTER COMMUNICATION NETWORKS; CONFIDENTIALITY; ETHICS; HEALTH SERVICES RESEARCH; INTERNET; OWNERSHIP; UNITED STATES;

EID: 0035347334     PISSN: 10497323     EISSN: None     Source Type: Journal    
DOI: 10.1177/104973201129119109     Document Type: Article

References (49)

1. Akeroyd, A. V. (1991). Personal information and qualitative research data: Some practical and ethical problems arising from data protection legislation. In N. G. Fielding & R. M. Lee (Eds.), Using computers in qualitative research (pp. 89-106). London: Sage Ltd.
2. Allen, C. (1996). What's wrong with the "golden rule"? Conundrums of conducting ethical research in cyberspace. The Information Society, 12, 175-187.
3. American Psychological Association. (1992). Ethical principles of psychologists and code of conduct. Retrieved October 20, 1997, from the World Wide Web. Available: http://www.apa.org/ethics/ code.html
4. Banister, P., Burman, E., Parker, I., Taylor, M., & Tindall, C. (1994). Qualitative methods in psychology: A research guide. Philadelphia, PA: Open University Press.
5. Boehlefeld, S. P. (1996). Doing the right thing: Ethical cyberspace research. The Information Society, 12(2), 141-152.
6. Borland, K. (1991). "That's not what I said": Interpretive conflict in oral narrative research. In S. Berger Gluck & D. Patal (Eds.), Women's words: The feminist practice of oral history (pp. 63-75). Boston: Routledge Kegan Paul.
7. British Psychological Society. (1993). Ethical principles. The Psychologist, 6, 33-35.
8. British Psychological Society. (1995). Code of conduct. The Psychologist, 8(10), 452-453.
9. British Sociological Association. (1993). BSA statement of ethical practice. Retrieved February 21, 2000, from the World Wide Web. Available: http://www.britsoc.org.uk/ethgu2.htm
10. Burton, P. F. (1994). Electronic mail as an academic discussion forum. Journal of Documentation, 50, 99-110.
11. Cavazos, E. A. (1994). Intellectual property. In E. Cavazos & G. Morin (Eds.), Cyberspace and the law: Your rights and duties in the on-line world (pp. 44-66). Cambridge, MA: MIT Press.
12. Davis, D. (1991, July-August). Rich cases: The ethics of thick description. Hastings Centre Report, 12-17.
13. Egdorf, K., & Rahoi, R. L. (1994, November 19). Finding a place where "we all want to here it": Email as a source of social support. Paper presented at the annual convention of the Speech Communication Association, New Orleans, Louisiana.
14. Finn, J., & Lavitt, M. (1994). Computer based self help groups for sexual abuse survivors. Social Work With Groups, 17, 21-46.
15. Fleitas, J. (1998). Spinning tales from the world wide web: Qualitative research in an electronic environment. Qualitative Health Research, 8, 283-292.
16. Foster, G. (1994). Fishing with the net for research data. British Journal of Educational Technology, 25(2), 91-97.
17. Carton, L. (1997). Studying online social networks. Journal of Computer-Mediated Communication, 3(1) [on-line serial]. Available: http://www.ascusc.org.jcmc/vol3/issuel/garton.html
18. Gilbert, P. (1997). On space, sex and stalkers. Women and Performance, 17. Retrieved February 11, 1998, from the World Wide Web. Available: http://www.echonyc.com/∼women/Issue17/ art-gilbert.html
19. Gurak, L. J. (1996). The multifaceted and novel nature of using cyber-texts as research data. In T. M. Harrison & T. Stephen (Eds.), Computer networking and scholarly communication in the twenty-first-century (pp. 151-165). New York: State University of New York Press.
20. Her Majesty's Stationary Office. (1984). Data Protection Act. Retrieved October 20, 1997, from the World Wide Web. Available: http://www.legislation.hmso.gov.uk/acts/acts1984/1984035.htm
21. Herring, S. (1996). Posting in a different voice: Gender and ethics in computer-mediated communication. In C. Ess (Ed.), Philosophical perspectives on computer-mediated communication (pp. 115-145). Albany: State University of New York Press.
22. Homan, R. (1991). The ethics of social research. White Plains, NY: Longman.
23. Howard, T. (1993). The property issue in email research. The Bulletin of the Association for Business Communication, LVI(2), 40-41.
24. Josselson, R. (Ed.). (1996). Ethics and process in the narrative study of lives. London: Sage Ltd.
