Managing uncertainty: Using social media for risk assessment during a public health crisis

Conference on Human Factors in Computing Systems - Proceedings

Volumn 2017-May, Issue , 2017, Pages 4520-4533

  Gui, Xinning ^a   Kou, Yubo ^b   Pine, Kathleen H ^c   Chen, Yunan ^c  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b PURDUE UNIVERSITY   (United States)

^c ARIZONA STATE UNIVERSITY   (United States)

Author keywords

Crisis informatics; Decision making; Information seeking; Online forums; Public health; Risk assessment; Social media; Uncertainty reduction; Zika virus

Indexed keywords

BEHAVIORAL RESEARCH; DECISION MAKING; HEALTH RISKS; HUMAN ENGINEERING; INFORMATION USE; PUBLIC HEALTH; SOCIAL NETWORKING (ONLINE); VIRUSES;

CRISIS INFORMATICS; INFORMATION SEEKING; ONLINE FORUMS; SOCIAL MEDIA; UNCERTAINTY REDUCTION;

RISK ASSESSMENT;

EID: 85044865155     PISSN: None     EISSN: None     Source Type: Conference Proceeding    
DOI: 10.1145/3025453.3025891     Document Type: Conference Paper

References (69)

1. Ashley E Anker, Amber Marie Reinhart, and Thomas Hugh Feeley. 2011. Health information seeking: a review of measures and methods. Patient education and counseling 82, 3: 346-354. https://doi.org/10.1016/j.pec.2010.12.008
2. Dale E. Brashers. 2001. Communication and Uncertainty Management. Journal of Communication 51, 3: 477-497. https://doi.org/10.1111/j.1460-2466.2001.tb02892.x
3. Centers for Disease Control & Prevention (CDC). Zika Virus: Symptoms, Testing, & Treatment. Retrieved August 16, 2016 from http://www.cdc.gov/zika/symptoms/index.html
4. Centers for Disease Control & Prevention (CDC). 2016. Zika Virus: Transmission. Retrieved September 13, 2016 from http://www.cdc.gov/zika/transmission/index.html
5. Centers for Disease Control & Prevention (CDC). 2016. Zika Virus: For Pregnant Women. Retrieved September 13, 2016 from http://www.cdc.gov/zika/pregnancy/index.html
6. Centers for Disease Control & Prevention (CDC). 2016. Zika Virus: Testing for Zika. Retrieved September 16, 2013 from http://www.cdc.gov/zika/symptoms/diagnosis.html
7. Centers for Disease Control & Prevention (CDC). 2016. CDC adds The Bahamas to interim travel guidance related to Zika virus. Retrieved from http://www.cdc.gov/media/releases/2016/s0823-zika-travel-guidance-bahamas.html
8. C Charles, A Gafni, and T Whelan. 1997. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Social science & medicine (1982) 44, 5: 681-692.
9. Cynthia Chew and Gunther Eysenbach. 2010. Pandemics in the Age of Twitter: Content Analysis of Tweets during the 2009 H1N1 Outbreak. PLoS ONE 5, 11: e14118. https://doi.org/10.1371/journal.pone.0014118
10. Wen-ying Sylvia Chou, Yvonne M Hunt, Ellen Burke Beckjord, Richard P Moser, and Bradford W Hesse. 2009. Social media use in the United States: implications for health communication. Journal of medical Internet research 11, 4: e48. https://doi.org/10.2196/jmir.1249
11. Munmun De Choudhury and Andrés Monroy-hernández Gloria. 2014. "Narco" Emotions: Affect and Desensitization in Social Media during the Mexican Drug War. In Proc. of CHI 2014, 3563-3572. https://doi.org/10.1145/2556288.2557197
12. Camille Cobb, Ted McCarthy, Annuska Perkins, Ankitha Bharadwaj, Jared Comis, Brian Do, and Kate Starbird. 2014. Designing for the Deluge: Understanding & Supporting the Distributed, Collaborative Work of Crisis Volunteers. In Proc. of CSCW 2014, 888-899. https://doi.org/10.1145/2531602.2531712
13. Elizabeth Cohen. 2016. Zika: Baby born in US with complications from virus. CNN. Retrieved September 1, 2016 from http://www.cnn.com/2016/08/23/health/micaela-mendoza-born-with-zika-complications-in-miami/
14. Juliet Corbin and Anselm Strauss. 2015. Basics of Qualitative Research Techniques and Procedures for Developing Grounded Theory. SAGE Publications, Inc.
15. Aron Culotta and Aron Culotta. 2014. Estimating County Health Statistics with Twitter. In Proc. of CHI 2014, 1335-1344. https://doi.org/10.1145/2556288.2557139
16. Carolyn Crane Cutilli. Seeking health information: what sources do your patients use? Orthopedic nursing 29, 3: 214-219. https://doi.org/10.1097/NOR.0b013e3181db5471
