The public health information infrastructure: A national review of the law on health information privacy

JAMA

Volumn 275, Issue 24, 1996, Pages 1921-1927

  Gostin, Lawrence O ^a,b,f   Lazzarini, Zita ^c   Neslund, Verla S ^d   Osterholm, Michael T ^e  

^a Georgetown Johns Hopkins Prog L   (United States)

^b JOHNS HOPKINS UNIVERSITY   (United States)

^c HARVARD SCHOOL OF PUBLIC HEALTH   (United States)

^d U S DEPARTMENT OF HEALTH AND HUMAN SERVICES   (United States)

^e MINNESOTA DEPARTMENT OF HEALTH   (United States)

^f GEORGETOWN UNIVERSITY LAW CENTER   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

COMMUNICABLE DISEASE; HUMAN RIGHTS; INFORMED CONSENT; LAW; MEDICAL INFORMATION; PRIORITY JOURNAL; PRIVACY; PUBLIC HEALTH SERVICE; PUERTO RICO; PUNISHMENT; REVIEW; SEXUALLY TRANSMITTED DISEASE; STATISTICAL ANALYSIS; UNITED STATES;

EID: 0029947075     PISSN: 00987484     EISSN: None     Source Type: Journal    
DOI: 10.1001/jama.275.24.1921     Document Type: Review

References (47)

