Actively involving marginalized and vulnerable people in research

Involving Service Users in Health and Social Care Research

Volumn , Issue , 2013, Pages 18-29

  Steel, Roger ^a  

^a NHS Research   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 85085824716     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.4324/9780203865651-9     Document Type: Chapter

References (23)

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2. Baulcombe, S., Hostick, T., New, T. and Pugh, H. (1998) Asking the Experts: A Guide to Involving People in Shaping Health and Social Care Services, Community Care Needs Assessment Project (CCNAP) (available from http://www.ccnap.org.uk) (accessed 7 March 2005).
3. Department of Health (2001) Research Governance Framework for Health and Social Care, London: DoH.
4. Hart, R. (1992) Children’s Participation: From Tokenism to Citizenship, Innocenti Essays no. 4, Florence, Italy: UNICEF.
5. Redfern, M. (2001) The Report of the Royal Liverpool Children’s Inquiry, London: The Stationery Office.
6. Rose, D. (2001) User’s Voices, London: Sainsbury Centre for Mental Health.
7. Scott, J. (2003) A Fair Day’s Pay, London: Mental Health Foundation.
8. Steel, R. (2003) A Guide to Paying Members of the Public who are Actively Involved in Research, 2nd edn, Eastleigh, Hampshire: INVOLVE.
9. Woodward, N. and Matthews, Z. (2000) ‘Users as researchers: issues arising from a health service research project’, in Y. Carter, S. Shaw and C. Thomas (eds) Patient Participation and Ethical Considerations: Master Classes in Primary Care Research no. 5, London: Royal College of General Practitioners.
10. Young Disabled People’s Group (1996) Resource Sheet 1, Manchester: Greater Manchester Coalition of Disabled People.
11. Barnes, C., Mercer, G. and Morgan, H. (1997) Doing Disability Research, Leeds: Disability Press (currently out of print but available http://www.leeds.ac.uk/disability-studies/archiveuk/) (accessed 7 March 2005).
12. Barnes, M. (1995) ‘Research partnerships: working with groups’, in G. Wilson (ed.) Community Care: Asking the Users, London: Chapman and Hall.
13. Baxter, L., Thorne, L. and Mitchell, A. (2001) Small Voices, Big Noises: Lay Involvement in Health Research-Lessons from Other Fields, Report by Folk.Us for Consumers in NHS Research, Exeter, Devon: Washington Singer Press.
14. Beresford, P. and Croft, S. (1993) Citizen Involvement: A Practical Guide for Change, London: Macmillan.
15. Butt, J., Box, L. and Lynn-Cook, S. (1999) Respect: Learning Materials for Social Care Staff Working with Black and Minority Ethnic Older People, London: Race Equality Unit, Home Office.
16. Campbell, J. and Oliver, M. (1996) Disability Politics: Understanding our Past, Changing our Future, London: Macmillan.
17. Carter, T. and Beresford, P. (2000) Age and Change: Models of Involvement for Older People, York: Joseph Rowntree Foundation.
18. Carter, Y., Shaw, S. and Thomas, C. (eds) (2001) Patient Participation and Ethical Considerations: Master Classes in Primary Care Research no. 5, London: Royal College of General Practitioners.
19. Kirby, P. (1999) Involving Young Researchers: How to Enable Young People to Design and Conduct Research, York: Joseph Rowntree Foundation.
20. Morris, J. (1998) Don’t Leave Us Out: Involving Disabled Children and Young People with Communication Impairments, York: Joseph Rowntree Foundation.
21. Truman, C., Mertens, D. and Humphries, B. (eds) Research and Inequality, London: UCL Press.
22. Ward, L. (1997) Seen and Heard: Involving Disabled Children and Young People in Research Projects, York: Joseph Rowntree Foundation.
23. Wilkinson, H. (ed.) (2002) The Perspectives of People with Dementia, London: Jessica Kingsley.