When all else is done: The challenge of improving antemortem care

Primary Care Companion to the Journal of Clinical Psychiatry

Volumn 1, Issue 5, 1999, Pages 146-153

  Clay Jackson, W ^a  

^a UNIVERSITY OF TENNESSEE HEALTH SCIENCE CENTER   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 0005425562     PISSN: 15235998     EISSN: None     Source Type: Journal    
DOI: 10.4088/pcc.v01n0503     Document Type: Article

References (52)

1. Humphrey D. Final Exit. Eugene, Ore: Hemlock Society; 1991
2. Death by Doctor [transcript]. "60 Minutes." CBS television. Nov 22, 1998
3. Osier W. Science and Immortality. New York, NY: Riverside; 1908
4. Kouwenhoven WB, Jude JR, Knickerbocker GG. Closed-chest cardiac massage. JAMA 1960;173:1064-1067
5. Deciding to Forego Life-Sustaining Treatment. Washington, DC: President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research; 1983:240-241
6. Shannon T. Dying in America: contexts and problems. Bioethics Forum 1997;13(4):43
7. Callahan D. Physician-assisted suicide: moral questions. In: Steinberg MD, Youngner SJ, eds. End-of-Life Decisions: A Psychosocial Perspective. Washington, DC: American Psychiatric Press; 1998:283-297
8. In the matter of Quinlan. 355A 2nd 647 [NJ 1976]. Cruzan v McCanse 760 SW 2nd 408 [MO bane 1988]. All 3 cases are discussed at length in Peter Filene's In the Arms of Others: A Cultural History of the Right-to-Die in America. Chicago, Ill: Ivan Dee; 1998. The Brophy ruling is quoted on p. 165. Lester Cruzan, Nancy's father, later hung himself, having publicly expressed doubt as to whether the right course had been taken in regard to Nancy's medical treatment.
9. Emmanuel L. Physician-assisted suicide: a different approach. Bioethics Forum 1997;13(2):13-16
10. Singer P, Martin D, Keiner M. Quality end-of-life care: patients' perspectives. JAMA 1999;281:163-168
11. SUPPORT principal investigators. A controlled trial to improve care for seriously ill hospitalized patients: the study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). JAMA 1995;274:1591-1598
12. Lynn J, Teno JM, Phillips RS, et al. Perceptions by family members of the dying experience of older and seriously ill patients. SUPPORT investigators. Ann Intern Med 1997;126:97-106
13. Covinsky K, Goldman L, Cook EF, et al. The impact of serious illness on patients' families. SUPPORT investigators. JAMA 1994;272:1839-1844
14. Paradis NA. Family consent to orders not to resuscitate [letter]. JAMA 1991;265:354-355
15. Sullivan M. Depression and the refusal of life-saving treatment. In: Steinberg MD, Youngner SJ, eds. End-of-Life Decisions: A Psychosocial Perspective. Washington, DC: American Psychiatric Press; 1998:66-67
16. Johnston SC, Pfeifer MP, McNutt R. The discussion about advance directives: patient and physician opinions regarding when and how it should be conducted. End of Life Study Group. Arch Intern Med 1995;155:1025-1030
17. Lane A, Dubler N. The health care agent: selected but neglected. Bioethics Forum 1997;13(2):17
18. Studer SM, Combs AH. Critical care: the ultimate consumer product. Hosp Physician 1999:21-28
19. Michel V. Reflections on cultural difference and advance directives. Bioethics Forum 1997;13(2):22-26
20. Schonwetter RS, Walker RM, Kramer DR, et al. Resuscitation decision making in the elderly: the value of outcome data. J Gen Intern Med 1993;8:295-300
21. Diem SJ, Lantos JD, Tulsky JA. Cardiopulmonary resuscitation on television: miracles and misinformation. N Engl J Med 1996;334:1578-1582
22. Stuart MR, Lieberman JA. The Fifteen Minute Hour: Applied Psychotherapy for the Primary Care Physician. 2nd ed. Westport, Conn: Praeger Publications; 1993
