Enabling global clinical collaborations on identifiable patient data: The Minerva initiative

Frontiers in Genetics

Volumn 10, Issue JUN, 2019, Pages

  Nellåker, Christoffer ^a   Alkuraya, Fowzan S ^b   Baynam, Gareth ^c   Bernier, Raphael ^d   Bernier, Francois P ^e   Boulanger, Vanessa ^f   Brudno, Michael ^g   Brunner, Han G ^h   Clayton Smith, Jill ⁱ   Cogné, Benjamin ^j   Dawkins, Hugh J ^k   DeVries, Bert ^h   Douzgou, Sofia ⁱ   Dudding, Tracy ^l   Eichler, Evan E ^d   Ferlaino, Michael ^a   Fieggen, Karen ^m   Firth, Helen V ⁿ   FitzPatrick, David R ^o   Gration, Dylan ^c   Groza, Tudor ^p   Haendel, Melissa A ^q   Hallowell, Nina ^a   Hamosh, Ada ^r   Hehir Kwa, Jayne ^s   Hitz, Marc Phillip ^t   Hughes, Mark ^u   Kini, Usha ^v   Kleefstra, Tjitske ^h   Kooy, R Frank ^w   Krawitz, Peter M ^x   Küry, Sébastien ^j   Lees, Melissa ^y   Lyon, Gholson J ^z   Lyonnet, Stanislas ^aa   Marcadier, Julien ^ab   Meyn, Stephen ^g   Moslerová, Veronika ^ac   Politei, Juan M ^ad   Poulton, Cathryn C ^ae   Raymond, F Lucy ^af   Reijnders, Margot ^ag   Robinson, Peter N ^ah   Romano, Corrado ^ai   Rose, Catherine M ^aj   Sainsbury, David C ^ak   Schofield, Lyn ^c   Sutton, Vernon R ^al   Turnovec, Marek ^ac   Van Dijck, Anke ^w   Van Esch, Hilde ^am   Wilkie, Andrew O ^an   more..

^a UNIVERSITY OF OXFORD   (United Kingdom)

^b KING FAISAL SPECIALIST HOSPITAL AND RESEARCH CENTER   (Saudi Arabia)

^c KING EDWARD MEMORIAL HOSPITAL   (Australia)

^d UNIVERSITY OF WASHINGTON   (United States)

^e ALBERTA CHILDREN'S HOSPITAL   (Canada)

^f National Organization for Rare Disorders   (United States)

^g HOSPITAL FOR SICK CHILDREN   (Canada)

^h RADBOUD UNIVERSITY MEDICAL CENTER   (Netherlands)

ⁱ MANCHESTER UNIVERSITY NHS FOUNDATION TRUST   (United Kingdom)

^j NANTES UNIVERSITY HOSPITAL   (France)

^k DEPARTMENT OF HEALTH   (Australia)

^l HNEkidshealth   (Australia)

^m UNIVERSITY OF CAPE TOWN   (South Africa)

ⁿ WELLCOME TRUST SANGER INSTITUTE   (United Kingdom)

^o UNIVERSITY OF EDINBURGH   (United Kingdom)

^p GARVAN INSTITUTE OF MEDICAL RESEARCH   (Australia)

^q OREGON HEALTH AND SCIENCE UNIVERSITY   (United States)

^r JOHNS HOPKINS UNIVERSITY   (United States)

^s University Medical Center Utrecht Princess Máxima Center for Pediatric Oncology   (Netherlands)

^t UNIVERSITY HOSPITAL SCHLESWIG HOLSTEIN   (Germany)

^u WESTERN GENERAL HOSPITAL   (United Kingdom)

^v OXFORD UNIVERSITY HOSPITALS NHS FOUNDATION TRUST   (United Kingdom)

^w UNIVERSITY OF ANTWERP   (Belgium)

^x UNIVERSITY OF BONN   (Germany)

^y GREAT ORMOND STREET HOSPITAL   (United Kingdom)

^z Institute for Basic Research   (United States)

^aa IMAGINE INSTITUTE   (France)

^ab UNIVERSITY OF CALGARY   (Canada)

^ac CHARLES UNIVERSITY   (Czech Republic)

^ad Laboratorio Chamoles ^*  (Argentina)

^ae FIONA STANLEY HOSPITAL   (Australia)

^af UNIVERSITY OF CAMBRIDGE   (United Kingdom)

^ag MAASTRICHT UNIVERSITY MEDICAL CENTER   (Netherlands)

^ah JACKSON LABORATORY   (United States)

^ai Oasi Maria SS Association ONLUS   (Italy)

^aj MURDOCH CHILDREN'S RESEARCH INSTITUTE   (Australia)

^ak NEWCASTLE UPON TYNE HOSPITALS NHS FOUNDATION TRUST   (United Kingdom)

^al BAYLOR COLLEGE OF MEDICINE   (United States)

^am UNIVERSITY OF LEUVEN   (Belgium)

^an UNIVERSITY OF OXFORD   (United Kingdom)

more..

Author keywords

Consortium; Data protection; Data sharing; Facial features; Patient information; Phenotyping; Rare disease

Indexed keywords

ACCESS TO INFORMATION; ANONYMIZATION; BIG DATA; COLLABORATIVE LEARNING; DATA ANALYSIS; DEEP LEARNING; GENETIC DISORDER; HUMAN; IDENTIFIABLE INFORMATION; IMAGE ANALYSIS; NOTE; PATENT; PATIENT INFORMATION; PHENOTYPE; PUBLIC HEALTH; RARE DISEASE; SOCIAL PARTICIPATION;

EID: 85069047288     PISSN: None     EISSN: 16648021     Source Type: Journal    
DOI: 10.3389/fgene.2019.00611     Document Type: Note

References (0)