25. Kiesler, S., Siegel, J., & McGuire, T.W. (1984). Social psychological aspects of computer-mediated communication. American Psychologist, 39, 1123-1134.
26. King, S. A. (1994). Analysis of electronic support groups for recovering addicts. Interpersonal Computing and Technology: An Electronic Journal for the 21st Century, 2(3), 47-56 [On-line serial]. Available: http://www.notredame.ac.jp/ftplib/Articles/CMC/King94.txt
27. King, S. A. (1996). Researching Internet communities: Proposed ethical guidelines for the reporting of results. The Information Society, 12, 119-127.
28. Langford, D. (1996). Ethics and the internet: Appropriate behaviour in electronic communication. Ethics and Behaviour, 6(2), 91-106.
29. Lauer, T. W. (1996). Computer ethics [Book review]. Ethics and Behaviour, 6(2), 165-167.
30. Mailbase. (1998). Copyright of email messages. Retrieved January 1,1999, from the World Wide Web. Available: http://www.mailbase.ac.uk/lists/owners-unique/1998-11/0004.html
31. Michalak, E. E. (1998). The use of the Internet as a research tool: The nature and characteristics of seasonal affective disorder (SAD) amongst a population of users. Interacting With Computers, 9, 349-365.
32. Moore, M., Sixsmith, J., & Knowles, K. (1996). Children's reflections on family life. London: Palmer.
33. Murray, P. J. (1995). Research data from cyberspace: Interviewing nurses by email. Health Informatics, 1, 73-76.
34. Murray, P. J. (1997). Using virtual focus groups in qualitative research. Qualitative Health Research, 27, 542-549.
35. Murray, C. D., & Sixsmith, J. (1996, December 18). Technologising the body: The meaning(s) of prosthesis use by amputees. Paper presented at the British Psychological Society London Conference, England.
36. Murray, C. D., & Sixsmith, J. (1998). Email: A qualitative research medium for interviewing? International Journal of Social Research Methodology: Theory and Practice, 1(2), 103-121.
37. Nochi, M. (1998). Struggling with the labeled self: People with traumatic brain injuries in social settings. Qualitative Health Research, 8, 665-681.
38. Oral History Association. (1996). Oral history evaluation guidelines. Pamphlet number retrieved May 16, 1997, from the World Wide Web. Available: http//:www.baylor.edu/∼OHA/ EvaluationGuidelines. html#Oral History Evaluation Guidelines
39. Potter, J., & Wetherell, M. (1995). Discourse analysis. In J. A. Smith, R. Harre, & L. Van Langenhove (Eds.), Rethinking methods in psychology (pp. 80-92). London: Sage Ltd.
40. Reid, E. (1991). Electropolis: Communication and community in Internet relay chat. Retrieved September 30, 1997, from the World Wide Web, Available: http://www.crl.com/∼emrc/electropolis.txt
41. Reid, E. (1996). Informed consent in the study of on-line communities: A reflection of the effects of computer-medialed social research. The Information Society, 12, 169-174.
42. Rheingold, H. (1993). The virtual community: Homesteading on the electronic frontier. Reading, MA: Addison-Wesley.
43. Ribbens, J. (1989). Interviewing: An unnatural situation? Women's Studies International Forum, 12, 579-592.
44. Short, J., Williams, E., & Christie, B. (1976). The social psychology of telecommunications. New York: John Wiley.
45. Stone, A. R. (1995). Sex and death among the disembodied: VR, cyberspace, and the nature of academic discourse. In S. L. Starr (Ed.), The cultures of computing (pp. 243-255). Oxford, UK: Basil Blackwell.
46. Sudweeks, F., & Rafaeli, S. (1996). How do you get a hundred strangers to agree? Computer-mediated communication and collaboration. In T. M. Harrison & T. Stephen (Eds.), Computer networking and scholarly communication in the twenty-first-century (pp. 115-136). New York: State University of New York Press.
47. Waskul, D., & Douglass, M. (1996). Considering the electronic participant: Some polemical observations on the ethics of on-line research. The Information Society, 12(2), 129-139.
48. Winzelberg, A. (1997). The analysis of an electronic support group for individuals with eating disorders. Computers in Human Behaviour, 13, 393-407.
49. Yow, V. R. (1984). Recording oral history: A practical guide for social scientists. Thousand Oaks, CA: Sage.