Development of a self-care questionnaire for clinical assessment of self-care in patients with inflammatory bowel disease: A psychometric evaluation

International Journal of Nursing Studies

Volumn 89, Issue , 2019, Pages 1-7

  Lovén Wickman, Ulrica ^a,b   Yngman Uhlin, Pia ^b   Hjortswang, Henrik ^b   Wenemark, Marika ^b,c   Stjernman, Henrik ^d   Riegel, Barbara ^e   Hollman Frisman, Gunilla ^b  

^a Department of Primary Health Care in County Council of Kalmar ^*  (Sweden)

^b LINKÖPING UNIVERSITY   (Sweden)

^c Centre for Organisational Support and Development   (Sweden)

^d RYHOV COUNTY HOSPITAL   (Sweden)

^e UNIVERSITY OF PENNSYLVANIA   (United States)

Author keywords

Content validity; Inflammatory bowel disease; Nursing; Questionnaire development; Reliability; Self care; Swedish version

Indexed keywords

ADOLESCENT; ADULT; AGED; CROHN DISEASE; FEMALE; HUMAN; MALE; MIDDLE AGED; PILOT STUDY; PSYCHOMETRY; QUESTIONNAIRE; REPRODUCIBILITY; SELF CARE; ULCERATIVE COLITIS; VERY ELDERLY; YOUNG ADULT;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; COLITIS, ULCERATIVE; CROHN DISEASE; FEMALE; HUMANS; MALE; MIDDLE AGED; PILOT PROJECTS; PSYCHOMETRICS; REPRODUCIBILITY OF RESULTS; SELF CARE; SURVEYS AND QUESTIONNAIRES; YOUNG ADULT;

EID: 85054459236     PISSN: 00207489     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ijnurstu.2018.08.016     Document Type: Article

References (38)