23. Morrison M. Obstacles to doctor-patient communication at the end of life. In: Steinberg MD, Youngner SJ, eds. End-of-Life Decisions: A Psychosocial Perspective. Washington, DC: American Psychiatric Press; 1998: 123-127
24. Morrison RS, Olson E, Mertz KR, et al. The inaccessibility of advance directives on transfer from ambulatory to acute care settings. JAMA 1995;274:478-182
25. Danis M, Southerland LI, Garrett JM, et al. A prospective study of advance directives for life-sustaining care. N Engl J Med 1991;324:882-888
26. Schneiderman LJ, Kronick R, Kaplan RM, et al. Effects of offering advance directives on medical treatments and costs. Ann Intern Med 1992;117:599-606
27. Teno JM, Lynn J, Phillips RS, et al. Do formal advance directives affect resuscitation decisions and the use of resources for seriously ill patients? J Clin Ethics 1994:23-30 28. O'Connell L. Changing the culture of dying. Health Progress 1996;77:16-20
28. McCormick R. A good death: oxymoron? Bioethics Forum 1997;13(1):6
29. Quill T, Brody H. Physician recommendations and patient autonomy: finding a balance between physician power and patient choice. Ann Intern Med 1996; 125:763-769
30. Rothchild E. Family dynamics in decisions to withhold or withdraw treatment. In: Steinberg M, Youngner S, eds. End-of-Life Decisions. Washington, DC: American Psychiatric Press; 1998:98
31. Hackler JC, Hiller FC. Family consent to orders not to resuscitate: reconsidering hospital policy. JAMA 1990;264:1281-1283
32. Blackball LJ. Must we always use CPR? N Engl J Med 1987;317:1281-1285
33. Tomlinson T, Brody H. Futility and the ethics of resuscitation. JAMA 1990;264:1276-1280
34. Youngner SJ. Futility in context. JAMA 1990;264:1295-1296
35. Medical futility in end-of-life care: report of the Council on Ethical and Judicial Affairs. JAMA 1999;281:937-941
36. Bayer R, Callahan D, Fletcher J, et al. The care of the terminally ill: morality and economics. N Engl J Med 1983;309:1490-1494
37. Thankfully this is not usually the case. One study confirmed that 90% of families of terminally ill patients in the ICU consented to treatment withdrawal; see Smedira NG, Evans BH, Grais LS, et al. Withholding and withdrawal of life support from the critically ill. N Engl J Med 1990;322:309-315
38. Potter R. Treatment redirection: moving from curative to palliative care. Bioethics Forum 1998;14(2):7
39. Angell M. The case of Helga Wanglie: a new kind of "right to die" case. N Engl J Med 1991:325:511-512
40. Gilgunn v Massachusetts General Hospital. No 92-4820 (Mass Sup Ct Civ Action Suffolk Co. 22 Apr 1995)
41. Kass L. Why doctors must not kill. Commonweal August 9, 1991
42. Gaylin W, Kass LR, Pellegrino ED, et al. Doctors must not kill. JAMA 1988;259:2139-2140
43. Quill T, Lo B, Brock D. Palliative options of last resort: a comparison of voluntarily stopping eating and drinking, terminal sedation, physician-assisted suicide, and voluntary active euthanasia. JAMA 1997;278:2099-2104
44. Emmanuel L. Facing requests for physician-assisted suicide: toward a practical and principled clinical skill set. JAMA 1998;280:643-647
45. Koller C. Health care priorities: four things to keep in mind. Commonweal April 23, 1993
46. Bartholeme W. Still here: above ground. Bioethics Forum 1997;13(1):33
47. Dame Cicely Saunders. Quoted by Bartholeme W. Still here: above ground. Bioethics Forum 1997;13(1):33
48. Filene P. In the Arms of Others: A Cultural History of the Right-to-Die in America. Chicago, Ill: Ivan Dee; 1998:215-216
49. An interview with Ira Byock. Bioethics Forum 1997;13(3):5-10
50. Sager MA, Easterling DV, Kindig DA, et al. Changes in location of death after passage of Medicare's prospective payment system: a national study. N Engl J Med 1989;320:433-439
51. Miller P. Struggle. Bioethics Forum 1997;13(1):41
52. Barnhardt's Concise Dictionary of Etymology. New York, NY: Harper; 1995