1. Institute of Medicine, Committee for the Study of the Future of Public Health. The Future of Public Health. Washington, DC: Institute of Medicine; 1988.
2. Thacker SB. Historical development. In: Teutsch SM, Churchill RE, eds. Principles and Practices of Public Health Surveillance. New York, NY: Oxford University Press; 1994:3-17.
3. Hinman AR. Surveillance of communicable diseases. Presented at the 100th annual meeting of the American Public Health Association; November 15, 1972; Atlantic City, NJ.
4. Vital Statistics of the United States, 1958. Washington, DC: Office of Vital Statistics; 1959.
5. Henderson DA. Surveillance of smallpox. Int J Epidemiol. 1976;5:19-28.
6. Fenner F, Henderson DA, Arita I. Smallpox and Its Eradication. Geneva, Switzerland: World Health Organization; 1988.
7. Centers for Disease Control. Kaposi's sarcoma and Pneumocystis pneumonia among homosexual men - New York City and California. MMWR Morb Mortal Wkly Rep. 1981;30:305-308.
8. Masur H, Michelis MA, Greene JB, et al. An outbreak of community-acquired Pneumocystis carinii pneumonia: initial manifestation of cellular immune dysfunction. N Engl J Med. 1981;305:1431-1438.
9. Francis DP, Curran JW, Essex M. Epidemic acquired immune deficiency syndrome: epidemiologic evidence for a transmissible agent. J Natl Cancer Inst. 1983;71:1-4.
10. Hjelle B, Jenison S, Mertz G, et al. Emergence of hanta-viral disease in the southwestern United States. West J Med. 1994;161:467-473.
11. McGinnis JM, Foege WH. Actual causes of death in the United States. JAMA. 1993;270:2207-2212.
12. Siegel PZ, Waller MN, Frazier EL, Mariolis P. Behavioral risk factor surveillance system: summary of data for 1991. MMWR Morb Mortal Wkly Rep. 1993;42: 23-30.
13. US Dept of Health and Human Services. Final Report of the Task Force on the Privacy of Private-Sector Health Records. Rockville, Md: Kunitz & Associates; 1995.
14. General Accounting Office. Automated Medical Records: Leadership Needed to Expedite Standards Development. Washington, DC: General Accounting Office; 1993. GAO/IMTEC93-17.
15. Institute of Medicine. Health Data in the Information Age: Use, Disclosure, and Privacy, Washington, DC: National Academy of Sciences; 1994.
16. Gostin LO, Turek-Brezina J, Powers M, et al. Privacy and security of personal information in a new health care system. JAMA. 1993;270:2487-2493.
17. General Accounting Office. Computers and Privacy: How Government Obtains, Verifies, Uses, and Protects Personal Data. Washington, DC: General Accounting Office; 1990. GAO/IMTEC-90-70BR.
18. Workgroup for Electronic Data Interchange. Obstacles to EDI in the Current Health Care Infrastructure. Washington, DC: US Dept of Health and Human Services; 1992.
19. Gostin LO. Health information privacy. Cornell Law Rev. 1995;80:101-184.
20. Lee PR. From the Assistant Secretary for Health, US Public Health Service. JAMA. 1994;272:1315.
21. National Center for Health Statistics. Public Use Data Tape: National Health Interview Survey, 1991. Washington, DC: US Dept of Health and Human Services; 1993.
22. Agency for Health Care Policy and Research. AHCPR Purpose and Programs. Washington, DC: US Dept of Health and Human Services; 1990.
23. Annas GJ, Glantz LH, Roche PA. The Genetic Privacy Act and Commentary. Boston, Mass: Boston University School of Public Health; 1995.
24. Reilly PR. DNA banking. Am J Hum Genet. 1994;55:32-33.
25. Gostin LO. Genetic privacy. J Law Med Ethics. 1995;23:320-330.
26. Centers for Disease Control and Prevention. National HIV Sero-surveillance Summary: Results Through 1992. Atlanta, Ga: US Dept of Health and Human Services; 1994;3.
27. Menck HR. A preliminary study of National Cancer Data Base representatives: National Cancer Data Base annual review of patient care, 1993. Cancer News. 1993; 47:1.
28. US Dept of Health and Human Services. The Childhood Immunization Initiative. Washington, DC: US Dept of Health and Human Services; 1994.
29. Gostin LO, Lazzarini Z. Childhood immunization registries: a national review of public health information systems and the protection of privacy. JAMA. 1995;274: 1793-1799.
30. Smith S. National Center for Health Statistics data line. Public Health Rep. 1993;108:408-409.
31. Baker EL, Friede A, Moulton AD, Ross DA. CDC's Information Network for Public Health Officials (INPHO): a framework for integrated public health information and practice. J Public Health Manage Pract. 1995;1:43-47.
32. Graitcer PL, Burton AH. The Epidemiologic Surveillance Project: a computer-based system for disease surveillance. Am J Prev Med. 1987;3:123-127.
33. Centers for Disease Control. National Electronic Telecommunications System for Surveillance - United States, 1990-91. MMWR Morb Mortal Wkly Rep. 1991;40: 502-503.
34. US Dept of Health and Human Services. National Health and Nutrition Examination Survey III. Washington, DC: US Dept of Health and Human Services; 1994.
35. Gostin LO. The resurgent tuberculosis epidemic in the era of AIDS: reflections on public health, law, and society. Maryland Law Rev. 1995;54:1-131.
36. Fox DM. From TB to AIDS: value conflicts in reporting disease. Hastings Cent Rep. 1986;16(suppl):11-16.
37. World Medical Association. Declaration of Geneva, 1948; amended 1968.
38. World Medical Association. International Code of Medical Ethics, 1949.
39. Beauchamp TL, Childress JF. Principles of Biomedical Ethics. 4th ed. New York, NY: Oxford University Press; 1994.
40. Bayer R. Private Acts, Social Consequences: AIDS and the Politics of Public Health. New Brunswick, NJ: Rutgers University Press; 1989.
41. Bayer R, Toomey KE. HIV prevention and the two faces of partner notification. Am J Public Health. 1992;82:1158-1164.
42. Walzer M. Spheres of Justice: A Defense of Pluralism and Equality. New York, NY: Basic Books; 1983.
43. Grad FP. Public Health Law Manual. 2nd ed. Washington, DC: American Public Health Association; 1990.
44. Centers for Disease Control and Prevention. Interstate measles transmission from a ski resort - Colorado, 1994. MMWR Morb Mortal Wkly Rep. 1994;43:627-629.
45. Minkoff H, Willoughby A. Pediatric HIV disease, zidovudine in pregnancy, and unblinding heelstick surveys: refraining the debate on prenatal HIV testing. JAMA. 1995;274:1165-1168.
46. US Dept of Health, Education, and Welfare Secretary's Advisory Committee on Automated Personal Data Systems. Records, Computers, and the Rights of Citizens. Washington, DC: US Dept of Health, Education, and Welfare; 1973.
47. Privacy Protection Study Commission. Personal Privacy in an Information Society. Washington, DC: Government Printing Office; 1977.