Service and wider societal costs of very young children with autism in the UK

Journal of Autism and Developmental Disorders

Volumn 42, Issue 5, 2012, Pages 797-804

  Barrett, Barbara ^a   Byford, Sarah ^a   Sharac, Jessica ^a   Hudry, Kristelle ^b,g   Leadbitter, Kathy ^c   Temple, Kathryn ^d   Aldred, Catherine ^e   Slonims, Vicky ^f   Green, Jonathan ^c   Bourne, Katy ^c   Blazey, Laura ^c   Holt, Clare ^c   Kapadia, Dharmi ^c   MacDonald, Wendy ^c   Pickles, Andrew ^c   White, Lydia ^c   Houghton, Tori ^e   Taylor, Carol ^e   Cutress, Anna ^d   Leach, Sue ^d   Le Couteur, Ann ^d   McConachie, Helen ^d   Barron, Sam ^h   Colmer, Ruth ^h   Randles, Sarah ^h   Beggs, Karen ⁱ   Collino, Julia ⁱ   Howlin, Pat ^a   Charman, Tony ^g   more..

^a KING'S COLLEGE LONDON   (United Kingdom)

^b UNIVERSITY COLLEGE LONDON   (United Kingdom)

^c UNIVERSITY OF MANCHESTER   (United Kingdom)

^d NEWCASTLE UNIVERSITY   (United Kingdom)

^e Stockport Primary Care Trust   (United Kingdom)

^f GUY'S AND ST THOMAS' NHS FOUNDATION TRUST   (United Kingdom)

^g UNIVERSITY OF LONDON   (United Kingdom)

^h North Tyneside PCT   (United Kingdom)

ⁱ Southwark PCT   (United Kingdom)

Author keywords

Autism; Cost; Service use; Very young children

Indexed keywords

ARTICLE; AUTISM; CHILD; COST OF ILLNESS; DISEASE SEVERITY; ECONOMIC ASPECT; FAMILY FUNCTIONING; FEMALE; HEALTH CARE COST; HEALTH CARE UTILIZATION; HEALTH SERVICE; HOSPITAL SERVICE; HUMAN; MAJOR CLINICAL STUDY; MALE; PEDIATRICIAN; PRESCHOOL CHILD; PRIORITY JOURNAL; PRODUCTIVITY; SOCIAL WELFARE; SPEECH THERAPY;

EID: 85028103924     PISSN: 01623257     EISSN: 15733432     Source Type: Journal    
DOI: 10.1007/s10803-011-1306-x     Document Type: Article

References (22)

1. Barber, J. A., & Thompson, S. G. (1998). Analysis and interpretation of cost data in randomised controlled trials: Review of published studies. British Medical Journal, 317, 1195-1200. (Pubitemid 28488509)
2. Blough, D. K., Madden, C. W., & Hornbrook, M. C. (1999). Modeling risk using generalized linear models. Journal of Health Economics, 18, 153-171. (Pubitemid 29052479)
3. British Medical Association and Royal Pharmaceutical Society of Great Britain. (2007). British National Formulary. London: BMJ Books/Pharmaceutical Press.
4. Byford, S., Barrett, B., Roberts, C., Wilkinson, P., Dubicka, B., Kelvin, R. G., et al. (2007). Cost-effectiveness of selective serotonin reuptake inhibitors and routine specialist care with and without cognitive behavioural therapy in adolescents with major depression. British Journal of Psychiatry, 191, 521-527. (Pubitemid 350273213)
5. Byford, S., Fiander, M., Torgerson, D. J., Barber, J. A., Thompson, S. G., Burns, T., et al. (2000). Cost-effectiveness of intensive v. standard case management for severe psychotic illness. UK700 case management trial. British Journal of Psychiatry, 176, 537-543. (Pubitemid 30353654)
6. Charman, T., & Baird, G. (2002). Assessment and diagnosis of autism spectrum disorders in pre-school years. Journal of Child Psychology and Psychiatry, 43, 289-305. (Pubitemid 36939219)
7. Curtis, L. (2007). Unit costs of health and social care. Canterbury: Personal Social Services Research Unit.
8. Daycare Trust. (2008). Childcare costs survey. London: Daycare Trust.
9. Department of Health. (2004). National service framework for children, young people and maternity services autism exemplar. London: Department of Health.
10. Department of Health. (2008). NHS reference costs. London: Department of Health.
11. Flanders, S. C., Engelhart, L., Whitworth, J., Hussein, M. A., Vanderpoel, D. R., & Sandman, T. (2006). The economic burden of pervasive developmental disorders in a privately insured population. Managed Care Interface, 19, 39-45. (Pubitemid 44273492)
12. Green, J., Charman, T., McConachie, H., Aldred, C., Slonims, V., Howlin, P., et al. (2010). Parent-mediated communication-focused treatment in children with autism (PACT): A randomised controlled trial. Lancet, 375, 2152-2160.
13. Knapp, M., Romeo, R., & Beecham, J. (2009). Economic cost of autism in the UK. Autism, 13, 317-336.
14. Koopmanschap, M. A., & Rutten, F. (1996). A practical guide for calculating indirect costs of disease. Pharmacoeconomics, 10, 460-466. (Pubitemid 26359874)
15. Le Couteur, A. (2003). National autism plan for children (NAP-C). London: The National Autistic Society.
16. Liptak, G. S., Benzoni, L. B., Mruzek, D. W., Nolan, K. W., Thingvoll, M. A., Wade, C. M., et al. (2008). Disparities in diagnosis and access to health services for children with autism: data from the National Survey of Children's Health. Journal of Developmental and Behavioral Pediatrics, 29, 152-160.
17. Lord, C., Risi, S., Lambrecht, L., Cook, E. H., Leventhal, B. L., DiLavore, P. C., et al. (2000). The autism diagnostic observation schedule - Generic: A standard measure of social and communication deficits associated with the spectrum of autism. Journal of Autism and Developmental Disorders, 30, 205-223.
18. Lord, C., Rutter, M., & Le Couteur, A. (1994). Autism diagnostic interview-revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders. Journal of Autism and Developmental Disorders, 24, 659-685. (Pubitemid 24309810)
19. Mandell, D. S., Cao, J., Ittenbach, R., & Pinto-Martin, J. (2006). Medicaid expenditures for children with autism spectrum disorders: 1994 to 1999. Journal of Autism and Developmental Disorders, 36, 475-485. (Pubitemid 43854344)
20. Mullen, E. M. (1995). Mullen scales of early learning. Circle Pines, MN: American Guidance Service.
21. Office for National Statistics. (2009). Key population and vital statistics 2007. Newport: Office for National Statistics.
22. Thomas, K. C., Ellis, A. R., McLaurin, C., Daniels, J., & Morrissey, J. P. (2007). Access to care for autism-related services. Journal of Autism and Developmental Disorders, 37, 1902-1912. (Pubitemid 47609348)