17. John O. Davies-Cole, Preetha J. Iyengar, Andrew K. Hennenfent, Sasha A. McGee, Vito R. DelVento, Fern M. Johnson-Clarke, and Anicet G. Dahourou. 2016. Zika Virus Preparedness and Response: Operational Issues, Challenges, and Opportunities. Pacific Journal of Medical Sciences 16, 3-11.
18. Huiling Ding and Jingwen Zhang. 2010. Social Media and Participatory Risk Communication during the H1N1 Flu Epidemic: A Comparative Study of the United States and China. China Media Research 6, 4: 80-91.
19. Anthony S Fauci and David M Morens. 2016. Zika Virus in the Americas-Yet Another Arbovirus Threat. The New England journal of medicine 374, 7: 601-604. https://doi.org/10.1056/NEJMp1600297
20. Julia Daisy Fraustino, Brooke Liu, and Jin Yan. 2012. Social Media Use during Disasters: A review of the Knowledge Base and Gaps. College Park-Maryland.
21. Vicki S Freimuth. 2006. Order out of chaos: the self-organization of communication following the anthrax attacks. Health communication 20, 2: 141-148. https://doi.org/10.1207/s15327027hc2002-5
22. Venkata Rama Kiran Garimella, Abdulrahman Alfayad, and Ingmar Weber. 2016. Social Media Image Analysis for Public Health. In Proc. of CHI 2014, 5543-5547. https://doi.org/10.1145/2858036.2858234
23. Sean P Goggins, Christopher Mascaro, and Stephanie Mascaro. 2012. Relief Work after the 2010 Haiti Earthquake: Leadership in an Online Resource Coordination Network. In Proc. of CSCW 2012, 57-66. https://doi.org/10.1145/2145204.2145218
24. Stephan Gundel. 2005. Towards a New Typology of Crises. Journal of Contingencies and Crisis Management 13, 3: 106-115. https://doi.org/10.1111/j.1468-5973.2005.00465.x
25. Christine Hagar. 2010. Farmers' search for information during the UK foot-and-mouth disease crisis - what can we learn? Australian Journal of Emergency Management 25, 4: 38-45.
26. Rossi A. Hassad. 2016. Zika: Health Education as Prevention - An epidemiologist details The Health Belief Model. MedPage Today. Retrieved from http://www.medpagetoday.com/InfectiousDisease/ZikaVirus/60129
27. Daniel E. Hellmann, Carleen F. Maitland, and Andrea H Tapia. 2016. Collaborative Analytics and Brokering in Digital Humanitarian Response. In Proc. of CSCW 2016, 1282-1292. https://doi.org/10.1145/2818048.2820067
28. Thomas Heverin and Lisl Zach. 2012. Use of microblogging for collective sense-making during violent crises: A study of three campus shootings. Journal of the American Society for Information Science and Technology 63, 1: 34-47. https://doi.org/10.1002/asi.21685
29. Y. Linlin Huang, Kate Starbird, Mania Orand, Stephanie A. Stanek, and Heather T. Pedersen. 2015. Connected through crisis: emotional proximity and the spread of misinformation online. In Proc. of CSCW 2015, 969-980. https://doi.org/10.1145/2675133.2675202
30. Amanda L. Hughes, Lise A. A. St. Denis, Leysia Palen, and Kenneth M. Anderson. 2014. Online public communications by police & fire services during the 2012 Hurricane Sandy. In Proc. of CHI 2014, 1505-1514. https://doi.org/10.1145/2556288.2557227
31. Amanda L. Hughes and Leysia Palen. 2012. The Evolving Role of the Public Information Officer: An Examination of Social Media in Emergency Management. Journal of Homeland Security and Emergency Management 9, 1. https://doi.org/10.1515/1547-7355.1976
32. Amanda L. Hughes, Leysia Palen, and Steve Peterson. 2014. Social Media and Emergency Management. In Critical Issues in Disaster Science and Management: A Dialogue Between Researchers and Practitioners, Joseph E. Trainor and Tony Subbio (eds.). Federal Emergency Management Agency, 349-392.
33. Jina Huh, David W McDonald, Andrea Hartzler, and Wanda Pratt. 2013. Patient moderator interaction in online health communities. Proc. of AMIA 2013 Symposium 2013: 627-636.
34. Muhammad Imran, Carlos Castillo, Fernando Diaz, and Sarah Vieweg. 2015. Processing Social Media Messages in Mass Emergency. ACM Computing Surveys 47, 4: 1-38. https://doi.org/10.1145/2771588
