Bereavement outcomes for parents who lose a child to cancer: Are place of death and sex of parent associated with differences in psychological functioning?

Psycho-Oncology

Volumn 13, Issue 11, 2004, Pages 779-791

  Goodenough, Belinda ^a,b   Drew, Donna ^a   Higgins, Susan ^a   Trethewie, Susan ^a  

^a SYDNEY CHILDREN'S HOSPITAL   (Australia)

^b UNIVERSITY OF NEW SOUTH WALES   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ANXIETY; ARTICLE; AUSTRALIA; BEREAVEMENT; BRAIN TUMOR; CANCER CLASSIFICATION; CANCER MORTALITY; CHILD; CHILDHOOD CANCER; CONTROLLED STUDY; CORRELATION ANALYSIS; DEATH; DEPRESSION; EMOTIONAL STRESS; FEMALE; GRIEF; HUMAN; LEUKEMIA; MALE; MENTAL INSTABILITY; NEPHROBLASTOMA; NEUROBLASTOMA; OSTEOSARCOMA; PARENT; PSYCHOLOGIC ASSESSMENT; SEX DIFFERENCE; SEX RATIO; STATISTICAL ANALYSIS; STATISTICAL SIGNIFICANCE;

ADAPTATION, PSYCHOLOGICAL; ADULT; ANXIETY; ATTITUDE TO DEATH; BEREAVEMENT; CHILD; DEPRESSION; FEMALE; HUMANS; MALE; OUTCOME ASSESSMENT (HEALTH CARE); PARENTS; PSYCHOLOGY; QUESTIONNAIRES; SEX FACTORS;

EID: 9244240244     PISSN: 10579249     EISSN: None     Source Type: Journal    
DOI: 10.1002/pon.795     Document Type: Article

References (54)

