EUPATI guidance for patient involvement in medicines research and development: Health technology assessment

Frontiers in Medicine

Volumn 5, Issue SEP, 2018, Pages

  Hunter, Amy ^a,b   Facey, Karen ^a,c   Thomas, Victoria ^a,d   Haerry, David ^a,e   Warner, Kay ^a,f   Klingmann, Ingrid ^a,g   May, Matthew ^a,h   See, Wolf ^a,i  

^a European Patients' Academy on Therapeutic Innovation   (Belgium)

^b GENETIC ALLIANCE UK   (United Kingdom)

^c UNIVERSITY OF EDINBURGH   (United Kingdom)

^d NATIONAL INSTITUTE FOR HEALTH AND CARE EXCELLENCE   (United Kingdom)

^e EUROPEAN AIDS TREATMENT GROUP   (Belgium)

^f GLAXOSMITHKLINE   (United Kingdom)

^g European Forum for Good Clinical Practice   (Belgium)

^h European Patient's Forum EPF   (Belgium)

ⁱ BAYER AG   (Germany)

Author keywords

EUPATI; Health technology assessment; HTA; Participation; Patient engagement; Patient involvement

Indexed keywords

EID: 85062728487     PISSN: None     EISSN: 2296858X     Source Type: Journal    
DOI: 10.3389/fmed.2018.00231     Document Type: Article

References (16)

1. EUPATI. EUPATI Guidance for Patient Involvement in HTA. Report, EUPATI (2016)
2. Health Technology Assessment international (HTAi). Patients' perspectives in health technology assessment: a route to robust evidence and fair deliberation. Int J Tecnol Assess Health Care (2010) 26:334-40. doi: 10.1017/S0266462310000395
3. Gauvin FP, Abelson J, Giacomini M, Eyles J, Lavis JN. "It all depends": conceptualizing public involvement in the context of health technology assessment agencies. Soc Sci Med. (2010) 70:1518-26. doi: 10.1016/j.socscimed.2010.01.036
4. European Patients' Forum (EPF). Patient Involvement in Health Technology Assessment in Europe. Results of the EPF Survey. Report, EPF, Brussels (2013)
5. Health Technology Assessment international (HTAi). Good Practice Examples of Patient and Public Involvement in Health Technology Assessment. Report, HTAi (2014)
6. Health Technology Assessment international (HTAi). Values and Quality Standards for Patient Involvement in HTA. Report, HTAi (2014)
7. Wale J, Scott AM, Hofmann B, Garner S, Low E, Sansom L. Why patients should be involved in health technology assessment. Int J Tecnol Assess Health Care (2017) 33:1-4. doi: 10.1017/S0266462317000241
8. Facey Karen M, Ploug Hansen H, Single ANV. Patient Involvement in Health Technology Assessment. Singapore: Springer (2017)
9. Abelson J, Wagner F, DeJean D, Boesveld S, Gauvin FP, Bean S et al. Public and patient involvement in health technology assessment: a framework for action. Int J Tecnol Assess Health Care (2016) 32:256-64. doi: 10.1017/S0266462316000362
10. Gagnon MP, Mylene T, DeJean D. Evaluation of patient involvement in HTA. In: Facey KM, Ploug Hansen H, Single A, editors. Patient Involvement in Health Technology Assessment. Singapore: Springer (2017). p. 210-3
11. Weeks L, Polisena J, Scott AM, Holtorf AP. Evaluation of patient and public involvement initiatives in health technology assessment: a survey of international agencies. Int J Tecnol Assess Health Care (2017) 33:715-23. doi: 10.1017/S0266462317000976
12. Coleman L. Patient Perspectives and Priorities on Access to Medicines for Rare Conditions in Scotland: Patient Charter. Report, Genetic Alliance UK, London (2016)
13. Petchey L. Patient Perspectives and Priorities on NICE's Evaluation of Highly Specialised Technologies: Patient Charter. Report, Genetic Alliance UK, London (2014)
14. Petchey L. Patient Perspectives and Priorities on NHS England Commissioning of Medicines for Rare Diseases: Patient Charter. Report, Genetic Alliance UK, London (2014)
15. Amis L, Livingston H. Technology Appraisal Patient Expert Survey 2012. Report, National Institute for Health and Care Excellence, London (2014)
16. SECOR. CADTH Patient Input Process Review. Report, SECOR (2012)