Experiences of hospital care and treatment-seeking behavior for pain from sickle cell disease: Qualitative study

Western Journal of Medicine

Volumn 171, Issue 5-6, 1999, Pages 306-313

  Maxwell, Krista ^a   Streetly, Allison ^a   Bevan, David ^b  

^a KING'S COLLEGE LONDON   (United Kingdom)

^b ST GEORGE S HOSPITAL   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 0008206118     PISSN: 00930415     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (27)

1. Brozovic M, Davies SC, Brownell AI. Acute admissions of patients with sickle cell disease who live in Britain. BMJ 1987;294:1206-1208.
2. Westerman MP, Bailey K, Freels S, Schlegel R, Williamson P. Assessment of painful episode frequency in sickle cell disease. Am J Hematol 1997;54:183-188.
3. Shapiro BS, Dinges DF, Orne EC, Ohene-Frempong K, Orne MT. Recording of crisis pain in sickle cell disease. In: Tyler D, Krane E, eds. Advances in pain research therapy. New York: Raven; 1990:313-321.
4. Streetly A, Dick M, Layton M. Sickle cell disease: the case for coordinated information. BMJ 1993;306:1491-1492.
5. Serjeant GR. Natural history and determinants of clinical severity of sickle cell disease. Curr Opin Hematol 1995;2:103-108.
6. Good MJD, Brodwin PE, Good BJ, Kleinman A. Pain as human experience: an introduction. In: Good MJD, Kleinman A, eds. Pain as human experience: an anthropological perspective. Berkeley: University of California Press; 1992:169-197.
7. Helman CG. Pain and culture: culture health and illness. 3rd ed. Oxford: Butterworth-Heinemann; 1994:171-193.
8. Pope C, Mays N. Reaching the parts other methods cannot reach: an introduction to qualitative methods in health and health services research. BMJ 1995;311:42-45.
9. Glaser B, Strauss A. The discovery of grounded theory. Chicago: Aldine; 1967.
10. Platt OS, Thorington BD, Brambilla DJ, et al. Pain in sickle cell disease: rates and risk factors. N Engl J Med 1991;325:11-16.
11. Alleyne J, Thomas VJ. The management of sickle cell crisis pain as experienced by patients and their carers. J Adv Nurs 1994;19:725-732.
12. Murray N, May A. Painful crises in sickle cell disease: patients' perspectives. BMJ 1988;297:452-454.
13. Black J, Laws S. Living with sickle cell disease. London: Sickle Cell Society; 1986.
14. Shapiro BS, Benjamin LJ, Payne R, Heidrich G. Sickle cell-related pain: perceptions of medical practitioners. J Pain Symptom Manage 1997;14:168-174.
15. Waldrop RD, Mandry C. Health professional perceptions of opioid dependence among patients with pain. Am J Emerg Med 1995;13:529-531.
16. Ballas SK. Sickle cell pain. Seattle: International Association for the Study of Pain; 1998.
17. Olujohungbe A, Cinkotai KI, Yardumian A. Hydroxyurea therapy for sickle cell disease in Britain. BMJ 1998;316:1689.
18. Donovan J. We don't buy sickness, it just comes: health, illness and health care in the lives of black people in London. Aldershot (England): Gower, 1986.
19. UK Department of Health. Report of a working party of the Standing Medical Advisory Committee on sickle cell, thalassaemia and other haemoglobinopathies. London: HMSO; 1993.
20. Gignac MAM, Cott CA. Conceptual model of independence and dependence for adults with chronic physical illness and disability. Soc Sci Med 1998;47:739-775.
21. Streetly A, Maxwell K, Mejia A. Sickle cell disorders in London: a needs assessment of screening and care services. (Fair Shares for London Report.) London: United Medical and Dental Schools, Dept of Public Health Medicine; 1997.
22. Atkin K, Ahmad W, Anionwu E. Service support to families caring for a child with a sickle cell disorder or thalassaemia: the experience of health professionals, service managers and health commissioners. Health 1998;2:305-327.
23. Lorig K. Chronic disease self-management: a model for tertiary prevention. Am Behav Scientist 1996;39:676-683.
24. Konotey-Ahulu FID. Opiates for sickle-cell crisis [Letter]? Lancet 1998;351:1438.
25. Layton DM, Mufti GJ, Bevan DH, Gloth FM. Opiates for sickle-cell crisis [Letter]? Lancet 1998;351:1964-1965.
26. O'Neill B, Fallon M. Principles of palliative care and pain control. BMJ 1997;315:801-804.
27. Layzell S, McCarthy M. Community-based health services for people with HIV/AIDS: a review from a health service perspective. AIDS Care 1992;4:203-215.