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Volumn 53, Issue 9, 2018, Pages 1722-1726

Reality check: What happens when patients with anorectal malformations grow up? A pilot study of medical care transition from the adult patient perspective

Author keywords

Adolescents; Anorectal malformation; Congenital colorectal disease; Pediatric surgery; Transitional care

Indexed keywords

ADULT; ANORECTAL MALFORMATION; ARTICLE; BLADDER FUNCTION; CLINICAL ARTICLE; COHORT ANALYSIS; COMPARATIVE STUDY; CONTROLLED STUDY; FEMALE; FOLLOW UP; HEALTH SURVEY; HUMAN; INTESTINE FUNCTION; MALE; MEDICAL CARE; OSTOMY; OUTCOME ASSESSMENT; PATIENT EDUCATION; PATIENT SATISFACTION; PERSONAL EXPERIENCE; PILOT STUDY; PRIORITY JOURNAL; QUESTIONNAIRE; SOCIAL SUPPORT; TRANSITION TO ADULT CARE; ADOLESCENT; HEALTH CARE SURVEY; MASSACHUSETTS; RETROSPECTIVE STUDY; STATISTICS AND NUMERICAL DATA; YOUNG ADULT;

EID: 85044544448     PISSN: 00223468     EISSN: 15315037     Source Type: Journal    
DOI: 10.1016/j.jpedsurg.2018.02.057     Document Type: Article
Times cited : (12)

