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Volumn 13, Issue 2, 2018, Pages 319-326

Quality of life and sexual well-being in patients with a Fontan circulation: An explorative pilot study with a mixed method design

Author keywords

congenital heart disease; Fontan physiology; quality of life; sexual functioning; special populations

Indexed keywords

ADULT; ARTICLE; BULLYING; CLINICAL ARTICLE; CROSS-SECTIONAL STUDY; DYSPAREUNIA; ERECTILE DYSFUNCTION; FEMALE; FONTAN PROCEDURE; HUMAN; MALE; NETHERLANDS; PILOT STUDY; PREGNANCY; PRIORITY JOURNAL; QUALITY OF LIFE; SELF ESTEEM; SEMI STRUCTURED INTERVIEW; SEXUAL FUNCTION; SEXUAL INTERCOURSE; SEXUAL SATISFACTION; SEXUAL WELLBEING; SOCIAL ISOLATION; WELLBEING; ADOLESCENT; CHILD; CONGENITAL HEART MALFORMATION; HEALTH STATUS; MIDDLE AGED; PATHOPHYSIOLOGY; POSTOPERATIVE PERIOD; PSYCHOLOGY; QUESTIONNAIRE; SEXUAL BEHAVIOR; YOUNG ADULT;

EID: 85043585066     PISSN: 1747079X     EISSN: 17470803     Source Type: Journal    
DOI: 10.1111/chd.12576     Document Type: Article
Times cited : (8)

References (39)
  • 1
    • 0015060609 scopus 로고
    • Surgical repair of tricuspid atresia
    • Fontan F, Baudet E. Surgical repair of tricuspid atresia. Thorax. 1971;26(3):240–248.
    • (1971) Thorax. , vol.26 , Issue.3 , pp. 240-248
    • Fontan, F.1    Baudet, E.2
  • 3
    • 20044378182 scopus 로고    scopus 로고
    • The Fontan circulation
    • Gewillig M. The Fontan circulation. Heart. 2005;91(6):839–846.
    • (2005) Heart. , vol.91 , Issue.6 , pp. 839-846
    • Gewillig, M.1
  • 4
    • 33744986238 scopus 로고    scopus 로고
    • Cardiac rest and reserve function in patients with a Fontan circulation
    • Senzaki H, Masutani S, Ishido H, et al. Cardiac rest and reserve function in patients with a Fontan circulation. JACC. 2006;47(12):2528–2535.,
    • (2006) JACC. , vol.47 , Issue.12 , pp. 2528-2535
    • Senzaki, H.1    Masutani, S.2    Ishido, H.3
  • 5
    • 84896464711 scopus 로고    scopus 로고
    • Trends in mortality (1975–2011) after one- and two-stage Fontan surgery, including bidirectional Glenn through Fontan completion
    • Wolff D, van Melle JP, Ebels T, Hillege H, van Slooten YJ, Berger RM. Trends in mortality (1975–2011) after one- and two-stage Fontan surgery, including bidirectional Glenn through Fontan completion. Eur J Cardiothorac Surg. 2014;45(4):602–609.
    • (2014) Eur J Cardiothorac Surg. , vol.45 , Issue.4 , pp. 602-609
    • Wolff, D.1    van Melle, J.P.2    Ebels, T.3    Hillege, H.4    van Slooten, Y.J.5    Berger, R.M.6
  • 6
    • 78650389666 scopus 로고    scopus 로고
    • Predictors of morbidity and mortality in contemporary Fontan patients: results from a multicenter study including cardiopulmonary exercise testing in 321 patients
    • Diller GP, Giardini A, Dimopoulos K, et al. Predictors of morbidity and mortality in contemporary Fontan patients: results from a multicenter study including cardiopulmonary exercise testing in 321 patients. Eur Heart J. 2010;31(24):3073–3083.
    • (2010) Eur Heart J. , vol.31 , Issue.24 , pp. 3073-3083
    • Diller, G.P.1    Giardini, A.2    Dimopoulos, K.3
  • 7
    • 84958630171 scopus 로고    scopus 로고
    • Comprehensive rhythm evaluation in a large contemporary Fontan populationdagger
    • Bossers SS, Duppen N, Kapusta L, et al. Comprehensive rhythm evaluation in a large contemporary Fontan populationdagger. Eur J Cardiothorac Surg. 2015;48(6):833–841.
