Multicausal systems ask for multicausal approaches: A network perspective on subjective well-being in individuals with autism spectrum disorder

Autism

Volumn 21, Issue 8, 2017, Pages 960-971

  Deserno, Marie K ^a,b   Borsboom, Denny ^b   Begeer, Sander ^c   Geurts, Hilde M ^a,b  

^a Dr Leo Kannerhuis Centre for Autism   (Netherlands)

^b UNIVERSITY OF AMSTERDAM   (Netherlands)

^c VU UNIVERSITY AMSTERDAM   (Netherlands)

Author keywords

autism; network analysis; person environment system; subjective well being

Indexed keywords

ADULT; ARTICLE; AUTISM; FEMALE; HUMAN; INTELLIGENCE QUOTIENT; MALE; NORMAL HUMAN; PATIENT SATISFACTION; PRIORITY JOURNAL; QUESTIONNAIRE; RISK FACTOR; SENSITIVITY AND SPECIFICITY; SOCIAL INTERACTION; SOCIAL NETWORK; WELLBEING; ADOLESCENT; AGED; ATTITUDE TO HEALTH; CHILD; DAILY LIFE ACTIVITY; HAPPINESS; MIDDLE AGED; NETHERLANDS; PRESCHOOL CHILD; PSYCHOLOGY; SATISFACTION; VERY ELDERLY; YOUNG ADULT;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; ATTITUDE TO HEALTH; AUTISM SPECTRUM DISORDER; CHILD; CHILD, PRESCHOOL; FEMALE; HAPPINESS; HUMANS; MALE; MIDDLE AGED; NETHERLANDS; PERSONAL SATISFACTION; SURVEYS AND QUESTIONNAIRES; YOUNG ADULT;

EID: 85030219639     PISSN: 13623613     EISSN: 14617005     Source Type: Journal    
DOI: 10.1177/1362361316660309     Document Type: Article

References (60)