References (32)
  • 1
    • 84954157735 scopus 로고    scopus 로고
    • Children with congenital colorectal malformations often require special education or remedial teaching, despite normal intelligence
    • van den Hondel, D., Aarsen, F.K., Wijnen, R.M., et al. Children with congenital colorectal malformations often require special education or remedial teaching, despite normal intelligence. Acta Paediatr 105 (2016), 77–84.
    • (2016) Acta Paediatr , vol.105 , pp. 77-84
    • van den Hondel, D.1    Aarsen, F.K.2    Wijnen, R.M.3
  • 2
    • 84902970324 scopus 로고    scopus 로고
    • Bowel symptoms in children with anorectal malformation —a follow-up with a gender and age perspective
    • Stenström, P., Kockum, C.C., Emblem, R., et al. Bowel symptoms in children with anorectal malformation —a follow-up with a gender and age perspective. J Pediatr Surg 49 (2014), 1122–1130.
    • (2014) J Pediatr Surg , vol.49 , pp. 1122-1130
    • Stenström, P.1    Kockum, C.C.2    Emblem, R.3
  • 3
    • 77955560129 scopus 로고    scopus 로고
    • Anorectal malformations: what happens in adulthood?
    • Davies, M.C., Liao, L.M., Wilcox, D.T., et al. Anorectal malformations: what happens in adulthood?. BJU Int 106 (2010), 398–404.
    • (2010) BJU Int , vol.106 , pp. 398-404
    • Davies, M.C.1    Liao, L.M.2    Wilcox, D.T.3
  • 4
    • 84875205394 scopus 로고    scopus 로고
    • Anorectal malformation and associated end-stage renal disease: management from newborn to adult life
    • Giuliani, S., Midrio, P., De Filippo, R.E., et al. Anorectal malformation and associated end-stage renal disease: management from newborn to adult life. J Pediatr Surg 48 (2013), 635–641.
    • (2013) J Pediatr Surg , vol.48 , pp. 635-641
    • Giuliani, S.1    Midrio, P.2    De Filippo, R.E.3
  • 5
    • 84870656529 scopus 로고    scopus 로고
    • Anomalies associated with anorectal malformations according to the Krickenbeck anatomic classification
    • Nah, S.A., Ong, C.C., Lakshmi, N.K., et al. Anomalies associated with anorectal malformations according to the Krickenbeck anatomic classification. J Pediatr Surg 47 (2012), 2273–2278.
    • (2012) J Pediatr Surg , vol.47 , pp. 2273-2278
    • Nah, S.A.1    Ong, C.C.2    Lakshmi, N.K.3
  • 6
    • 84961918714 scopus 로고    scopus 로고
    • Transitions in pediatric gastroenterology: results of a national provider survey
    • Bensen, R., McKenzie, R.B., Fernandes, S.M., et al. Transitions in pediatric gastroenterology: results of a national provider survey. J Pediatr Gastroenterol Nutr 63 (2016), 488–493.
    • (2016) J Pediatr Gastroenterol Nutr , vol.63 , pp. 488-493
    • Bensen, R.1    McKenzie, R.B.2    Fernandes, S.M.3
  • 7
    • 84866016033 scopus 로고    scopus 로고
    • Postoperative complications in adults with anorectal malformation: a need for transition. German Network for Congenital Uro-REctal Malformations (CURE-Net)
    • Schmidt, D., Jenetzky, E., Zwink, N., et al. Postoperative complications in adults with anorectal malformation: a need for transition. German Network for Congenital Uro-REctal Malformations (CURE-Net). Pediatr Surg Int 28 (2012), 793–795.
    • (2012) Pediatr Surg Int , vol.28 , pp. 793-795
    • Schmidt, D.1    Jenetzky, E.2    Zwink, N.3
  • 8
    • 84904727643 scopus 로고    scopus 로고
    • Provider awareness alone does not improve transition readiness skills in adolescent patients with inflammatory bowel disease
    • Fishman, L.N., Ziniel, S.I., Adrichem, M.E., et al. Provider awareness alone does not improve transition readiness skills in adolescent patients with inflammatory bowel disease. JPGN 59 (2014), 221–224.
    • (2014) JPGN , vol.59 , pp. 221-224
    • Fishman, L.N.1    Ziniel, S.I.2    Adrichem, M.E.3
  • 9
    • 84911411090 scopus 로고    scopus 로고
    • Transitional care from pediatric to adult surgery
    • Naiditch, J.A., Rothstein, D.H., Transitional care from pediatric to adult surgery. JAMA Surg 149 (2014), 1099–1100.
    • (2014) JAMA Surg , vol.149 , pp. 1099-1100
    • Naiditch, J.A.1    Rothstein, D.H.2
  • 10
    • 68449088801 scopus 로고    scopus 로고
    • Attitude toward and current practice of transfer and transition of adolescents with congenital heart disease in the United States of America and Europe
    • Hilderson, D., Saidi, A.S., van Deyk, K., et al. Attitude toward and current practice of transfer and transition of adolescents with congenital heart disease in the United States of America and Europe. Pediatr Cardiol 30 (2009), 786–793.
    • (2009) Pediatr Cardiol , vol.30 , pp. 786-793
    • Hilderson, D.1    Saidi, A.S.2    van Deyk, K.3