1. Beckstead, J.W., Content validity is naught. Int. J. Nurs. Stud. 46:9 (2009), 1274–1283.
2. Bernstein, C.N., Psychological stress and depression: risk factors for IBD?. Dig. Dis. 34:1–2 (2016), 58–63.
3. Bland, J.M., Altman, D.G., Statistical methods for assessing agreement between two methods of clinical measurement. Lancet 1:8476 (1986), 307–310.
4. Burisch, J., Pedersen, N., Cukovic-Cavka, S., Brinar, M., Kaimakliotis, I., Duricova, D., Shonova, O., Vind, I., Avnstrom, S., Thorsgaard, N., Andersen, V., Krabbe, S., Dahlerup, J.F., Salupere, R., Nielsen, K.R., Olsen, J., Manninen, P., Collin, P., Tsianos, E.V., Katsanos, K.H., Ladefoged, K., Lakatos, L., Bjornsson, E., Ragnarsson, G., Bailey, Y., Odes, S., Schwartz, D., Martinato, M., Lupinacci, G., Milla, M., De Padova, A., D'Inca, R., Beltrami, M., Kupcinskas, L., Kiudelis, G., Turcan, S., Tighineanu, O., Mihu, I., Magro, F., Barros, L.F., Goldis, A., Lazar, D., Belousova, E., Nikulina, I., Hernandez, V., Martinez-Ares, D., Almer, S., Zhulina, Y., Halfvarson, J., Arebi, N., Sebastian, S., Lakatos, P.L., Langholz, E., Munkholm, P., EpiCom-group, East-West gradient in the incidence of inflammatory bowel disease in Europe: the ECCO-EpiCom inception cohort. Gut 63:4 (2014), 588–597.
5. Collins, D., Cognitive Interviewing Practice. 2015, SAGE Publications Ltd., London, 10.4135/9781473910102.
6. Conley, S., Redeker, N., A systematic review of self-management interventions for inflammatory bowel disease. J. Nurs. Scholarsh. 48:2 (2016), 118–127.
7. Devlen, J., Beusterien, K., Yen, L., Ahmed, A., Cheifetz, A.S., Moss, A.C., The burden of inflammatory bowel disease: a patient-reported qualitative analysis and development of a conceptual model. Inflamm. Bowel Dis. 20:3 (2014), 545–552.
8. Elkjaer, M., E-health: web-guided therapy and disease self-management in ulcerative colitis. Impact on disease outcome, quality of life and compliance. Dan. Med. J., 59(7), 2012, B4478.
9. Farrell, D., McCarthy, G., Savage, E., Self-reported symptom burden in individuals with inflammatory bowel disease. J. Crohns Colitis 10:3 (2016), 315–322.
10. Faust, A., Halpern, L., Danoff-Burg, S., Cross, R., Psychosocial factor contributing to inflammatory bowel disease activity and health-related quality of health. Gastroenterol. Hepatol. 8:3 (2012), 173–181.
11. Field, A., Discovering Statistics Using IBM SPSS Statistics. 2014, Sage Publications Ltd.
12. Gomollon, F., Dignass, A., Annese, V., Tilg, H., Van Assche, G., Lindsay, J.O., Peyrin-Biroulet, L., Cullen, G.J., Daperno, M., Kucharzik, T., Rieder, F., Almer, S., Armuzzi, A., Harbord, M., Langhorst, J., Sans, M., Chowers, Y., Fiorino, G., Juillerat, P., Mantzaris, G.J., Rizzello, F., Vavricka, S., Gionchetti, P., 3. EUROPEAN evidence-based consensus on the diagnosis and management of Crohn's disease 2016: part 1: diagnosis and medical management. J. Crohns Colitis 11:January (1) (2017), 3–25, 10.1093/ecco-jcc/jjw168 Epub 2016 Sep 22.
13. Harvey, R., Bradshaw, J., A simple index of Crohn's disease activity. Lancet, 1(8167), 1980, 514.
14. Johnson, C., Wilhelmsson, S., Börjeson, S., Lindberg, M., Improvement of communication and interpersonal competence in telenursing—development of a self-assessment tool. J. Clin. Nurs. 24:11–12 (2015), 1489–1501.
15. Kaplan, G.G., The global burden of IBD inflammatory bowel disease: from 2015 to 2025. Nat. Rev. Gastroenterol. Hepatol. 12:12 (2015), 720–727.
16. Koo, T.K., Li, M.Y., A guideline of selecting and reporting intraclass correlation coefficients for reliability research. J. Chiropr. Med. 15:2 (2016), 155–163.
17. Kralik, D., Price, K., Telford, K., The meaning of self-care for people with chronic illness. J. Nurs. Healthc. Chronic Illn. 2 (2010), 197–2014.
18. Lesnovska, K.P., Borjeson, S., Hjortswang, H., Frisman, G.H., What do patients need to know? Living with inflammatory bowel disease. J. Clin. Nurs. 23:11–12 (2014), 1718–1725.
19. Lovén Wickman, U., Yngman-Uhlin, P., Hjortswang, H., Riegel, B., Stjernman, H., Hollman Frisman, G., Self-care among patients with inflammatory bowel disease: an interview study. Gastroenterol. Nurs. 39:2 (2016), 121–128.