35. E A G Joosten, L De Fuentes-Merillas, G H de Weert, T Sensky, C P F van der Staak, and C A J de Jong. 2008. Systematic review of the effects of shared decision-making on patient satisfaction, treatment adherence and health status. Psychotherapy and psychosomatics 77, 4: 219-226. https://doi.org/10.1159/000126073
36. Shaheen Kanthawala, Amber Vermeesch, Barbara Given, and Jina Huh. 2016. Answers to Health Questions: Internet Search Results Versus Online Health Community Responses. Journal of medical Internet research 18, 4: e95. https://doi.org/10.2196/jmir.5369
37. Marina Kogan, Leysia Palen, and Kenneth M. Anderson. 2015. Think Local, Retweet Global: Retweeting by the Geographically-Vulnerable during Hurricane Sandy. In Proc. of CSCW 2015, 981-993. https://doi.org/10.1145/2675133.2675218
38. Wendy Macias, Karen Hilyard, and Vicki Freimuth. 2009. Blog Functions as Risk and Crisis Communication During Hurricane Katrina. Journal of Computer-Mediated Communication 15, 1: 1-31. https://doi.org/10.1111/j.1083-6101.2009.01490.x
39. Lena Mamykina, Drashko Nakikj, and Noemie Elhadad. 2015. Collective Sensemaking in Online Health Forums. In Proc. of CHI 2015, 3217-3226. https://doi.org/10.1145/2702123.2702566
40. Gloria Mark, Mossaab Bagdouri, Leysia Palen, James Martin, Ban Al-Ani, and Kenneth Anderson. 2012. Blogs as a Collective War Diary. In Proc. of CSCW 2012, 37-46. https://doi.org/10.1145/2145204.2145215
41. Gloria J. Mark, Ban Al-Ani, and Bryan Semaan. 2009. Resilience Through Technology Adoption: Merging the Old and the New in Iraq. In Proc. of CHI 2009, 689-698. https://doi.org/10.1145/1518701.1518808
42. Victor M Montori, Amiram Gafni, and Cathy Charles. 2006. A shared treatment decision-making approach between patients with chronic conditions and their clinicians: the case of diabetes. Health expectations: an international journal of public participation in health care and health policy 9, 1: 25-36. https://doi.org/10.1111/j.1369-7625.2006.00359.x
43. S Anne Moorhead, Diane E Hazlett, Laura Harrison, Jennifer K Carroll, Anthea Irwin, and Ciska Hoving. 2013. A new dimension of health care: systematic review of the uses, benefits, and limitations of social media for health communication. Journal of medical Internet research 15, 4: e85. https://doi.org/10.2196/jmir.1933
44. Robert Munro, Lucky Gunasekara, Stephanie Nevins, Lalith Polepeddi, and Evan Rosen. 2012. Tracking Epidemics with Natural Language Processing and Crowdsourcing. In 2012 Association for the Advancement of Artificial Intelligence Spring Symposium Series, 52-58.
45. Leysia Palen and Kenneth M. Anderson. 2016. Crisis informatics - New data for extraordinary times. Science 353, 6296: 224-225.
46. Leysia Palen, Sarah Vieweg, Jeannette Sutton, Sophia B. Liu, and Amanda L. Hughes. 2007. Crisis Informatics: Studying Crisis in a Networked World.". In Proceedings of the Third International Conference on E-Social Science.
47. Ambarish Pandey, Nivedita Patni, Mansher Singh, Akshay Sood, and Gayatri Singh. 2010. YouTube as a source of information on the H1N1 influenza pandemic. American journal of preventive medicine 38, 3: e1-3. https://doi.org/10.1016/j.amepre.2009.11.007
48. Michael J. Paul and Mark Dredze. 2011. You Are What You Tweet: Analyzing Twitter for Public Health. Proceedings of the 5th International AAAI Conference on Weblogs and Social Media, 265-272.
49. Claire H. Procopio and Steven T. Procopio. 2007. Do You Know What It Means to Miss New Orleans? Internet Communication, Geographic Community, and Social Capital in Crisis. Journal of Applied Communication Research 35, 1: 67-87. https://doi.org/10.1080/00909880601065722
50. Yan Qu, Chen Huang, Pengyi Zhang, and Jun Zhang. 2011. Microblogging after a Major Disaster in China: A Case Study of the 2010 Yushu Earthquake. In Proc. of CSCW 2011, 25-34. https://doi.org/10.1145/1958824.1958830
51. Yan Qu, Philip Fei Wu, and Xiaoqing Wang. 2009. Online Community Response to Major Disaster: A Study of Tianya Forum in the 2008 Sichuan Earthquake. In Proc. of the 42nd Hawaii International Conference on System Sciences, 1-11. https://doi.org/10.1109/HICSS.2009.330
52. A Rubin. 2009. The uses-and - gratification perspective of media effects. In Media effects: Advances in theory and research (3rd ed.), Jennings Bryant and Mary Beth Oliver (eds.). Routledge, New York; London, 165-184.
