Exploring the service needs and experiences of persons with TBI and their families: The South Carolina experience

Brain Injury

Volumn 18, Issue 12, 2004, Pages 1191-1208

  Leith, Katherine H ^a,c   Phillips, Lyn ^a   Sample, Pat L ^b  

^a UNIVERSITY OF SOUTH CAROLINA   (United States)

^b Department of Environmental and Radiological Health Sciences   (United States)

^c LMSW   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; AWARENESS; BRAIN INJURY; CLINICAL ARTICLE; CONTROLLED STUDY; EXPERIENCE; FAMILY; FEMALE; HEALTH CARE DELIVERY; HEALTH SERVICE; HUMAN; MALE; MEDICAL INFORMATION; PATIENT; PATIENT EDUCATION; QUALITATIVE ANALYSIS; QUESTIONNAIRE; SAMPLE SIZE; SOCIAL ENVIRONMENT; UNITED STATES;

EID: 8644242439     PISSN: 02699052     EISSN: None     Source Type: Journal    
DOI: 10.1080/02699050410001719943     Document Type: Article

References (40)

1. NIH Consensus Development Panel On Rehabilitation Of Persons With Traumatic Brain Injury: Rehabilitation of persons with traumatic brain injury. Journal of the American Medical Association, 282 974-983, 1999.
2. Brain Injury Association of America: What is brain injury? Available online at: http://www.biausa.org/Pages?CDC%20report.html, visited 11 November 2002.
3. Nochi, M.: 'Loss of self' in the narratives of people with traumatic brain injuries: a qualitative analysis. Social Science and Medicine, 46: 869-878, 1998.
4. Abreu, B. C., Zhang, L., Seales, G. et al.: Interdisciplinary meetings: investigating the collaboration between persons with brain injury and treatment teams. Brain Injury, 16 691-704, 2002.
5. American Speech-Language-Hearing Association: Guidelines for the structure and function of an interdisciplinary team for persons with brain injury. ASHA, 37: 23-26, 1995.
6. Bullock, R., Chesnut, R. M., Clifton, G. et al.: Guidelines for the management of severe head injury. European Journal of Emergency Medicine, 3: 109-127, 1996.
7. Finfer, S. and Cohen, J.: Severe traumatic brain injury. Resuscitation, 48: 77-90, 2001.
8. Sample, P. L. and Darragh, A. R.: Perceptions of care access: the experience of rural and urban women following brain injury. Brain Injury, 12: 855-874, 1998.
9. Foster, M. and Tilse, C.: Referral to rehabilitation following traumatic brain injury: a model for understanding inequities in access. Social Science and Medicine, 56: 2201-2210, 2003.
10. Corrigan, J. D., Whiteneck, G. and Mellick, D.: Perceived needs following traumatic brain injury. Journal of Head Trauma Rehabilitation, in press.
11. Selassie, A. W., Pickelsimer, E., Gravelle, W. et al.: South Carolina Traumatic Brain Injury Follow-Up Registry and Surveillance System Data Codebook, Year I (Charleston, SC: Medical University of South Carolina), 2003.
12. Haas, J. F.: Admission to rehabilitation centers: selection of patients. Archives of Physical Medicine and Rehabilitation, 69: 329-332, 1988.
13. Swift, T. L. and Wilson S. L.: Misconceptions about brain injury among the general public and non-expert health professionals: an exploratory study. Brain Injury, 15: 149-165, 2001.
14. Darragh, A. R., Sample, P. L. and Krieger, S. R.: 'Tears in my eyes 'cause somebody finally understood': client perceptions of practitioners following brain injury. American Journal of Occupational Therapy, 55: 191-199, 2001.
15. McMordie, W. R., Rogers, K. F. and Barker, S. L.: Consumer satisfaction with services provided to head-injured patients and their families. Brain Injury, 5: 43-51, 1991.