    • (2015) Eur J Cardiothorac Surg. , vol.48 , Issue.6 , pp. 833-841
    • Bossers, S.S.1    Duppen, N.2    Kapusta, L.3
  • 8
    • 49349086353 scopus 로고    scopus 로고
    • Depression and social functioning in preschool children with chronic medical conditions
    • Curtis CE, Luby JL. Depression and social functioning in preschool children with chronic medical conditions. J Pediatr. 2008;153(3):408–413.
    • (2008) J Pediatr. , vol.153 , Issue.3 , pp. 408-413
    • Curtis, C.E.1    Luby, J.L.2
  • 9
    • 33645314424 scopus 로고    scopus 로고
    • Relationship of patient and medical characteristics to health status in children and adolescents after the Fontan procedure
    • McCrindle BW, Williams RV, Mitchell PD, et al. Relationship of patient and medical characteristics to health status in children and adolescents after the Fontan procedure. Circulation. 2006;113(8):1123–1129.
    • (2006) Circulation. , vol.113 , Issue.8 , pp. 1123-1129
    • McCrindle, B.W.1    Williams, R.V.2    Mitchell, P.D.3
  • 10
    • 71949128398 scopus 로고    scopus 로고
    • How good is a good Fontan? Quality of life and exercise capacity of Fontans without arrhythmias
    • d'Udekem Y, Cheung MM, Setyapranata S, et al. How good is a good Fontan? Quality of life and exercise capacity of Fontans without arrhythmias. Ann Thorac Surg. 2009;88(6):1961–1969.
    • (2009) Ann Thorac Surg. , vol.88 , Issue.6 , pp. 1961-1969
    • d'Udekem, Y.1    Cheung, M.M.2    Setyapranata, S.3
  • 11
    • 84925279225 scopus 로고    scopus 로고
    • Lifetime prevalence of sexual intercourse and contraception use at last sex among adolescents and young adults with congenital heart disease
    • Fry KM, Gerhardt CA, Ash J, et al. Lifetime prevalence of sexual intercourse and contraception use at last sex among adolescents and young adults with congenital heart disease. J Adolesc Health. 2015;56(4):396–401.
    • (2015) J Adolesc Health. , vol.56 , Issue.4 , pp. 396-401
    • Fry, K.M.1    Gerhardt, C.A.2    Ash, J.3
  • 12
    • 84886298567 scopus 로고    scopus 로고
    • Sexual functioning is impaired in adults with congenital heart disease
    • Opic P, Roos-Hesselink JW, Cuypers JA, et al. Sexual functioning is impaired in adults with congenital heart disease. Int J Cardiol. 2013;168(4):3872–3877.
    • (2013) Int J Cardiol. , vol.168 , Issue.4 , pp. 3872-3877
    • Opic, P.1    Roos-Hesselink, J.W.2    Cuypers, J.A.3
  • 13
    • 27744568867 scopus 로고    scopus 로고
    • Contractility-afterload mismatch after the Fontan operation
    • Szabo G, Bahrle S. Contractility-afterload mismatch after the Fontan operation. Cardiol Young. 2005;15(suppl 3):35–38.
    • (2005) Cardiol Young. , vol.15 , pp. 35-38
    • Szabo, G.1    Bahrle, S.2
  • 14
    • 48449088012 scopus 로고    scopus 로고
    • Menstrual cycle and its disorders in women with congenital heart disease
    • Drenthen W, Hoendermis ES, Moons P, et al. Menstrual cycle and its disorders in women with congenital heart disease. Congenit Heart Dis. 2008;3(4):277–283.
    • (2008) Congenit Heart Dis. , vol.3 , Issue.4 , pp. 277-283
    • Drenthen, W.1    Hoendermis, E.S.2    Moons, P.3
  • 15
    • 85045447583 scopus 로고    scopus 로고
    • Het meten van de algemene gezondheidstoestand met de RAND-36, een handleiding. Tweede herziene druk UMCG/Rijksuniversiteit Groningen, Research Institute SHARE
    • Zee KI V D, Sanderman R. Het meten van de algemene gezondheidstoestand met de RAND-36, een handleiding. Tweede herziene druk: UMCG/Rijksuniversiteit Groningen, Research Institute SHARE 2012.