53. Lila J Finney Rutten, Neeraj K Arora, Alexis D Bakos, Noreen Aziz, and Julia Rowland. 2005. Information needs and sources of information among cancer patients: a systematic review of research (1980-2003). Patient education and counseling 57, 3: 250-261. https://doi.org/10.1016/j.pec.2004.06.006
54. Aleksandra Sarcevic, Leysia Palen, Joanne White, Kate Starbird, Mossaab Bagdouri, and Kenneth Anderson. 2012. Beacons of Hope in Decentralized Coordination: Learning from On-the-Ground Medical Twitterers During the 2010 Haiti Earthquake. In Proc. of CSCW 2012, 47-56. https://doi.org/10.1145/2145204.2145217
55. Nadine B. Sarter and David D. Woods. 1991. Situation Awareness: A Critical But Ill-Defined Phenomenon. The International Journal of Aviation Psychology 1, 1: 45-57. https://doi.org/10.1207/s15327108ijap0101-4
56. Rebecca Say, Madeleine Murtagh, and Richard Thomson. 2006. Patients' preference for involvement in medical decision making: a narrative review. Patient education and counseling 60, 2: 102-14. https://doi.org/10.1016/j.pec.2005.02.003
57. Bryan Semaan and Gloria Mark. 2012. "Facebooking" towards crisis recovery and beyond: disruption as an opportunity. In Proc. of CSCW 2012, 27-36. https://doi.org/10.1145/2145204.2145214
58. Irina Shklovski, Leysia Palen, and Jeannette Sutton. 2008. Finding community through information and communication technology in disaster response. In Proc. of CSCW 2008, 127-136. https://doi.org/10.1145/1460563.1460584
59. Dawn Stacey, France Légaré, Nananda F Col, Carol L Bennett, Michael J Barry, Karen B Eden, Margaret Holmes-Rovner, Hilary Llewellyn-Thomas, Anne Lyddiatt, Richard Thomson, Lyndal Trevena, and Julie H C Wu. 2014. Decision aids for people facing health treatment or screening decisions. The Cochrane database of systematic reviews, 1: CD001431. https://doi.org/10.1002/14651858.CD001431.pub4
60. Kate Starbird and Leysia Palen. 2010. Pass it on?: Retweeting in mass emergency. In Proc. of ISCRAM 2010, 1-10. https://doi.org/10.1111/j.1556-4029.2009.01231.x
61. Kate Starbird, Leysia Palen, Amanda L. Hughes, and Sarah Vieweg. 2010. Chatter on the red: what hazards threat reveals about the social life of microblogged information. In Proc. of CSCW 2010, 241-250. https://doi.org/10.1145/1718918.1718965
62. Kate Starbird, Leysia Palen, Sophia B. Liu, Sarah Vieweg, Amanda Hughes, Aaron Schram, Kenneth Markanderson, Mossaab Bagdouri, Joanne White, Casey McTaggart, and Chris Schenk. 2012. Promoting structured data in citizen communications during disaster response: an account of strategies for diffusion of the "Tweak the Tweet" syntax. In Crisis Information Management. Elsevier, 43-63. https://doi.org/10.1016/B978-1-84334-647-0.50003-5
63. Kate Starbird, Emma Spiro, Isabelle Edwards, Kaitlyn Zhou, Jim Maddock, and Sindhuja Narasimhan. 2016. Could This Be True?: I Think So! Expressed Uncertainty in Online Rumoring. In Proc. of CHI 2016, 360-371. https://doi.org/10.1145/2858036.2858551
64. P C Tang and C Newcomb. 1998. Informing patients: a guide for providing patient health information. Journal of the American Medical Informatics Association: JAMIA 5, 6: 563-570.
65. Kenton T. Unruh, Meredith Skeels, Andrea Civan-Hartzler, and Wanda Pratt. 2010. Transforming Clinic Environments into Information Workspaces for Patients. In Proc. of CHI 2010, 183-192. https://doi.org/10.1145/1753326.1753354
66. Sarah Vieweg, Amanda L. Hughes, Kate Starbird, and Leysia Palen. 2010. Microblogging during two natural hazards events. In Proc. of CHI 2010, 1079-1088. https://doi.org/10.1145/1753326.1753486
67. Sarah Vieweg, Leysia Palen, Sophia B. Liu, Amanda L. Hughes, and Jeannette Sutton. 2008. Collective Intelligence in Disaster: Examination of the Phenomenon in the Aftermath of the 2007 Virginia Tech Shooting. In Proc. of ISCRAM 2009.
68. R Villa. 2016. Zika, or the burden of uncertainty. La Clinica terapeutica 167, 1: 7-9.
69. World Health Organization. 2016. Zika virus and complications. Retrieved September 6, 2016 from http://www.who.int/emergencies/zika-virus/en/