Expanding access to home-based palliative care: A randomized controlled trial protocol

Journal of Palliative Medicine

Volumn 22, Issue S1, 2019, Pages S58-S65

  Enguidanos, Susan ^a   Rahman, Anna ^a   Fields, Torrie ^b   Mack, Wendy ^c   Brumley, Richard ^d   Rabow, Michael ^e   Mert, Melissa ^a,c  

^a UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

^b Blue Shield of California   (United States)

^c UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

^d Reliance Hospital and Palliative Care   (United States)

^e UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

home based palliative care; primary care physician; primary palliative care; randomized controlled trial

Indexed keywords

ACCOUNTABLE CARE ORGANIZATION; ADULT; ADVANCE CARE PLANNING; ADVANCED CANCER; ANXIETY DISORDER; ARTICLE; CAREGIVER BURDEN; CAREGIVER SUPPORT; CHRONIC OBSTRUCTIVE LUNG DISEASE; DEPRESSION; EMERGENCY CARE; HEALTH CARE ACCESS; HEALTH CARE UTILIZATION; HEART FAILURE; HOME CARE; HOME VISIT; HOSPITALIZATION; HUMAN; INTERPERSONAL COMMUNICATION; MEDICARE; PAIN; PALLIATIVE THERAPY; PSYCHOSOCIAL CARE; RANDOMIZED CONTROLLED TRIAL (TOPIC); SPIRITUAL CARE; SURVIVAL TIME; AGED; CALIFORNIA; CONTROLLED STUDY; ECONOMICS; FEMALE; MALE; MIDDLE AGED; NEOPLASM; NURSING; PRIMARY HEALTH CARE; RANDOMIZED CONTROLLED TRIAL; VERY ELDERLY;

ADULT; AGED; AGED, 80 AND OVER; CALIFORNIA; FEMALE; HEART FAILURE; HOME CARE SERVICES; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; OUTCOME ASSESSMENT, HEALTH CARE; PALLIATIVE CARE; PRIMARY HEALTH CARE; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE;

EID: 85071763524     PISSN: 10966218     EISSN: 15577740     Source Type: Journal    
DOI: 10.1089/jpm.2019.0147     Document Type: Article

References (37)

