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Volumn 1031, Issue , 2017, Pages 561-587
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The European Union policy in the field of rare diseases
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Author keywords
Commission communication; Council recommendation; Directive on cross border healthcare; European policies; European reference networks; European union; Rare diseases definition
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Indexed keywords
ORPHAN DRUG;
CLINICAL PRACTICE;
DIAGNOSTIC ERROR;
DIAGNOSTIC PROCEDURE;
DISEASE CLASSIFICATION;
DISEASE REGISTRY;
DISEASE SEVERITY;
DISEASE SURVEILLANCE;
DRUG DESIGN;
DRUG LEGISLATION;
DRUG MANUFACTURE;
EMPOWERMENT;
EUROPEAN UNION;
GOVERNMENT;
HEALTH CARE PERSONNEL;
HEALTH CARE PLANNING;
HEALTH CARE POLICY;
HEALTH CARE QUALITY;
HEALTH PROGRAM;
HEALTH SERVICE;
HUMAN;
HUMAN RIGHTS;
MEDICAL DECISION MAKING;
MEDICAL DOCUMENTATION;
MEDICATION ERROR;
NATIONAL HEALTH ORGANIZATION;
PATIENT EDUCATION;
PATIENT MOBILITY;
PATIENT PARTICIPATION;
PATIENT RIGHT;
POTENTIALLY INAPPROPRIATE MEDICATION;
PRACTICE GUIDELINE;
PRIORITY JOURNAL;
PROPHYLAXIS;
RARE DISEASE;
REHABILITATION CARE;
SELF CONCEPT;
SOCIAL CONTROL;
SOCIAL SUPPORT;
SOCIAL WORK;
EUROPE;
FACTUAL DATABASE;
GLOBAL HEALTH;
GOVERNMENT REGULATION;
LEGISLATION AND JURISPRUDENCE;
MANAGEMENT;
MEDICAL RESEARCH;
PREVALENCE;
REGISTER;
BIOMEDICAL RESEARCH;
DATABASES, FACTUAL;
EUROPE;
EUROPEAN UNION;
GLOBAL HEALTH;
GOVERNMENT REGULATION;
HEALTH POLICY;
HUMANS;
ORPHAN DRUG PRODUCTION;
POLICY MAKING;
PREVALENCE;
RARE DISEASES;
REGISTRIES;
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EID: 85037615113
PISSN: 00652598
EISSN: 22148019
Source Type: Book Series
DOI: 10.1007/978-3-319-67144-4_30 Document Type: Chapter |
Times cited : (60)
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References (39)
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