    • (2012)
    • Zee, K.I.V.D.1    Sanderman, R.2
  • 16
    • 0000592120 scopus 로고    scopus 로고
    • Psychometric qualities of the RAND 36-Item Health Survey 1.0: a multidimensional measure of general health status
    • VanderZee KI, Sanderman R, Heyink JW, de Haes H. Psychometric qualities of the RAND 36-Item Health Survey 1.0: a multidimensional measure of general health status. Int J Behav Med. 1996;3(2):104–122.
    • (1996) Int J Behav Med. , vol.3 , Issue.2 , pp. 104-122
    • VanderZee, K.I.1    Sanderman, R.2    Heyink, J.W.3    de Haes, H.4
  • 17
    • 0022515873 scopus 로고
    • The GRISS: a psychometric instrument for the assessment of sexual dysfunction
    • Rust J, Golombok S. The GRISS: a psychometric instrument for the assessment of sexual dysfunction. Arch Sex Behav. 1986;15(2):157–165.
    • (1986) Arch Sex Behav. , vol.15 , Issue.2 , pp. 157-165
    • Rust, J.1    Golombok, S.2
  • 18
    • 0032938532 scopus 로고    scopus 로고
    • The Golombok Rust Inventory of Sexual Satisfaction (GRISS): psychometric properties within a Dutch population
    • ter Kuile MM, van Lankveld JJ, Kalkhoven P, van Egmond M. The Golombok Rust Inventory of Sexual Satisfaction (GRISS): psychometric properties within a Dutch population. J Sex Marital Ther. 1999;25(1):59–71.
    • (1999) J Sex Marital Ther. , vol.25 , Issue.1 , pp. 59-71
    • ter Kuile, M.M.1    van Lankveld, J.J.2    Kalkhoven, P.3    van Egmond, M.4
  • 19
    • 33748040744 scopus 로고    scopus 로고
    • ZAHARA investigators. Pregnancy and delivery in women after Fontan palliation
    • Drenthen W, Pieper PG, Roos-Hesselink JW, et al. ZAHARA investigators. Pregnancy and delivery in women after Fontan palliation. Heart. 2006;92(9):1290–1294.
    • (2006) Heart. , vol.92 , Issue.9 , pp. 1290-1294
    • Drenthen, W.1    Pieper, P.G.2    Roos-Hesselink, J.W.3
  • 20
    • 85015613390 scopus 로고    scopus 로고
    • School-related adjustment in children and adolescents with CHD
    • Im Y, Lee S, Yun T, Choi JY. School-related adjustment in children and adolescents with CHD. Cardiol Young. 2017;27:1349–1355.
    • (2017) Cardiol Young. , vol.27 , pp. 1349-1355
    • Im, Y.1    Lee, S.2    Yun, T.3    Choi, J.Y.4
  • 21
    • 0029881382 scopus 로고    scopus 로고
    • Behavioral adjustment of children with surgically palliated complex congenital heart disease
    • Casey FA, Sykes DH, Craig BG, Power R, Mulholland HC. Behavioral adjustment of children with surgically palliated complex congenital heart disease. J Pediatr Psychol. 1996;21(3):335–352.
    • (1996) J Pediatr Psychol. , vol.21 , Issue.3 , pp. 335-352
    • Casey, F.A.1    Sykes, D.H.2    Craig, B.G.3    Power, R.4    Mulholland, H.C.5
  • 22
    • 0025727151 scopus 로고
    • Long-term psychologic implications of congenital heart disease: a 25-year follow-up
    • Brandhagen DJ, Feldt RH, Williams DE. Long-term psychologic implications of congenital heart disease: a 25-year follow-up. Mayo Clin Proc. 1991;66(5):474–479.
    • (1991) Mayo Clin Proc. , vol.66 , Issue.5 , pp. 474-479
    • Brandhagen, D.J.1    Feldt, R.H.2    Williams, D.E.3
  • 23
    • 84865982291 scopus 로고    scopus 로고
    • The life experiences of Korean children and adolescents with complex congenital heart disease: a qualitative study
    • Lee S, Kim SS. The life experiences of Korean children and adolescents with complex congenital heart disease: a qualitative study. Nurs Health Sci. 2012;14(3):398–404.
    • (2012) Nurs Health Sci. , vol.14 , Issue.3 , pp. 398-404
    • Lee, S.1    Kim, S.S.2
  • 24
    • 77955760834 scopus 로고    scopus 로고
    • Are adolescents with chronic conditions particularly at risk for bullying?