1. American Psychiatric Association (APA) (1994) Diagnostic and Statistical Manual of Mental Disorders. 4th ed. Arlington, VA: American Psychiatric Publishing.
2. Anderson DK, Liang JW, Lord C, (2014) Predicting young adult outcome among more and less cognitively able individuals with autism spectrum disorders. Journal of Child Psychology and Psychiatry 55: 485–494.
3. Barabási AL, Gulbahce N, Loscalzo J, (2011) Network medicine: A network-based approach to human disease. Nature Reviews Genetics 12(1): 56–68.
4. Bartels M, Boomsma DI, (2009) Born to be happy? The etiology of subjective well-being. Behavior Genetics 39: 605–615.
5. Bauminger N, Solomon M, Rogers SJ, (2010) Externalizing and internalizing behaviors in ASD. Autism Research 3: 101–112.
6. Begeer S, Wierda M, Venderbosch S, (2013) Allemaal Autisme, Allemaal Anders. De Bilt: Nederlandse Vereniging voor Autisme.
7. Billstedt E, Gillberg C, Gillberg C, (2005) Autism after adolescence: population-based 13- to 22-year follow-up study of 120 individuals with autism diagnosed in childhood. Journal of Autism and Developmental Disorders 35: 351–360.
8. Billstedt E, Gillberg IC, Gillberg C, (2011) Aspects of quality of life in adults diagnosed with autism in childhood: A population-based study. Autism 15: 7–20.
9. Borsboom D, Cramer AOJ, (2013) Network analysis: An integrative approach to the structure of psychopathology. Annual Review of Clinical Psychology 9: 91–121.
10. Bringmann LF, Lemmens LHJM, Huibers MJH. (2014) Revealing the dynamic network structure of the Beck Depression Inventory-II. Psychological Medicine 45: 747–757.
11. Burgess AF, Gutstein SE, (2007) Quality of life for people with autism: Raising the standard for evaluating successful outcomes. Child and Adolescent Mental Health 12: 80–86.
12. Chiang HM, Wineman I, (2014) Factors associated with quality of life in individuals with autism spectrum disorders: A review of literature. Research in Autism Spectrum Disorders 8: 974–986.
13. Costantini G, Epskamp S, Borsboom D. (2014) State of the aRt personality research: A tutorial on network analysis of personality data in R. Journal of Research in Personality 54: 13–29.
14. Cramer AOJ, Van der Sluis S, Noordhof A. (2012) Dimensions of normal personality as networks in search of equilibrium: You can’t like parties if you don’t like people. European Journal of Personality 26: 414–431.
15. Cramer AOJ, Waldorp LJ, Van der Maas HL. (2010) Comorbidity: A network perspective. Behavioral and Brain Sciences 33: 137–150.
16. De Vries M, Geurts HM, (2015) Influence of autism traits and executive functioning on quality of life in children with an autism spectrum disorder. Journal of Autism and Developmental Disorders 45(9): 2734–2743.
17. Epskamp S, Cramer AOJ, Waldorp LJ. (2012) Qgraph: network visualizations of relationships in psychometric data. Journal of Statistical Software 48: 1–18.
18. Fried EI, Nesse RM, Zivin K. (2014) Depression is more than the sum score of its parts: Individual DSM symptoms have different risk factors. Psychological Medicine 44(10): 2067–2076.
19. Friedman J, Hastie T, Tibshirani R, (2010) Regularization paths for generalized linear models via coordinate descent. Journal of Statistical Software 33: 1–22.
20. Fruchterman TM, Reingold EM, (1991) Graph drawing by force-directed placement. Software: Practice & Experience 21: 1129–1164.
21. Gillespie-Lynch K, Sepeta L, Wang Y. (2012) Early childhood predictors of the social competence of adults with autism. Journal of Autism and Developmental Disorders 42: 161–174.
22. Henninger NA, Taylor JL, (2013) Outcomes in adults with autism spectrum disorders: A historical perspective. Autism 17: 103–116.
23. Hoekstra RA, Bartels M, Cath DC. (2008) Factor structure, reliability and criterion validity of the Autism-Spectrum Quotient (AQ): A study in Dutch population and patient groups. Journal of Autism and Developmental Disorders 38(8): 1555–1566.
24. Howlin P, Goode S, Hutton J. (2004) Adult outcome for children with autism. Journal of Child Psychology and Psychiatry 45: 212–229.
25. Howlin P, Savage S, Moss P. (2014) Cognitive and language skills in adults with autism: A 40-year follow-up. Journal of Child Psychology and Psychiatry 55: 49–58.
26. Ikeda E, Hinckson E, Krägeloh C, (2014) Assessment of quality of life in children and youth with autism spectrum disorder: A critical review. Quality of Life Research 23: 1069–1085.
27. Ingersoll B, Hambrick DZ, (2011) The relationship between the broader autism phenotype, child severity, and stress and depression in parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders 5: 337–344.
28. Joseph RM, Tager-Flusberg H, Lord C, (2002) Cognitive profiles and social-communicative functioning in children with autism spectrum disorder. Journal of Child Psychology and Psychiatry 43: 807–821.
29. Kats D, Payne L, Parlier M. (2013) Prevalence of selected clinical problems in older adults with autism and intellectual disability. Journal of Neurodevelopmental Disorders 5: 27.
30. Kolaczyk ED, Csárdi G, (2014) Statistical Analysis of Network Data with R, vol. 65. Springer.
31. Kuhlthau K, Orlich F, Hall TA. (2010) Health-related quality of life in children with autism spectrum disorders: Results from the autism treatment network. Journal of Autism and Developmental Disorders 40: 721–729.