  • 11
    • 84973560489 scopus 로고    scopus 로고
    • Are expectations too high for transitioning adolescents with inflammatory bowel disease? Examining adult medication knowledge and self-management skills
    • Fishman, L.N., Mitchell, P.D., Lakin, P.R., et al. Are expectations too high for transitioning adolescents with inflammatory bowel disease? Examining adult medication knowledge and self-management skills. J Pediatr Gastroenterol Nutr 63 (2016), 494–499.
    • (2016) J Pediatr Gastroenterol Nutr , vol.63 , pp. 494-499
    • Fishman, L.N.1    Mitchell, P.D.2    Lakin, P.R.3
  • 12
    • 80052770760 scopus 로고    scopus 로고
    • Transition of care to an adult spina bifida clinic: Patient perspectives and medical outcomes
    • Cox, A., Breau, L., Connor, L., et al. Transition of care to an adult spina bifida clinic: Patient perspectives and medical outcomes. J Urol 186 (2011), 1590–1594.
    • (2011) J Urol , vol.186 , pp. 1590-1594
    • Cox, A.1    Breau, L.2    Connor, L.3
  • 13
    • 84964669871 scopus 로고    scopus 로고
    • Long term follow-up and transition of care in anorectal malformations: an international survey
    • Giuliani, S., Decker, E., Leva, E., et al. Long term follow-up and transition of care in anorectal malformations: an international survey. J Pediatr Surg 51 (2016), 1450–1457.
    • (2016) J Pediatr Surg , vol.51 , pp. 1450-1457
    • Giuliani, S.1    Decker, E.2    Leva, E.3
  • 14
    • 85007048738 scopus 로고    scopus 로고
    • Outcome in adults with anorectal malformations in relation to modern classification — which patients do we need to follow beyond childhood?
    • Danielson, J., Karlbom, U., Graf, W., et al. Outcome in adults with anorectal malformations in relation to modern classification — which patients do we need to follow beyond childhood?. J Pediatr Surg 52 (2017), 463–468.
    • (2017) J Pediatr Surg , vol.52 , pp. 463-468
    • Danielson, J.1    Karlbom, U.2    Graf, W.3
  • 15
    • 84879521734 scopus 로고    scopus 로고
    • The impact of anorectal malformations on anorectal function and social integration in adulthood: report from a national database
    • Mantoo, S., Meurette, G., Wyart, V., et al. The impact of anorectal malformations on anorectal function and social integration in adulthood: report from a national database. Colorectal Dis 15 (2013), 330–335.
    • (2013) Colorectal Dis , vol.15 , pp. 330-335
    • Mantoo, S.1    Meurette, G.2    Wyart, V.3
  • 17
    • 33645352625 scopus 로고    scopus 로고
    • Young adult patients with a history of pediatric disease: impact on course of life and transition into adulthood
    • Stam, H., Hartman, E.E., Deurloo, J.A., et al. Young adult patients with a history of pediatric disease: impact on course of life and transition into adulthood. J Adolesc Health 39 (2006), 4–13.
    • (2006) J Adolesc Health , vol.39 , pp. 4-13
    • Stam, H.1    Hartman, E.E.2    Deurloo, J.A.3
  • 18
    • 84962349423 scopus 로고    scopus 로고
    • International and interdisciplinary identification of health care transition outcomes
    • Fair, C., Cuttance, J., Sharma, N., et al. International and interdisciplinary identification of health care transition outcomes. JAMA Pediatr 170 (2016), 205–211.
    • (2016) JAMA Pediatr , vol.170 , pp. 205-211
    • Fair, C.1    Cuttance, J.2    Sharma, N.3
  • 19
    • 84885231274 scopus 로고    scopus 로고
    • Adolescent health care transition in transition
    • Cooley, W.C., Adolescent health care transition in transition. JAMA Pediatr 167 (2013), 897–899.
    • (2013) JAMA Pediatr , vol.167 , pp. 897-899
    • Cooley, W.C.1
  • 21
    • 84964285318 scopus 로고    scopus 로고
    • Transition of care in pediatric surgical patients with complex gastrointestinal disease
    • Muise, E.D., Cowles, R.A., Transition of care in pediatric surgical patients with complex gastrointestinal disease. Semin Pediatr Surg 24 (2015), 65–68.
    • (2015) Semin Pediatr Surg , vol.24 , pp. 65-68
    • Muise, E.D.1    Cowles, R.A.2
  • 22
    • 84952316046 scopus 로고    scopus 로고
    • Passing the baton: the pediatric surgical perspective on transition
    • Durkin, E.T., Zurakowski, D., Rangel, S.J., et al. Passing the baton: the pediatric surgical perspective on transition. J Pediatr Surg 50 (2015), 1196–1200.
    • (2015) J Pediatr Surg , vol.50 , pp. 1196-1200
    • Durkin, E.T.1    Zurakowski, D.2    Rangel, S.J.3
  • 23
    • 62049084378 scopus 로고    scopus 로고
    • Research electronic data capture (REDCap) — a metadata-driven methodology and workflow process for providing translational research informatics support