1. Gomes B, Calanzani N, Curiale V, et al.: Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers. Cochrane Database Syst Rev 2013:CD007760.
2. Cunningham C, Travers K, Chapman R, et al.: Palliative care in the outpatient setting: A comparative effectiveness report. 2016. https://icer-review.org/wp-content/uploads/ 2016/04/NECEPAC-Palliative-Care-Final-Report-060616.pdf (last accessed June 11, 2019).
3. Brumley R, Enguidanos S, Jamison P, et al.: Increased satisfaction with care and lower costs: Results of a randomized trial of in-home palliative care. J Am Geriatr Soc 2007;55:993-1000.
4. Teno JM, Clarridge BR, Casey V, et al.: Family perspectives on end-of-life care at the last place of care. JAMA 2004;291:88-93.
5. Medicare.Gov: Medicare Advantage Plans. https://www.medicare.gov/sign-up-change-plans/types-of-medicare-healthplans/ medicare-advantage-plans (Last accessed April 26, 2019).
6. Galewitz P. Medicare Advantage Riding High as New Insurers Flock to Sell to Seniors. Kaiser Health News. https:// khn.org/news/medicare-advantage-riding-high-as-newinsurers-flock-to-sell-to-seniors/. 2018. (Last accessed April 26, 2019).
7. Burke V: How Is Medicare Plan Funded? https://medicare.com/medicare-advantage/how-is-medicare-advantage-planfunded/. 2018. (Last accessed April 26, 2019).
8. Medicare Shared Savings Program: Centers for Medicare and Medicaid Services. https://www.cms.gov/Medicare/ Medicare-Fee-for-Service-Payment/sharedsavingsprogram/ about.html (Last accessed April 26, 2019).
9. Muhlestein D, Saunders R, Richards R, McClellan M: Recent progress in the value journey: Growth of ACOs and value-based payment models in 2018. Health Affairs 2018; DOI: 10.1377/hblog20180810.481968.
10. Gold J: Accountable Care Organizations, Explained. Kaiser Health News. https://khn.org/news/aco-accountable-careorganization-faq/view/republish (last accessed June 11, 2019). 2015.
11. The Dartmouth Atlas of Health Care: Total medicare reimbursements per decedent, by interval before death (interval before death: Last two years of life; year: 2003-2007; region level: HRR). http://www.dartmouthatlas.org/data/ topic/topic.aspx?cat=1. Updated 2012. (Last accessed December 10, 2012).
12. Heron M: Deaths: Leading causes for 2008. Natl Vital Stat Rep 2012;60:1-94.
13. Marks S: Fast Facts and Concepts. Palliative Care Network of Wisconsin. https://www.mypcnow.org/fast-facts
14. Van den Beuken-van Everdingen, de Rijke JM, Kessels AG, et al.: Prevalence of pain in patients with cancer: A systematic review of the past 40 years. Ann Oncol 2007;18:1437-1449.
15. Potter VT, Wiseman CE, Dunn SM, Boyle FM: Patient barriers to optimal cancer pain control. Psychooncology 2003; 12:153-160.
16. Maurer J, Rebbapragada V, Borson S, et al.: Anxiety and depression in COPD: Current understanding, unanswered questions, and research needs. Chest 2008;134:43S-56S.
17. Egede L: Major depression in individuals with chronic medical disorders: Prevalence, correlates and association with health resource utilization, lost productivity and functional disability. Gen Hosp Psychiatry 2007;29:409-416.
18. O'Connor CM, Joynt KE: Depression: Are we ignoring an important comorbidity in heart failure. J Am Coll Cardiol 2004;43:1550-1552.
19. Felker B, Katon W, Hedrick SC, et al.: The association between depressive symptoms and health status in patients with chronic pulmonary disease. Gen Hosp Psychiatry 2001; 23:56-61.
20. Kim HF, Kunik ME, Molinari VA, et al.: Functional impairment in COPD patient: The impact of anxiety and depression. Psychosomatics 2000;41:465-471.
21. Yohannes AM, Roomi J, Waters K, Connolly MJ: Quality of life in elderly patients with COPD: Measurement and predictive factors. Respir Med 1998;921231-1236.
22. Brenes GA: Anxiety and chronic obstructive pulmonary disease: Prevalence, impact, and treatment. Psychosomatic Med 2003;65:963-970.
23. Lee DTF, Yu DSF, Woo J, Thompson DR: Health-related quality of life in patients with congestive heart failure. Eur J Heart Fail 2005;7:419-422.
24. Shaywitz D: Winning Health Tech Entrepreneurs Will Focus on Implementation, Not Fetishize, Invention. Forbes. https://www.forbes.com/sites/davidshaywitz/2017/12/10/ winning-health-tech-entrepreneurs-will-focus-on-implemen tation-not-fetishize-invention/#5a132f4843c2 (Last accessed March 14, 2019).
25. Lupu D, Force PMWT: Estimate of current hospice and palliative medicine physician workforce shortage. J Pain Symptom Manage 2010;40:899-911.
26. Gold J: Accountable Care Organizations, Explained. Kaiser Health News. https://khn.org/news/aco-accountable-careorganization-faq/ (Last accessed March 14, 2019).
27. Institute of Medicine: Dying in America: Improving Quality and Honoring Individual Preferences at the End of Life. 2014.
28. Hudon C, Fortin M, Haggerty JL, et al.: Measuring patients' perceptions of patient-centered care: A systematic review of tools for family medicine. Ann Fam Med 2011;9: 155-164.
29. Herth K: Abbreviated instrument to measure hope: Development and psychometric evaluation. J Adv Nurs 1992;17: 1251-1259.
30. Johnson MJ: Management of end stage cardiac failure. Postgrad Med J 2007;83:395-401.
31. Ekman I, Cleland JGF, Swedberg K, et al.: Symptoms in patients with heart failure are prognostic predictors: Insights from COMET. J Card Fail 2005;11:288-292.
32. Levenson JW, McCarthy EP, Lynn J: The last six months of life for patients with congestive heart failure. J Am Geriatr Soc 2000;48:S101-S109.
33. Elkington H, White P, Addington-Hall J, et al. The healthcare needs of chronic obstructive pulmonary disease patients in the last year of life. Palliat Med 2005;19: 485-491.
34. Garlo K, O'Leary J, Van Ness P, Fried TR: Burden in caregivers of older adults with advanced illness. J Am Geriatr Soc 2010;58:2315-2322.
35. Light RW, Merrill EJ, Despars JA, et al.: Prevalence of depression and anxiety in patients with COPD: Relationship to functional capacity. Chest 1985;87:35-38.
36. Tsuchihashi-Makaya M, Kato N, Chishaki A, et al.: Anxiety and poor social support are independently associated with adverse outcomes in patients with mild heart failure. Circ J 2007;73:280-287.
37. Murray SA, Boyd K, Kendall M, et al.: Dying of lung cancer or cardiac failure: Prospective qualitative interview study of patients and their careers in the community. BMJ 2002;325:929.