32. Licciardone JC, Smith-Barbaro P, Coleridge ST, (2001) Use of the Internet as a resource for consumer health information: Results of the second osteopathic survey of health care in America (OSTEOSURV-II). Journal of Medical Internet Research 3(4): e31.
33. Lord C, Schopler E, Revicki D, (1982) Sex differences in autism. Journal of Autism and Developmental Disorders 12: 317–330.
34. Lux V, Kendler KS, (2010) Deconstructing major depression: a validation study of the DSM-IV symptomatic criteria. Psychological Medicine 40(10): 1679–1690.
35. Maenner MJ, Greenberg JS, Mailick MR, (2015) Association between low IQ scores and early mortality in men and women: Evidence from a population-based cohort study. American Journal on Intellectual and Developmental Disabilities 120: 244–257.
36. Magiati I, Tay XW, Howlin P, (2014) Cognitive, language, social and behavioural outcomes in adults with autism spectrum disorders: A systematic review of longitudinal follow-up studies in adulthood. Clinical Psychology Review 34: 73–86.
37. Meinshausen N, Bühlmann P, (2006) High-dimensional graphs and variable selection with the lasso. The Annals of Statistics 34(3): 1436–1462.
38. Messinger D, Young GS, Ozonoff S. (2013) Beyond autism: a baby siblings research consortium study of high-risk children at three years of age. Journal of the American Academy of Child & Adolescent Psychiatry 52: 300–308.
39. Miller I, Tuchman R, (2011) Epileptic disorders. In: Howlin P, Charman T, Ghaziuddin M, (eds) The Sage Handbook of Developmental Disorders. London: SAGE Publishing, pp.415–432.
40. Newman M, (2010) Networks: An Introduction. New York: Oxford University Press.
41. Opsahl T, Agneessens F, Skvoretz J, (2010) Node centrality in weighted networks: Generalizing degree and shortest paths. Social Networks 32: 245–251.
42. Paulhus DL, Lysy DC, Yik MS, (1998) Self-report measures of intelligence: are they useful as proxy IQ tests? Journal of Personality 66(4): 525–554.
43. Petalas MA, Hastings RP, Nash S. (2012) Psychological adjustment and sibling relationships in siblings of children with autism spectrum disorders: Environmental stressors and the broad autism phenotype. Research in Autism Spectrum Disorders 6: 546–555.
44. Pinquart M, Sörensen S, (2000) Influences of socioeconomic status, social network, and competence on subjective well-being in later life: A meta-analysis. Psychology and Aging 15: 187–224.
45. Renty JO, Roeyers H, (2006) Quality of life in high-functioning adults with autism spectrum disorder: The predictive value of disability and support characteristics. Autism 10: 511–524.
46. Robinaugh DJ, LeBlanc NJ, Vuletich HA. (2014) Network analysis of persistent complex bereavement disorder in conjugally bereaved adults. Journal of Abnormal Psychology 123(3): 510–522.
47. Ruble LA, Dalrymple NJ, (1996) An alternative view of outcome in autism. Focus on Autism and Other Developmental Disabilities 11: 3–14.
48. Ruggeri M, Bisoffi G, Fontecedro L. (2001) Subjective and objective dimensions of quality of life in psychiatric patients: A factor analytical approach. The British Journal of Psychiatry 178: 268–275.
49. Sheldrick RC, Neger EN, Shipman D. (2012) Quality of life of adolescents with autism spectrum disorders: Concordance among adolescents’ self-reports, parents’ reports, and parents’ proxy reports. Quality of Life Research 21: 53–57.
50. Smith G, (2008) Does gender influence online survey participation? A record-linkage analysis of university faculty online survey response behavior. Available at: http://www.eric.ed.gov/PDFS/ED501717.pdf (accessed 20 November 2015).
51. Stokes M, Newton N, Kaur A, (2007) Stalking, and social and romantic functioning among adolescents and adults with autism spectrum disorder. Journal of Autism and Developmental Disorders 37: 1969–1986.
52. Tibshirani R, (1996) Regression shrinkage and selection via the lasso. Journal of the Royal Statistical Society: Series B—Methodological 267–288.
53. Van Borkulo CD, Borsboom D, Epskamp S. (2014) A new method for constructing networks from binary data. Scientific Reports 2, Article No. 5918.
54. Van Heijst BFC, Geurts HM, (2015) Quality of life in autism across the lifespan: a meta-analysis. Autism 19: 158–167.
55. Volkmar FR, Szatmari P, Sparrow SS, (1993) Sex differences in pervasive developmental disorders. Journal of Autism and Developmental Disorders 23: 579–591.
56. Walsh CE, Mulder E, Tudor ME, (2013) Predictors of parent stress in a sample of children with ASD: pain, problem behavior, and parental coping. Research in Autism Spectrum Disorders 7: 256–264.
57. White SW, Roberson-Nay R, (2009) Anxiety, social deficits, and loneliness in youth with autism spectrum disorders. Journal of Autism and Developmental Disorders 39: 1006–1013.
58. Whitehouse AJ, Watt HJ, Line EA. (2009) Adult psychosocial outcomes of children with specific language impairment, pragmatic language impairment and autism. International Journal of Language & Communication Disorders 44: 511–528.
59. Wigman JTW, Van Os J, Borsboom D. (2015) Exploring the underlying structure of mental disorder: Cross-diagnostic differences and similarities from a network perspective using both a top-down and bottom-up approach. Psychological Medicine 45(11): 2375–2387.
60. Woodman AC, Smith LE, Greenberg JS. (2016) Contextual factors predict patterns of change in functioning over 10 years among adolescents and adults with autism spectrum disorders. Journal of Autism and Developmental Disorders 46(1): 176–189.