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Volumn 8, Issue , 2011, Pages 213-230

Anonymity and Privacy in Biobanking

Author keywords

Data Protection; Gene Donor; Genetic Sample; Identifiable Person; Personal Data

Indexed keywords


EID: 85098058354     PISSN: 18750044     EISSN: 18750036     Source Type: Book Series    
DOI: 10.1007/978-94-007-1673-5_14     Document Type: Chapter
Times cited : (4)

References (18)
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    • Article 29 Data Protection Working Party. 2007b. Opinion 4/2007 on the Concept of Personal Data of 20 June 2007, 01248/07/EN WP 136
    • Article 29 Data Protection Working Party. 2007b. Opinion 4/2007 on the Concept of Personal Data of 20 June 2007, 01248/07/EN WP 136.
  • 4
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    • Informed Consent in Genetic Research
    • edited by L. Doyal and J. S. Tobias, London: BMJ Books
    • Chadwick, R. 2001. “Informed Consent in Genetic Research.” In Informed Consent in Medical Research, edited by L. Doyal and J. S. Tobias, 203–10. London: BMJ Books.
    • (2001) Informed Consent in Medical Research , pp. 203-210
    • Chadwick, R.1
  • 5
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    • Privacy Protection for Clinical and Genomic Data: The Use of Privacy-Enhancing Techniques in Medicine
    • March
    • Claerhout, B., and G. J. E. DeMoor. March 2005. “Privacy Protection for Clinical and Genomic Data: The Use of Privacy-Enhancing Techniques in Medicine.” International Journal of Medical Informatics 74 (2): 257–65.
    • (2005) International Journal of Medical Informatics , vol.74 , Issue.2 , pp. 257-265
    • Claerhout, B.1    Demoor, G.J.E.2
  • 6
    • 33745596413 scopus 로고    scopus 로고
    • Consent and Anonymization in Research Involving Biobanks: Differing Terms and Norms Present Serious Barriers to an International Framework
    • Elger, B. S., and A. L. Caplan. 2006. “Consent and Anonymization in Research Involving Biobanks: Differing Terms and Norms Present Serious Barriers to an International Framework.” European Molecular Biology Organization Reports 7 (7): 661–66.
    • (2006) European Molecular Biology Organization Reports , vol.7 , Issue.7 , pp. 661-666
    • Elger, B.S.1    Caplan, A.L.2
  • 7
    • 84929755774 scopus 로고    scopus 로고
    • Humanity Versus Utility in the Ethics of Research on Human Genetic Material
    • Ellis, I., and G. Mannion. 2001. “Humanity Versus Utility in the Ethics of Research on Human Genetic Material.” Genetics Law Monitor 1 (5): 1.
    • (2001) Genetics Law Monitor , vol.1 , Issue.5 , pp. 1
    • Ellis, I.1    Mannion, G.2
  • 8
    • 85098072427 scopus 로고    scopus 로고
    • Human Genes Research Act (passed by the Riigikogu). December 13, 2000. (as RT I 2000, 104, 685), entered into force on January 8, 2001 (RT is Riigi Teataja or State Gazette). In the original language: Inimgeeniuuringute seadus, official English translation is available at,. Accessed March 11, 2011
    • Human Genes Research Act (passed by the Riigikogu). December 13, 2000. (as RT I 2000, 104, 685), entered into force on January 8, 2001 (RT is Riigi Teataja or State Gazette). In the original language: Inimgeeniuuringute seadus, official English translation is available at http://www. legaltext.ee/text/en/X50010.htm. Accessed March 11, 2011.
  • 10
    • 85098091792 scopus 로고    scopus 로고
    • Legal Guidance. London: Office of the Information Commissioner
    • Data Protection Act of 1998. 2002. Legal Guidance. London: Office of the Information Commissioner.
    • (2002) Data Protection Act of 1998
  • 14
    • 85098075677 scopus 로고    scopus 로고
    • Positive Discrimination and Data Protection: A Typology of Solutions and the Use of Modern Information Technologies
    • edited by M. D. Szabó, Budapest: Eötvös Károly Policy Institute. Accessed March 11, 2011
    • Székely, I. 2009. “Positive Discrimination and Data Protection: A Typology of Solutions and the Use of Modern Information Technologies.” In Privacy Protection and Minority Rights, edited by M. D. Szabó, 27–62. Budapest: Eötvös Károly Policy Institute. Accessed March 11, 2011. http://www.ekint.org/ekint_files/File/kiadvanyok/privacy_minority.pdf.
    • (2009) Privacy Protection and Minority Rights , pp. 27-62
    • Székely, I.1
  • 15
    • 0242389207 scopus 로고    scopus 로고
    • Biobanks: Investing in Regulation
    • edited by I. Ziemele, vol., Leiden: Brill/Martinus Nijhoff Publishers
    • Trouet, C., and D. Sprumont. 2002. “Biobanks: Investing in Regulation.” In Baltic Yearbook of International Law, edited by I. Ziemele, 3–19, vol. 2. Leiden: Brill/Martinus Nijhoff Publishers.
    • (2002) Baltic Yearbook of International Law , vol.2 , pp. 3-19
    • Trouet, C.1    Sprumont, D.2
  • 16
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    • UNESCO International Declaration on Human Genetic Data, 16 October 2003
    • UNESCO International Declaration on Human Genetic Data, 16 October 2003.


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.