20. Lynn, M., Determination and quantification of content validity. Nurs. Res. 35:6 (1986), 382–385.
21. Molodecky, N.A., Soon, I.S., Rabi, D.M., Ghali, W.A., Ferris, M., Chernoff, G., Benchimol, E.I., Panaccione, R., Ghosh, S., Barkema, H.W., Kaplan, G.G., Increasing incidence and prevalence of the inflammatory bowel diseases with time, based on systematic review. Gastroenterology 142:1 (2012), 46–54.
22. National Board of Health and Welfare, The National Board of Health's regulations on the assessment of a health care measure can be assessed as self-care (2009). 2009 Collected 180914 (http://www.socialstyrelsen.se/sosfs/2009-6).
23. O'Connor, M., Bager, P., Duncan, J., Gaarenstroom, J., Younge, L., Détré, P., Bredin, F., Dibley, L., Dignass, A., Gallego Barrero, M., Greveson, K., Hamzawi, M., Ipenburg, N., Keegan, D., Martinato, M., Murciano Gonzalo, F., Pino Donnay, S., Price, T., Ramirez Morros, A., Verwey, M., White, L., van de Woude, C.J., N-ECCO consensus statements on the European nursing roles in caring for patients with Crohn's disease or ulcerative colitis. J. Crohns Colitis 7:9 (2013), 744–764.
24. Pihl-Lesnovska, K., Hjortswang, H., Ek, A.C., Frisman, G.H., Patients’ perspective of factors influencing quality of life while living with Crohn disease. Gastroenterol. Nurs. 33:1 (2010), 37–44.
25. Plevinsky, J.M., Greenley, R.N., Fishman, L.N., Self-management in patients with inflammatory bowel disease: strategies, outcomes, and integration into clinical care. Clin. Exp. Gastroenterol. 9 (2016), 259–267.
26. Polit, D., Beck, C., The content validity index: are you sure you know what's being reported? Critique and recommendations. Res. Nurs. Health 29:5 (2006), 489–497.
27. Polit, D.F., Beck, C.T.,. Nursing Research: Generating and Assessing Evidence for Nursing Practice. ninth edition, 2012, Lippincott Williams & Wilkins, Philadelphia, PA.
28. Polit, D., Beck, C., Owen, S., Is the CVI an acceptable indicator of content validity? Appraisal and recommendations. Res. Nurs. Health 30 (2007), 459–467.
29. Riegel, B., Lee, C.S., Dickson, V.V., Carlson, B., An update on the self-care of heart failure index. J. Cardiovasc. Nurs. 24:6 (2009), 485–497.
30. Riegel, B., Jaarsma, T., Strömberg, A., A middle-range theory of self-care of chronic illness. Adv. Nurs. Sci. 35:3 (2012), 194–204.
31. Streiner, D.L., Norman, G.R., Cairney, J., Health Measurement Scales - A Practical Guide to Their Development and Use. fifth edition, 2014, Oxford University, Oxford.
32. Strömberg, A., Jaarsma, T., Riegel, B., Self-care: who cares?. Eur. J. Cardiovasc. Nurs. 11:2 (2012), 133–134.
33. Van Assche, G., Dignass, A., Bokemeyer, B., Danese, S., Gionchetti, P., Moser, G., Beaugerie, L., Gomollón, F., Häuser, W., Herrlinger, K., Oldenburg, B., Panes, J., Portela, F., Rogler, G., Stein, J., Tilg, H., Travis, S., Lindsay, J.O., European Crohn's and Colitis Organisation, Second European evidence-based consensus on the diagnosis and management of ulcerative colitis part 3: special situations. J. Crohns Colitis 7:1 (2013), 1–33.
34. Walmsley, R.S., Ayres, R.C., Pounder, R.E., Allan, R.N., A simple clinical colitis activity index. Gut 43:1 (1998), 29–32.
35. Weir, J.P., Quantifying test-retest reliability using the intraclass correlation coefficient and the SEM. J Strength Cond. Res. 19:1 (2005), 231–240.
36. Wenemark, M., Hollman Frisman, G., Svensson, T., Kristenson, M., Respondent satisfaction and respondent burden among differently motivated participants in a health-related survey. Field Methods 22 (2010), 378–390.
37. WMA, World medical association declaration of Helsinki: ethical principles for medical research involving human subjects. JAMA 310:20 (2013), 2191–2194.
38. Zijlstra, M., De Bie, C., Breij, L., van Pieterson, M., van Staa, A., de Ridder, L., van der Woude, J., Escher, J., Self-efficacy in adolescents with inflammatory bowel disease: a pilot study of the “IBD-yourself”, a disease-specific questionnaire. J. Crohns Colitis 7:9 (2013), 375–385.