16. Morse, J. and Field, P. A.: Qualitative research methods for health professionals, 2nd edn (Thousand Oaks, CA: Sage Publications), 1995.
17. Morgan, D. L.: Focus group kit 1: The focus group guidebook (Thousand Oaks, CA: Sage Publications), 1998.
18. Smith, B. and Westt, P.: Focus groups: giving voice to the community. Perspectives, 22: 2-7, 1998.
19. McDaniel, R. W. and Bach, C. A.: Focus groups: a data-gathering strategy for nursing research. Nursing Science Quarterly, 7: 4-5, 1994.
20. Lincoln, Y. S. and Guba, E. G.: Naturalistic inquiry (Beverly Hills, CA: Sage Publications), 1985.
21. Creswell, J. W.: Qualitative inquiry and research design: Choosing among five traditions (Thousand Oaks, CA: Sage), 1998.
22. Silverman, D.: Interpreting qualitative data: Methods for analyzing talk, text and interaction, 2nd edn (Thousand Oaks, CA: Sage Publications), 2001.
23. Sandelowski, M.: Time and qualitative research. Research in Nursing and Health, 22: 79-87, 1999.
24. Miles, M. B. and Huberman, A. M.: Qualitative data analysis: An expanded source book, 2nd edn (Thousand Oaks, CA: Sage Publications), 1994.
25. Patton, M. Q.: Qualitative research and evaluation methods 3rd edn (Thousand Oaks, CA: Sage Publications), 2001.
26. Tashakkori, A. and Teddlie, C.: Mixed methodology: Combining qualitative and quantitative approaches (Thousand Oaks, CA: Sage Publications), 1998.
27. Sandelowski, M.: Sample size in qualitative research. Research in Nursing and Health, 18: 179-183, 1995.
28. Forbes, S. and Hoffart, N.: Elders' decision-making regarding the use of long-term care services: a precarious balance. Qualitative Health Research, 8: 736-750, 1998.
29. McCullough, L. B., Wilson, N. L., Teasdale, T. A. et al. Mapping personal, familial, and professional values in long-term care decision. The Gerontologist, 33: 324-332, 1993.
30. Kayser-Jones, J.: Decision making in the treatment of acute illness in nursing homes - framing the decision problem, treatment plan, and outcome. Medical Anthropology Quarterly, 9: 236-256, 1995.
31. Patton, M. Q.: Qualitative evaluation and research methods 2nd edn (Newbury Park, CA: Sage Publications), 1990.
32. Hooper, S. R. and Callahan, B.: Traumatic brain injury: state of the state. North Carolina Medical Journal, 62N: 341-344, 2001.
33. Guilmette, T. J. and Paglli,, M. F.: The public's misconceptions about traumatic brain injury: a follow-up survey. Archives of Clinical Neuropsychology, in press, 2003.
34. Bryant, B.: Brain injury: from the survivors' perspective. Healthcare Review (Northeast Networks), 3: 5, 2002.
35. Rauch, R. J. and Ferry, S. M.: Social networks as support interventions following traumatic brain injury. Neurorehabilitation 16: 11-16, 2001.
36. Dean, S., Colantonio, A., Ratcliff, G. et al.: Clients' perspectives on problems many years after traumatic brain injury. Psychological Reports, 86: 653-658, 2000.
37. Coneely, A. L.: Social integration following traumatic brain injury and rehabilitation. British Journal of Occupational Therapy, 65: 356-362, 2002.
38. Nochi, M.: Reconstructing self-narratives in coping with traumatic brain injury. Social Science & Medicine, 51: 1795-1804, 2000.
39. Sample, P. L., Johns, N., Gabella, B. et al.: 'They launched me like a ship without a sail'. The feasibility of using TBI surveillance systems to link individuals with TBI to services. Unpublished manuscript.
40. Fyfee, C. and McCubbery, J.: 'If only we had somewhere to turn ...' The service needs of people with acquired brain injury in a rural community. Australian Journal of Rural Health, 4: 232-236, 1996.