Current medicolegal and confidentiality issues in large, multicenter research programs

American Journal of Epidemiology

Volumn 152, Issue 4, 2000, Pages 371-378

  Carney, Patricia A ^a,l   Geller, Berta M ^b   Moffett, Howard ^c   Ganger, Molly ^c   Sewell, Matson ^a   Barlow, William E ^d   Stalnaker, Nancy ^b   Taplin, Stephen H ^d   Sisk, Cynthia ^d   Ernster, Virginia L ^e   Wilkie, Heather A ^e   Yankaskas, Bonnie ^f   Poplack, Steven P ^a   Urban, Nicole ^g   West, Michele M ^h   Rosenberg, Robert D ⁱ   Michael, Sharon ^j   Mercurio, Thomas D ^b   Ballard Barbash, Rachel ^k  

^a DARTMOUTH MEDICAL SCHOOL   (United States)

^b UNIVERSITY OF VERMONT   (United States)

^c Orr and Reno   (United States)

^d CENTER FOR HEALTH STUDIES   (United States)

^e UNIVERSITY OF CALIFORNIA   (United States)

^f UNIVERSITY OF NORTH CAROLINA SCHOOL OF MEDICINE   (United States)

^g Fred Hutchinson Cancer Research Center   (United States)

^h UNIVERSITY OF IOWA   (United States)

ⁱ UNIVERSITY OF NEW MEXICO SCHOOL OF MEDICINE   (United States)

^j University of New Mexico ^*  (United States)

^k NATIONAL CANCER INSTITUTE   (United States)

^l NORRIS COTTON CANCER CENTER   (United States)

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Author keywords

Confidentiality; Legal; Liability; Privacy

Indexed keywords

ARTICLE; COMPUTER SECURITY; CONFIDENTIALITY; HEALTH CARE SYSTEM; HUMAN; INFORMATION SCIENCE; INTERNET; MEDICAL RESEARCH; MEDICOLEGAL ASPECT; PRACTICE GUIDELINE;

CONFIDENTIALITY; EPIDEMIOLOGIC STUDIES; HUMANS; INTERINSTITUTIONAL RELATIONS; INTERNET; MEDICAL RECORDS SYSTEMS, COMPUTERIZED; MULTICENTER STUDIES; POLICY MAKING; PUBLIC POLICY;

EID: 0034663788     PISSN: 00029262     EISSN: None     Source Type: Journal    
DOI: 10.1093/aje/152.4.371     Document Type: Article

References (22)

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2. A regional collaborative effort for CQI in cardiovascular disease. Northern New England Cardiovascular Study Group
3. A national breast cancer database
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6. Multipurpose Statewide Breast Cancer Surveillance System: The Vermont experience
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19. Health care information and the protection of personal privacy: Ethical and legal considerations