    • Pittet I, Berchtold A, Akre C, Michaud PA, Suris JC. Are adolescents with chronic conditions particularly at risk for bullying?. Arch Dis Child. 2010;95(9):711–716.
    • (2010) Arch Dis Child. , vol.95 , Issue.9 , pp. 711-716
    • Pittet, I.1    Berchtold, A.2    Akre, C.3    Michaud, P.A.4    Suris, J.C.5
  • 25
    • 84901829032 scopus 로고    scopus 로고
    • Children's experiences of cystic fibrosis: a systematic review of qualitative studies
    • Jamieson N, Fitzgerald D, Singh-Grewal D, Hanson CS, Craig JC, Tong A. Children's experiences of cystic fibrosis: a systematic review of qualitative studies. Pediatrics. 2014;133(6):e1683–e1697.
    • (2014) Pediatrics. , vol.133 , Issue.6 , pp. e1683-e1697
    • Jamieson, N.1    Fitzgerald, D.2    Singh-Grewal, D.3    Hanson, C.S.4    Craig, J.C.5    Tong, A.6
  • 26
    • 84990240426 scopus 로고    scopus 로고
    • An integrated adult congenital heart disease psychology service
    • Ferguson M, Kovacs AH. An integrated adult congenital heart disease psychology service. Congenit Heart Dis. 2016;11(5):444–451.
    • (2016) Congenit Heart Dis. , vol.11 , Issue.5 , pp. 444-451
    • Ferguson, M.1    Kovacs, A.H.2
  • 27
    • 77957753970 scopus 로고    scopus 로고
    • Sexuality in adult patients with congenital heart disease and their partners
    • 1168.e1–8.
    • Winter MM, Reisma C, Kedde H, et al. Sexuality in adult patients with congenital heart disease and their partners. Am J Cardiol. 2010;106(8):1163–1168. 1168.e1–8.
    • (2010) Am J Cardiol. , vol.106 , Issue.8 , pp. 1163-1168
    • Winter, M.M.1    Reisma, C.2    Kedde, H.3
  • 28
    • 67650085882 scopus 로고    scopus 로고
    • Sexuality and subjective well-being in male patients with congenital heart disease
    • Vigl M, Hager A, Bauer U, et al. Sexuality and subjective well-being in male patients with congenital heart disease. Heart. 2009;95(14):1179–1183.
    • (2009) Heart. , vol.95 , Issue.14 , pp. 1179-1183
    • Vigl, M.1    Hager, A.2    Bauer, U.3
  • 30
    • 85006967410 scopus 로고    scopus 로고
    • The prevalence of sexual dysfunction and its association with quality of life in adults with congenital heart disease
    • Neiman A, Ginde S, Earing MG, Bartz PJ, Cohen S. The prevalence of sexual dysfunction and its association with quality of life in adults with congenital heart disease. Int J Cardiol. 2017;228:953–957.
    • (2017) Int J Cardiol. , vol.228 , pp. 953-957
    • Neiman, A.1    Ginde, S.2    Earing, M.G.3    Bartz, P.J.4    Cohen, S.5
  • 31
    • 84881477518 scopus 로고    scopus 로고
    • Sympathetic and vascular dysfunction in adult patients with Fontan circulation
    • Lambert E, D'udekem Y, Cheung M, et al. Sympathetic and vascular dysfunction in adult patients with Fontan circulation. Int J Cardiol. 2013;167(4):1333–1338.
    • (2013) Int J Cardiol. , vol.167 , Issue.4 , pp. 1333-1338
    • Lambert, E.1    D'udekem, Y.2    Cheung, M.3
  • 32
    • 79960350170 scopus 로고    scopus 로고
    • Usefulness of peripheral vascular function to predict functional health status in patients with Fontan circulation
    • Goldstein BH, Golbus JR, Sandelin AM, et al. Usefulness of peripheral vascular function to predict functional health status in patients with Fontan circulation. Am J Cardiol. 2011;108(3):428–434.
    • (2011) Am J Cardiol. , vol.108 , Issue.3 , pp. 428-434
    • Goldstein, B.H.1    Golbus, J.R.2    Sandelin, A.M.3
  • 33
    • 75649133513 scopus 로고    scopus 로고
    • Sexuality and reproductive health in women with congenital heart disease
    • Vigl M, Kaemmerer M, Niggemeyer E, et al. Sexuality and reproductive health in women with congenital heart disease. Am J Cardiol. 2010;105(4):538–541.
