Sharing health big data for research - A design by use cases: The INSHARE platform approach

Studies in Health Technology and Informatics

Volumn 245, Issue , 2017, Pages 303-307

  Bouzillé, Guillaume ^a,b,c,d   Westerlynck, Richard ^d,k   Defossez, Gautier ^f   Bouslimi, Dalel ^g,h   Bayat, Sahar ⁱ   Riou, Christine ^a,b,d   Busnel, Yann ^j   Le Guillou, Clara ^h   Cauvin, Jean Michel ^h   Jacquelinet, Christian ^j   Pladys, Patrick ^c   Oger, Emmanuel ^e   Stindel, Eric ^h   Ingrand, Pierre ^f   Coatrieux, Gouenou ^g,h   Cuggia, Marc ^a,b,c,d  

^a UNIVERSITÉ DE RENNES 1   (France)

^b UNIVERSITÉ DE RENNES 1   (France)

^c UNIVERSITÉ DE RENNES 1   (France)

^d Centre de Données Clinique   (France)

^e RENNES UNIVERSITY HOSPITAL   (France)

^f Registre Général des Cancers de la Région Poitou Charentes   (France)

^g ECOLE DES MINES DE NANTES   (France)

^h Universite de Bretagne Occidentale   (France)

ⁱ University Sorbonne Paris Cite   (France)

^j Service de Biostatistique Direction Prélèvement Greffe Organes Tissus   (France)

^k CREST   (France)

more..

Author keywords

Information dissemination; Information storage and retrieval; Registries

Indexed keywords

BIG DATA; DATA VISUALIZATION; DIGITAL STORAGE; HEALTH CARE; INFORMATION DISSEMINATION; INFORMATION MANAGEMENT; MEDICAL INFORMATICS; PRIVACY BY DESIGN; PROFESSIONAL ASPECTS; SEMANTICS;

HETEROGENEOUS DATA; INFORMATION STORAGE AND RETRIEVAL; INTEGRITY MONITORING; MANAGEMENT SERVICE; PLATFORM APPROACH; PLATFORM ARCHITECTURE; REGISTRIES; SEMANTIC INTEGRATION;

DATA SHARING;

HUMAN; INFORMATION DISSEMINATION; INFORMATION RETRIEVAL; MONITORING; REGISTER; COMPUTER SECURITY; COMPUTER SYSTEM; RESEARCH;

COMPUTER SECURITY; COMPUTER SYSTEMS; HUMANS; INFORMATION DISSEMINATION; INFORMATION STORAGE AND RETRIEVAL; RESEARCH;

EID: 85040520796     PISSN: 09269630     EISSN: 18798365     Source Type: Book Series    
DOI: 10.3233/978-1-61499-830-3-303     Document Type: Conference Paper

References (11)

1. W. Raghupathi and V. Raghupathi, Big data analytics in healthcare: promise and potential, Health Inf Sci Syst, 2(1) (2014), 3.
2. Patient-Centered Outcomes Research Institute (PCORI), PCORnet | National Patient-Centered Clinical Research Network. [Online]. Available: http://www.pcornet.org/. [Accessed: 23-Apr-2015].
3. M. D. Natter, J. Quan, D.M. Ortiz et al., An i2b2-based, generalizable, open source, self-scaling chronic disease registry, JAMIA, 20(1) (2013), 172-179.
4. P. B. Jensen, L. J. Jensen, and S. Brunak, Mining electronic health records: towards better research applications and clinical care, Nat Rev Genet, 13(6) (2012), 395-405.
5. J. Peto, O. Fletcher, and C. Gilham, Data protection, informed consent, and research, BMJ, 328(7447) (2004), 1029-1030.
6. N. Sethi and G. T. Laurie, Delivering proportionate governance in the era of eHealth, Med Law Int, 13(2-3) (2013), 168-204.
7. M. Goldman, The Innovative Medicines Initiative: a European response to the innovation challenge, Clin Pharmacol. Ther, 91(3) (2012), 418-425.
8. J. Franco-Contreras and G. Coatrieux, Robust watermarking of relational databases with ontology-guided distortion control, IEEE Trans. Inf. Forensics Secur, 10(9) (2015), 1939-1952.
9. C. Couchoud, B. Stengel, P. Landais et al., The renal epidemiology and information network (REIN): a new registry for end-stage renal disease in France, Nephrol Dial Transplant, 21(2) (2006), 411-418.
10. G. Bouzillé, E. Sylvestre, B. Campillo-Gimenez et al., An integrated workflow for secondary use of patient data for clinical research, Stud Health Technol Inform, 216, (2014), 913.
11. D. Bouslimi and G. Coatrieux, A crypto-watermarking system for ensuring reliability control and traceability of medical images, Signal Process Image Commun, 47, (2016), 160-169.