    • Harris, P.A., Taylor, R., Thielke, R., et al. Research electronic data capture (REDCap) — a metadata-driven methodology and workflow process for providing translational research informatics support. J Biomed Inform 42 (2009), 377–381.
    • (2009) J Biomed Inform , vol.42 , pp. 377-381
    • Harris, P.A.1    Taylor, R.2    Thielke, R.3
  • 24
    • 84930416432 scopus 로고    scopus 로고
    • Assessment of the introduction of an adolescent transition urology clinic using a validated questionnaire
    • Shalaby, M.S., Gibson, A., Granitsiotis, P., et al. Assessment of the introduction of an adolescent transition urology clinic using a validated questionnaire. J Pediatr Urol 11 (2015), 1–5.
    • (2015) J Pediatr Urol , vol.11 , pp. 1-5
    • Shalaby, M.S.1    Gibson, A.2    Granitsiotis, P.3
  • 26
    • 85051923222 scopus 로고    scopus 로고
    • Pediatric to adult diabetes care: transition planning checklist
    • Available at: (Accessed 5 May 2017)
    • National Institute of Diabetes and Digestive and Kidney Disease, Pediatric to adult diabetes care: transition planning checklist. Available at: https://www.niddk.nih.gov/health-information/healthcommunication-programs/ndep/living-with-diabetes/youth-teens/transition-adult-health-care/planningchecklist/Pages/planningchecklist.aspx, 2017. (Accessed 5 May 2017)
    • (2017)
    • National Institute of Diabetes and Digestive and Kidney Disease1
  • 27
    • 63649117764 scopus 로고    scopus 로고
    • Transition of adolescents with inflammatory bowel disease from pediatric to adult care: a survey of adult gastroenterologists
    • Hait, E.J., Barendse, R.M., Arnold, J.H., et al. Transition of adolescents with inflammatory bowel disease from pediatric to adult care: a survey of adult gastroenterologists. J Pediatr Gastroenterol Nutr 48 (2009), 61–65.
    • (2009) J Pediatr Gastroenterol Nutr , vol.48 , pp. 61-65
    • Hait, E.J.1    Barendse, R.M.2    Arnold, J.H.3
  • 28
    • 80054768374 scopus 로고    scopus 로고
    • A social–ecological model of readiness for transition to adult-oriented care for adolescents and young adults with chronic health conditions
    • Schwartz, L.A., Tuchman, L.K., Hobbie, W.L., et al. A social–ecological model of readiness for transition to adult-oriented care for adolescents and young adults with chronic health conditions. Child Care Health Dev 37 (2011), 883–895.
    • (2011) Child Care Health Dev , vol.37 , pp. 883-895
    • Schwartz, L.A.1    Tuchman, L.K.2    Hobbie, W.L.3
  • 29
    • 70349562977 scopus 로고    scopus 로고
    • Transition to adult health care for adolescents and young adults with congenital heart disease: perspectives of the patient, parent and health care provider
    • Clarizia, N.A., Chahal, N., Manlhiot, C., et al. Transition to adult health care for adolescents and young adults with congenital heart disease: perspectives of the patient, parent and health care provider. Can J Cardiol 25 (2009), 317–322.
    • (2009) Can J Cardiol , vol.25 , pp. 317-322
    • Clarizia, N.A.1    Chahal, N.2    Manlhiot, C.3
  • 30
    • 79959765568 scopus 로고    scopus 로고
    • Transition from pediatric to adult health care: expectations of adolescents with chronic disorders and their parents
    • Rutishauser, C., Akré C., Surìs, J.C., Transition from pediatric to adult health care: expectations of adolescents with chronic disorders and their parents. Eur J Pediatr 170 (2011), 865–871.
    • (2011) Eur J Pediatr , vol.170 , pp. 865-871
    • Rutishauser, C.1    Akré, C.2    Surìs, J.C.3
  • 31
    • 84902327536 scopus 로고    scopus 로고
    • Transition and transfer of adolescents and young adults with pediatric onset chronic disease: the patient and parent perspective
    • Fernandes, S.M., O'Sullivan-Oliveira, J., Landzberg, M.J., et al. Transition and transfer of adolescents and young adults with pediatric onset chronic disease: the patient and parent perspective. J Pediatr Rehabil Med 7 (2014), 43–51.
    • (2014) J Pediatr Rehabil Med , vol.7 , pp. 43-51
    • Fernandes, S.M.1    O'Sullivan-Oliveira, J.2    Landzberg, M.J.3
  • 32
    • 49349112888 scopus 로고    scopus 로고
    • Transition to adult care: experiences and expectations of adolescents with a chronic illness
    • Tuchman, L.K., Slap, G.B., Britto, M.T., Transition to adult care: experiences and expectations of adolescents with a chronic illness. Child Care Health Dev 34 (2008), 557–563.
    • (2008) Child Care Health Dev , vol.34 , pp. 557-563
    • Tuchman, L.K.1    Slap, G.B.2    Britto, M.T.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.