Identifying palliative care needs in people with dementia

Current Opinion in Supportive and Palliative Care

Volumn 11, Issue 4, 2017, Pages 328-333

  Lloyd Williams, Mari ^a   Mogan, Caroline ^a   Dening, Karen Harrison ^a  

^a UNIVERSITY OF LIVERPOOL   (United Kingdom)

Author keywords

advanced care planning; community; dementia; hospice; palliative care

Indexed keywords

ADVANCE CARE PLANNING; DEMENTIA; HUMAN; ORGANIZATION AND MANAGEMENT; PALLIATIVE THERAPY; TERMINAL CARE;

ADVANCE CARE PLANNING; DEMENTIA; HUMANS; PALLIATIVE CARE; TERMINAL CARE;

EID: 85033788506     PISSN: 17514258     EISSN: 17514266     Source Type: Journal    
DOI: 10.1097/SPC.0000000000000295     Document Type: Review

References (28)

1. Davies E, Higginson IJ. Better palliative care for older people. Europe: World Health Organisation; 2004.
2. van der Steen JT, Radbruch L, Hertogh CM, et al. White paper defining optimal palliative care in older people with dementia: A Delphi study and recommendations from the European Association for Palliative Care. Palliative Medicine 2014; 28:197-209.
3. Lloyd-Williams M, Abba K, Crowther J. Supportive and palliative care for patients with chronic mental illness including dementia. Curr Opin Support Palliat Care 2014; 8:303-307.
4. Crowther J, Wilson KC, Horton S, Lloyd-Williams M. Compassion in healthcare-lessons from a qualitative study of the end of life care of people with dementia. J R Soc Med 2013; 106:492-497.
5. Crowther J, Wilson KC, Horton S, Lloyd-Williams M. Palliative care for dementia-Time to think again? QJM 2013; 106:491-494.
6. Department of Health. End of life care strategy. London: Department of Health; 2008.
7. Department of Health. Living well with dementia: A national dementia strategy. London: Department of Health; 2009.
8. Department of Health. Prime ministers challenge on dementia: delivering major improvements in dementia care and research by 2015. London: Department of Health; 2012.
9. Harrison Dening K, Jones L, Sampson EL. Advance care planning in dementia: A review. Int Psychogeriatr 2011; 23:1535-1551.
10. Hirakawa Y, Chiang C, Aoyama A. A qualitative study on barriers to achieving high-quality, community-based integrated dementia care. J Rural Med 2017; 12:28-32.
11. Lopez RP, Mitchell SL, Givens JL. Preventing burdensome transitions of nursing home residents with advanced dementia: its more than advance directives. J Palliat Med 2017. [Epub ahead of print]
12. Harrison Dening K, King M, Jones L, et al. Advance care planning in dementia: do family carers know the treatment preferences of people with early dementia? PLoS One 2016; 11:e0161142.
13. Harrison Dening K, King M, Jones L, Sampson EL. Healthcare decisionmaking: past, present and future, in light of a diagnosis of dementia. Int J Palliat Nurs 2017; 23:4-11.
14. Shanley C, Fetherstonhaugh D, McAuliffe L, et al. Providing support to surrogate decision-makers for people living with dementia: Healthcare professional. Organisational and community responsibilities. Health Social Care Commun 2017. [Epub ahead of print]
15. Ampe S, Sevenants A, Smets T, et al. Advance care planning for nursing home residents with dementia: influence of we DECide on policy and practice. Patient Educ Couns 2017; 100:139-146.
16. Ampe S, Sevenants A, Coppend E, et al. Study protocol; for we DECide: implementation of advance care planning for nursing home residents with dementia. J Adv Nurs 2015; 71:1156-1168.
17. Amador S, Goodman C, Robinson L, Sampson EL; SEED Research Team UK. End-of-Life care services in dementia, initiatives and sustainability: results of a national on-line survey.BMJSupportive Palliat Care 2016. [Epub ahead of print]
18. Ankuda CK, Mitchell SL, Gozalo P, et al. Asociation of physician specialty with hospice referral for hospitalized nursing home patients with advanced dementia. J Am Geriatric Soc 2017. [Epub ahead of print]
19. Wladkowski SP. Dementia caregivers and live discharge from hospice: what happens when hospice leaves? J Geronol Social Work 2017; 60:138-154.
20. Oud L. Predictors of transition to hospice care among hospitalized older adults with a diagnosis of dementia in Texas: A population based study. J Clin Med Res 2017; 9:23-29.
21. Department of Health. Improving care for people at the end of their life. London: Department of Health; 2013.
22. Gysels M, Johnston B, Bausewein C, Petkova H. What influences the place of care and death in people with advanced dementia? Eur J Palliat Care 2015; 22:58-63.
23. Raijmakers N, de Veer AJ, Zwaan R, et al. Which patients die in their preferred place? A secondary analysis of questionnaire data from bereaved relatives. Palliat Med 2017. [Epub ahead of print]
24. Lethin C, Leino-Kilpi H, Martin Soto M, et al. Formal support for informal caregivers to older persons with dementia through the course of the disease: An exploratory, cross-sectional study. BMC 2016; 16:32.
25. Cassel BJ, Kerr KM, McClish DK, et al. Effect of a Home-Based Palliative Care Program on Healthcare Use and Costs. J Am Geriatr Soc 2016; 64:2288-2295.
26. Rosenwax L, Spilsbury K, Arendts G, et al. Community-based palliative care is associated with reduced emergency department use by people with dementia in their last year of life: A retrospective cohort study. Palliat Med 2015; 29:727-736.
27. Mogan CE, Lloyd-Williams M, Harison Dening K, Dowrick C. The challenges and facilitators of living and dying at home with dementia: A narrative synthesis (in press)
28. Anderson E, Schellinger S. Upstream adventures: initial results from a clinical trial of early palliative care, delivered in the community by trained lay persons. J Pain Symp Manag 2016; 51:348-349.