    • (2010) Am J Cardiol. , vol.105 , Issue.4 , pp. 538-541
    • Vigl, M.1    Kaemmerer, M.2    Niggemeyer, E.3
  • 34
    • 40949154765 scopus 로고    scopus 로고
    • Sexual behavior and reproductive concerns among adolescents and young adults with congenital heart disease
    • Reid GJ, Siu SC, McCrindle BW, Irvine MJ, Webb GD. Sexual behavior and reproductive concerns among adolescents and young adults with congenital heart disease. Int J Cardiol. 2008;125(3):332–338.
    • (2008) Int J Cardiol. , vol.125 , Issue.3 , pp. 332-338
    • Reid, G.J.1    Siu, S.C.2    McCrindle, B.W.3    Irvine, M.J.4    Webb, G.D.5
  • 36
    • 77950963615 scopus 로고    scopus 로고
    • ACC/AHA 2008 guidelines for the management of adults with congenital heart disease: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (Writing Committee to Develop Guidelines for the Management of Adults With Congenital Heart Disease)
    • Warnes CA, Williams RG, Bashore TM, et al. ACC/AHA 2008 guidelines for the management of adults with congenital heart disease: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (Writing Committee to Develop Guidelines for the Management of Adults With Congenital Heart Disease). J Am Coll Cardiol. 2008;52:e143–e263.
    • (2008) J Am Coll Cardiol. , vol.52 , pp. e143-e263
    • Warnes, C.A.1    Williams, R.G.2    Bashore, T.M.3
  • 37
    • 84882270007 scopus 로고    scopus 로고
    • Communicating about sexual concerns within cardiac health services: do service providers and service users agree?
    • Byrne M, Doherty S, Murphy A, McGee H, Jaarsma T. Communicating about sexual concerns within cardiac health services: do service providers and service users agree?. Patient Educ Couns. 2013;92(3):398–403.
    • (2013) Patient Educ Couns. , vol.92 , Issue.3 , pp. 398-403
    • Byrne, M.1    Doherty, S.2    Murphy, A.3    McGee, H.4    Jaarsma, T.5
  • 38
    • 84886311203 scopus 로고    scopus 로고
    • on behalf of the Council on Cardiovascular and Stroke Nursing of the American Heart Association and the ESC Council on Cardiovascular Nursing and Allied Professions (CCNAP). Sexual counseling for individuals with cardiovascular disease and their partners: a consensus document from the American Heart Association and the ESC Council on Cardiovascular Nursing and Allied Professions (CCNAP)
    • Steinke EE, Jaarsma T, Barnason SA, et al. on behalf of the Council on Cardiovascular and Stroke Nursing of the American Heart Association and the ESC Council on Cardiovascular Nursing and Allied Professions (CCNAP). Sexual counseling for individuals with cardiovascular disease and their partners: a consensus document from the American Heart Association and the ESC Council on Cardiovascular Nursing and Allied Professions (CCNAP). Circulation. 2013;128(18):2075–2096.
    • (2013) Circulation. , vol.128 , Issue.18 , pp. 2075-2096
    • Steinke, E.E.1    Jaarsma, T.2    Barnason, S.A.3
  • 39
    • 84857995361 scopus 로고    scopus 로고
    • on behalf of the American Heart Association Council on Clinical Cardiology, Council on Cardiovascular Nursing, Council on Cardiovascular Surgery and Anesthesia, and Council on Quality of Care and Outcomes Research. Sexual activity and cardiovascular disease: a scientific statement from the American Heart Association
    • Levine GN, Steinke EE, Bakaeen FG, et al. on behalf of the American Heart Association Council on Clinical Cardiology, Council on Cardiovascular Nursing, Council on Cardiovascular Surgery and Anesthesia, and Council on Quality of Care and Outcomes Research. Sexual activity and cardiovascular disease: a scientific statement from the American Heart Association. Circulation. 2012;125(8):1058–1072.
    • (2012) Circulation. , vol.125 , Issue.8 , pp. 1058-1072
    • Levine, G.N.1    Steinke, E.E.2    Bakaeen, F.G.3


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