Individual cognitive stimulation therapy for people with intellectual disability and dementia: Protocol of a feasibility randomised controlled trial

BMJ Open

Volumn 8, Issue 12, 2018, Pages

  Ali, Afia ^a   Brown, Emma ^a   Spector, Aimee ^a   Aguirre, Elisa ^b   Hassiotis, Angela ^a  

^a UNIVERSITY COLLEGE LONDON   (United Kingdom)

^b TEWV NHS Foundation Trust   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

CHOLINESTERASE INHIBITOR;

ADULT; ANXIETY; ARTICLE; CAREGIVER; CAREGIVER BURDEN; CLINICAL ARTICLE; COGNITIVE THERAPY; COMPETENCE; CONTROLLED STUDY; DEMENTIA; DEPRESSION; EVALUATION STUDY; FEASIBILITY STUDY; FEMALE; HUMAN; INTELLECTUAL IMPAIRMENT; MALE; NERVE STIMULATION; OUTCOME ASSESSMENT; PATIENT COMPLIANCE; PROGRAM ACCEPTABILITY; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL; AGED; COGNITIVE BEHAVIORAL THERAPY; COMPARATIVE STUDY; DOWN SYNDROME; EDUCATION; INDIVIDUALITY; MIDDLE AGED; PROCEDURES; SINGLE BLIND PROCEDURE;

ADULT; AGED; CAREGIVERS; COGNITIVE BEHAVIORAL THERAPY; DEMENTIA; DOWN SYNDROME; FEASIBILITY STUDIES; FEMALE; HUMANS; INDIVIDUALITY; INTELLECTUAL DISABILITY; MALE; MIDDLE AGED; SINGLE-BLIND METHOD;

EID: 85058302310     PISSN: None     EISSN: 20446055     Source Type: Journal    
DOI: 10.1136/bmjopen-2018-022136     Document Type: Article

References (30)