1. Addington-Hall J, Karlsen, S. 2000. Do home deaths increase distress in bereavement? Palliative Med 14: 161-162.
2. Antony MM, Bieling PJ, Cox BJ, Enns MW, Swinson RP. 1998. Psychometric properties of the 42-item and 21-item versions of the Depression Anxiety Stress Scales (DASS) in clinical groups and a community sample. Psychol Assess 10: 176-181.
3. Birenbaum LK, Robinson MA. 1991. Family relationships in two types of terminal care. Soc Sci Med 31: 95-102.
4. Brown TA, Chorpita BF, Korotitsch W, Barlow DH. 1997. Psychometric properties of the Depression Anxiety Stress Scales (DASS) in clinical samples. Behav Res Ther 35: 79-89.
5. Byles J, Byrne C, Boyle M, Offord D. 1988. Ontario Child Health Study: Reliability and validity of the General Functioning subscale of the McMaster Family Assessment Device. Fam Proces 27 97-104.
6. Chambers EJ, Oakhill A. 1995. Models of care for children dying of malignant disease. Palliative Med 9: 181-185.
7. Collins JJ. 2000. Children and Dying. In Death and Dying in Australia, Kellehear A (ed.), Oxford University Press: Oxford, London.
8. Collins JJ, Stevens MM, Cousens P. 1998. Home care for the dying child. Aust Fam Physician 27: 610-614.
9. Cooley C, Adeodu S, Aldred H, Beesley S, Leung A, Thacker L. 2000. Paediatric palliative care: A lack of research-based evidence. Int J Palliative Nurs 6: 346-351.
10. Davies B, Eng B. 1998. Special issues in bereavement and staff support. In Oxford Textbook of Palliative Medicine, Doyle D, Hanks GWC, MacDonald N (eds), Chapter. Oxford Medical Publications, Oxford University Press: New York.
11. Dyrgroven A. 1990. Parental reactions to the loss of an infant child: A review. Scand J Psychol 31: 266-280.
12. Dyregrov K. 2004. Bereaved parents' experience of research participation. Soc Sci Med 58: 391-400.
13. Epstein NB, Baldwin LM, Bishop DS. 1993. The McMaster Family Assessment Device. J Marital Fam Ther 9: 171-180.
14. Goldman A. 1996. Home care of the dying child. J Palliative Care 12: 16-19.
15. Goodenough B, Foreman T, Suneson J, Cohn RJ. 2004. Family income change as a correlate for use of social work services: An Australian study in pediatric oncology. J Psychosoc Onc, in press.
16. Green HJ, Pakenham KI, Headley BC et al. 2002. Coping and health-related quality of life in men with prostate cancer randomly assigned to hormonal medication or close monitoring. Psycho-Oncology 11: 401-414.
17. Hazzard A, Weston J, Gutteres C. 1992. After a child's death: factors related to parental bereavement. Dev Behav Pediatr 13 24-30.
18. Holmes TH, Rahe RH. 1967. The Social Readjustment Rating Scale. J Psychosom Res 11: 213-218.
19. Hutton N. 2002. Pediatric palliative care: The time has come (editorial). Arch Ped Adol Med 56: 1.
20. Hynson JL, Sawyer SM. 2001. Paediatric palliative care: Distinctive needs and emerging issues. J Paediatr Child Health 37: 323-325.
21. Kauffman J. 2003. Updating the concept of anticipatory grief. Death Stud 27: 457-461.
22. Landis SH, Murray T, Bolden S, Wingo PA. 1998. Cancer statistics. CA Cancer J Clin 48: 6-29.
23. Lauer ME, Mulheran RK, Wallskog JM, Camita BM. 1983. A comparison study of parental adaptation following a child's death at home or in the hospital. Pediatrics 71: 107-112.
24. Li J, Precht DH, Mortensen PB, Olsen J. 2003. Mortality in parents after death of a child in Denmark: A nationwide follow-up study. Lancet 361: 363-367.
25. Lovibond SH, Lovibond PF. 1995. Manual for the Depression Anxiety Stress Scales (2nd edn). Sydney: Psychology Foundation Monograph.
26. Martinson I, Armstrong G, Geis D, Anglim MA, Gronseth E, MacInnis H, Kersey J, Nesbit M. 1978. Home care for children dying of cancer. Pediatrics 62: 106-113
27. Moriarty HJ, Carroll R, Cotroneo M. 1996. Differences in bereavement reactions within couples following death of a child. Res Nurs Health 19: 461-469.
28. Mulhern RK, Lauer ME, Hoffmann RG. 1983. Death of a child at home or in the hospital: Subsequent psychological adjustment of the family. Pediatrics 71: 743-747.
29. Neimeyer RA, Hogan NS. 2001. Quantitative or qualitative? Measurement issues in the study of grief. In Handbook of Bereavement Research. Coping, Care and Intervention, Stroebe M, Hansson R, Stroebe W, Schut H (eds). American Psychological Associated Press: Washington; 89-118.
