Impact of a Patient-Facing Enhanced Genomic Results Report to Improve Understanding, Engagement, and Communication

Journal of Genetic Counseling

Volumn 27, Issue 2, 2018, Pages 358-369

  Williams, Janet L ^a   Rahm, Alanna Kulchak ^a   Zallen, Doris T ^b   Stuckey, Heather ^c   Fultz, Kara ^d   Fan, Audrey L ^e   Bonhag, Michele ^f   Feldman, Lynn ^g   Segal, Michael M ^g   Williams, Marc S ^a  

^a GENOMIC MEDICINE INSTITUTE   (United States)

^b VIRGINIA POLYTECHNIC INSTITUTE AND STATE UNIVERSITY   (United States)

^c PENN STATE COLLEGE OF MEDICINE   (United States)

^d Department of Health ^*  (United States)

^e Genome Medical   (United States)

^f Chase Group Ltd   (United States)

^g SimulConsult Inc   (United States)

Author keywords

Clinical decision support genomics; Genetic testing reports; Mixed methods; Patient centered outcomes; Rare disease

Indexed keywords

AUTISM; CHILD; CHILD PARENT RELATION; ELECTRONIC HEALTH RECORD; FEMALE; GENETIC SCREENING; GENETICS; GENOMICS; HUMAN; INTERPERSONAL COMMUNICATION; MALE; PATIENT CARE; PATIENT SATISFACTION; PRESCHOOL CHILD; PROSPECTIVE STUDY; PSYCHOLOGY; QUESTIONNAIRE;

AUTISM SPECTRUM DISORDER; CHILD; CHILD, PRESCHOOL; COMMUNICATION; ELECTRONIC HEALTH RECORDS; FEMALE; GENETIC TESTING; GENOMICS; HUMANS; MALE; PARENTS; PATIENT SATISFACTION; PATIENT-CENTERED CARE; PROSPECTIVE STUDIES; SURVEYS AND QUESTIONNAIRES;

EID: 85036553089     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-017-0176-6     Document Type: Article

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