1. Strydom A, Chan T, King M, et al. Incidence of dementia in older adults with intellectual disabilities. Res Dev Disabil 2013;34:1881-5.
2. McCarron M, McCallion P, Reilly E, et al. A prospective 20-year longitudinal follow-up of dementia in persons with Down syndrome. J Intellect Disabil Res 2017;61:843-52.
3. Englund A, Jonsson B, Zander CS, et al. Changes in mortality and causes of death in the Swedish Down syndrome population. Am J Med Genet A 2013;161A:642-9.
4. Bahar-Fuchs A, Clare L, Woods B. Cognitive training and cognitive rehabilitation for mild to moderate Alzheimer's disease and vascular dementia. Cochrane Database Syst Rev 2013;5:CD003260.
5. Clare L, Linden DE, Woods RT, et al. Goal-oriented cognitive rehabilitation for people with early-stage Alzheimer disease: a singleblind randomized controlled trial of clinical efficacy. Am J Geriatr Psychiatry 2010;18:928-39.
6. Woods B, O'Philbin L, Farrell EM, et al. Reminiscence therapy for dementia. Cochrane Database Syst Rev 2018;3:CD001120.
7. Spector A, Orrell M, Davies S, et al. Can reality orientation be rehabilitated? Development and piloting of an evidence-based programme of cognition-based therapies for people with dementia. Neuropsychol Rehabil 2001;11:377-97.
8. Spector A, Thorgrimsen L, Woods B, et al. Making a difference: an evidence-based group programme to offer cognitive stimulation therapy (CST) to people with dementia (manual for group leaders). London: Hawker, 2006.
9. Woods B, Aguirre E, Spector AE, et al. Cognitive stimulation to improve cognitive functioning in people with dementia. Cochrane Database Syst Rev 2012;2:CD005562.
10. Spector A, Orrell M, Woods B. Cognitive Stimulation Therapy (CST): effects on different areas of cognitive function for people with dementia. Int J Geriatr Psychiatry 2010;25:1253-8.
11. Hall L, Orrell M, Stott J, et al. Cognitive stimulation therapy (CST): neuropsychological mechanisms of change. Int Psychogeriatr 2013;25:479-89.
12. Spector A, Thorgrimsen L, Woods B, et al. A randomised controlled trial investigating the effectiveness of an evidence-based cognitive stimulation therapy programme for people with dementia. B J Psychiatry 2003;183:248-54.
13. National Institute for Health and Clinical Excellence and the Social Care Institute for Excellence (NICE-SCIE). Dementia: supporting people with dementia and their carers in health and social care Clinical Guideline 42. London: NICE-SCIE, 2006.
14. Knapp M, Thorgrimsen L, Patel A, et al. Cognitive stimulation therapy for people with dementia: cost-effectiveness analysis. Br J Psychiatry 2006;188:574-80.
15. Shanahan SF. Efficacy of a cognitive stimulation therapy programme with adults with Down syndrome: a randomised study Thesis (D.Clin. Psych.), University of Essex. 2014 http://ethos.bl.uk/OrderDetails.do? uin=uk.bl.ethos. 617081
16. Yates L, Orrell M, Leung P, et al. Making a difference 3: individual cognitive stimulation therapy: a manual for carers: Hawker publications, 2014.
17. Onder G, Zanetti O, Giacobini E, et al. Reality orientation therapy combined with cholinesterase inhibitors in alzheimer's disease: randomised controlled trial. Br J Psychiatry 2005;187:450-5.
18. Orrell M, Yates L, Leung P, et al. The impact of individual Cognitive Stimulation Therapy (iCST) on cognition, quality of life, caregiver health, and family relationships in dementia: a randomised controlled trial. PLoS Med 2017;14:e1002269.
19. Ball SL, Holland AJ, Huppert FA, et al. CAMDEX-DS: The Cambridge examination for mental disorders of older people with down's syndrome and others with intellectual disabilities. Cambridge: Cambridge University Press, 2006.
20. Oliver C, Crayton L, Holland A, et al. A four year prospective study of age-related cognitive change in adults with Down's syndrome. Psychol Med 1998;28:1365-77.
21. Startin CM, Rodger E, Fodor-Wynne L, et al. Developing an informant questionnaire for cognitive abilities in down syndrome: the Cognitive Scale for Down Syndrome (CS-DS). PLoS One 2016;11:e0154596.
22. Galasko D, Bennett D, Sano M, et al. An inventory to assess activities of daily living for clinical trials in alzheimer's disease. Alzheimer Disease & Associated Disorders 1997;11:33-9.
23. Thorgrimsen L, Selwood A, Spector A, et al. Whose quality of life is it anyway? The validity and reliability of the Quality of Life-Alzheimer's Disease (QoL-AD) scale. Alzheimer Dis Assoc Disord 2003;17:201-3.
24. Orrell M, Aguirre E, Spector A, et al. Maintenance cognitive stimulation therapy for dementia: single-blind, multicentre, pragmatic randomised controlled trial. Br J Psychiatry 2014;204:454-61.
25. Macera CA, Eaker ED, Jannarone RJ, et al. A measure of perceived burden among caregivers. Eval Health Prof 1993;16:204-11.
26. Schepers AK, Orrell M, Shanahan N, et al. Sense of competence in dementia care staff (SCIDS) scale: development, reliability, and validity. Int Psychogeriatr 2012;24:1153-62.
27. Streater A, Aguirre E, Spector A, et al. Cognitive stimulation therapy for people with dementia in practice: a service evaluation. British Journal of Occupational Therapy 2016;79:574-80.
28. Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand 1983;67:361-70.
29. Moore GF, Audrey S, Barker M, et al. Process evaluation of complex interventions: medical research council guidance. BMJ 2015;350:h1258.
30. Zimmerman S, Williams CS, Reed PS, et al. Attitudes, stress, and satisfaction of staff who care for residents with dementia. Gerontologist 2005;45 Spec No 1:96-105.