30. Neter J, Wasserman W, Kutner MH. 1983. Applied Linear Regression Models. Richard D Irwin, Inc.: Homewodd, IL.
31. Ogrodniczuk JS, Piper WE, Joyce AS, Weideman R, McCallum M, Azim HF, Rosie JS. 2003. Differentiating symptoms of complicated grief and depression among psychiatric outpatients. Canad J Psychiat 48: 19-25.
32. Osterweis M, Solomon F, Green M. 1984. Bereavement: Reactions, Consequences, and Care. National Academy Press: Washington.
33. Papadatou D, Martinson IM, Chung PM. 2001. Caring for dying children: A comparative study of nurses' Experiences in Greece and Hong Kong. Cancer Nurs 24: 402-412.
34. Papadatou D, Yfantopoulos J, Kosmidis HV. 1996. Death of a child at home or in hospital: Experiences of Greek mothers. Death Stud 20: 215-235.
35. Parkes CM. 1998. Bereavement in adult life. British Medical Journal 316: 856-859.
36. Prigerson H, Bierhals A, Kasl S, Reynolds C, Shear M, Newsome J, Jacobs S. 1996. Complicated grief as a disorder distinct from bereavement-related depression as distinct disorder from bereavement-related depression and anxiety: A replication study. Am J Psychiat 153: 1484-1486.
37. Prigerson HG, Frank E, Kasl SV, Reynolds CF III, Anderson B, Zubenko GS, Houck PR, George CJ, Kupfer DJ. 1995b. Complicated grief and bereavement-related depression as distinct disorders: Preliminary empirical validation in elderly bereaved spouses. Am J Psychiat 152: 22-30.
38. Prigerson HG, Jacobs SC. 2001. Caring for bereaved patients: 'All the doctors suddenly go'. J Am Med Assoc 286: 1369-1376.
39. Prigerson HG, Maciejewski P, Newson J, Reynolds CF, Bierhals AJ, Miller M, Fasiczka A, Doman J, Houck PR. 1995a. Inventory of Complicated Grief. A scale to measure maladaptive symptoms of loss. Psychiat Res 59: 65-79.
40. Prigerson HG, Stanislav K, Maciejewski P, Silverman GK, Jacobs S. 2001. Inventory of Complicated Grief (ICG - Revised). Scale and Scoring Manual, unpublished. Available on request from Holly G Prigerson.
41. Rando TA. 1983. An investigation of grief and adaptation in parents whose children have died from cancer. J Ped Psychol 8 3-19.
42. Reay D, Bignold S, Ball SJ, Cribb A. 1998. 'He just had a different way of showing it': Gender dynamics in families coping with childhood cancer. J Gender Stud 7: 39-52.
43. Ringdal GI, Jordhøy MS, Ringdal K, Kaasa S. 2001. Factors affecting grief reactions in close family members to individuals who have died of cancer. J Pain Symptom Manage 22: 1016-1026.
44. Sirkiä K, Alhgren B, Hovi L, Saarinen-Pihkala. 2000. Weekend courses for families who have lost a child with cancer. Med Pediat Oncol 34: 352-355.
45. Smith MA, Gloekler Ries LA. 2002. Childhood cancer: Incidence, survival and mortality. In Principles and Practice of Pediatric Oncology (4th edn), Pizzo PA, Poplack DG (eds). Lippicott Williams and Wilkins: Battimore, MD; 1-12.
46. Steele LL. 1990. The death surround: Factors influencing the grief experience of survivors. Oncol Nurs Forum 17: 235-241.
47. Stroebe M, van Son M, Stroebe W, Kleber R, Schut H, van den Bout J. 2000. On the classification and diagnosis of pathological grief. Clin Psychol Rev 20: 57-75.
48. Swarte NB, van der Lee ML, van der Bom JG, van den Bout J, Heintz APM. 2003. Effects of euthanasia on the bereaved family and friends: A cross sectional study. Br Med J 327: 189-192.
49. Tutty LM. 1995. Theoretical and practical issues in selecting a measure of family functioning. Res Soc Work Pract 5: 80-106.
50. Vickers JL, Carlisle C. 2000. Choices and control: Parental experiences in pediatric terminal home care. J Pediatr Oncol Nurs 17: 12-21.
51. Wilson, DC. 1988. The ultimate loss: The dying child. Loss, Grief and Care 2: 125-130.
52. Wolfe J, Grier HE. 2002. Care of the dying child. In Principles and Practice of Pediatric Oncology (4th edn), Pizzo PA, Poplack DG (eds). Lippicott Williams & Wilkins: Baltimore, MD; 1476-1493.
53. Wolfe J, Grier HE, Klar N, Levin SB, Ellenbogen JM, Slaem-Schatz S, Emanuel EJ, Weeks JC. 2000. Symptoms and suffering at the end of life in children with cancer. N Engl J Med 342: 326-333.
54. Zebrack BJ, Zeltzer LK, Whitton J, Mertens AC, Odom L, Berkow R, Robson LL. 2002. Psychological outcomes in long-term survivors of childhood leukemia, Hodgkin's disease, and non-Hodgkin's lymphoma: A report from the Childhood Cancer Survivor Study. Pediatrics 110 42-51.